ArticlePDF Available

The legal role of medical professionals in decisions to withhold or withdraw life-sustaining treatment: Part 3 (Victoria)

Authors:

Abstract

This is the final article in a series of three that examines the legal role of medical professionals in decisions to withhold or withdraw life-sustaining treatment from adults who lack capacity. This article considers the position in Victoria. A review of the law in this State reveals that medical professionals play significant legal roles in these decisions. However, the law is problematic in a number of respects and this is likely to impede medical professionals' legal knowledge in this area. The article examines the level of training that medical professionals receive on issues such as refusal of treatment certificates and substitute decision-making, and the available empirical evidence as to the state of medical professionals' knowledge of the law at the end of life. It concludes that there are gaps in legal knowledge and that law reform is needed in Victoria. The article also draws together themes from the series as a whole, including conclusions about the need for more and better medical education and about law reform generally.
This is the author’s version of a work that was submitted/accepted for pub-
lication in the following source:
Willmott, Lindy,White, Benjamin P., Parker, Malcolm, & Cartwright,
Colleen (2011) The legal role of medical professionals in decisions to with-
hold or withdraw life-sustaining treatment : part 3 (Victoria). Journal of
Law and Medicine,18(4), pp. 773-797.
This file was downloaded from:
c
Copyright 2011 Thomson Reuters (Australia/NZ)
Notice:Changes introduced as a result of publishing processes such as
copy-editing and formatting may not be reflected in this document. For a
definitive version of this work, please refer to the published source:
The legal role of medical professionals in
decisions to withhold or withdraw life-
sustaining treatment: Part 3 (Victoria)
Lindy Willmott, Ben White, Malcolm Parker, Colleen Cartwright
This is the final article in a series of three that examines the legal role of
medical professionals in decisions to withhold or withdraw life-sustaining
treatment from adults who lack capacity. This article considers the position
in Victoria. A review of the law in this State reveals that medical
professionals play significant legal roles in these decisions. However, the
law is problematic in a number of respects and this is likely to impede
medical professionals’ legal knowledge in this area. The article examines
the level of training that medical professionals receive on issues such as
refusal of treatment certificates and substitute decision-making, and the
available empirical evidence as to the state of medical professionals’
knowledge of the law at the end of life. It concludes that there are gaps in
legal knowledge and that law reform is needed in Victoria. The article also
draws together themes from the series as a whole, including conclusions
about the need for more and better medical education and about law reform
generally.
INTRODUCTION
This is the third and final article of this series which examines the legal role of medical professionals
in decisions to withhold or withdraw life-sustaining treatment from adults who lack capacity. The
focus of this article is Victoria. In line with the goals of this series, this article argues that medical
professionals play a significant legal role in these decisions, but that the state of the law in this area is
problematic, and this contributes to deficits in the legal knowledge of medical professionals.
The article begins by examining the relevant Victorian legal framework, specifically the
Guardianship and Administration Act 1986 (Vic) and the Medical Treatment Act 1988 (Vic). It
concludes that medical professionals play significant legal roles in this area and also that there are
problems with the law that are likely to impede medical professionals knowing and understanding it.
It then considers what medical professionals do know of Victorian law. The formal training in
medical school and beyond is considered, along with some limited empirical evidence which suggests
that medical professionals’ knowledge in this area is lacking.
Lindy Willmott, BCom, LLB (Hons) (UQ), LLM (Cantab), Professor, Health Law Research Program, Faculty of Law,
Queensland University of Technology, part-time member of the Queensland Civil and Administrative Tribunal; Ben White,
LLB (Hons) (QUT), DPhil (Oxon), Associate Professor, Health Law Research Program, Faculty of Law, Queensland
University of Technology; Malcolm Parker, MBBS (UQ), M Litt (Hons) (UNE), M Health & Med Law (UMelb), MD (UQ),
Associate Professor of Medical Ethics, University of Queensland, President, Australasian Association of Bioethics and Health
Law; Colleen Cartwright, B Soc Wk (Hons) (UQ), MPH (UQ), PhD (UQ), Professor, Aged Services, Southern Cross
University. The views expressed in this article are the authors’ own and not those of the organisations to which they belong.
The authors wish to thank Dr Malcolm Smith and Shih-Ning Then, who provided research assistance for this article, and Phil
Grano (Legal Officer, Office of the Public Advocate (Vic)), John Chesterman (Manager of Policy and Education, Office of the
Public Advocate (Vic)) and Michelle Howard (Member, Queensland Civil and Administrative Tribunal) for their comments on
an earlier version of this article. Any errors, of course, remain the responsibility of the authors. The authors also acknowledge
funding from the Australian Research Council’s Linkage Project Scheme (LP0990329) and from the project’s seven partner
organisations: Queensland Civil and Administrative Tribunal, Office of the Adult Guardian (Qld), Office of the Public
Advocate (Qld), New South Wales Guardianship Tribunal, New South Wales Trustee and Guardian (The Public Guardian),
Victorian Civil and Administrative Tribunal and Office of the Public Advocate (Vic).
Correspondence to: l.willmott@qut.edu.au
Willmott, White, Parker and Cartwright
The final part of this article considers the problems identified earlier in relation to Victorian law and
suggests reforms. It also concludes the series of articles as a whole and so also makes some
observations about all three jurisdictions. In particular, the complexity of the law is discussed and
there are also some recommendations as to how education might be improved to enhance medical
professionals’ understanding of the law in this area.
THE LAW IN VICTORIA
<DIV>MEDICAL CONTEXT AND LEGAL DECISION-MAKING MECHANISMS
The first article1 in this series provided the foundation for how the law in each of the three
jurisdictions would be examined. The legal position depends on two variables. The first variable that
a medical professional must consider is the medical context, which includes the condition of the adult,
and three categories of context were devised as possibly arising in relation to decisions to withhold or
withdraw life-sustaining treatment. The first is where the medical professional would consider it
medically appropriate to offer life-sustaining treatment to an adult. The second is where the medical
professional regards life-sustaining treatment to be futile. The third category is where an urgent
decision about whether or not to provide life-sustaining treatment is required. Each of these three
categories was illustrated by an example in the first article.
Having determined the relevant medical context, the medical professional then needs to consider
the appropriate legal decision-making mechanism. These mechanisms could include where the adult
has made the decision herself or himself in advance, where an adult has appointed an agent to make
the decision or where the Victorian Civil and Administrative Tribunal (VCAT) appoints a guardian.
These medical contexts and their corresponding legal decision-making mechanisms in Victoria are
considered below.
<DIV>GUARDIANSHIP LAW IN VICTORIA
<subdiv>The legal framework: An overview
The relevant legislation in Victoria is the Guardianship and Administration Act 1986 (Vic) and the
Medical Treatment Act 1988 (Vic). The Guardianship and Administration Act 1986 (Vic) deals
generally with decision-making for adults who lack capacity. It provides for the appointment of a
guardian by VCAT on a plenary basis or on a more limited basis, eg, to consent to “health care” that
is in the adult’s best interests. The legislation also facilitates the appointment by an adult of an
enduring guardian. Further, the legislation provides for a “person responsible” to consent to “medical
or dental treatment”. “Health care” is not defined in the legislation but the relevant aspect of “medical
treatment” is defined to include:
<blockquote>
any medical or surgical procedure, operation or examination and any prophylactic, palliative or
rehabilitative care ... normally carried out by, or under, the supervision of a registered practitioner.2
</blockquote>
This definition does not refer to refusing life-sustaining treatment and neither does the Guardianship
and Administration Act 1986 (Vic) specifically address this issue. Instead, the Medical Treatment Act
1988 (Vic) deals with the refusal of treatment, and sets out a mechanism for a competent adult to
complete a refusal of treatment certificate. That legislation also facilitates that refusal being given by
an agent who has been appointed by the adult under an enduring power of attorney (medical
treatment) pursuant to the Act, or by a guardian who has been conferred with power under an
“appropriate” order of VCAT.3 The Medical Treatment Act 1988 (Vic) defines “medical treatment” in
the following terms:4
1 White B, Willmott L, Trowse P, Parker M and Cartwright C, ‘The Legal Role of Medical Professionals in Decisions to
Withhold or Withdraw Life-sustaining Treatment: Part 1 (New South Wales)’ (2011) 18 JLM 498 at 503-506.
2 Guardianship and Administration Act 1986 (Vic), s 3(1).
3 Medical Treatment Act 1988 (Vic), s 5A(1)(b).
4 Medical Treatment Act 1988 (Vic), s 3.
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
<blockquote>
medical treatment means the carrying out of –
(a) an operation; or
(b) the administration of a drug or other like substance; or
(c) any other medical procedure –
but does not include palliative care
</blockquote>
The term “palliative care” is also defined as including:
<blockquote>
(a) the provision of reasonable medical procedures for the relief of pain, suffering and discomfort; or
(b) the reasonable provision of food and water.5
</blockquote>
This area of law is presently under review by the Victorian Law Reform Commission (VLRC) as
part of its Guardianship Review. The VLRC’s terms of reference include:6
<blockquote>
the appropriateness of the current requirements for and criteria pertaining to, the treatment of a represented
person under the Act, including a consideration of the existing provisions dealing with medical research,
non-medical research, medical and other treatment, the appropriateness of the existing “person responsible”
model in ... the Act and a consideration of any area of overlap between the operation of the Act and the
Medical Treatment Act 1988
</blockquote>
However, issues relating to end-of-life decision-making other than those that are currently dealt with
by the Medical Treatment Act 1988 (Vic) are expressly excluded from the review.7 The Victorian
Parliament Law Reform Committee has also recently completed a review of some relevance to this
article on powers of attorney. That inquiry included consideration of enduring guardians appointed
under the Guardianship and Administration Act 1986 (Vic), although enduring powers of attorney
(medical treatment) under the Medical Treatment Act 1988 (Vic) were not included in the inquiry’s
terms of reference.8
<subdiv>Capacity
Decisions about health care only need to be made on behalf of an adult if he or she lacks capacity.
Although not expressly stated in either Victorian statute, it is likely that the common law presumption
that an adult has capacity will be applied.9
There are four different terms used for determining when an adult will have or lack capacity. Part
4A of the Guardianship and Administration Act 1986 (Vic), which provides for a person responsible
to give consent to medical or dental treatment, applies when an adult “is incapable of giving
consent”.10 This arises when:11
<blockquote>
(a) the person is incapable of understanding the general nature and effect of the proposed treatment; or
5 These terms were subject to judicial consideration in Re BWV; Ex parte Gardner (2003) 7 VR 487.
6 Victorian Law Reform Commission, Guardianship: Information Paper (March 2010) p 6.
7 Victorian Law Reform Commission, n 6, p 6.
8 Victorian Parliament Law Reform Committee, Inquiry into Powers of Attorney (24 August 2010) pp iv, 3.
9 See eg AC (Guardianship) [2009] VCAT 753 at [33].
10 Guardianship and Administration Act (Vic), s 36(1)(b).
11 Guardianship and Administration Act (Vic), s 36(2).
Willmott, White, Parker and Cartwright
(b) the person is incapable of indicating whether or not he or she consents or does not consent to the
carrying out of the proposed procedure or treatment.
</blockquote>
Under the Medical Treatment Act 1988 (Vic), a person must be of “sound mind” to be able to
complete a refusal of treatment certificate12 but there is no express requirement that a person must
have lost capacity before the certificate can come into effect.13 The position is different for an agent
appointed under that Act as it is only once the adult “becomes incompetent” that the agent is able to
complete a refusal of treatment certificate.14 This term is not defined.
Finally, for a guardian to be appointed by VCAT15 or for an enduring guardian’s power to
commence,16 the adult must be “unable by reason of [the/a] disability to make reasonable judgments”
in relation to the decisions that need to be made. Disability is defined as meaning “intellectual
impairment, mental disorder, brain injury, physical disability or dementia”.17
<group>Role of medical professional
A medical professional will need to assess an adult’s capacity in relation to the relevant decision,
which here is to refuse life-sustaining treatment. To determine whether an adult lacks this capacity
(except where a guardian has been appointed by VCAT for the matter as then a finding of incapacity
has already been made), the medical professional will need to select and apply the correct legal
definition outlined above depending on the decision-making mechanism that applies.
<subdiv>Category 1: Medical professional considers offering life-sustaining
treatment to be medically appropriate
The authors now turn to consider the three categories of medical context referred to above and the
relevant decision-making mechanisms that apply to each, beginning with those cases where the
medical professional considers that it is medically appropriate to offer life-sustaining treatment.
<group>The adult has completed a refusal of treatment certificate
While still of “sound mind”, an adult in Victoria is able to complete a refusal of treatment certificate.
The Medical Treatment Act 1988 (Vic) permits the refusal to extend to medical treatment generally,
or only to medical treatment of a particular kind.18 One limitation on an adult’s ability to refuse
treatment in such a certificate is the requirement that the refusal relate to a current condition of the
adult. This means that a refusal of treatment certificate cannot be completed in anticipation of
contracting a disease or illness or of suffering a sudden catastrophic injury.
<subgroup>Role of medical professional
Although the adult is the decision-maker herself or himself through the refusal of treatment
certificate, the medical professional has an important role to play in the completion of the certificate.
The certificate must be witnessed by a medical professional (and another person) who must be
satisfied that:19
12 Medical Treatment Act 1988 (Vic), s 5(1)(d).
13 Note that if common law advance directives continue to exist in Victoria (see discussion below), that potentially gives rise to
another test for capacity. The test for capacity at common law is discussed in White, Willmott, Trowse, Parker and Cartwright,
n 6 at 507.
14 Medical Treatment Act 1988 (Vic), s 5A(2)(b).
15 Guardianship and Administration Act 1986 (Vic), s 22(1)(b). To appoint a guardian, VCAT is also required to be satisfied
that the adult has a disability and is in need of a guardian: Guardianship and Administration Act 1986 (Vic), s 22(1). In relation
to this test, see Public Advocate v RCS (Guardianship) [2004] VCAT 1880, and see also XYZ v State Trustees Ltd (2006) 25
VAR 402; [2006] VSC 444 (although in relation to the appointment of an administrator).
16 Guardianship and Administration Act 1986 (Vic), s 35B(1)-(2).
17 Guardianship and Administration Act 1986 (Vic), s 3(1).
18 Medical Treatment Act 1988 (Vic), s 5.
19 Medical Treatment Act 1988 (Vic), s 5(1). Although s 5(1) refers to the certificate being “witnessed” by a medical
practitioner, the prescribed form refers to the medical practitioner “certifying” certain facts to be correct and makes provision
for the medical practitioner to “sign” the form.
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
the adult has clearly expressed a decision to refuse treatment for a current condition;
this decision has been made voluntarily and without inducement or compulsion;
the adult has been informed about her or his condition to enable a decision to be made about
treatment, and the adult appears to have understood this information; and
the adult is of sound mind and at least 18 years old.
Further, the medical professional would need to determine that the refusal of treatment certificate
applies to the situation that had arisen, that the certificate has not been cancelled,20 and that the adult’s
medical situation has not “changed to such an extent that the condition in relation to which the
certificate was given is no longer current”.21
<subgroup>Common law advance directives
Whether common law advance directives (which were examined in the first article of this series)22
continue to have force in Victoria remains uncertain. The Office of the Public Advocate appears to
take the view that advance directives would not be recognised by the common law.23 While the
position is not clear cut, the authors prefer the opposite view.
The statutory regime for refusing treatment as set out in the Medical Treatment Act 1988 (Vic) is
stated not to “affect any right of a person under any other law to refuse medical treatment”.24 It is not
clear what is meant by “other law” in this provision. It may be a reference to the common law right of
a competent adult to give a contemporaneous refusal of medical treatment. On a plain reading, it
would also appear to preserve an adult’s common law right to refuse treatment in advance of the
medical situation arising. This would mean that a decision made by a competent adult to refuse
treatment by way of a common law advance directive would continue to be binding on those who
provided treatment.
While the Medical Treatment Act 1988 (Vic) purports to retain common law rights, four
arguments can be advanced in favour of the view that the force of common law directives might be
negated because of the substitute decision-making regime established by the Guardianship and
Administration Act 1986 (Vic). First, the Guardianship and Administration Act 1986 (Vic) facilitates
a decision about medical treatment being made on behalf of a person who lacks capacity. The
Guardianship and Administration Act 1986 (Vic) requires the substitute decision-maker to take the
views of the adult (eg, as expressed in an advance directive) into account,25 but is not bound to make
a decision that is consistent with these views. Secondly, there is no express statement in the
Guardianship and Administration Act 1986 (Vic) or the Medical Treatment Act 1988 (Vic) that the
previously existing common law right of a competent person to refuse medical treatment through an
advance directive remains despite the enactment of the substitute decision-making regime by the
Guardianship and Administration Act 1986 (Vic). Thirdly, the consent regime established by the
Guardianship and Administration Act 1986 (Vic) provides that consent given under that Act has the
same effect as if “the patient had been capable of giving consent to the carrying out of the procedure
or consent”26 and the “procedure or treatment had been carried out with the consent of the patient”.27
20 Medical Treatment Act 1988 (Vic), s 7.
21 Medical Treatment Act 1988 (Vic), s 7(3).
22 White, Willmott, Trowse, Parker and Cartwright, n 6 at 508-509.
23 Office of the Public Advocate, Advocacy and Decision-making in Relation to Medical and Dental Treatment and Other
Health Care ([AQ: date? No date we could find]) at [6.5], http://www.publicadvocate.vic.gov.au/about-us/200/ viewed 11
November 2010: “In circumstances where a person when competent, indicated in some way (verbally or in writing in some
format) that they did not want particular treatment, including to be resuscitated, then this will be a common law advance
directive. In Victoria, it would seem to be that the common law regarding advance directives will be respected. However, once
a person is defined as incompetent, their advance directive holds a much weaker position.”
24 Medical Treatment Act 1988 (Vic), s 4.
25 Guardianship and Administration Act 1986 (Vic), ss 4(2)(c), 28(2)(e), 38(1)(a).
26 Guardianship and Administration Act 1986 (Vic), s 40(a).
27 Guardianship and Administration Act 1986 (Vic), s 40(b).
Willmott, White, Parker and Cartwright
Therefore, because an adult with capacity can override her or his prior advance directive, so too can a
substitute decision-maker who is granted the same powers. Fourthly, the Guardianship and
Administration Act 1986 (Vic) provides that a medical professional must not carry out treatment on
the basis of substitute consent if “a refusal of treatment is in force in accordance with [the Medical
Treatment Act 1988]”.28 Refusal of treatment, in this context, is likely to refer to the ways that
treatment can be refused as prescribed by that Act, rather than a reference to the common law. By
failing to refer to the common law, it could be argued that a common law advance directive would not
prevail over consent given under the Guardianship and Administration Act 1986 (Vic).
The alternative position, and one that the authors consider is the better view, is that the common
law governing advance directives still applies, notwithstanding the implementation of the
guardianship regime. This view can be supported on two bases. First, there is a presumption that
express words or necessary implication are required before a statute is regarded as abolishing
previously held common law rights.29 This is particularly so given the fundamental nature of the right
to bodily integrity that is embodied in an ability to make an advance directive. Yet, express words are
not used in the Guardianship and Administration Act 1986 (Vic) to suggest that the common law
right to make an advance directive that refuses treatment is abolished by the statute and neither is
such an outcome required by necessary implication. Secondly, the Medical Treatment Act 1988 (Vic)
is legislation that deals specifically with the refusal of treatment, and contains an express statement
about other rights being unaffected by the Act. The Guardianship and Administration Act 1986 (Vic)
deals more generally with guardianship issues and not specifically with the refusal of treatment.
Application of the statutory principle that the specific should prevail over the general (generalia
specialibus non derogant)30 would mean that the specific provision in the Medical Treatment Act 1988
(Vic) preserving other rights to refuse medical treatment would prevail.
Role of medical professional
If the first interpretation outlined above is correct, the adult is not able to give a legally binding
common law advance directive and a medical professional will not need to consider this possibility.
However, if the second interpretation is correct and the common law continues to operate, the medical
professional will need to know this and also fulfil the same roles discussed in the first article.31
<group>A person has been appointed by the Victorian Civil and Administrative
Tribunal to make health care decisions on the adult’s behalf
VCAT is empowered to appoint a guardian on behalf of an adult who lacks capacity.32 The Medical
Treatment Act 1988 (Vic) provides that a guardian appointed by way of an “appropriate order” under
the Guardianship and Administration Act 1986 (Vic) may refuse treatment.33 A VCAT order will be
an “appropriate order” for the purpose of the Medical Treatment Act 1988 (Vic) if the power
conferred on the guardian is sufficiently broad to include the power to refuse treatment. It is therefore
necessary to consider the kinds of appointment that VCAT can make.
Plenary guardian: A person who is appointed as a plenary guardian has “all the powers and
duties which the plenary guardian would have if he or she were a parent and the represented
person his or her child”.34 This power is broad enough to authorise the guardian to refuse
28 Guardianship and Administration Act 1986 (Vic), s 41.
29 Melbourne Corp v Barry (1922) 31 CLR 174 at 206; Sargood Bros v Commonwealth (1910) 11 CLR 258 at 279; Pyneboard
Pty Ltd v Trade Practices Commission (1983) 152 CLR 328 at 341; Coco v The Queen (1994) 179 CLR 427 at 437-438.
30 Smith v The Queen (1994) 181 CLR 338 at 348 (Mason CJ, Dawson, Gaudron and McHugh JJ).
31 White, Willmott, Trowse, Parker and Cartwright, n 6 at 508-509.
32 Guardianship and Administration Act 1986 (Vic), s 22(1). For the criteria for appointing a guardian, see n 15. In addition to
appointing a guardian, VCAT may appoint a person to make a decision in relation to the proposed procedure or treatment:
Guardianship and Administration Act 1986 (Vic), s 37(1)(b).
33 Medical Treatment Act 1988 (Vic), s 5A(1)(b).
34 Guardianship and Administration Act 1986 (Vic), s 24(1).
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
life-sustaining treatment for the adult.35 As such, a plenary order is an “appropriate order”
under the Medical Treatment Act 1988 (Vic).
Limited guardian with power to make decisions about medical treatment: Functions under
the Guardianship and Administration Act 1986 (Vic) must be performed in a way that is
least restrictive of an adult’s freedom of decision.36 Therefore, a plenary appointment will
not be made if it is sufficient for a guardian to be appointed with more limited powers.37 One
such appointment is that of a limited guardian with power to make decisions about medical
treatment. This kind of appointment is broad enough to empower the guardian to refuse life-
sustaining treatment under the Medical Treatment Act 1988 (Vic).38 In other words, the
appointment of a limited guardian with power to make decisions about medical treatment is
an “appropriate order” under the Medical Treatment Act 1988 (Vic).
Limited guardian with power to consent to health care: A distinction is made between the
appointment of a guardian to “make decisions about medical treatment” (above) and the
appointment of a guardian to “consent to health care”. While the former appointment is
regarded as sufficient to authorise the guardian to refuse treatment under the Medical
Treatment Act 1988 (Vic), the latter is not.39
<subgroup>Criteria applicable to the decision
One of the following two criteria must be satisfied before a guardian appointed by VCAT (either by
way of a plenary appointment or appointed with authority to make decisions about medical treatment)
is entitled to complete a refusal of treatment certificate under the Medical Treatment Act 1988 (Vic)
on behalf of an adult:
the medical treatment would cause unreasonable distress to the adult; or
there are reasonable grounds for believing that the adult, if competent, and after giving
serious consideration to her or his health and wellbeing, would consider that the medical
treatment is unwarranted.40
<subgroup>Role of medical professional
A medical professional will first need to determine whether a guardian has been appointed by VCAT
and whether that guardian has power to refuse treatment. If so, although it is the guardian who is the
relevant decision-maker, the medical professional has an important role in the completion of the
refusal of treatment certificate. The certificate must be witnessed by a medical professional (and
another person) who must be satisfied that:
the guardian has been informed about the adult’s condition to an extent that would be
necessary for the adult, if competent, to have made a decision about refusing treatment; and
the guardian appears to have understood this information.41
A medical professional also has an important role if he or she has concerns that treatment is being
improperly refused by a guardian. This would occur, eg, if the medical professional is not of the view
35 Willmott L, White B and Then S-N, “Withholding and Withdrawing Life-sustaining Medical Treatment” in White B,
McDonald F and Willmott L (eds), Health Law in Australia (Thomson Reuters, Sydney, 2010) at [13.210].
36 Guardianship and Administration Act 1986 (Vic), s 4(2)(a).
37 Guardianship and Administration Act 1986 (Vic), s 22(2), (4).
38 See eg EK (Guardianship) [2005] VCAT 2520; BK (Guardianship) [2007] VCAT 332; BWV [2003] VCAT 121; and Korp
(Guardianship) [2005] VCAT 779 where a guardian was appointed in each case with power to make decisions about medical
treatment in situations where an end-of-life treatment decision was contemplated.
39 See also EK (Guardianship) [2005] VCAT 2520 and AV (Guardianship) [2005] VCAT 2519 although the distinction
between consent to health care and refusing treatment in these cases was being considered in the context of the powers of a
“person responsible”. A limited guardian with power only to consent to health care may, however, withhold such consent and
the effect of this is considered in more detail below at XXX in section 2.3.4 when examining the powers of a person
responsible.
40 Medical Treatment Act 1988 (Vic), s 5B(2).
41 Medical Treatment Act 1988 (Vic), s 5B(1).
Willmott, White, Parker and Cartwright
that either of the criteria set out above (that the treatment would cause unreasonable distress to the
adult, or that the adult would have regarded the treatment as unwarranted) is satisfied.42 In such a
case, the medical professional may apply to VCAT under its power to hear applications generally in
relation to medical or dental treatment43 or for a reassessment of the guardian’s appointment.44
<group>The adult has appointed an agent to make health care decisions on the
adult’s behalf
There are two avenues that an adult can adopt to appoint another to make health decisions on her or
his behalf. One is where the adult executes an instrument to appoint an enduring guardian.45 The
authority conferred by this appointment will only take effect once the adult loses capacity.46 The
powers of an enduring guardian will depend on the nature of the appointment.47 It is possible for the
adult to confer very broad powers on an enduring guardian, including a power in relation to health
care and the power to consent to medical treatment.48 However, even the conferral of broad powers or
specific powers in relation to health care would not appear to be sufficient to authorise an enduring
guardian to refuse life-sustaining treatment.
This is because the right of an agent to refuse treatment on behalf of an adult is governed by the
Medical Treatment Act 1988 (Vic) and the only agent authorised by that statute to refuse treatment is
an agent appointed pursuant to an enduring power of attorney (medical treatment). An appointment
under such a document can only be authorised by the Medical Treatment Act 1988 (Vic).49
Accordingly, while an agent under an enduring power of attorney (medical treatment) can refuse
treatment, an enduring guardian appointed under an enduring power of guardianship pursuant to the
Guardianship and Administration Act 1986 (Vic) cannot.50
<subgroup>Criteria applicable to the decision
An agent appointed under an enduring power of attorney (medical treatment) pursuant to the Medical
Treatment Act 1988 (Vic) can refuse treatment by completing a refusal of treatment certificate.51 The
agent must be satisfied of the same criteria that apply to a guardian appointed by VCAT discussed
above, namely that the treatment would cause unreasonable distress to the adult, or that the adult
would have regarded the treatment as unwarranted.
<subgroup>Role of medical professional
A medical professional will need to ascertain whether an enduring guardian or an agent appointed
under an enduring power of attorney (medical treatment) has been appointed, and know that the
enduring guardian lacks the power to refuse treatment but that an agent does have such power. Where
an agent is seeking to complete a refusal of treatment certificate, the medical professional’s role is the
42 Also, as discussed above in relation to refusal of treatment certificates generally, the medical professional would need to
determine that the adult’s medical situation has not “changed to such an extent that the condition in relation to which the
certificate was given is no longer current”: Medical Treatment Act 1988 (Vic), s 7(3).
43 Guardianship and Administration Act 1986 (Vic), s 42N. Although this power is expressed to apply to matters, questions or
disputes arising under Pt 4A of the Act, a request for consent by a medical professional under this Part which is then refused by
a guardian would be sufficient to give rise to the exercise of this power.
44 Guardianship and Administration Act 1986 (Vic), s 61.
45 Guardianship and Administration Act 1986 (Vic), s 35A. The instrument appointing the enduring guardian must be in the
form of, or to the effect of, Form 1 in Sch 4: Guardianship and Administration Act 1986 (Vic), s 35A(2)(a).
46 Guardianship and Administration Act 1986 (Vic), s 35B(1).
47 Guardianship and Administration Act 1986 (Vic), s 35B(2).
48 If the instrument does not specify the matters for which the enduring guardian will have decision-making power, the
enduring guardian will have all the powers of a guardian who has been given a plenary appointment by VCAT: Guardianship
and Administration Act 1986 (Vic), s 35B(2).
49 Medical Treatment Act 1988 (Vic), s 5A.
50 An enduring guardian is, however, able to consent to medical treatment or withhold such consent under Pt 4A of the
Guardianship and Administration Act 1986 (Vic). The effect of withholding such consent is considered in more detail below at
XXX section 2.3.4when examining the powers of a “person responsible”.
51 Medical Treatment Act 1988 (Vic), s 5B.
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
same as for a guardian appointed by VCAT, namely to witness that the agent has been appropriately
informed and understands that information.52 As with guardians appointed by VCAT, a medical
professional also has a legal role where he or she is concerned that treatment is being refused by an
agent improperly. In such a case, the medical professional may apply to VCAT under its power to
hear applications generally in relation to medical or dental treatment53 or for suspension or revocation
of the agent’s appointment.54
<group>A person is nominated by the legislation as person responsible (“default
decision-maker”)
The Victorian statutory scheme also enables consent to “medical or dental treatment” to be given by a
“person responsible”.55 “Person responsible” is defined to include the formal appointees discussed
above: an agent under an enduring power of attorney (medical treatment), a guardian appointed by
VCAT and an enduring guardian or person appointed in writing by the adult.56 In the absence of a
formal appointment, the person responsible will be the first of the following who is reasonably
available and willing and able to make the relevant health care decision:
the adult’s spouse or domestic partner (if the relationship is close and continuing and the
spouse or domestic partner is not under guardianship);57
the adult’s primary carer;
the adult’s nearest relative.58
A person responsible does not have power to refuse treatment under the Medical Treatment Act 1988
(Vic).59 Rather, the power of a person responsible is limited to providing consent to treatment, or
withholding consent to that treatment.60
<subgroup>Criteria applicable to the decision
In deciding whether to consent to treatment or withhold that consent, the person responsible must act
in the adult’s best interests.61 In determining whether medical treatment is in the adult’s best interests,
the person responsible is required to consider a list of factors including the wishes of the adult and her
or his family, and the nature and degree of any significant risks associated with the treatment and any
alternative treatment.62
<subgroup>Role of medical professional
52 Medical Treatment Act 1988 (Vic), s 5B(1).
53 Guardianship and Administration Act 1986 (Vic), s 42N. Although this power is expressed to apply to matters, questions or
disputes arising under Pt 4A of the Act, a request for consent by a medical professional under this Part which is then refused by
an enduring guardian would be sufficient to give rise to the exercise of this power.
54 Medical Treatment Act 1988 (Vic), s 5C(2)(b). The ability of a medical professional to make such an application was
recognised by Morris J in Re BWV; Ex parte Gardner (2003) 7 VR 487 at [88]. An unusual feature of this provision is that the
test applied under s 5C of the Medical Treatment Act 1988 (Vic) to remove an agent is “best interests”. This is different from
the criteria that an agent is required to apply which is more closely linked with a substituted judgment approach, namely that
the treatment would cause unreasonable distress to the adult, or that the adult would have regarded the treatment as
unwarranted: Medical Treatment Act 1988 (Vic), s 5B. This creates the possibility that an agent could be exercising her or his
authority diligently in accordance with the Act but nevertheless have her or his appointment revoked or suspended.
55 Guardianship and Administration Act 1986 (Vic), s 39(1).
56 Guardianship and Administration Act 1986 (Vic), s 37(1)(a), (c)-(e).
57 Guardianship and Administration Act 1986 (Vic), s 37(4)(a).
58 Guardianship and Administration Act 1986 (Vic), s 37(1)(f)-(h). “Nearest relative” is defined in the Guardianship and
Administration Act 1986 (Vic), s 3(1).
59 EK (Guardianship) [2005] VCAT 2520; AV (Guardianship) [2005] VCAT 2519.
60 Section 42H(2) of the Guardianship and Administration Act 1986 (Vic) contemplates the possibility of consent being
withheld as it refers to “whether or not to consent to medical or dental treatment”.
61 Guardianship and Administration Act 1986 (Vic), s 42H. See also Guardianship and Administration Act 1986 (Vic), s 4(2),
which sets out a list of principles which decision-makers under the Act must apply.
62 Guardianship and Administration Act 1986 (Vic), s 38.
Willmott, White, Parker and Cartwright
Considered here is the way in which the limited power of the person responsible to withhold consent
to treatment (as opposed to refusing that treatment) operates and the implications this has for medical
professionals. Given that “person responsible” is defined to include guardians appointed by VCAT
(who sometimes will be appointed without power to refuse treatment) and enduring guardians
appointed by the adult (who will never have power to refuse treatment), this discussion will apply to
all substitute decision-makers whose power is limited to withholding consent to treatment.
The role of the medical professional will be to identify the relevant person responsible in the
hierarchy and to know that this role carries with it only the power to consent to treatment or withhold
that consent, and not to refuse treatment. Where a person responsible exercises that power to withhold
consent to recommended medical treatment, a medical professional may respond to that decision in
one of two ways. The first is for the medical professional to accept that withholding of consent. This
means that the treatment will not be given as consent or some other authorisation is required to
provide treatment. The withholding of consent by the person responsible will be given effect.
The second option when confronted with a withholding of consent is for the medical professional
to seek authorisation to provide the treatment from another source and the Guardianship and
Administration Act 1986 (Vic) provides a mechanism for obtaining such authority.63 It permits a
medical professional who is confronted with a withholding of consent, to serve the person responsible
(and the Public Advocate) with a statement – a “section 42M form” – that advises of the medical
professional’s intention to provide the treatment for which consent is being withheld.64 The person
responsible may then, if he or she chooses to do so, make an application to VCAT for it to consider
the matter. If such action is not taken within seven days, the medical professional may then provide
treatment.
A medical professional will need to be aware of these two options and the necessary procedural
steps that accompany the second option. The medical professional will also need to be aware that in
these circumstances, he or she is effectively the de facto decision-maker. He or she is able to accept
that withholding of consent and not provide treatment, or he or she can follow a procedure which, if
not contested, will allow her or him to ignore that withholding of consent and provide treatment.
A medical professional will also need to know how the distinction between the power to
withhold consent and refuse treatment impacts upon withdrawing treatment as opposed to
withholding treatment. The provision of treatment requires consent or some other authorisation.
Accordingly, the withholding of consent by a person responsible is capable of preventing that
treatment being instituted (subject to the medical professional taking the steps described above).
However, once consent or authorisation is obtained and treatment instituted, further consent or
authorisation may not be required. In this case, a person responsible who does not wish for treatment
to continue will not be in a position to prevent that treatment continuing if there is already in place
lawful justification for treating. To require that treatment be withdrawn, it would be necessary to have
a power to refuse treatment and require that it be stopped. Accordingly, a medical professional will
need to be aware of how a power to withhold consent may operate differently where treatment is
being withdrawn as opposed to withheld.
Finally, as was the case with other decision-makers, a medical professional who is concerned
about a proposed decision may apply to VCAT under its power to hear applications generally in
relation to medical or dental treatment.65
<group>Decision by the Public Advocate
The Guardianship and Administration Act 1986 (Vic) establishes a statutory office, the Public
Advocate.66 The Public Advocate’s functions include acting as a guardian for an adult when
63 See Guardianship and Administration Act 1986 (Vic), ss 42L, 42M.
64 The requirements of that statement are set out in Guardianship and Administration Act 1986 (Vic), s 42M.
65 Guardianship and Administration Act 1986 (Vic), s 42N. Although this power is expressed to apply to matters, questions or
disputes arising under Pt 4A of the Act (which does not grant power to persons responsible to refuse treatment), a request for
consent by a medical professional under this Part which is then refused by a person responsible would be sufficient to give rise
to the exercise of this power.
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
appointed by VCAT;67 therefore, depending on the nature of the appointment, he or she may have
power to refuse life-sustaining treatment when acting in that role. Unlike in Queensland, however, the
Victorian legislation does not contain equivalent provisions that enable the Public Advocate to
intervene and make decisions where there is a disagreement as to what decision should be made or
where decisions are being made inappropriately.68
<subgroup>Criteria applicable to the decision
The criteria that must be applied by the Public Advocate in refusing treatment as guardian is the same
as that applied by any other person acting in that role, namely that the treatment would cause
unreasonable distress to the adult, or that the adult would have regarded the treatment as
unwarranted.69
<subgroup>Role of medical professional
Again, the role of the medical professional in this situation is the same as for guardians generally
discussed above.70
<group>Order of the Victorian Civil and Administrative Tribunal
The Guardianship and Administration Act 1986 (Vic) confers on VCAT very wide powers in relation
to medical treatment of an adult upon the making of an application to it.71 In addition to being able to
appoint a person to make decisions concerning medical treatment, VCAT is able to provide
declaratory relief regarding the validity of a medical treatment decision. VCAT is also able to give an
advisory opinion concerning the best interests of an adult, and make any other orders considered to be
in the best interests of an adult. VCAT also has power generally to give directions to substitute
decision-makers.72
Despite the broad nature of these powers, VCAT itself is not empowered to order that life-
sustaining treatment be withheld or withdrawn from an adult. It has power to consent under Pt 4A of
the Guardianship and Administration Act 1986 (Vic)73 in the same way that a person responsible
does, as discussed above,74 but not power to refuse medical treatment. Having said that, a decision by
VCAT that treatment should not be given (with the result that consent is therefore withheld) is likely
to act as a de facto refusal of treatment. In practice, however, where such a decision may be required,
VCAT has tended to appoint the Public Advocate as guardian to make the relevant treatment
decision.75
<subgroup>Criteria applicable to the decision
The criteria applicable to the decision depend on which of the various VCAT powers are exercised,
but will include best interests, as noted above.76 In relation to what appears to be VCAT’s usual
66 Guardianship and Administration Act 1986 (Vic), s 14.
67 Guardianship and Administration Act 1986 (Vic), ss 16, 23(4).
68 Willmott L, White B, Parker M and Cartwright C, “The Legal Role of Medical Professionals in Decisions to Withhold or
Withdraw Life-sustaining Treatment: Part 2 (Queensland)” (2011) 18 JLM 523 at 531-532.
69 See above at XXX section 2.3.2.
70 See above at XXX section 2.3.2.
71 Guardianship and Administration Act 1986 (Vic), s 42N(6).
72 Guardianship and Administration Act 1986 (Vic), ss 30, 35E, 42I.
73 Guardianship and Administration Act 1986 (Vic), s 39(1)(a).
74 See above at XXX section 2.3.4.
75 See eg BK (Guardianship) [2007] VCAT 332; Korp (Guardianship) [2005] VCAT 779; EK (Guardianship) [2005] VCAT
2520; BWV [2003] VCAT 121.
76 In determining whether medical treatment is in the adult’s best interests, consideration must be given to the factors listed in s
38 of the Guardianship and Administration Act 1986 (Vic). See also Guardianship and Administration Act 1986 (Vic), s 4(2),
which sets out a list of principles which decision-makers under the Act must apply.
Willmott, White, Parker and Cartwright
approach in these situations (the appointment of a guardian), the criteria for such an appointment are
discussed above,77 as are the criteria to be employed by the guardian who then makes the decision.78
<subgroup>Role of medical professional
The medical professional will need to know that it is possible to apply to VCAT in cases where there
is a dispute or where he or she has concerns about the treatment decisions being made.
<subdiv>Category 2: Medical professional considers life-sustaining treatment
to be futile
The statutory regime in Victoria does not alter the common law in relation to futile treatment. Thus, a
medical professional is under no obligation to provide treatment to an adult where “no benefit at all
would be conferred”.79 Treatment regarded as futile is not considered to be in a person’s best interests
and so need not be provided. Disputes as to assessments of futility can arise80 and those close to the
adult may wish to challenge a medical professional’s determination of futility in the Supreme Court in
its parens patriae jurisdiction (discussed below).81
<group>Role of medical professional
The medical professional is the initial decision-maker in this context and must therefore be aware that
the law does not require provision of futile treatment. He or she also needs to be aware of avenues for
legal review before VCAT and the Supreme Court.
<subdiv>Category 3: Urgent decision about life-sustaining treatment is
required
A medical professional is authorised by the Guardianship and Administration Act 1986 (Vic) to
provide medical treatment without consent if he or she believes on reasonable grounds that the
treatment is necessary, as a matter of urgency, to save the adult’s life, or to prevent serious damage to
the adult’s health, or to prevent the adult from suffering or continuing to suffer significant pain or
distress.82 The Victorian legislation does not address the situation where a decision to withhold or
withdraw treatment may need to be made on an urgent basis. However, if the treatment is futile as
discussed above, there is no obligation to treat.
<group>Role of medical professional
In the context of an urgent decision concerning life-sustaining treatment, the medical professional is
the legal decision-maker. While he or she is not expressly authorised to withhold or withdraw
treatment in an emergency situation, if the treatment is assessed as being futile, it can be lawfully
withheld under the common law. If treatment is not futile, the medical professional has power to
provide treatment without consent.
<DIV>ORDER OF THE SUPREME COURT EXERCISING ITS PARENS PATRIAE
JURISDICTION
In addition to the statutory mechanisms so far considered, the Victorian Supreme Court has power to
make decisions in relation to life-sustaining treatment for adults who lack capacity by virtue of its
parens patriae jurisdiction.83 This jurisdiction was discussed in more detail in the second article in this
77 See n 15 above.
78 See above at XXX section 2.3.2.
79 Airedale NHS Trust v Bland [1993] AC 789 at 858-859 (Lord Keith), at 869 (Lord Goff), at 884-885 (Lord Browne-
Wilkinson), at 898 (Lord Mustill). See also Auckland Area Health Board v Attorney-General [1993] 1 NZLR 235 at 251; and
Messiha v South East Health [2004] NSWSC 1061.
80 See eg in Victoria, Re Herrington [2007] VSC 151.
81 See above at XXX Section 3.
82 Guardianship and Administration Act 1986 (Vic), s 42A. Note, however, that the medical professional is not empowered to
do so if treatment has been refused pursuant to the Medical Treatment Act 1988 (Vic): Guardianship and Administration Act
1986 (Vic) s 41.
83 This was the basis on which Slaveski v Austin Health [2010] VSC 493 and Re Herrington [2007] VSC 151 were heard.
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
series.84 It is sufficient here to note that the parens patriae jurisdiction continues in Victoria despite
the enactment of guardianship legislation85 and that the criterion employed by the court is “the
protection of the best interest of the health and welfare of the person the subject of its exercise”.86
Role of medical professional
The role of the medical professional is that he or she (or the relevant treating hospital) may bring an
application to the Supreme Court for its consideration.
<DIV>CONCLUSIONS ON THE LAW
<subdiv>Some problems with the law in Victoria
The above examination of the law that governs withholding and withdrawing life-sustaining treatment
from adults who lack capacity demonstrates that it is problematic in some respects. As with the other
articles in this series, this section does not review comprehensively all of the problems with Victorian
law in this area, only those relevant to the focus of this article, namely problems that are likely to act
as obstacles to medical professionals knowing the law. This section also does not address the issue of
the complexity of the law generally as this is considered below.
<group>Distinction between withholding consent and refusing treatment
As discussed above, the law in Victoria distinguishes between the power to withhold consent to
treatment and the power to refuse that treatment. There are a number of problems that flow from this.
The first is that this distinction is a fine one and is unlikely to be understood by medical professionals.
The submission of the Office of the Public Advocate to the VLRC’s review of guardianship law
reported its experience that “even skilled practitioners are unable to distinguish withholding consent
to treatment from refusing treatment”87 and noted this distinction is subject to “widespread
uncertainty”.88 The VLRC’s Information Paper also identifies this distinction as a source of
confusion.89
A second problem for medical professionals’ knowledge of the law is that this distinction creates
a situation where some substitute decision-makers will have power to refuse treatment but others only
power to withhold consent. This will present challenges for medical professionals seeking to know
and comply with the law. This is particularly so in relation to a guardian appointed by VCAT as this
type of decision-maker can have the relevant power needed to refuse treatment but will not always do
so. A medical professional will need to know this and check the scope of the guardian’s appointment.
A third problem is that this distinction creates a gap in the law in that the default decision-maker
does not have power to refuse treatment. While there is a mechanism to resolve disputes where
consent to treatment is being withheld by a substitute decision-maker through the giving of a “section
42M form”,90 it appears that this process, which is described by the VLRC as “rather complex”,91 is
not being utilised by medical professionals.92 To illustrate, the relevant form must be filed with the
84 Willmott, White, Parker and Cartwright, n 68 at 535-537.
85 Re BWV; Ex parte Gardner (2003) 7 VR 487 at 510.
86 Northridge v Central Sydney Area Health Service (2000) 50 NSWLR 549 at 554; and Slaveski v Austin Health [2010] VSC
493 at [34], referring to the criterion as discussed by the High Court in Secretary, Department of Health and Community
Services (NT) v JWB and SMB (Marion’s Case) (1992) 175 CLR 218 at 240, 249, 252, 270-273, 295, 300, 316. There are many
other formulations of this criterion. See eg Re Herrington [2007] VSC 151 at [22]; Melo v Superintendent of Royal Darwin
Hospital (2007) 21 NTLR 197; [2007] NTSC 71 at [25]; Messiha v South East Health [2004] NSWSC 1061 at [25].
87 Office of the Public Advocate, Submission to the Victorian Law Reform Commission in Response to the Guardianship
Information Paper (May 2010) p 36, http://www.publicadvocate.vic.gov.au/file/file/Research/Submissions/2010/OPA-
Submission-to-VLRC-May-2010.pdf viewed 11 November 2011.
88 Office of the Public Advocate, n 87, p 35.
89 Victorian Law Reform Commission, n 6, p 38. See also evidence to this effect in Victorian Parliament Law Reform
Committee, n 8, pp 161-162.
90 See above at XXX section 2.3.4.
91 Victorian Law Reform Commission, n 6, p 32.
92 Office of the Public Advocate, n 87, pp 33-34.
Willmott, White, Parker and Cartwright
Office of the Public Advocate but none were filed in the last financial year.93 Instead, it is suggested
that medical professionals are initiating guardianship applications, which is undesirable as it is
contrary to the least restrictive approach.94 While the authors are not aware of any empirical research
that has been carried out on this point, it may also be the case that treatment is being provided in the
absence of the appropriate consent or authorisation.
A fourth problem is that this distinction adds further complexity because it treats withholding
treatment differently from withdrawing treatment. As discussed above, a person responsible has the
ability to withhold consent to the commencement of life-sustaining treatment which may lead to the
measure being withheld if it is not challenged by the medical professional, but withholding consent to
treatment that has commenced and is being lawfully provided will not, of itself, lead to that treatment
being stopped. An awareness not only of the distinction between withholding consent and refusing
treatment is required by medical professionals, but also of the way in which that distinction plays out
in practice depending on whether the relevant treatment has been started or not.
<group>Health care substitute decision-making spread over two statutes
A related problem is that the law that governs health care substitute decision-making is contained in
two statutes: the Guardianship and Administration Act 1986 (Vic) and the Medical Treatment Act
1988 (Vic). One deals with substitute decision-making generally (including decisions about health
care) and grants power to consent to treatment, while the other deals with decisions about medical
treatment and specifically provides for refusal of that treatment. The two pieces of legislation are the
source of the problematic distinction between withholding consent and refusing treatment discussed
above.
The existence of this parallel legislation has been identified by the VLRC as being a potential
source of confusion95 and the relationship between the two statutes has been described as
“complex”.96 This is likely to be an impediment to a medical professional’s knowledge of the law.
Contributing to this confusion is that the two pieces of legislation do not sit well together. For
example, there are different definitions of “medical treatment”97 and different approaches are taken to
capacity.98
A particular problem is that both pieces of legislation provide for the appointment by the adult of
a substitute decision-maker: an enduring guardian under the Guardianship and Administration Act
1986 (Vic) and an agent under the Medical Treatment Act 1988 (Vic). The VLRC has noted that this
“overlap creates confusion amongst medical practitioners and the community”.99 Adding to the
confusion is that it is only the agent who has power to refuse treatment; an enduring guardian may
only withhold consent.
<group>Multiple definitions of capacity
Another challenge for medical professionals seeking to know Victorian law in this area is the multiple
definitions of “capacity”. The various approaches described above,100 depending on the legal context,
are that an adult “is incapable of giving consent”, an adult is of “sound mind”, an adult “becomes
incompetent”, and that an adult is “unable by reason of [the/a] disability to make reasonable
judgments” in relation to the decisions that need to be made. A medical professional would be
required to know these different definitions and which one to apply depending on the legal context.
Although its review focused on powers of attorney, the Victorian Parliament Law Reform Committee
noted, in the context of its review, that the “different approaches to capacity contained in the various
93 Office of the Public Advocate, n 87, p 33.
94 Office of the Public Advocate, n 87, p 34.
95 Victorian Law Reform Commission, n 6, p 53.
96 Victorian Law Reform Commission, n 6, p 31.
97 Office of the Public Advocate, n 87, pp 31-33.
98 See below at XXX section 4.1.3.
99 Victorian Law Reform Commission, n 6, p38.
100 See above at XXX section 2.2.
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
statutes cause widespread confusion and uncertainty”.101 The Australian Medical Association
submission to that inquiry also described the current definitions of capacity as “varied and erratic”
and “unhelpful to a donor, witness, [and] doctor”.102
<group>Uncertain status of common law advance directives
While the Medical Treatment Act 1988 (Vic) makes provision for refusal of treatment certificates, it
is unclear whether advance directives at common law still have legal force in Victoria. The arguments
for and against recognition of such directives are discussed above.103 Uncertainty as to the legal effect
of a statement refusing medical treatment that is not contained in a refusal of treatment certificate is
likely to make knowing the law in this area more difficult for medical professionals.
<subdiv>Legal role of medical professionals
The above analysis of the law in Victoria also demonstrates that medical professionals play a
significant legal role in these decisions. As in the articles on New South Wales and Queensland, the
legal roles of medical professionals can be characterised in three ways.
<group>Medical professional as legal decision-maker
There is no duty to provide futile treatment so if a medical professional reaches the view that
treatment can be characterised in this way, he or she is the legal decision-maker and may decline to
treat. The Victorian legislation also grants the medical professional decision-making power to provide
life-sustaining treatment in an emergency situation. Finally, it can be argued that a medical
professional may act as a de facto decision-maker in circumstances where a substitute decision-maker
withholds consent to treatment. As noted above, the medical professional may choose not to treat or
alternatively may decide to treat after filing a s 42M form.
<group>Medical professional making decisions about how to apply the law
Medical professionals also play a range of other formal legal roles that affect how or what law is
applied in these decisions. First, a medical professional will often be required to make an assessment
as to the adult’s capacity. This will determine whether or not the substitute decision-making regime
described above applies or whether the adult can make her or his own decisions. Secondly, if an adult
lacks capacity, a medical professional will need to determine the appropriate decision-making
mechanism that applies, whether that be a valid refusal of treatment certificate or a substitute
decision-maker. Thirdly, it will also be necessary to establish that the relevant decision-making
mechanism has the requisite authority to refuse life-sustaining treatment. This means that medical
professionals will need to know whether substitute decision-makers possess the power to refuse
treatment (as opposed to merely withholding consent) and whether refusal of treatment certificates are
applicable to the situation (eg, ascertaining whether the adult continues to have a “current condition”).
<group>Medical professional as legal gatekeeper
A medical professional also plays a gatekeeper role for decisions to withhold or withdraw life-
sustaining treatment from adults who lack capacity. Where concerns arise that improper decisions are
being made, a medical professional is empowered to approach VCAT or the Supreme Court to
scrutinise the proposed course of action. There is also scope for review of the appropriateness of the
appointment of a substitute decision-maker.
Medical professionals also play a gatekeeping role at an earlier stage in decision-making, namely
when a refusal of treatment certificate is completed. They are required to be satisfied of certain
matters before witnessing the document and so, eg, are able to prevent such certificates being
completed without sufficient information to understand the nature of the decision being made. Of
course, the extent to which medical professionals are able to exercise these roles depends on their
being aware of these legal gatekeeping functions.
MEDICAL PROFESSIONALS’ KNOWLEDGE OF THEIR LEGAL ROLE
101 Victorian Parliament Law Reform Committee, n 8, p 108.
102 Victorian Parliament Law Reform Committee, n 8, p 110.
103 See above at XXX section 2.3.1.
Willmott, White, Parker and Cartwright
<DIV>WHAT ARE MEDICAL PROFESSIONALS TAUGHT ABOUT THIS AREA OF LAW?
Medical education in Victoria has undergone the same changes in recent decades as described in the
first two articles in this series, in relation to medical ethics and health law.104 Students are made aware
of the expectations of the community and of the profession in relation to their individual and
collective obligations in the numerous fields that raise ethical questions and that are governed, inter
alia, by either or both legislation and the common law. The end-of-life area has seen a significant
body of legislation passed in recent decades, and it has begun to receive considerable exposure in
undergraduate medical education.
There are now three medical schools in Victoria. The authors received responses from all of these
schools to their informal survey requesting information on teaching in the areas of decision-making
capacity and capacity determination, ethical and legal aspects of withdrawing and withholding
treatment (patients with and without capacity), substitute decision-making and guardianship, and
advance care planning. Two schools provide significant coverage of ethical and legal aspects of
withdrawing and withholding treatment, with one requiring students specifically to understand the
legal requirements of appointing a guardian or an agent pursuant to an enduring power of attorney
(medical treatment) under the Guardianship and Administration Act 1986 (Vic) and the Medical
Treatment Act 1988 (Vic), the role of guardians and appointed agents, and indeed to recognise the
complexities regarding the law in withdrawal of treatment. The third school also covered these areas,
but in less depth. As with schools in the other States considered in this series of articles, whether they
responded to the survey or not,105 these topics are covered formally in the earlier years of the
programs of the Victorian schools. This is mainly as a result of the structure of medical education
which universally sees year cohorts receiving lectures together in the earlier phases, but much more
separated in the clinical years, making systematic provision of instruction more difficult at the time
when it would seem more relevant. Again, the depth of knowledge attained via these undergraduate
teaching sessions will not be equivalent to what has been described in this series of articles as
necessary for medical professionals to practise in compliance with the relevant legal regimes. At the
earlier stages of medical education, instruction is, necessarily and correctly, more introductory and
theoretical.
One responding Victorian university also has a strong postgraduate program in Health and
Medical Law, provided by the law school. In 2010, in three of the courses offered, there were two,
three and three medical professionals enrolled.106 It is not certain, although it is likely, that one or two
of those enrolled were the same medical professionals across the courses. These medical
professionals will clearly become very well versed in the details of the law at the end of life but they
are, of course, individuals who have specific interests, often based in occupational roles, in
developing their knowledge in the medical and health law area. As was the case in the other two
States described in the previous articles, there is no systematic teaching in these areas for junior
doctors, specialist trainees, or those in private practice in Victoria.
It can be reasonably assumed that in recent times and from now on, medical students have and
will continue to graduate to practice with at least a sound theoretical grounding in the ethical and
legal requirements of decision-making at the end of life, including those focused on in this series.
However, the lack of knowledge possessed by, and of education provided for, medical professionals
generally was emphasised in the recent inquiry into powers of attorney by the Victorian Parliament
Law Reform Committee. The committee stated that it “did not receive any evidence that such
education is being provided to health care professionals in relation to the types of powers of attorney
under review in this Inquiry”, but that participants in the inquiry “were generally strongly supportive
of providing more education about powers of attorney for GPs and staff in hospitals and aged care
facilities”.107
<DIV>WHAT DO MEDICAL PROFESSIONALS KNOW OF THIS AREA OF LAW?
104 White, Willmott, Trowse, Parker and Cartwright, n 1 at 518-520; Willmott, White, Parker and Cartwright, n 68 at 540.
105 Personal communication with teaching colleagues.
106 Personal communication with program director, Professor L Skene.
107 Victorian Parliament Law Reform Committee, n 8, p p 278.
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
Although there is only limited evidence available as to what medical professionals know of this area
of law, the position in Victoria appears similar to that described in New South Wales and Queensland:
there are clear knowledge gaps. Some of the anecdotal evidence discussed above when identifying
problems in the law suggests this is the case.108 For example, the submission by the Office of the
Public Advocate to the VLRC’s Guardianship Review recorded the uncertainty of medical
professionals in relation to the distinction between withholding consent and refusing treatment.109
There was also a suggestion that refusal of treatment certificates were being completed in
circumstances outside those permitted by the legislation110 which could reflect a lack of legal
knowledge by the medical professionals witnessing them. Finally, the Office of the Public Advocate
also called for an education campaign targeted at medical professionals to advise them of the “section
42M form” process discussed above.111
Gaps in medical professionals’ knowledge of the law in this area are also revealed in what the
authors believe to be the only empirical study on the topic in relation to Victorian law. In 1998,
Darvall et al conducted a survey of Victorian general practitioners as to their knowledge of three areas
of law, one of which was substitute decision-making under the Medical Treatment Act 1988 (Vic).112
A questionnaire, developed through four focus groups, was sent to a random sample of 983 general
practitioners in Victoria, to which there was a 55% response rate.
While the research revealed that nearly all respondents knew that a legally appointed guardian
had power to provide consent on behalf of an adult who lacked capacity, “considerable error and
uncertainty existed in relation to the legal status of consent obtained from patients’ spouses, other
family members and friends”.113 For example, 74% of respondents thought that an adult’s spouse
could provide a valid consent on behalf of the adult and 62% believed that consent could be provided
by an adult child – both of which were incorrect as the law stood at the time. This lack of
understanding is also consistent with respondents’ self-perception of their legal knowledge in this
area: 44% of respondents described themselves as having no or little understanding of the “legal
effects of Medical Treatment (Enduring Power of Attorney) Act” while a further 48% described
themselves as having only “some” knowledge.114
While the results of this research reveal that medical professionals’ knowledge of the law in this
area is lacking, it should be noted that the law has changed significantly since 1998. There may be
limits on the extent to which these findings reflect legal knowledge of medical professionals of the
current law. For example, an adult’s spouse and adult children are now capable of providing
substituted consent so the answers given wrongly by a majority of medical professionals in 1998
would, in fact, be correct today. Nevertheless, of continuing interest for this series of articles is that
this research identified two variables that were significantly related to a medical professional’s level
of legal knowledge.115 The first is that accurate knowledge of the law decreased with the medical
108 See above at XXX section 4.1. See also Victorian Parliament Law Reform Committee, n 8, p 278.
109 Office of the Public Advocate, n 87, pp 35-36.
110 Office of the Public Advocate, n 87, p 36.
111 Office of the Public Advocate, n 87, p 34.
112 Darvall L, McMahon M and Piterman L, “Medico-legal Knowledge of General Practitioners: Disjunctions, Errors and
Uncertainties” (2001) 9 JLM 167.
113 Darvall, McMahon and Piterman, n 112 at 176.
114 Darvall, McMahon and Piterman, n 112 at 177. It should be noted that it appears from the article that general practitioners
were asked about the amending Act (the Medical Treatment (Enduring Power of Attorney) Act 1990 (Vic)) rather than the
Medical Treatment Act 1988 (Vic) itself (see the above quote as to what respondents were asked). The goal was to assess legal
knowledge specifically in relation to the appointment of an agent under an enduring power of attorney (medical treatment) and
the provisions governing such appointments were introduced by this amending Act. However, it is possible, depending on the
wording used in the questionnaire, that this reference to the amending Act may have confused respondents. For example, some
respondents may have known about the Medical Treatment Act 1988 (Vic) and felt they understood the relevant provisions
relating to the appointment of agents but were confused by the reference to this later amending Act and so lowered their rating
of knowledge.
115 Darvall, McMahon and Piterman, n 112 at 181.
Willmott, White, Parker and Cartwright
professional’s age and the second is that those with postgraduate qualifications possessed a higher
level of knowledge of the law.116 CONCLUSION
This section concludes the series of articles examining medical professionals’ legal knowledge in
relation to decisions to withhold or withdraw life-sustaining treatment from adults who lack capacity
in New South Wales, Queensland and Victoria. First, the authors reach conclusions about the legal
problems identified in Victorian law before turning to the more general conclusion for the series of
articles with a particular focus on the need for more medical education and general observations on
the law and potential law reform.
<DIV>CONCLUSIONS ABOUT VICTORIAN LAW
The focus of this article is on medical professionals’ knowledge of the law in relation to withholding
or withdrawing life-sustaining treatment and four problems were identified above where the law was
likely to impede this knowledge. The authors make some observations here as to possible reform
guided by the focus of this article to improve medical professionals’ knowledge of the law. They are
not undertaking a wider analysis and justification of the reforms suggested below.
In relation to the first problem, namely the distinction made in Victorian law between
withholding consent and refusing treatment, it is suggested that this distinction be removed. As
discussed above, this is a long-standing and entrenched source of confusion for medical professionals
and leads to a number of undesirable outcomes. Granting all substitute decision-makers the power to
refuse treatment would avoid the need for this distinction. The principal concern that is raised in
response to this is the potential for improper decisions to be made by people who gain decision-
making power through being the person responsible.117 There is no evidence that these concerns have
played out in Queensland where all decision-makers, including the default decision-maker (statutory
health attorney), have power to refuse treatment. Further, as this article has demonstrated, there are a
number of safeguards on decision-making, the most significant of which is the legal gatekeeping role
played by medical professionals. If medical professionals are worried about such decisions, they have
a range of legal avenues at their disposal to raise their concerns and have decisions scrutinised.
The second problem with Victorian law identified above was that substitute decision-making
about health care is spread across two statutes that sit awkwardly together. A partial solution to this is
to widen the powers of an enduring guardian to include refusing treatment so at least the two health
substitute decision-makers that an adult can appoint under Victorian law would have the same
power.118 The authors would endorse such an approach but, as stated above, would also go further and
propose that all substitute decision-makers should have such power. Adopting such an approach
would mean it is possible to deal with health substitute decision-making comprehensively and
consistently in a single statute, eg, by incorporating and adapting the relevant aspects of the Medical
Treatment Act 1988 (Vic) into the Guardianship and Administration Act 1986 (Vic).119 The authors
do, however, recognise the political sensitivities that would accompany such an approach as this
would require reviewing the Medical Treatment Act 1988 (Vic).120 Nevertheless, this would
undoubtedly make knowing the law easier for medical professionals (and the community generally).
116 Darvall, McMahon and Piterman, n 112 at 181.
117 Office of the Public Advocate, n 87, p 36.
118 This was recommended in Office of the Public Advocate, n 87, p 37. This possibility was also raised by the Victorian
Parliament Law Reform Committee, n 8, p 162.
119 The Victorian Parliament Law Reform Committee considered the related issue of whether there should be a single Act
dealing with all powers of attorney (including non-enduring powers of attorney and those in relation to financial matters):
Victorian Parliament Law Reform Committee, n 8, pp 33-35. Whether this should occur involves consideration of issues wider
than withholding and withdrawing life-sustaining treatment and so is beyond the scope of this article; it is sufficient to say here
that substitute decision-making about health care should not be spread across two inconsistent pieces of legislation.
120 For example, the terms of reference for the recent review of powers of attorney did not include considering enduring powers
of attorney (medical treatment) under the Medical Treatment Act 1988 (Vic): Victorian Parliament Law Reform Committee, n
8, pp iv, 3.
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
The third problem with Victorian law was the inconsistent approach to defining capacity.
Outlined above were four definitions of when an adult is not able to make her or his own decisions
spread across the Medical Treatment Act 1988 (Vic) and the Guardianship and Administration Act
1986 (Vic). This is obviously undesirable and likely to confuse medical professionals. Accordingly,
the authors suggest that a single definition of capacity be adopted, and preferably in the consolidated
Guardianship and Administration Act 1986 (Vic), as proposed above. That definition should reflect
the functional approach to capacity121 as part of taking the least restrictive approach and this is a
position that one of the authors has argued for elsewhere.122
The fourth and final problem identified as likely to impede medical professionals’ knowledge of
the law was the uncertain status of common law advance directives. The authors favour resolving this
uncertainty by recognising common law advance directives primarily because, as elsewhere two of
them have argued, this gives greater weight to individual autonomy.123 They recognise, however, that
this “two-tiered approach” does introduce the possibility of confusion for medical professionals and
others in that they would have to be aware that an adult could refuse treatment in both a refusal of
treatment certificate and a common law advance directive.
However, the authors consider that clarifying the law to exclude common law directives would
also cause confusion and uncertainty. For example, this would mean that medical professionals would
need to respect a contemporaneous refusal of treatment given by an adult but not if that was given at a
time sufficiently prior to the treatment choice arising such that it constituted an advance directive. But
the dividing line between these two concepts is unclear. For example, how long before surgery does a
refusal of blood transfusions need to be made to count as a contemporaneous refusal rather than an
advance directive? Requiring a medical professional to know of this distinction and be able to apply it
in practice is not reasonable. On balance, they favour clarifying the law to recognise common law
advance directives.
<DIV>CONCLUSIONS FOR THE SERIES OF ARTICLES
<subdiv>Four claims of this series of articles
It is appropriate at this point to return to the four claims the authors sought to make in this series of
articles. The first was that medical professionals play significant legal roles in relation to decisions to
withhold or withdraw life-sustaining treatment. In each of the jurisdictions reviewed, three categories
of legal roles for medical professionals were identified and discussed:
when the medical professional is the legal decision-maker;
when the medical professional is making decisions as to how to apply the law; and
when the medical professional acts as a legal gatekeeper.
It was demonstrated that these are important legal roles and they have a significant impact on who
makes these decisions, and how, in New South Wales, Queensland and Victoria.
The second claim was that it is important that medical professionals know the law in this area.
An ability to fulfil the significant legal roles that medical professionals play in these decisions
depends on having sufficient knowledge of the law. Further, in the first article, it was explained as
part of setting the context for this series that a lack of knowledge can lead to non-compliance with the
law. This can lead to adverse outcomes for the adult, either by being unlawfully deprived of treatment
121 See also Office of the Public Advocate, n 87, pp 15-17, which favours a broadly functional approach to defining capacity (in
the context of the test for appointing a guardian). Likewise, the Victorian Parliament Law Reform Committee recommends a
functional test (although the report does not use this term): Victorian Parliament Law Reform Committee, n 8,
recommendations 34, 35.
122 Devereux J and Parker M, “Competency Issues for Young Persons and Older Persons” in Freckelton I and Petersen K (eds),
Disputes and Dilemmas in Health Law (Federation Press, Sydney, 2006) pp 54, 57-58.
123 White B and Willmott L, “Will You Do as I Ask?” (2004) 4 QUTLJJ 77. The authors consider this to be particularly
important given that only people who are experiencing a current condition can complete a refusal of treatment certificate. It is
unclear, eg, where a failure to recognise common law directives leaves Jehovah’s Witnesses who are not experiencing a current
condition but may wish to refuse blood transfusions.
Willmott, White, Parker and Cartwright
or by being subject to treatment that has been lawfully refused. Non-compliance can also have
negative consequences for the medical professionals involved, including potential criminal, civil or
disciplinary liability, and for the adult’s family and the state.
The third claim of the series was that there are gaps in what medical professionals know of the
law in this area. It is not possible to be definitive as to this claim as only relatively limited evidence
exists. However, such evidence as there is points strongly to medical professionals’ knowledge of the
law being lacking. In New South Wales, anecdotal evidence from a New South Wales Health report
suggested problems in understanding this area of law and this was supported by the only empirical
study that the authors are aware of in this State. It concluded that there were significant gaps in
medical professionals’ knowledge and that further education was required.
In Queensland, there are no empirical studies directly on medical professionals’ knowledge of the
law in this area. However, a Queensland Health report found evidence that medical and health
professionals’ legal knowledge and understanding of the relevant legislative framework was lacking.
Further, a case review of medical and health professionals’ assessments of capacity suggested a lack
of knowledge of the law as did the coronial case where a medical professional made a “not-for-
resuscitation” order without the required consent of the substitute decision-maker on the basis of his
legal understanding. That this decision occurred in a major tertiary hospital whose policy on this area
was out of date suggests that this inaccurate view of the law is unlikely to be isolated.
The scope of the problem in Victoria is somewhat clearer. The VLRC and the Office of the
Public Advocate have pointed to anecdotal evidence of a lack of understanding of the various
components of health substitute decision-making in that State. Also, an empirical study which
considered the legal knowledge of medical professionals in this area found considerable uncertainty
and error in their understanding of the law. While further research is required in this area, there is a
sufficient body of evidence to conclude that there are gaps in medical professionals’ legal knowledge
in this area in these three jurisdictions. This conclusion is consistent with the discussion of how the
law in this area has been taught in the various medical schools (and in other formal training) in the
three States.
The fourth and final claim in this series was that the current state of the law is likely to impede
medical professionals’ knowledge. In relation to each of the three States, problems with the law that
are likely to impede medical professionals’ knowledge were identified. There are five main types of
problems that present barriers to medical professionals’ knowledge. One is that sometimes it is
uncertain as to what the law is. An example of this is the uncertain status of common law advance
directives in Queensland and Victoria. It is difficult to know the law when what it requires is
uncertain. Another type of problem is that the law deals with matters inconsistently. An example of
this is the multiple definitions of “capacity” in New South Wales and Victoria. If medical
professionals are required to know multiple definitions for the same concept and when and how to
apply them, that is a barrier to accurate legal knowledge. A third type of problem is where the law is
inconsistent with good medical and ethical practice, an example being the requirement to obtain
consent to withhold or withdraw futile treatment in Queensland. Medical professionals might
reasonably expect the law would follow what is relatively settled medical and ethical practice, and it
presents challenges for them when this is not the case. A fourth type of problem in the law is where
distinctions are made that are counterintuitive or regarded as unnecessarily fine. The distinction
between withholding consent and refusing treatment in New South Wales and Victoria falls into this
category.
The fifth type of problem with the law in this area, and one that has not been specifically
considered to date, is that the law is generally complex. This issue was flagged in each of the articles
but is dealt with here because it is a generic issue that spans all three jurisdictions. Although the other
problems identified above exacerbate this situation, the current state of the law on its own also
presents challenges for medical professionals wishing to know it. This emerges clearly from the
extended discussion in each of the three articles needed to state the law. First, medical professionals
would need to know that the legal position varies depending on which of the three categories of
medical context applies. Secondly, spanning across these contexts, complexity arises from there being
a range of potential decision-makers (the generic terms are used here) with power to withhold or
withdraw life-sustaining treatment, or at least power to withhold consent for such treatment: a
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
medical professional, an adult through an advance directive, a guardian, an agent, a default decision-
maker, the tribunal and the Supreme Court. Finally, the criteria employed by decision-makers may
also vary depending on who is deciding and in what context.
The authors argue therefore that the current state of the law is likely to make it difficult for
medical professionals to know it. There is also some evidence that goes further and crystallises this
link between the state of the law and gaps in medical professionals’ knowledge. In New South Wales,
the Conflict Resolution in End of Life Settings report states that a lack of clarity in the law was
adversely impacting upon the legal knowledge of medical professionals in this area.124 In Queensland,
the Acute Resuscitation Plan Implementation Report notes the complexity of the law in this area and
that it is “not surprising” that there is inconsistent understanding of the legal position.125 In Victoria,
as noted above, both the VLRC and the Office of the Public Advocate have suggested that the legal
distinction between withholding consent and refusing treatment results in uncertainty and
confusion.126 The existence of parallel legislation in the Guardianship and Administration Act 1986
(Vic) and the Medical Treatment Act 1988 (Vic) has been identified by the VLRC as being confusing,
particularly given the ability of an adult to appoint different decision-makers (an enduring guardian or
an agent respectively) under these Acts.127 The Victorian Parliament Law Reform Committee also
concluded that the different approaches to capacity being considered in that review caused
widespread confusion and uncertainty.128 Accordingly, the authors argue that the current state of the
law is problematic and that this impedes medical professionals seeking to know it.
Having considered the four claims made by this series of articles, the authors turn now to their
conclusions, namely that, in light of what has been discussed, law reform and more and better
education of medical professionals is needed.
<subdiv>Conclusions as to medical education
Eight of the 14 medical schools in the three States responded to an informal survey of teaching in the
areas under review in this series of articles. The authors established that, while teaching and
assessment are inevitably variable, it is likely that there is reasonably strong emphasis across
undergraduate medical education on issues including decision-making capacity, consent to and
refusal of treatment, informed decision-making, futile treatment, and withdrawing and withholding
treatment. This focus is a component of the increased emphasis over the past two decades on teaching
and assessment in medical ethics, law and professional issues, against a social and cultural
background of increased individual and patient rights, increased levels of community education, and a
level of erosion of professional and clinical autonomy in the medical profession.
The authors thus identified a generational change in undergraduate medical education, together
with a range of evidence of a lack of knowledge of the law on the part of currently practising medical
professionals, derived from case reports,129 a New South Wales Health report,130 a Queensland Health
report,131 a report of the Victorian Parliament Law Reform Committee,132 a small number of empirical
studies,133 and anecdotal reports.
124 New South Wales Health, Conflict Resolution in End of Life Settings (CRELS): Final CRELS Project Working Group
Report (2010) pp 20, 24-25.
125 Queensland Health, Acute Resuscitation Plan Implementation Report (April 2010) p 12.
126 Office of the Public Advocate, n 87, pp 35-36. Victorian Law Reform Commission, n 6, p 38. See also evidence to this
effect given to Victorian Parliament Law Reform Committee, n 8, pp 161-162.
127 Victorian Law Reform Commission, n 6, pp 38, 53.
128 Victorian Parliament Law Reform Committee, n 8, p 108.
129 Inquest into the Death of June Woo (unrep, Queensland Coroner’s Court, State Coroner Barnes SM, 1 June 2009).
130 New South Wales Health, n 124.
131 Queensland Health, n 125, p 12.
132 Victorian Parliament Law Reform Committee, n 8, p 108.
133 Cartwright C et al, NSW Medical Practitioners Knowledge of and Attitudes to Advance Care Planning: Report to NSW
Health (November 2009); Parker M, “Patient Competence and Professional Incompetence: Disagreements in Capacity
Willmott, White, Parker and Cartwright
Law is complex, and medical law is no exception. The law governing the withholding and
withdrawing of life-sustaining treatment from adults who lack capacity is not only complex, it is also
at times uncertain, internally inconsistent, inconsistent with good medical and ethical practice, and
counterintuitive.134 As suggested above, the current state of the law in this area is a distinct barrier to
medical professionals’ mastering its principles and application, and simplification and other reform of
the law would improve this situation considerably, as discussed below. Together with reforms to the
law itself, the authors contend that a range of educational reforms will enable medical professionals to
more validly and consistently apply the law in practice. To this end, they identify two desirable
cultural changes and make a further six specific suggestions in relation to improving medical
education. We consider that these general and specific improvements are related (often causally) and
advances in specific strategies will help drive change in the broader, cultural areas.
The traditions and cultures of medical and legal education and practice do not evolve rapidly.
While we have identified inter-generational changes in medical education, with a greater emphasis on
and integration of medical ethics and law, there remains considerable scepticism on the part of many
practising clinicians towards these curricular components, which they see as having usurped valuable
training time once reserved for the scientific and clinical aspects of medicine. We respond to that
scepticism with the claim that the relevant knowledge and skills for effective and safe clinical practice
must include ethical, legal and professional matters; these are simply inevitable and crucial aspects of
practice. This is so because medicine is no longer an autonomous professional enterprise, but a social
endeavour occurring within social, cultural and legal frameworks.
A related change advocated in relation to medical culture (but also seen as inevitable) is the
change from the perception by the medical profession of the law as adversarial and oppositional to a
more sanguine or even positive view of law as facilitative of safe, ethical practice. While elements of
the traditional perception will probably continue as long as fault-based negligence and other
procedures remain in force, it is to be hoped that this will be diluted by increasing familiarity with
those facilitative aspects of the law. One way that this change is currently being augmented is by
adopting an approach to the law in undergraduate medical education that emphasises its role in
representing community ethical consensus in preference to the “risk management” approach that is
still commonly adopted in postgraduate continuing medical education. This change posits the
avoidance of legal trouble as a side-benefit of ethical medical practice, rather than seeing risk
management strategies as the primary educational focus.
This broad educational emphasis can be supported by a number of specific strategies. First, the
relevant legal knowledge and skills for effective and safe clinical practice in the area of interest here
should be strongly integrated into teaching about the end of life, so that discussions of the technical
skills of pain and symptom management, communication and psychosomatic support135 is linked to
relevant legal matters. Knowledge of the relevant law should not be conceived as a technical addition
to the central discussion, to be considered separately, but an integral component of clinical care. At
the undergraduate level, this integration is already occurring to a significant, but still somewhat
variable, extent in current programs. Secondly, the core curriculum document referred to in the first
article in the series136 should be reviewed and rewritten to emphasise, inter alia, not just the
importance of the role of the law, particularly in end-of-life care, but also the importance of closely
integrating ethical and legal considerations in clinical teaching.
Thirdly, one of the perennial difficulties of undergraduate medical programs is increasing the
integration of areas like basic science and ethics and law, that are dealt with almost exclusively in the
earlier, pre-clinical years, into the later clinical years. At this latter stage, student cohorts are
Assessments in One Australian Jurisdiction, and Educational Implications” in “Bioethical Issues” (2008) 16 JLM 25; Darvall,
McMahon and Piterman, n 112.
134 See above at XXX section 8.1.
135 Sullivan AM et al, “The Status of Medical Education in End-of-life Care” (2003) 18 Journal of General Internal Medicine
685.
136 A Working Group, on Behalf of the Association of Teachers of Ethics and Law in Australian and New Zealand Medical
Schools (ATEAM), “An Ethics Core Curriculum for Australasian Medical Schools” (2001) 175(4) MJA 205.
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
dispersed, fragmented, focused on clinical work, and in the hands of clinicians who are not well
versed in the law and usually not motivated to encourage students to include it in their clinical
considerations. While the cultural changes discussed above will improve integration at this stage,
these structural features will continue to make it extremely difficult. Smaller, more cohesive cohorts
that can be brought together periodically are easier to reach in these later clinical years, but other
strategies including concerted efforts at staff development and developing generic curricular elements
may help improve the situation.
Fourthly, to build on the more theoretical teaching about capacity in the pre-clinical years, there
should be specific teaching of capacity assessment in the later undergraduate program, and again in
the junior doctor training period. This is a good example of integration between the theoretical and
practical elements, which repeats a theme also applicable to the scientific aspects of practice. There is
considerable discussion of improving educational continuities between the undergraduate and early
postgraduate phases of medical education,137 and (fifthly) medical law should be no exception to this
endeavour.
Sixthly, the authors advocate greater systematisation of postgraduate medical education in the
area of medical law generally, and the law concerning capacity and withdrawing and withholding
treatment specifically. Postgraduate medical education councils are responsible to the Medical Board
of Australia for accrediting intern and junior doctor training programs, and the accreditation process
should become increasingly mindful of the place and importance of continuing legal education in the
workplace. The same applies to specialist college training programs, with more specific emphasis in
those colleges whose fellows deal with these end-of-life issues.
<subdiv>Final conclusions as to law reform
In each of the three articles in this series, suggestions have been made as to how the specific problems
identified as being likely to impede medical professionals’ knowledge of the law could be addressed.
The purpose of this section is to move beyond law reform in each of the three jurisdictions and to
make some more general observations on this topic.
The first observation relates to the complexity of the law in this area generally. This was noted
above as being an issue of significance for all three jurisdictions. To some extent, some level of
complexity may be unavoidable. For example, it is not desirable to reduce the number of ways in
which decision-making can occur. The authors consider it appropriate that an adult can complete an
advance directive and appoint another to make decisions on her or his behalf. Likewise, it is
important that the relevant tribunal is able to appoint a substitute decision-maker where necessary (or
make this decision itself) and the availability of a default decision-making mechanism is valuable
because this helps to avoid drawing adults into the formal guardianship system unnecessarily. Finally,
they are not suggesting that the Supreme Court’s parens patriae jurisdiction be removed.
However, while acknowledging that some level of complexity may not be avoidable, where
complexity is unnecessary the law should be reformed. Obvious examples discussed in this article
that arise in Victoria are the complication added by having two decision-makers able to be appointed
by an adult (an enduring guardian and an agent) and having two overlapping pieces of legislation.
Neither duplication is necessary and both add to the complexity of the law.
The need to avoid unnecessary complexity is particularly important in areas like adult
guardianship law and end-of-life decision-making. They are areas of law that are regularly used – and
intended to be used – by non-lawyers, including medical professionals. As shown in this series, it is
specifically contemplated that medical professionals will play significant legal roles in these
decisions. It is critical that governments, law reform agencies and others charged with reform efforts
keep this in mind when reframing new laws.
A second general comment that emerges from this review of these three jurisdictions is the merit
of a national approach to the law in this area. There have been repeated calls for either uniform laws
137 Dick ML et al, ‘Vertical Integration in Teaching And Learning (VITAL): An Approach to Medical Education in General
Practice’ 2007 (187) MJA 133; Rosenthal DR et al, “Vertical Integration of Medical Education: Riverland Experience, South
Australia” (2004) 4 Rural and Remote Health 228.
Willmott, White, Parker and Cartwright
or harmonisation in this field. For example, the federal House of Representatives Standing Committee
on Legal and Constitutional Affairs report, Older People and the Law, recommended that the
Australian Government encourage the Standing Committee of Attorneys-General to work towards the
implementation of nationally consistent guardianship and other relevant legislation throughout
Australia.138 For medical professionals, a single Australian legislative framework, or at least a
harmonised approach nationally, is likely to be easier to know and this is particularly so given the
high mobility rate of medical professionals working in different jurisdictions within Australia.
Although all three jurisdictions share a framework that is broadly similar at a global level for
these decisions, it is noteworthy how different the three legal regimes are. One illustration is the legal
regulation of advance directives (and for the moment, putting aside the issue of recognition of
common law advance directives in Queensland and Victoria). In New South Wales, advance
directives are recognised only by the common law and there is no statutory directive. In Queensland,
an adult can complete an advance health directive under the Powers of Attorney Act 1998 (Qld) but
the circumstances in which it can operate are limited in a range of ways and a medical professional is
entitled to disregard a directive when he or she reasonably believes its directions are inconsistent with
good medical practice. Victoria has statutory refusal of treatment certificates but they are limited to
adults refusing treatment in relation to a current condition. It is hard to imagine that the medical
context in which these laws are operating is so different in these three States that the law should be
regulated in such different ways.
A concluding observation is to note that the time is now ripe for reform. As has been discussed in
each article, all three jurisdictions have either ongoing or very recent reform inquiries in this area.
New South Wales has had the Legislative Council’s Standing Committee on Social Issues report,
Substitute Decision-Making for People Lacking Capacity,139 Queensland has the Queensland Law
Reform Commission’s Guardianship Review,140 and Victoria has had its Parliament Law Reform
Committee’s Inquiry into Powers of Attorney141 and its current review of guardianship law by the
VLRC.142 In addition to these three States, South Australia and the Northern Territory have also been
reviewing aspects of their guardianship law.143
There are two features of these sorts of law reform inquiries that are significant. The first is that
they provide an opportunity for considered and thoughtful reflection on the future of this area of law.
In particular, law reform commissions approach their task as bodies that are independent from the
government of the day. These are important aspects of law reform given that the law that governs
decisions to withhold or withdraw life-sustaining treatment is often regarded as controversial and
politically sensitive. The nature of the law in this area can sometimes inhibit a careful and rational
inquiry into how it can be improved. The second feature is that these sorts of inquiries provide an
138 House of Representatives Standing Committee on Legal and Constitutional Affairs, Older People and the Law (Parliament
of Australia, 2007) at [3.42]-[3.44], [3.171]-[3.179], [3.198]-[3.200]. See also Victorian Parliament Law Reform Committee, n
8, pp 35-38. The current authors note also the ongoing efforts for national harmonisation in relation to advance care planning:
Clinical, Technical and Ethical Principal Committee of the Australian Health Ministers’ Advisory Council, A National
Framework for Advance Care Directives: Consultation Draft (2010).
139 New South Wales Parliament, Legislative Council, Standing Committee on Social Issues, Substitute Decision-making for
People Lacking Capacity (2010).
140 Queensland Law Reform Commission, A Review of Queensland’s Guardianship Laws, Report No 67 (2010) Vols 1-4;
Queensland Law Reform Commission, A Review of Queensland’s Guardianship Laws, Discussion Paper No 68 (2009); and
Queensland Law Reform Commission, Shaping Queensland’s Guardianship Legislation: Principles and Capacity, Discussion
Paper No 64 (2008).
141 Victorian Parliament Law Reform Committee, n 8.
142 Victorian Law Reform Commission, n 6.
143 Northern Territory Law Reform Committee, Report on the Powers of Attorney Act and Medical Enduring Powers of
Attorney, Report No 33 (2009); South Australian Advance Directives Review Committee, Advance Directives Review –
Planning Ahead: Your Health, Your Money, Your Life. First Report of the Review of South Australia’s Advance Directives –
Proposed Changes to Law and Policy (2009); and South Australian Advance Directives Review Committee, Advance
Directives Review – Planning Ahead: Your Health, Your Money, Your Life. Second Report of the Review of South Australia’s
Advance Directives – Proposals for Implementation and Communication Strategies (2009).
Legal role of medical professionals in life-sustaining treatment: Part 3 (Victoria)
opportunity for looking at the law anew and reconsidering how legal frameworks are structured. This
can be contrasted with much law reform which is incremental in nature and merely adds to, subtracts
from or otherwise tinkers with the existing legal framework. The opportunity for law reform in these
three (or more) jurisdictions is rare and must be seized to improve what is an important area of law
for patients and their families, medical professionals and the community as a whole.
POSTSCRIPT
After submission of this article for publication, the VLRC released its consultation paper: Victorian
Law Reform Commission, Guardianship, Consultation Paper 10 (February 2011). The consultation
paper considers a range of issues discussed in this article but of particular significance are Chapters 8
(Personal Appointments), 9 (Documenting Wishes about Your Future), 10 (VCAT Appointments and
Who They are For), 14 (Automatic Appointments – the Person Responsible) and 16 (Medical
Treatment).
... The above legislation, as it applies to withholding or withdrawing life sustaining treatment, is complex. [5][6][7][8] Queensland doctors have significant difficulty applying the legislation 6,9,10 and research suggests they tend to maintain a medical approach to decision-making, regardless of the law. 11 Some scholars have posited that ACPs which limit treatment upon the patient, philosophically conflict with doctors' treatment focus, thus doctors may resist ACP application. ...
... Most doctors were either ambivalent or resentful towards the law which has imposed powerful limitations on medical practice and provided consumers with opportunities to exercise agency by recording binding (yet potentially naïve) directions. Participants concurred with the argument by Willmott et al, 10 withholding or withdrawing of life sustaining treatment in Queensland is counterintuitive and often inconsistent with good medical practice. Consistent with other research, 7,8,29-32 participants believed they held responsibility for making medical decisions, and they prioritized ethical and clinical factors above legal obligations. ...
Article
Full-text available
Context Healthcare consumers are encouraged to develop an Advance Care Plan (ACP) to help to ensure their preferences are known and respected. However, the role of governing systems in the application of ACPs must be understood if patients’ voices (expressed within this medium) are to be heard. Objective To explore systemic barriers influencing Queensland public hospital doctors’ application of the Advance Care Plans of hospitalized people with a neurodegenerative disorder. Methods Using a constructivist grounded theory approach, 16 semi structured interviews were conducted with public hospital doctors. Data were inductively analysed using open and focused coding. Results Analysis revealed two main themes: Practicing Medicine within a Legal Construct, and Delegitimizing ACP. Participants found the application of ACP in Queensland unduly complex, and they were inadequately prepared by education or training. Doctors maintained a dominant role in temporal medical decision-making and cited hospital practice culture for delegitimizing patient-owned ACPs. Conclusion The public healthcare system in Queensland exerts considerable influence over the degree to which ACPs influence decision-making. Despite the premise that ACPs give patients a powerful voice, hospital doctors often do not understand the underpinning law on which they depend when citing their responsibility for good medical practice. Systemic influences have contributed to a practice culture that has delegitimized the patient’s voice when expressed through an ACP.
... Queensland has substantially different Law, ethics and medicine law from the other two states; it is inconsistent with international trends (ADs can be overridden on the basis of good medical practice) 27 and so has been excluded from the results presented in this paper which focus on AD compliance. The survey instrument, developed over 18 months, was informed by a detailed review of the law in each state, [27][28][29] focus groups, pretesting and piloting with doctors. The accuracy of the legal questions and responses were confirmed by independent legal experts. ...
... A societal decision through the institution of Parliament (and sometimes the courts) has been made to establish decision-making processes that safeguard the rights and interests of a vulnerable group in our community, adults who lack capacity and to allow people to express treatment preferences in advance and appoint substitute decision-makers. While we are conscious of the limits of law in this area, [27][28][29] departures from law have significant implications for patients, clinicians and the community. ...
Article
Full-text available
Objectives To determine the role played by law in medical specialists' decision-making about withholding and withdrawing life-sustaining treatment from adults who lack capacity, and the extent to which legal knowledge affects whether law is followed. Design Cross-sectional postal survey of medical specialists. Setting The two largest Australian states by population. Participants 649 medical specialists from seven specialties most likely to be involved in end-of-life decision-making in the acute setting. Main outcome measures Compliance with law and the impact of legal knowledge on compliance. Results 649 medical specialists (of 2104 potential participants) completed the survey (response rate 31%). Responses to a hypothetical scenario found a potential low rate of legal compliance, 32% (95% CI 28% to 36%). Knowledge of the law and legal compliance were associated: within compliers, 86% (95% CI 83% to 91%) had specific knowledge of the relevant aspect of the law, compared with 60% (95% CI 55% to 65%) within non-compliers. However, the reasons medical specialists gave for making decisions did not vary according to legal knowledge. Conclusions Medical specialists prioritise patient-related clinical factors over law when confronted with a scenario where legal compliance is inconsistent with what they believe is clinically indicated. Although legally knowledgeable specialists were more likely to comply with the law, compliance in the scenario was not motivated by an intention to follow law. Ethical considerations (which are different from, but often align with, law) are suggested as a more important influence in clinical decision-making. More education and training of doctors is needed to demonstrate the role, relevance and utility of law in end-of-life care.
... Moreover, he relates it to ethical considerations. According to his findings, the physicians' appraisal systems are built on a hierarchy of decision-making criteria, in which legislation is subordinate to clinical variables connected to the patient's health [20,21]. Craig's study partially supports those findings, implying that physicians occasionally evaluate a patient's motivation and disregard his decision accordingly if they have different viewpoints or values [19]. ...
Article
Full-text available
Background Only a few studies have been conducted to assess physicians’ knowledge of legal standards. Nevertheless, prior research has demonstrated a dearth of medical law knowledge. Our study explored physicians’ awareness of legal provisions concerning informed consent and confidentiality, which are essential components of the physician-patient relationship of trust. Methods A cross-sectional study assessed attending physicians’ legal knowledge of informed consent and confidentiality regulations. The study was conducted in nine hospitals in Dolj County, Romania. Physicians were given a questionnaire with ten scenarios and instructed to select the response that best reflected their practice. We assessed the responses of physicians who claimed their practice to be entirely legal. Their legal knowledge was evaluated by comparing their answers to applicable laws. We also calculated a score for the physicians who admitted to committing a legal breach. Results Of the 305 respondents, 275 declared they never committed any law violation. However, their median correct answer score was 5.35 ± 1.66 out of 10. The specialty was the strongest predictor of legal knowledge, with emergency physicians rating the lowest and non-surgical physicians scoring the highest. Physicians who worked in both private and public sectors were better knowledgeable about legal issues than those who worked exclusively in the public sector. Results indicate that physicians are aware of the patient’s right to informed consent but lack comprehensive understanding. While most physicians correctly answered simple questions, only a tiny minority identified the correct solution when confronted with ethical dilemmas. The physicians who acknowledged breaching the law, on the other hand, had a slightly higher knowledge score at 5.45 ± 2.18. Conclusion Legal compliance remains relatively low due to insufficient legal awareness. Physicians display limited awareness of legal requirements governing patient autonomy, confidentiality, and access to health data. Law should be taught in all medical schools, including undergraduate programs, to increase physicians’ legal knowledge and compliance.
... 3 The medical care providers lack information on their legal obligations. 6,7 Similar to the literature, we also found in this study that most of the physicians (84%) did not receive any education about conversations involving the end of life. ...
Article
Full-text available
Amaç: Bu çalışmada amaç hekimlerin terminal dönemde olan bir hastalıkları olması halinde kendilerineuygulanmasını istedikleri ya da istemedikleri tedavileri saptamak ve yaptıkları bu tercihlerinin yaş vehekimlik yılı ya da branş gibi parametrelerden etkilenip etkilenmediğini gözlemlemektir.Materyal ve Metot: Hekimlere açık ve kapalı uçlu 22 sorudan oluşan anket uygulandı. Sorulardahayatın son döneminde olan hastalarla hiç görüşme yapıp yapmadıkları ve bu konuda eğitim alıpalmadıkları, hayatın son dönemimde olsalar hastanede mi, evde mi, yoğun bakımda mı yoksa palyatifbakım merkezinde mi ölmek istedikleri ve invaziv işlemlerle ilgili fikirleri soruldu. Ayrıca hayatınsonuna dair istekleri konusunda yakınlarına bilgi verip vermedikleri soruldu.Bulgular: Çalışmaya 443 hekim katıldı. Hekimlerin %77,42’i son dönemde olan bir hastalıkları olmasıdurumunda evde ölmeyi tercih edeceğini belirtti. Kararsız olan ya da hastanede ölmek istediğinibelirtenlerin %44’ü de yoğun bakımda ölmek istemediğini belirtmiştir. Bir hastalığın terminaldöneminde olsalar çalışmamıza katılan hekimlerin %72,46’sı kendisine göğüs kompresyonu yapılmasını,%75,62’i entübe edilip ventilatöre bağlanmayı istememiştir. %57,56’si kendisine santral katetertakılmasını istemeyeceğini, %49,88’si diyalize girmek istemeyeceğini, %61,17’i ise PEG takılmasınıistemediğini belirtmiştir. Hayatın sonuna dair istekleri konusunda yakınları ile konuşan doktorlarınoranı sadece %17,15’dir.Sonuç: Bütün bu cevaplar dikkate alındığında hekimlerin son dönemde olan bir hastalıkları olsaçoğunlukla evde ölmek istediklerini ve invaziv işlemlere maruz kalmak istemedikleri görülmektedir.Ancak hekimlerin çoğunluğunun bu konudaki görüşlerini yakınları ile paylaşmadıkları da gözlenmiştir.
... The states of NSW, Victoria and Queensland were chosen because 77% of all doctors in Australia practise there [15] and because of important variation in the law of these states. The survey instrument was developed over 18 months and was informed by a detailed review of the law in each state [16][17][18], the accuracy of which was confirmed by independent legal experts. The instrument was refined through focus groups, pretesting, and piloting with doctors. ...
Article
Full-text available
Abstract Background Law purports to regulate end-of-life care but its role in decision-making by doctors is not clear. This paper, which is part of a three-year study into the role of law in medical practice at the end of life, investigates whether law affects doctors’ decision-making. In particular, it considers whether the fact that the law differs across Australia’s three largest states – New South Wales (NSW), Victoria and Queensland – leads to doctors making different decisions about withholding and withdrawing life-sustaining treatment from adults who lack capacity. Methods A cross-sectional postal survey of the seven specialties most likely to be involved in end-of-life care in the acute setting was conducted between 18 July 2012 and 31 January 2013. The sample comprised all medical specialists in emergency medicine, geriatric medicine, intensive care, medical oncology, palliative medicine, renal medicine and respiratory medicine on the AMPCo Direct database in those three Australian states. The survey measured medical specialists’ level of legal compliance, and reasons for their decisions, concerning the withholding or withdrawal of life-sustaining treatment. Multivariable logistic regression was used to examine predictors of legal compliance. Linear regression was used to examine associations between the decision about life-sustaining treatment and the relevance of factors involved in making these decisions, as well as state differences in these associations. Results Response rate was 32% (867/2702). A majority of respondents in each state said that they would provide treatment in a hypothetical scenario, despite an advance directive refusing it: 72% in NSW and Queensland; 63% in Victoria. After applying differences in state law, 72% of Queensland doctors answered in accordance with local law, compared with 37% in Victoria and 28% in NSW (p
... Advance Care Planning mechanisms, such as completion of an advance directive and appointment of a substitute decision-maker, undertaken by people while they still have capacity, extends this right to non-competent patients. Such mechanisms are available in many countries, including Australia (White et al. 2011;Willmott et al. 2011aWillmott et al. , 2011b, the UK (Herring 2012, 149;Jox et al. 2008;Silveira, Kim, and Langa 2010), Germany (In der Schmitten et al. 2014;Jox et al. 2008), the USA (Meisel, Cerminara, and Pope 2016;Pope 2012;Silveira, Kim, and Langa 2010), Canada (Gilmour 2011) and the Netherlands (Dutch Medical Treatment Act 2015; Manalo 2011). However, many patients who lack capacity and need decisions to be made have not undertaken Advance Care Planning. ...
Article
Full-text available
In most developed countries, competent patients have the legal right to refuse any medical treatment; Advance Care Planning mechanisms extend this right to non-competent patients. However, some groups, including lesbian, gay, bisexual, transgender and intersex (LGBTI) people, risk their wishes not being respected if they lose capacity, more than others. Little is known about medical practitioners’ knowledge of, or attitudes to, the law in this area, especially in relation to LGBTI people, or how the law influences their decision-making. An Australian postal survey explored knowledge and attitudes of medical specialists to legal issues relating to withdrawing/ withholding life-sustaining treatment from adults without capacity. One scenario (the focus of this paper) asked which of four plausible substitute decision-makers, including a same-sex partner, had the legal authority to make such decisions. The overall response rate was 32% (867/2702). Less than one-third of respondents correctly identified the same-sex partner as the legally authorised decision-maker. LGBTI people face multiple obstacles to having their end-of-life wishes respected. Where healthcare providers are also ignorant of the partner’s legal right to make such decisions, the problem is compounded. Improved legal education for clinicians and promotion of educational resources for members of the LGBTI community is needed.
Article
Full-text available
Background and Aim: Approximately 50% of deaths in Australia occur in hospitals, and this number is growing. Studies consistently show that doctors have poor knowledge of end-of-life decision making; however, this has not been examined in specific groups of hospital doctors. We examined hospital doctors' knowledge of key elements of end-of-life care legislation. Materials and Methods: We conducted a prospective, observational, cross-sectional study of doctors from a large Australian public tertiary health network using six questions formulated on basic key elements of the legislation. Demographic data collected included years of work experience, clinical unit, and proportion of work hours spent with dying patients. Results: Of the 201 doctors censored, senior doctors (>10 years' experience) were the least knowledgeable group. Only approximately 20% of doctors correctly answered all questions. Thirty-two percent would potentially provide futile treatment if demanded by a competent patient. Fifty percent did not know how to locate an advance directive in the hospital record. There was confusion regarding the role of the substitute decision-maker. Conclusions: Approximately a quarter of hospital doctors practise with a poor understanding of the law over the various domains. The urgent call for education is further highlighted not only for students and junior doctors but also for senior doctors who scored poorly. Educational efforts could begin from addressing the simple key areas of legislation covered in the survey.
Article
Objective: Decisions about withholding or withdrawing life-sustaining treatment (WWLST) from adults who lack capacity are an integral part of intensive care (IC) practice. We compare the knowledge, attitudes and practice of intensivists in relation to the law about WWLST with six other specialties most often involved in end-of-life care. Design, setting and participants: We used a crosssectional postal survey of medical specialists in the three most populous Australian states, and analysed responses from 867 medical specialists from the seven specialties most likely to be involved in WWLST decisions in the acutecare setting (emergency, geriatric, palliative, renal and respiratory medicine, medical oncology and IC). Main outcome measures: Attitudes to, and knowledge and practice of, the law relating to end-of-life care. Results: Of 2702 surveys sent to eligible practitioners, 867 completed questionnaires were returned. There was an overall response rate of 32% and an IC response rate also of 32% (125/388). Intensivists performed better than average in legal knowledge but important knowledge gaps remain. Intensivists had a more negative attitude to the role of law in this area than other specialty groups but reported being seen as a leading source of information about legal issues by other medical specialists and nurses. Intensivists also reported being the specialists most frequently making decisions about end-of-life treatment. Conclusions: Improved legal knowledge and open engagement with the law can help manage the risk of harm to patients and protect intensivists from liability. IC guidelines and continuing professional development are important strategies to address these issues. © 2016, Australasian Medical Publishing co. All rights reserved.
Article
Background: Palliative medicine and other specialists play significant legal roles in decisions to withhold and withdraw life-sustaining treatment at the end of life. Yet little is known about their knowledge of or attitudes to the law, and the role they think it should play in medical practice. Consideration of doctors’ views is critical to optimizing patient outcomes at the end of life. However, doctors are difficult to engage as participants in empirical research, presenting challenges for researchers seeking to understand doctors’ experiences and perspectives. Aims: To determine how to engage doctors involved in end-of-life care in empirical research about knowledge of the law and the role it plays in medical practice at the end of life. Methods: Postal survey of all specialists in palliative medicine, emergency medicine, geriatric medicine, intensive care, medical oncology, renal medicine, and respiratory medicine in three Australian states: New South Wales, Victoria, and Queensland. The survey was sent in hard copy with two reminders and a follow up reminder letter was also sent to the directors of hospital emergency departments. Awareness was further promoted through engagement with the relevant medical colleges and publications in professional journals; various incentives to respond were also used. The key measure is the response rate of doctors to the survey. Results: Thirty-two percent of doctors in the main study completed their survey with response rate by specialty ranging from 52% (palliative care) to 24% (medical oncology). This overall response rate was twice that of the reweighted pilot study (16%). Conclusions: Doctors remain a difficult cohort to engage in survey research but strategic recruitment efforts can be effective in increasing response rate. Collaboration with doctors and their professional bodies in both the development of the survey instrument and recruitment of participants is essential.
Article
In this article we will be arguing in favour of legislating to protect doctors who bring about the deaths of PVS patients, regardless of whether the death is through passive means (e.g. the discontinuation of artificial feeding and respiration) or active means (e.g. through the administration of pharmaceuticals known to hasten death in end-of-life care). We will first discuss the ethical dilemmas doctors and lawmakers faced in the more famous PVS cases arising in the US and UK, before exploring what the law should be regarding such patients, particularly in Australia. We will continue by arguing in favour of allowing euthanasia in the interests of PVS patients, their families, and finally the wider community, before concluding with some suggestions for how these ethical arguments could be transformed into a set of guidelines for medical practice in this area.
Article
Full-text available
This is the second article in a series of three that examines the legal role of medical professionals in decisions to withhold or withdraw life-sustaining treatment from adults who lack capacity. This article considers the position in Queensland, including the parens patriae jurisdiction of the Supreme Court. A review of the law in this State reveals that medical professionals play significant legal roles in these decisions. However, the law is problematic in a number of respects and this is likely to impede medical professionals' legal knowledge in this area. The article examines the level of training medical professionals receive on issues such as advance health directives and substitute decision-making, and the available empirical evidence as to the state of medical professionals' knowledge of the law at the end of life. It concludes that there are gaps in legal knowledge and that law reform is needed in Queensland.
Article
Deficiencies in education about end-of-life care are widely recognized, both in the "formal" or structured curriculum, and in the "informal" curriculum (the culture in which students are immersed as they learn medicine). Numerous approaches to addressing these deficiencies have been identified. These approaches include developing palliative care leaders; improving curricula; creating standards and a process for certification of competence; creating and enhancing educational resources for end-of-life education; faculty development; growing palliative care clinical programs as venues for education; textbook revision; and creating palliative care fellowship training opportunities. Current efforts in these areas are reviewed, and barriers to their implementation are highlighted.
Article
This article discusses a survey of Victorian general practitioners which investigated doctors' legal knowledge, the impact of law on clinical practice, doctors' current medico-legal information sources and their legal education needs and preferences. Knowledge of legal standards was investigated in relation to three areas: disclosure of risk; ownership of, and access to, medical records; and proxy decision-making. Additionally, the impact of statutory reform in relation to proxy decision-making was explored. Further, doctors' past experience of medico-legal education, current sources of medico-legal information and preferences concerning future medico-legal information were explored. Results indicated that overall, respondents had a very inadequate understanding of relevant law and that relevant statutory standards have had little impact on clinical practice. Professional bulletins and journals were identified as major current legal information sources, whilst printed materials, seminars and conferences were preferred sources of legal information. The authors conclude that there is a significant disjunction between legal standards and doctors' awareness of those standards, thereby creating a significant source of liability for doctors. Results highlight an urgent need to develop legal education programs for general practitioners based on doctors' identified needs and preferences.
  • Queensland Health
125 Queensland Health, Acute Resuscitation Plan Implementation Report (April 2010) p 12.
Standing Committee on Social Issues, Substitute Decision-making for People Lacking Capacity
  • Legislative South Wales Parliament
  • Council
South Wales Parliament, Legislative Council, Standing Committee on Social Issues, Substitute Decision-making for People Lacking Capacity (2010).
NSW Medical Practitioners Knowledge of and Attitudes to Advance Care Planning: Report to NSW Health
  • C Cartwright
Cartwright C et al, NSW Medical Practitioners Knowledge of and Attitudes to Advance Care Planning: Report to NSW Health (November 2009);
Patient Competence and Professional Incompetence: Disagreements in Capacity 138 House of Representatives Standing Committee on Legal and Constitutional Affairs, Older People and the Law (Parliament of Australia
  • M Parker
Parker M, "Patient Competence and Professional Incompetence: Disagreements in Capacity 138 House of Representatives Standing Committee on Legal and Constitutional Affairs, Older People and the Law (Parliament of Australia, 2007) at [3.42]-[3.44], [3.171]-[3.179], [3.198]-[3.200].
Legislative Council, Standing Committee on Social Issues, Substitute Decision-making for People Lacking Capacity
New South Wales Parliament, Legislative Council, Standing Committee on Social Issues, Substitute Decision-making for People Lacking Capacity (2010).