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The Inclusion of Rights of People with Disabilities and Women and Girls in Water, Sanitation, and Hygiene Policy Documents and Programs of Bangladesh and Cambodia: Content Analysis Using EquiFrame

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International Journal of Environmental Research and Public Health (IJERPH)
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People with disabilities and as women and girls face barriers to accessing water, sanitation, and hygiene (WASH) services and facilities that fully meet their needs, especially in low- and middle-income countries. Women and girls with disabilities experience double discrimination. WASH policies should support and uphold the concepts of disability and gender inclusion, and they should also act as a guide to inform WASH programs and service delivery. Using a modified version of the EquiFrame content analysis tool, this study investigated the inclusion of 21 core concepts of human rights of people with disabilities and women and girls in 16 WASH policy documents and seven end-line program reports from Bangladesh and Cambodia. Included documents typically focused on issues of accessibility and neglected wider issues, including empowerment and support for caregivers. The rights of children and women with disabilities were scarcely focused on specifically, despite their individual needs, and there was a disconnect in the translation of certain rights from policy to practice. Qualitative research is needed with stakeholders in Bangladesh and Cambodia to investigate the inclusion and omission of core rights of people with disabilities, and women and girls, as well as the factors contributing to the translation of rights from policy to practice.
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International Journal of
Environmental Research
and Public Health
Article
The Inclusion of Rights of People with Disabilities and Women
and Girls in Water, Sanitation, and Hygiene Policy Documents
and Programs of Bangladesh and Cambodia: Content Analysis
Using EquiFrame
Nathaniel Scherer 1, *, Islay Mactaggart 1, Chelsea Huggett 2, Pharozin Pheng 3, Mahfuj-ur Rahman 4, Adam Biran 5
and Jane Wilbur 1


Citation: Scherer, N.; Mactaggart, I.;
Huggett, C.; Pheng, P.; Rahman,
M.-u.; Biran, A.; Wilbur, J. The
Inclusion of Rights of People with
Disabilities and Women and Girls in
Water, Sanitation, and Hygiene Policy
Documents and Programs of
Bangladesh and Cambodia: Content
Analysis Using EquiFrame. Int. J.
Environ. Res. Public Health 2021,18,
5087. https://doi.org/10.3390/
ijerph18105087
Academic Editor: Paul B. Tchounwou
Received: 31 March 2021
Accepted: 6 May 2021
Published: 11 May 2021
Publisher’s Note: MDPI stays neutral
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iations.
Copyright: © 2021 by the authors.
Licensee MDPI, Basel, Switzerland.
This article is an open access article
distributed under the terms and
conditions of the Creative Commons
Attribution (CC BY) license (https://
creativecommons.org/licenses/by/
4.0/).
1International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine,
London WC1E 7HT, UK; islay.mactaggart@lshtm.ac.uk (I.M.); jane.wilbur@lshtm.ac.uk (J.W.)
2WaterAid Australia, Melbourne, VIC 3002, Australia; chelsea.huggett@wateraid.org.au
3WaterAid Cambodia, Phnom Penh 12207, Cambodia; pharozin.pheng@wateraid.org.au
4WaterAid Bangladesh, Dhaka 1213, Bangladesh; mahfujurrahman@wateraid.org
5Environmental Health Group, London School of Hygiene & Tropical Medicine, London WC1E 7HT, UK;
adam.biran@lshtm.ac.uk
*Correspondence: nathaniel.scherer@lshtm.ac.uk
Abstract:
People with disabilities and as women and girls face barriers to accessing water, sanitation,
and hygiene (WASH) services and facilities that fully meet their needs, especially in low- and middle-
income countries. Women and girls with disabilities experience double discrimination. WASH
policies should support and uphold the concepts of disability and gender inclusion, and they should
also act as a guide to inform WASH programs and service delivery. Using a modified version of the
EquiFrame content analysis tool, this study investigated the inclusion of 21 core concepts of human
rights of people with disabilities and women and girls in 16 WASH policy documents and seven
end-line program reports from Bangladesh and Cambodia. Included documents typically focused
on issues of accessibility and neglected wider issues, including empowerment and support for
caregivers. The rights of children and women with disabilities were scarcely focused on specifically,
despite their individual needs, and there was a disconnect in the translation of certain rights from
policy to practice. Qualitative research is needed with stakeholders in Bangladesh and Cambodia
to investigate the inclusion and omission of core rights of people with disabilities, and women and
girls, as well as the factors contributing to the translation of rights from policy to practice.
Keywords:
people with disabilities; women and girls; water; sanitation and hygiene; WASH; policy;
rights; Bangladesh; Cambodia; low- and middle-income countries
1. Introduction
1.1. Inequitable WASH
Access to water, sanitation, and hygiene (WASH) is a fundamental human right,
as recognized in the 2010 United Nations General Assembly Resolution 64/292 and the
Sustainable Development Goals (SDGs) [
1
,
2
]. Despite global progress over the last 30 years,
estimates indicate that 2.1 billion people do not have access to safe drinking water, and
4.5 billion lack safe sanitation services [
3
,
4
]. As with all SDGs, Goal 6: Clean water and
sanitation, follows the guiding principle of “leave no one behind” [
5
]. However, barriers
to accessing WASH services disproportionately affect certain groups, especially in low-
and middle-income countries (LMICs), including people with disabilities, and women and
girls [
4
,
6
]. This inequitable access to WASH impacts their health, livelihood, and education
opportunities [4].
Int. J. Environ. Res. Public Health 2021,18, 5087. https://doi.org/10.3390/ijerph18105087 https://www.mdpi.com/journal/ijerph
Int. J. Environ. Res. Public Health 2021,18, 5087 2 of 19
Recent multi-country analyses reported that the majority of people with disabilities
could access the same WASH facilities as other household members, but they frequently
required assistance to do so and often faced difficulties [
7
]. One survey of 20,000 house-
holds in Bangladesh found that 47% of people with disabilities found it difficult to access
sanitation facilities without coming into contact with feces, whilst 79% were unable to
collect water. Furthermore, people with disabilities experience stigma and discrimination
when accessing WASH [
8
]. In Uganda, people with disabilities were not allowed to use
communal water points as they were seen to be dirty, and their impairment was thought to
be contagious [
9
]. Such stigma and discrimination can result in people with disabilities
being excluded from participating in WASH decision processes as well as the planning,
development, and implementation of services and programs [
10
]. People with disabilities
also report instances of physical, verbal, and sexual abuse when accessing public WASH
facilities [11].
Inequitable WASH is a gendered issue, and women and girls are disproportionally
affected by lack of access due to biological and cultural issues [
4
]. Limited access to WASH
resources and facilities leads to poorer physical and psychological health outcomes in
women and children, including infection and disease (such as soil-transmitted helminth
infections and schistosomiasis), which are associated with maternal and newborn mor-
tality [
12
]. Moreover, women and girls bear the brunt of unpaid WASH responsibilities
in households and communities. In a systematic review of 59 studies from 30 countries,
estimates of women as primary carriers of water ranged from 61% to 79%, and it is a role
associated with poorer health, pain, and musculoskeletal disorders [
13
]. In a systematic
review of 76 studies, women and girls in LMICs also reported restrictions on menstrual
hygiene management, resulting from inadequate infrastructure and the economic envi-
ronment, as well as cultural expectations and stigma [
14
]. As a result, women and girls
reported feelings of shame and distress when menstruating. Women and girls are also at
risk of abuse and violence when using WASH facilities and services [
15
]. Evidence from
Kenya found that women and girls were at risk of physical and sexual violence when
fetching water or when using WASH facilities, especially at night [16].
These barriers and challenges to disability and gender inclusive WASH intersect,
and women and girls with disabilities experience double discrimination, placing them at
higher risk of violence, exclusion, and exploitation. For instance, in Cambodia, women
with disabilities have reported exclusion from community meetings, making it difficult
for them to learn about WASH and health management [
17
]. In a systematic review of
22 studies from 14 countries, women with disabilities and caregivers reported challenges
and difficulties in menstrual hygiene management, including limited training and informa-
tion, and a lack of appropriate menstrual hygiene materials for individuals with a physical
impairment [
18
]. Through qualitative research in Malawi, menstruation was found to be
a source of shame, discomfort, and worry for women with disabilities, and adolescents
with disabilities were reported to drop out of school when beginning menstruation [
19
]. In
Nepal, information on menstrual hygiene management was often withheld from women
with intellectual disabilities because of perceived limitations in understanding [
20
]. As
a result, some showed their menstrual blood and hygiene products to others and were
abused for doing so, whilst others became frightened and withdrawn during menstruation.
1.2. Disability Inclusive Development
A definition of ‘inclusive WASH’ does not exist in peer-reviewed literature, although
a number of non-governmental organizations (NGOs) have formulated their own. An
inclusive approach addresses barriers to accessing and using WASH services and facilities.
Key pillars of inclusive WASH include participation of users in decision-making and access
for all.
International frameworks and collaborations exist to support investment in disability
and gender-inclusive WASH projects, programs and policies, including a directive from
the United Nations Children’s Fund (UNICEF) for investment in accessible and inclusive
Int. J. Environ. Res. Public Health 2021,18, 5087 3 of 19
WASH, which focused on the SDGs principle of “leave no one behind” [
21
]. Furthermore,
the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD)
provides evidence and guidance for new policy frameworks that aim to promote disability-
inclusive societies [22].
Whilst the Overseas Development Institute (ODI) has reported global progress in
tackling discriminatory legal and policy frameworks, the implementation of disability-
inclusive programs has been slow in LMICs, especially with regard to women and girls with
disabilities, suggesting a disconnect between policy and practice [
23
]. Reasons reported for
this include: a lack of coordination to enable cross-sectoral programing and accountability;
limited trained service providers; and few evaluations to provide evidence of what works.
In 2015, the Rural Water Supply Network recognized that “water user committee mem-
bers, government health educators, and village heads need simple and clear guidance or
manuals on how to promote inclusive WASH” [
24
]. Responding to this need, we aim to
develop evidence-based guidance for governments in LMICs on implementing disability-
inclusive WASH at scale. This guidance will provide information on including disability
within WASH policy and recommendations on translating policy commitments into practice.
With inequalities in WASH disproportionately affecting women and girls, and women and
girls with disabilities, the guidance will offer direction on support for this population.
To formulate this guidance, we are conducting research in Bangladesh and Cambodia,
evaluating contributing factors to implementing inclusive WASH in LMICs. As a first step
in guidance development, we have examined the inclusion of people with disabilities, and
women and girls, in WASH policy documents and programs in Bangladesh and Cambodia.
Bangladesh and Cambodia were chosen as research sites because of government commit-
ment to the rights of people with disabilities in WASH service provision. Assessments
in these countries have highlighted positive steps taken by each government toward a
disability-inclusive approach in WASH, but reported gaps remain [
25
,
26
]. For example,
in Cambodia, the Disability Action Council developed the ‘National Disability Strategic
Plan 2014–2018’, after ratifying the UNCRPD. Although this has helped improve the policy
framework on the rights of people with disabilities and provides guidance on accessible
public health infrastructure, it does not make mention of inclusive WASH specifically. It
has been some time since each country review, and this study provides further opportunity
to assess advances in disability-inclusive development and inclusive WASH. Both countries
operate a decentralized system, in which the national government is responsible for policy
formation and local government implementation.
1.3. Aims and Objectives
This study aimed to examine the extent to which WASH policy documentation in
Bangladesh and Cambodia include information on the rights of people with disabilities,
and women and girls, and the degree to which policy commitments have been translated
into program implementation.
The objectives of the study were as follows: (i) identify the information on the rights
of people with disabilities, and women and girls, included in WASH policy documents of
Bangladesh and Cambodia; and (ii) understand the extent to which implemented WASH
programs integrate these rights into practice.
2. Materials and Methods
We conducted a content analysis of WASH policy documents and program reports
from Bangladesh and Cambodia.
2.1. Selection of Documents
2.1.1. Policy Documents
Policy documents were identified through an online literature search and through
interaction with key actors involved in influencing national WASH policy and practice in
Bangladesh, Cambodia, and Australia. We also reviewed research articles in which the
Int. J. Environ. Res. Public Health 2021,18, 5087 4 of 19
WASH policies of each country were analyzed, in search of additional policy documents,
for example, ‘An analysis of Water Policies and Strategies of Bangladesh in the Context of
Climate Change’, from Hadi in 2019 [
27
]. WASH documents were included if they were
specific to WASH or its component parts (water, sanitation, and hygiene) and developed
by the governments of Bangladesh or Cambodia, for national use. Eligible document types
included policies, action plans, strategic objectives, and national guidelines, which were
either strategic or operational in nature. Legislative documentation was not included nor
were documents provided by regional or local authorities.
2.1.2. Program Reports
Information on implemented WASH programs was sought through an online review
and search of national and international NGOs and other entities working on WASH in each
country, as well as searches by teams in Bangladesh and Cambodia. In order to apply an
assessment of realized WASH implementation and outcomes, rather than those intended,
we included only end-line program reports produced by the implementing organization or
an external party. Protocols, inception reports, or mid-line reviews were not included. To be
eligible, end-line reports must have included information on the program components and
realized outputs. The program could have focused on implementing services or facilities
for any aspect of WASH, for any population, at either a national, regional, or local level.
All policy and program documents were required in English. Where documents were
not available in English, local partners translated documents from the local language. There
was no date restriction applied, although policies needed to be the most current version in
use by the national government.
2.2. Content Analysis
We adapted and used the EquiFrame content analysis tool to evaluate the rights of
people with disabilities, and women and girls, included in the WASH policy documents
and programs of Bangladesh and Cambodia. EquiFrame is a policy analysis framework
that has been designed to assess a policy against its inclusion of 21 core concepts of human
rights deemed essential for universal, equitable, and accessible health services [
28
,
29
]. This
tool is not typically used to examine program reports, but we have applied the same logic.
In addition to evaluating the inclusion of 21 core concepts of human rights, the tool is
designed to assess the inclusion of 12 vulnerable groups, including people with disabilities,
female-headed households, and mothers of young children (<5). With our focus being on
the rights of people with disabilities, and women and girls in WASH, we adapted the tool
to evaluate inclusion of the 21 core concepts for these two target groups only (people with
disabilities, and women and girls) each potentially vulnerable to exclusion from WASH.
EquiFrame provides key language and key questions for each of the 21 core concepts.
We refined these to reflect the rights of people with disabilities, and women and girls, in the
context of WASH (Table 1), by mapping each concept against the ‘human right to water and
sanitation’, which was adopted by the United Nations General Assembly in 2010 [
1
]. During
adaptation, we sought advice and feedback from the EquiFrame development team [29].
Int. J. Environ. Res. Public Health 2021,18, 5087 5 of 19
Table 1.
The 21 core concepts of EquiFrame, adapted to the rights of people with disabilities, and women and girls, in the
context of WASH.
No. Core Concept Key Question Key Language
1. Non-
discrimination
Does the policy support the rights of people
with disabilities and women/girls with equal
opportunity in receiving WASH services?
People with disabilities and women/girls are
not directly or indirectly discriminated
against within the WASH system
2. Individualized
services
Does the policy support the rights of people
with disabilities and women/girls with
individually tailored WASH services to meet
their needs, choices, and impairments?
People with disabilities and women/girls
receive specific, appropriate, and effective
WASH services. For people with disabilities,
this includes reasonable adjustments
made/supported, when necessary. For
women/girls, this may include services
specific to menstrual health and hygiene
3. Entitlement
Does the policy indicate entitlements for
people with disabilities and women/girls
(e.g., respite grant or reduced user fee), and
how they may qualify for specific benefits
relevant to them?
People with disabilities and women/girls
who have limited resources are entitled to
some services free of charge or at a sliding
scale tariff, especially if in unpaid work
4. Capability-based
services
Does the policy recognize the capabilities of
people with disabilities and women/girls?
For instance, programs including peer
support, mentoring, and group advocacy.
People with disabilities and women/girls are
meaningfully represented in WASH
committees. For people with disabilities,
programs may be implemented by
Organizations of Persons with Disabilities
(OPDs)
5. Participation
Does the policy support the right of people
with disabilities and women/girls to
participate in the decisions that affect their
lives and enhance their empowerment?
People with disabilities and women/girls
can exercise choices and influence decisions
affecting their life. Consultation may include
planning, development, implementation, and
evaluation
6. Coordination of
services
Does the policy support assistance of people
with disabilities and women/girls in
accessing services from within a single
provider system (inter-agency) or more than
one provider system (intra-agency) or more
than one sector (inter-sectoral)?
People with disabilities and women/girls
know how services should interact where
inter-agency, intra-agency, and inter-sectoral
collaboration is required. This includes
coordination between health services,
schools, households, and public places, with
regard to WASH. Additional coordination
opportunities include the WASH sector with
the private sector, civil society, and rights
groups
7. Protection from
harm
Does the policy outline that people with
disabilities and women/girls are to be
protected from harm during their interaction
with WASH and related services?
People with disabilities and women/girls are
protected from harm during their interaction
with WASH services and health-related
systems, as well as from families and the
community who may have negative attitudes
about WASH for people with disabilities and
women/girls (e.g., topics such as menstrual
hygiene)
8. Liberty
Does the policy support the right of people
with disabilities and women/girls to be free
from unwarranted physical or other
confinement?
People with disabilities and women/girls are
protected from unwarranted physical or
other confinement while in the custody of the
service system/provider. This includes at
home and a healthcare service
Int. J. Environ. Res. Public Health 2021,18, 5087 6 of 19
Table 1. Cont.
No. Core Concept Key Question Key Language
9. Autonomy
Does the policy support the right of people
with disabilities and women/girls to consent,
refuse to consent, withdraw consent, or
otherwise control or exercise choice or
control over what happens to them?
People with disabilities and women/girls
can express “independence” or
“self-determination”. For instance, a person
with an intellectual disability will have
recourse to an independent third party
regarding issues of consent and choice. Or, as
another example, a husband is not to make
decisions for his wife
10. Privacy
Does the policy address the need for
information regarding people with
disabilities and women/girls to be kept
private and confidential?
Information regarding people with
disabilities and women/girls need not be
shared among others
11. Integration
Does the policy promote the use of
mainstream services by people with
disabilities and women/girls?
People with disabilities and women/girls are
supported to use the WASH services that are
provided for the general population
12. Contribution
Does the policy recognize that people with
disabilities and women/girls can be
productive contributors to society?
People with disabilities and women/girls
make a meaningful contribution to society
and the WASH sector
13. Family resource
Does the policy recognize the value of the
family members of people with disabilities
and women/girls in addressing
WASH needs?
The document recognizes the value of family
members of people with disabilities and
women/girls as a resource for addressing
WASH needs
14. Family support
Does the policy recognize individual
members of people with disabilities and
women/girls may have an impact on the
family members requiring additional
support from WASH services?
Caring for persons with disabilities and
women/girls may impact other family
members (e.g., mental health), such that
these family members themselves
require support
15. Cultural
responsiveness
Does the policy ensure that services respond
to the beliefs, values, gender, interpersonal
styles, attitudes, cultural, ethnic or linguistic,
aspects of the person, as well as personal
safety and dignity?
(i) People with disabilities and women/girls
are consulted on the acceptability of the
service provided; (ii) Hygiene facilities,
goods, and services are respectful of ethical
principles and culturally appropriate, i.e.,
respectful of the culture of people with
disabilities
16. Accountability Does the policy specify to whom, and for
what, services providers are accountable?
People with disabilities and women/girls
have access to internal and independent
professional evaluation or procedural
safeguard. Law/regulations provide
mechanisms that ensure complaints are
effectively heard and there are clear systems
for people to lodge these complaints. Judicial
bodies are available to resolve conflicts, for
both public and private institutions
17. Prevention
Does the policy support people with
disabilities and women/girls in seeking
primary, secondary, and tertiary prevention
of health conditions associated with WASH?
Includes WASH-related illnesses and details
on how people with disabilities and
women/girls can seek primary, secondary,
and tertiary prevention of health conditions.
For example, Trachoma, Soil-Transmitted
Helminths—intestinal worms, Lymphatic
Flariasis, Leprosy, urinary tract infections
18. Capacity building
Does the policy support the capacity
building of health workers and of the system
that they work in addressing WASH needs of
people with disabilities and women/girls?
Includes awareness raising among
communities and families on disability and
on the specific issues/barriers facing people
with disabilities and women/girls
Int. J. Environ. Res. Public Health 2021,18, 5087 7 of 19
Table 1. Cont.
No. Core Concept Key Question Key Language
19. Access
Does the policy support people with
disabilities and/or women/girls—physical,
economic, and information access to
WASH services?
People with disabilities and women/girls
have accessible and safe WASH services
within, or in the immediate vicinity, of
household, health, and educational
institution, public institutions, and
workplace. All information must be
understandable and in an appropriate format
20. Quality
Does the policy support quality services to
people with disabilities and women/girls
through evidence-based and professionally
skilled practice? Does the policy promote
innovation in WASH services for people with
disabilities and women/girls
(e.g., technology)?
People with disabilities and women/girls are
assured that services are based on best
practice/evidence and support innovative
strategies/technology
21. Efficiency
Does the policy support efficiency by
providing a structured way of matching
WASH system resources with service
demands in addressing WASH needs of
people with disabilities and women/girls?
WASH services are sustainable for people
with disabilities and women/girls. Services
will be available at times of financial crisis
and will ensure appropriate technology
choices. Contracts with providers take into
account operation and maintenance, and
funds from donors are sustainable
2.3. Equiframe Scoring
Reference to a core concept, in relation to the rights of people with disabilities, or
women and girls, received a score of 1 to 4:
1. The concept was mentioned;
2. The concept was mentioned and explained;
3. Specific policy actions were identified to address the concept;
4. Intention to monitor the concept was expressed.
In end-line program reports, the scoring of 1 and 2 remained the same, with criteria
altered slightly for scores of 3 and 4:
3. Specific actions were taken in the program to address the concept;
4. Steps to monitor the concept were taken in the program.
Scores of 3 and 4 indicate a reference to the core concept is operational and actionable,
and the reference is deemed ‘high quality’.
For each document, two independent reviewers (NS and JW) coded each reference to
a core concept against the scoring criteria. References, in this context, typically refer to a
single sentence or short paragraph. For example, the following sentence taken from the
Cambodian policy document ‘National Guidelines on WASH for Persons with Disabilities
and Older People’ would be included as a single reference and scored 3 under the concept
of Participation: “Programs should include persons with disabilities and older people in the
planning, implementation, and evaluation of activities where possible, including the partic-
ipation of DPO [Disabled People’s Organization] and OPA [Older People’s Association]
representatives, and representatives from NGOs that already have expertise in working
with these groups”.
Scores were applied separately to references of rights of people with disabilities, and
women and girls. Overlapping references (i.e., with regard to women and girls with
disabilities) were scored twice, under each group. Any discrepancy in score was discussed
by the reviewers until a consensus was reached.
Summary statistics were generated for each document individually and then combined
across both countries under policy and program documentation. Statistics relevant to the
Int. J. Environ. Res. Public Health 2021,18, 5087 8 of 19
rights of people with disabilities, and women and girls, are presented separately. Data
were aggregated across the two countries to help us learn lessons on commonly endorsed
and neglected concepts, to take forward into guideline development, rather than focus on
the strengths and limitations of each individual country approach. To derive these data,
the following statistics were calculated.
2.3.1. Scoring across All Documents
1. Core concept reference:
the proportion (%) of all references to a core concept across
policy and program documents, split by disability and gender. This was calculated
for Bangladesh and Cambodia individually, and aggregated together;
2. Average score:
the average score across all references to a concept, providing insight
into the commitment of included information.
2.3.2. Scoring per Document
1. Core concept coverage:
Each document was examined with respect to the proportion
of the 21 core concepts referenced at least once;
2. Core concept quality:
The proportion of references to all 21 core concepts scored 3 or
4 (i.e., stating a specific action or an intention to monitor that action).
2.3.3. Document Excerpts
Excerpts from included documents were extracted and are presented as an illustrative
example of a single reference, in the context of total scoring. The concept scored is presented
with the excerpt.
2.3.4. Ethical Approval
The study was approved by the Ethics Committee of the London School of Hygiene &
Tropical Medicine (17679), the National Ethics Committee for Health Research in Cambodia
(042), and the Bangladesh Medical Research Council (BMRC/NREC/2019–2022/608).
3. Results
For clarity and ease of interpretation, we have presented the results and summary
statistics under two thematic areas: disability and gender inclusion.
3.1. Policy Documents
A total of 16 WASH policy documents, 10 from Bangladesh and six from Cambodia,
were included in the analysis. Table 2presents the proportion of references (across all policy
documents) and average score attributed to each of the 21 core concepts. Table S1 details
the core concept coverage (i.e., the proportion of core concepts referenced at least once)
and the proportion of references that are scored 3 or 4 for each included policy document.
3.1.1. Core Concept Reference and Coverage: Disability Inclusion
Information related to disability inclusion was most commonly provided with regard
to the rights of Access (21% of all references) and Individualized services (17%).
“Include sanitation businesses in disability awareness raising and encourage universal
accessible design principles—emphasizing the benefits and usability of the whole commu-
nity throughout a persons’ life cycle” (National Guidelines on WASH for Persons with
Disabilities and Older People: Cambodia; Scored Access)
The concepts of Contribution and Accountability were not referenced in any policy doc-
umentation from either country. The concepts of Liberty,Autonomy,Privacy,Family resource,
Family support,Prevention, and Efficiency were referenced relatively infrequently (
1%) com-
pared with other concepts. Most (62%) of the references were scored 3 or 4 (‘high quality’).
Int. J. Environ. Res. Public Health 2021,18, 5087 9 of 19
Table 2. Proportion of total references and average score across concept, in the policy documents of Bangladesh and Cambodia (“-“ denotes no reference to a core concept).
Bangladesh Cambodia Total
Disability (n= 122) Gender (n= 247) Disability (n= 211) Gender (n= 99) Disability (n= 333) Gender (n= 346)
% Refs. Av. Score % Refs. Av. Score % Refs. Av. Score % Refs. Av. Score % Refs. Av. Score % Refs. Av. Score
1. Non-
discrimination 7% 1.6 6% 1.6 8% 2.9 8% 2.0 8% 2.4 7% 1.2
2. Individualized
services 31% 2.1 23% 2.3 10% 2.6 20% 3.1 17% 1.9 23% 2.2
3. Entitlement 7% 2.3 2% 2.3 4% 2.6 4% 2.3 5% 2.4 3% 2.3
4. Capability-based
services 2% 3.0 7% 2.6 9% 2.7 7% 2.6 6% 2.8 8% 2.6
5. Participation 6% 2.4 11% 2.6 13% 2.8 9% 3.0 11% 2.7 11% 2.7
6. Coordination of
services 2% 2.7 4% 2.5 6% 2.7 - - 5% 2.7 3% 2.5
7. Protection from
harm 7% 2.6 12% 2.7 1% 3.0 10% 2.9 3% 2.6 12% 2.0
8. Liberty 1% 2.0 - - - - - - <1% 2.0 0% 0.0
9. Autonomy 1% 1.0 1% 1.7 - - - - <1% 1.0 1% 1.3
10. Privacy 1% 3.0 1% 3.0 - - - - <1% 3.0 1% 3.0
11. Integration 4% 1.6 3% 1.6 4% 2.5 10% 2.4 4% 2.2 5% 1.9
12. Contribution - - 3% 1.9 - - 3% 2.0 - - 3% 1.9
13. Family resource - - - - 1% 2.5 - - 1% 2.5 0% 0.0
14. Family support - - - - 1% 2.0 - - 1% 2.0 0% 0.0
15. Cultural
responsiveness 5% 2.3 4% 2.6 1% 2.0 - - 3% 2.2 3% 2.4
16. Accountability - - 1% 1.5 - - 2% 2.0 - - 1% 1.3
17. Prevention 1% 1.0 3% 1.8 - - - - <1% 1.0 2% 0.4
18. Capacity building 2% 1.7 2% 1.8 12% 2.8 5% 3.0 9% 2.7 3% 2.4
19. Access 15% 2.7 6% 2.8 24% 3.0 10% 3.1 21% 2.7 8% 1.9
20. Quality 7% 2.5 6% 2.5 6% 3.0 10% 3.1 6% 2.7 7% 2.1
21. Efficiency 1% 1.0 2% 1.8 1% 3.5 1% 4.0 1% 2.7 2% 1.9
Total 100% 100% 100% 100% 100% 100%
Int. J. Environ. Res. Public Health 2021,18, 5087 10 of 19
Of the 333 core concept references, 90% regarded people with disabilities as a broad
group, with 4% made in relation to adults with disabilities only, 4% to children with
disabilities, and 2% to the needs of adults and children with disabilities as individual
groups. Only 7% of references referred to women with disabilities.
Across both countries, WASH policy documents referenced 21% of core concepts, on
average, in relation to the rights of people with disabilities (Table S1). Five policies (three
in Bangladesh, two in Cambodia) did not reference a single core concept in relation to
disability inclusion, and the overarching national WASH policy of neither country included
reference to any core concept.
3.1.2. Core Concept Reference and Coverage: Gender Inclusion
Under gender inclusion, Individualized services (23%) was the most commonly ref-
erenced concept. The concepts of Liberty,Family resource, and Family support were not
included in any policy document, whilst Autonomy,Privacy, and Accountability were refer-
enced relatively infrequently (
1%). Half (50%) of the concept references were scored 3 or
4 (‘high quality’).
“Ensure hand pumps and water containers are women- and girl-friendly, and are designed
in ways that minimize the time spent collecting water” (Operational Guidelines for
WASH in Emergencies: Bangladesh; scored Individualized services).
More than one-third (37%) of the 346 references provided information relevant to females
broadly, with no mention of age group, whilst 35% focused on women only and 10% on girls.
Meanwhile, 18% of references referred to women and girls as individual groups.
In contrast to disability inclusion, all policy documents referenced at least one core concept
in regard to gender inclusion. On average, each document referenced 34% of core concepts.
3.2. Program Documents
Seven end-line program reports were included, of which five were implemented
in Bangladesh.
3.2.1. Core Concept Reference and Coverage: Disability Inclusion
Capacity building (27%) was the most frequently referenced concept in relation to
disability inclusion (Table 3).
“The disability-friendly latrines installed by the project were used as a demonstration
to the local government and service providers, such as the municipal and sub-district
governments, Department of Public Health and Engineering, and other NGOs.” (ADD
International—Improved Sanitation for Women and Children with Disabilities living in
extreme poverty in Bangladesh; scored Capacity building)
The concepts of Protection from harm,Liberty,Autonomy,Privacy,Contribution,Family support,
Cultural responsiveness,Accountability, and Prevention were not mentioned in any program report.
Most (90%) of references to the core concepts were scored at 3 or 4 (‘high quality’).
Of the 91 references, 66% were made in relation to people with disabilities broadly, 4%
were focused on adults with disabilities, 12% were focused on children with disabilities
only, and 18% were focused on both adults and children with disabilities as individual
groups. Meanwhile, 19% of references were made in relation to women with disabilities.
Program reports from Bangladesh and Cambodia referenced 14% of core concepts, on
average, in relation to disability inclusion (Table S2). Of the seven reports included, three
did not reference a single concept in relation to disability inclusion.
Int. J. Environ. Res. Public Health 2021,18, 5087 11 of 19
Table 3. Proportion of total references and average score across concept, in the program documents of Bangladesh and Cambodia; (“-“ denotes no reference to the core concept).
Bangladesh Cambodia Total
Disability (n= 89) Gender (n= 176) Disability (n= 2) Gender (n= 14) Disability (n= 91) Gender (n= 190)
% Refs. Av. Score % Refs. Av. Score % Refs. Av. Score % Refs. Av. Score % Refs. Av. Score % Refs. Av. Score
1. Non-
discrimination 1% 4.0 13% 3.3 - - 36% 3.0 1% 4.0 14% 3.2
2. Individualized
services 18% 3.7 14% 3.6 - - - - 18% 3.7 13% 3.6
3. Entitlement 2% 3.0 3% 3.4 - - - - 2% 3.0 3% 3.4
4. Capability-based
services 17% 3.9 10% 3.8 - - - - 16% 3.9 9% 3.8
5. Participation 4% 3.5 11% 3.7 - - 7% 4.0 4% 3.5 11% 3.7
6. Coordination of
services 7% 3.7 - - - - - - 7% 3.7 - -
7. Protection from
harm - - 3% 3.8 - - - - - - 3% -
8. Liberty - - - - - - - - - - - -
9. Autonomy - - 1% 3.0 - - - - - - 1% 3.0
10. Privacy - - - - - - - - - - - -
11. Integration 2% 4.0 5% 2.6 50 4.0 14% 3.5 3% 4.0 6% 2.7
12. Contribution - - 1% 3.0 - - - - - - 1% 3.0
13. Family resource 2% 2.5 1% 2.0 - - - - 2% 2.5 1% 2.0
14. Family support - - - - - - - - - - - -
15. Cultural
responsiveness - - 3% 3.6 - - - - - - 3% 3.6
16. Accountability - - - - - - - - - - - -
17. Prevention - - 1% 4.0 - - - - - - 1% 4.0
18. Capacity building 28% 3.6 19% 3.8 - - - - 27% 3.6 18% 3.8
19. Access 6% 3.2 10% 3.5 - - 7% 3.0 5% 3.2 9% 3.4
20. Quality 8% 4.0 6% 3.6 50% 3.0 36% 3.0 9% 3.9 8% 3.4
21. Efficiency 4% 3.3 2% 4.0 - - - - 4% 3.3 2% 4.0
Total 100% 100% 100% 100% 100% 100%
Int. J. Environ. Res. Public Health 2021,18, 5087 12 of 19
3.2.2. Core Concept Reference and Coverage: Gender Inclusion
Under the theme of gender inclusion, Capacity building (18%) was again most com-
monly referenced, with Non-discrimination (14%), Individualized services (13%), and Par-
ticipation (11%) referenced relatively frequently (
10%), compared with other concepts.
Coordination of services,Liberty,Privacy,Family support, and Accountability were not ref-
erenced in any program document, whilst Autonomy,Contribution,Family resource, and
Prevention were referenced relatively infrequently (
1%). Most (85%) references scored 3
or 4 (‘high quality’).
Of 190 references, 26% were made with respect to females broadly, while 38% were
made in relation to women only, and 24% were made with respect to girls. 12% recognized
women and girls as individual groups.
“Include a detailed gender baseline in relation to WASH at communities and schools for
being able to identify gender related needs, actions and indicators” (Child Rights Founda-
tion: Improving Hygiene and Sanitation of Cambodia Rural Schools and Communities;
scored Non-discrimination and Quality)
With so few references in the program reports of Cambodia, the summary indices
shown in Table 3are predominantly driven by the findings from Bangladesh.
All core concepts were referenced at least once, in relation to gender inclusion. On
average, program reports referenced 33% of concepts, with regard to the rights of women
and girls.
3.3. Mapping Policy to Program
In Cambodia, there was disparity in the inclusion of rights of people with disabilities
between policy and program documents, with program reports referencing just two con-
cepts. The program reports of Bangladesh demonstrated commitment to a greater breadth
of rights of people with disabilities, although these did not always correspond to policy
documents. For example, Capacity building (28%), the most commonly referenced concept
in program documentation, is referenced infrequently (2%) in policy.
This trend is seen again under concepts related to gender inclusion. In Cambodia,
the program documents reference few of the 21 core concepts and do not once reference
Individualized services, which is the most commonly referenced concept (20%) in the coun-
try’s WASH policy documents. Programs in Bangladesh demonstrated a greater breadth
of core concepts with regard to the rights of women and girls, with a number receiving
similar proportional representation in policy and program documents—Participation (11%),
for example. As with the theme of disability inclusion, Capacity building (19%) was more
commonly included in programs, compared to policy documents (2%).
4. Discussion
As a first step in developing guidance on inclusive WASH policy and practice in
LMICs, this study examined the inclusion of 21 core concepts of human rights of people
with disabilities, and women and girls, in WASH policy documents and programs from
Bangladesh and Cambodia.
When analyzed using EquiFrame, the UNCRPD included 95% of core concepts, high-
lighting the suitability of the tool and the core concepts to an assessment of disability
inclusion [
30
]. In relation to the rights of people with disabilities, the WASH policy doc-
uments examined included only 21% of EquiFrame’s 21 core concepts, on average. Both
Bangladesh and Cambodia have committed to the SDGs, and the guiding principle of
“leave no one behind”, and WASH policy documents should be including information
relevant to a greater breadth of rights of people with disabilities, in order to support
disability-inclusive development. The proportion of concepts included in relation to the
rights of women and girls was higher: 34% on average. This trend is also seen in the
program reports: 14% (disability inclusion) vs. 33% (gender inclusion). This may reflect a
better understanding of WASH for women and girls or a greater commitment of support
Int. J. Environ. Res. Public Health 2021,18, 5087 13 of 19
to this group, given their larger demographic representation and contributions to WASH
at the household level. It may also reflect the longer history of gender inclusion in policy,
compared to disability; the UNCRPD was adopted in 2006, whereas the Convention on
the Elimination of All Forms of Discrimination against Women (CEDAW) was adopted in
1979 [
22
,
31
]. Two-thirds of the core concepts were still typically not included in the policy
documents with regard to gender inclusion, which is an omission that should be addressed.
4.1. Accessible and Appropriate WASH Services and Facilities
In realizing disability-inclusive WASH, barriers to accessing services and facilities
must be alleviated, whether they be physical, attitudinal, or institutional [
10
]. Reflecting
this, Access is the most commonly referenced concept in the UNCRPD, and this is observed
in the WASH policy documents of Bangladesh and Cambodia (21%) reviewed in this
study [
29
]. However, Access is not frequently referenced in program reports (5%), despite
its stated value in policy documents and the UNCRPD. The reasons for this are unclear and
will be important to explore in future qualitative research. As well as Access, information
on Individualized services is frequently included in policy and program documentation,
in recognition of the specific WASH needs of people with disabilities (17% and 18%,
respectively), and women and girls (23% and 13%, respectively). Although relatively few
references are made to women with disabilities overall, when done so, Individualized services
is recognized most frequently (18% in policies and 35% in programs).
However, there are a number of factors that contribute to accessibility and individual-
ized services, which have been neglected. For example, Entitlement is rarely included in
either policy (5%) or program (2%) documentation, despite financial burden and poverty be-
ing major barriers to WASH access for people with disabilities in LMICs [
32
]. EquiFrame’s
core concepts do not exist in isolation of one another, and this highlights the need to
recognize the relationships between each and provide guidance that incorporates all.
4.2. Shifting Unequal Power Dynamics
The concept and right of Participation is included relatively frequently in WASH policy
documentation with regard to disability and gender inclusion (11% each), reflecting the
drive for greater empowerment of women and girls and inclusion of people with disabili-
ties in WASH (and other) systems. In the disability sector, this includes the movement of
“Nothing About Us, Without Us”, which advocates the principle that people with disabili-
ties know what is best for them and their community and must be valued as contributors
to the policies, programs, and services that affect their lives [33,34].
That being said, the majority of references across policy documents and programs
are focused on WASH infrastructure (i.e., concepts of Access and Individualized services)
and other than Participation, very few references relate to rights and concepts of empower-
ment of people with disabilities, and women and girls, such as Autonomy and Contribution.
Empowerment and participation reduce stigma and discrimination, which can, in turn,
promote further empowerment and participation, helping to break the cycle of exclu-
sion [3537].
Empowerment must also reflect the capacity of people with disabilities, and women
and girls, in the implementation and management of WASH services and facilities. Women
and people with disabilities are often excluded from positions of leadership in WASH,
whether that be in policy development, WASH management committees, or program
implementation teams. Supporting these groups to exercise their capability and capacity
is needed to achieve a systems change toward inclusive WASH [
38
]. Capability-based
services is included in policy documentation for both groups (6% disability inclusion and
8% gender inclusion), to some extent, and program reports indicate a greater degree of
support in practice for people with disabilities (16%). To further promote successful and
sustainable implementation of inclusive WASH will require training, capacity building, and
support for management committees, government leadership, service providers, and civil
society organizations [10].
Int. J. Environ. Res. Public Health 2021,18, 5087 14 of 19
4.3. WASH and Health
WASH is an important determinant of individual health and protection from disease,
a notable example being its importance in interrupting the transmission of the coronavirus
disease 2019 (COVID-19) [
39
]. Women and girls may also face additional health concerns due
to WASH burdens and duties, such as carrying water. However, Prevention of health condi-
tions associated with WASH is a right rarely included in policy or program documentation
(
2%). As demonstrated in a 2019 systematic review, there is a dearth of evidence on WASH
interventions and their effect on infections in health care settings in LMICs, and this lack
of research may contribute to a limited focus and understanding of Prevention [
40
]. Further
research on WASH interventions, with specific focus on the needs of people with disabilities,
and women and girls, would support evidence-based approaches in policy and practice.
4.4. Reducing the Risk of Violence Associated with WASH
Despite being vulnerable to abuse when using WASH facilities, information on Protection
from harm is rarely included in relation to people with disabilities, in either policy documents
(3%) or programming (0%). However, it is referenced more frequently in policy documentation,
in relation to women and girls (12%), which is a positive finding, although few specific details
are given on the protection of women with disabilities. Safety from abuse is of the utmost
importance in WASH provision. The Sanitation and Hygiene Applied Research for Equity
(SHARE) consortium has developed a practitioner’s toolkit on ensuring safe and accessible
WASH services, which may aid governments and service providers in providing safe WASH
services for people with disabilities, and women and girls [41].
4.5. Recognizing the Role of Caregivers
It is important to note few references toward Family resource and Family support in
either policy or program documents, which is not reflective of the key role that family
members and caregivers provide in supporting people with disabilities in WASH practice.
Many family members take on informal caregiving duties for people with disabilities, and
this responsibility is often placed on women in particular. Family members and caregivers
without support may be unaware of effective hygienic WASH practices on topics such as
menstrual health and hygiene, limiting their ability to best support their family member
manage their menstruation hygienically and comfortably [
42
]. Moreover, results from
Nepal and Malawi document that additional WASH-based tasks placed upon caregivers
of people with disabilities result in psychological distress and feelings of isolation [
19
,
20
].
Support, training, and guidance for families and caregivers is needed to ensure inclusive
WASH provision.
4.6. Target Groups
As with the broader population, WASH is an important public health concern for child
health, impacting survival and development. Conditions such as diarrhea, worms, and
dehydration (all linked to poor WASH) are associated with long-term negative outcomes
in mortality, physical growth, and cognitive, motor and language functioning [
12
,
43
]. Evi-
dence from a number of countries, including Bangladesh, demonstrates the role of WASH
provision and intervention in promoting survival, growth, and child development [
44
46
].
Further evidence estimates that improvements in sanitation practices account for just under
10% of the decline in child mortality, between 1990 and 2015 [47].
Despite the importance of WASH for children, just 4% of references in included
policy documents target children with disabilities. As well as the impact on survival and
development, inadequate and inaccessible WASH facilities contribute to children with
disabilities not attending school, and they can increase a child’s vulnerability to abuse [
10
].
Children with disabilities are a marginalized and vulnerable group, facing a number of
challenges in school and community life, and the very little reference of this group in policy
contributes to their continued exclusion [
48
]. There is an argument that children with
disabilities are included in references to people with disabilities more broadly (90%), and
Int. J. Environ. Res. Public Health 2021,18, 5087 15 of 19
although correct, there is a clear need for specific policy direction for this group, given
the number of important, individualized considerations for them in WASH provision.
The proportion of references targeting children with disabilities is considerably higher in
program documentation (26%). One contributing factor to this higher proportion may be
the analysis of the ADD International-run program, ‘Improved Sanitation for Women and
Children with Disabilities living in extreme poverty in Bangladesh’, in which children with
disabilities are a targeted beneficiary and referenced frequently.
In contrast, girls are well represented across both policy documents (28%) and pro-
grams (36%). WASH is a vital consideration for girls, impacting educational outcomes and
menstrual health and hygiene as well as survival and development [
49
]. Strong propor-
tional representation of girls in policy and practice is needed to advance gender inclusion,
and the results of this study indicate that girls are represented in Bangladesh and Cambodia
to a similar extent as adult women, which is an encouraging finding.
Relatively few references are made to the rights of women with disabilities. This is
higher in programs (19%) than in policy (7%), but as with children with disabilities, this is
driven by the assessment of the ADD International program, in which WASH support for
women with disabilities is a core focus. Women with disabilities are disproportionately
affected by inequalities in WASH, and for the policies of Bangladesh and Cambodia to omit
specific considerations for this group is a major oversight. It is important that this group
not be forgotten in WASH service provision.
4.7. Policy to Practice
The observed disparities in relative inclusion of rights of people with disabilities,
and women and girls, between policy documents and program reports may suggest a
disconnect between policy development and program implementation. In Cambodia, only
two policy documents were available prior to the first program report published in 2015,
of which one contained no information on disability-inclusive rights, and the other was
focused on rural populations. This may account for the limited reference to the rights of
people with disabilities in the program reports of Cambodia.
Across programs, Capacity Building is highly valued, with regard to disability (27%),
and gender inclusion (18%), but this is less the case in policy documents (9% and 3%,
respectively). Limited knowledge and skills in appropriate practices are often a barrier to
disability-inclusive WASH, and capacity building is a core need across the sector for WASH
leadership and service implementers, as well as communities and households [
10
,
50
].
Greater inclusion of this concept in programming may reflect the limited personnel capable
of implementing disability and gender-inclusive WASH, and thus the need to incorporate
capacity strengthening schemes into program delivery, to ensure successful implementation.
This supports findings from ODI, who reported limited capacity as a primary reason for
the slow implementation of disability-inclusive programs [
23
]. The policy documents of
Bangladesh and Cambodia, and future guidance, may demand greater reference to Capacity
building, as the situation amongst implementing organizations appears to indicate a need.
Further, Coordination of services,Efficiency, and Accountability are rarely referenced in
the policy and program documentation, despite their importance to sustained disability
and gender-inclusive WASH provision. Again, these areas are reported by ODI to be factors
toward the slow implementation of disability-inclusive programming in LMICs, and they
appear to be a needed focus in guidance on disability-inclusive WASH, if countries are to
implement inclusive WASH at scale [23].
The findings of this study will inform qualitative research in both countries, in which
we can explore and identify the factors that facilitate and disrupt the implementation of
disability-inclusive WASH policies and programs in more detail. We will be interviewing
policy-makers, service providers, women and men with disabilities, and caregivers. Dis-
parities in policy and program (for example, with regard to the inclusion of information
relevant to Access and Capacity Building) will be discussed. Lessons learned from this
content analysis and the qualitative research will help inform our future guidance devel-
Int. J. Environ. Res. Public Health 2021,18, 5087 16 of 19
opment. This inclusive WASH guidance will complement the new operational guide on
leaving no one behind, developed by the United Nations Sustainable Development Group
to support Member States in reaching the furthest behind first, across all rights enshrined
in the SDGs [51].
4.8. Limitations
Our inclusion criteria for program reports was broad, to help capture as many program
reports as possible. Those published by the same implementation team or organization may
be subject to information bias, depending on the specific purpose and intended audience
of the end-line report. Our original aim was to include both planning and end-line reports,
but these documents were rarely publicly available. In only including publicly available
end-line reports, we have missed the opportunity to assess the inclusion of rights in
programs that did not produce a final evaluation or have these accessible online. We tried
to mitigate this by contacting program implementers directly and by working with teams
in Bangladesh and Cambodia to source documents not readily available through online
searches. Despite our broad inclusion criteria, just two program reports were collected
from Cambodia, limiting the interpretation of findings from this country. We conducted the
search for program reports with the help of in-country teams, but with our focus typically
on larger NGOs and organizations known to be operating on WASH projects, reports may
have been missed from grassroots organizations. A more systematic search strategy of
bibliographic databases would have been preferred, but with very few program reports
indexed on these platforms, we believed our strategy of searching organizations directly
offered the most appropriate methodology. However, there is the risk of selection bias, as
described. With each country operating a decentralized system, it would also have been
beneficial to analyze local or regional WASH policies, to expand our analysis, although
these should always be guided by the national policies included in this review.
In interpretation of the data, it is important to acknowledge that many of the concepts
may have been referenced in the documents, without a specific focus on people with
disabilities, or women and girls. Concepts may have been included more broadly, under
a general, all-encompassing language that applies to the entire population. Although
information pertinent to these concepts should be covered for people with disabilities, and
women and girls, specifically, there may be relevant information for these populations that
is not captured in this study.
5. Conclusions
Our findings have highlighted the inclusion and neglect of core concepts of human
rights of people with disabilities, and women and girls, in WASH policy documents
and programs of Bangladesh and Cambodia using EquiFrame. Information relevant to
accessibility was commonly included, but greater emphasis is needed toward concepts of
empowerment, family support, and sustainable service provision. Specific guidance on the
rights of children and women with disabilities is limited and needed in WASH policy and
programming. Programs did not reflect the same rights as endorsed in policy documents,
and the reasons for this should be explored further in qualitative research. Other countries
would benefit from conducting similar analysis to identify gaps in their WASH policies, of
which to address.
Supplementary Materials:
The following are available online at https://www.mdpi.com/article/10
.3390/ijerph18105087/s1, Table S1: Core concept coverage across the policy documents of Bangladesh
and Cambodia; Table S2: Core concept coverage across the program reports of Bangladesh
and Cambodia.
Author Contributions:
Conceptualization, J.W., N.S., C.H., P.P., M.-u.R. and A.B.; methodology, N.S.
and J.W.; formal analysis, N.S., J.W. and I.M.; investigation, N.S., J.W., C.H., P.P. and M.-u.R.; data
curation, N.S., J.W. and I.M.; writing—original draft preparation, N.S.; writing—review and editing,
J.W., I.M., C.H., P.P., M.-u.R. and A.B.; visualization, N.S., J.W. and I.M.; supervision, J.W.; project
Int. J. Environ. Res. Public Health 2021,18, 5087 17 of 19
administration, N.S., J.W. and C.H.; funding acquisition, J.W. and C.H. All authors have read and
agreed to the published version of the manuscript.
Funding:
This work was supported by funding from the Australian Government, Department
of Foreign Affairs and Trade’s Water for Women Fund, under the project “Translating disability-
inclusive WASH policies into practice: lessons learned from Cambodia and Bangladesh”. The views
expressed in this publication are those of the authors and not necessarily those of the Commonwealth
of Australia. The Commonwealth of Australia accepts no responsibility for any loss, damage or
injury resulting from reliance on any of the information or views contained in this publication.
Institutional Review Board Statement:
The study was approved by: the Ethics Committee of
the London School of Hygiene & Tropical Medicine (17679), 30 October 2019; the National Ethics
Committee for Health Research in Cambodia (042), 2 March 2020; and the Bangladesh Medical
Research Council (BMRC/NREC/2019–2022/608), 17 February 2020.
Informed Consent Statement: Not applicable.
Data Availability Statement:
Further information on the data presented in this study is available on
request from the corresponding author.
Acknowledgments:
The authors wish to thank Mac MacLachlan and Hasheem Mannan of the
EquiFrame development team for providing valuable advice into our adaptation and use of the
content analysis tool. Thank you also to Mirza Manbira Sultana for providing comment to the final
manuscript.
Conflicts of Interest: The authors declare no conflict of interest.
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... 1. The EquiFrame framework, adapted for WASH and disability, assesses the extent to which 21 core concepts of human rights are included in WASH policies and guidance documents (39). Each "core concept" of human rights has key questions and key language to support consistent analyses and scoring of policy content (39). ...
... The EquiFrame framework, adapted for WASH and disability, assesses the extent to which 21 core concepts of human rights are included in WASH policies and guidance documents (39). Each "core concept" of human rights has key questions and key language to support consistent analyses and scoring of policy content (39). The EquiFrame framework includes a quality of commitment score of 1 to 4: 1 = concept only mentioned; 2 = concept mentioned and explained; 3 = specific policy actions identified to . ...
... However, the quality of commitment scores across all groups was low. Three other studies explored the inclusion of disability in WASH-related policies and guidance documents from Nepal (48), Cambodia and Bangladesh (39), and globally within the COVID-19 pandemic (37) by applying similar methods to those used in our study. Across all these studies, our review notes the most significant number of low-quality average scores. ...
Article
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Introduction People with disabilities and older adults face a high risk of dying from COVID-19. Handwashing with soap and sanitizing surfaces were recommended to disrupt COVID-19 transmission. Yet, in many low-and middle-income countries (LMICs), these populations have inadequate access to water, sanitation and hygiene (WASH) and are not reached by public health campaigns. The Hygiene Behavior Change Coalition (HBCC) was set up to limit the spread of COVID-19 in LMICs. Twenty organizations working across 37 countries were funded to encourage populations to adopt recommended personal hygiene behaviors. This study aims to review the inclusion of disability, aging, and caregiving in HBCC grantee interventions. Methods A COVID-19 Inclusive WASH Checklist, which incorporates core concepts of human rights, was developed to support the inclusion of disability, aging and caregivers in interventions. The Checklist was applied to 137 documents submitted to donors within the HBCC fund to assess inclusion. Eligible grantee programme documents related to HBCC-funded projects were identified between August 2020 and January 2021. Feedback was provided to grantees recommending how to strengthen the inclusion of disability, aging, and caregiving. Results Most organizations identified people with disabilities, older adults and caregivers as target groups, but targeted activities to include them were scarce. Where efforts were made, immediate needs rather than rights were addressed. For example, the construction of accessible handwashing facilities featured more prominently than ensuring the participation of these groups. Examples of the coverage of core concepts in interventions included generating data with these groups and developing interventions accordingly. Limitations to inclusion were inconsistent organizational approaches, inability to monitor media campaigns, and inadequate coverage of disability and aging in donor's grant funding mechanisms. Conclusion To ensure these populations benefit from efforts, they must be explicitly identified as target groups, with assigned actions that are monitored; efforts must go beyond accessible WASH services to ensure the meaningful participation of these groups. The COVID-19 Inclusive WASH Checklist supports this but requires further testing to assess its appropriateness and effectiveness.
... Little evidence exists in the literature about the challenges that women and girls with disabilities face in humanitarian crises and no prior evidence syntheses exist on the topic. However, data from non-emergency settings in Vanuatu show that harmful menstrual beliefs affect all women and girls who menstruate, but when disability and menstrual-related discrimination overlap, they further entrench existing inequalities (Scherer et al., 2021b). For instance, inaccessible water and bathing facilities, and socio-cultural expectations that women and girls must manage menstruation independently, resulted in heightened pain, discomfort, and a lack of safety during menstruation, especially for people with mobility limitations and people who are reliant on caregivers. ...
... Pre-existing barriers to WASH facilities have been exacerbated by the COVID-19 pandemic (CBM Water for Women Fund, 2020;Wilbur, 2020, in press;Scherer et al., 2021b), and the pandemic has increased the importance of making WASH facilities accessible for people with disabilities (Emirie et al., 2020). Specific to menstrual health for people with disabilities, standards for disability inclusion require that women and girls have spaces for washing, including space for a caregiver, and space to wash and dry stained clothing and materials and dispose of materials (Rohwerder, 2017). ...
... Inadequate effective and meaningful participation of people with disabilities in WASH programs, from design to evaluation, has been widely documented in development settings (Groce et al., 2011;UN Water, 2015;Scherer et al., 2021b;Wilbur et al., 2021b). Evidence also exists from humanitarian settings, including two papers which explore the extent to which the rights of persons with disabilities are included in international guidance on WASH responses to prevent the transmission of COVID-19 (Scherer et al., 2021a) and interventions (Wilbur, in press). ...
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Introduction Women and girls with disabilities may be excluded from efforts to achieve menstrual health during emergencies. The review objectives were to (1) identify and map the scope of available evidence on the inclusion of disability in menstrual health during emergencies and (2) understand its focus in comparison to menstrual health for people without disabilities in emergencies. Methods Eligible papers covered all regions and emergencies. Peer-reviewed papers were identified by conducting searches, in February 2020 and August 2021, across six online databases (PubMed, MEDLINE, EMBASE, Global Health, ReliefWeb, and Cinahal Plus); gray literature was identified through OpenGrey, Gray Literature Report, Google Scholar, and Million Short. Eligible papers included data on menstrual health for women and girls with and without disabilities in emergencies. Results Fifty-one papers were included; most focused on Southern Asia and man-made hazards. Nineteen papers contained primary research, whilst 32 did not. Four of the former were published in peer-reviewed journals; 34 papers were high quality. Only 26 papers mentioned menstrual health and disability in humanitarian settings, but the discussion was fleeting and incredibly light. Social support, behavioral expectations, knowledge, housing, shelter, water and sanitation infrastructure, disposal facilities, menstrual material availability, and affordability were investigated. Women and girls with disabilities rarely participated in menstrual health efforts, experienced reduced social support, and were less able to access water, sanitation and hygiene facilities, including disposal facilities. Cash transfers and hygiene kit distribution points were often inaccessible for people with disabilities; few outreach schemes existed. Hygiene kits provided were not always appropriate for people with disabilities. Caregivers (all genders) require but lack guidance about how to support an individual with disabilities to manage menstruation. Conclusion Minimal evidence exists on menstrual health and disabilities in emergencies; what does exist rarely directly involves women and girls with disabilities or their caregivers. Deliberate action must be taken to generate data about their menstrual health requirements during humanitarian crises and develop subsequent evidence-based solutions. All efforts must be made in meaningful participation with women and girls with disabilities and their caregivers to ensure interventions are appropriate. Systematic review registration Identifier: CRD42021250937.
... The EquiFrame is an analytical framework for assessing the commitment given to "vulnerable" groups and 21 core concepts of human rights in health policies . The EquiFrame has also been adapted to focus on WASH, menstrual health, disability, and gender Scherer et al., 2021). Core concepts of human rights, such as Participation, Affordability, Access, Protection against harm, and Integration, are included in or correlate to human rights principles in the United Nations Convention on the Rights of Persons with Disabilities (UNCPRD), and the criterion used to specify the rights to water and sanitation (Rapporteur, 2008). ...
... In 2021, we completed an analysis of Cambodia's WASH policies and guidance documents to assess the inclusion of disability rights using the EquiFrame policy analysis tool (Scherer et al., 2021). Findings show attention was given to 15 core concepts of human rights, including Individualized Services, Participation, Family Resource, and Access core concepts of human rights (Scherer et al., 2021). ...
... In 2021, we completed an analysis of Cambodia's WASH policies and guidance documents to assess the inclusion of disability rights using the EquiFrame policy analysis tool (Scherer et al., 2021). Findings show attention was given to 15 core concepts of human rights, including Individualized Services, Participation, Family Resource, and Access core concepts of human rights (Scherer et al., 2021). However, many included policies lacked clearly articulated actions to achieve these, leading the authors to conclude that policy implementation may fail to match stated aims. ...
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Background The Government of Cambodia references core concepts of human rights of people with disabilities in their water, sanitation and hygiene (WASH) policies and guidance. However, few references clearly articulate activities to achieve these. Methods This cross-sectional study in Cambodia explores the implementation of core concepts of human rights referenced in Cambodia's WASH policies in Kampong Chhnang and Svay Reing Provinces: Individualized services, Entitlement/affordability, Participation, Family resource, Access. Seven government officials and 10 service providers working in Phnom Penh and the two provinces, 16 women and men with disabilities (aged 18–65+), and four caregivers living in the study sites were included. Purposive sampling was applied to select participants. In-depth interviews were conducted via Zoom and over the telephone and analyzed data thematically using Nvivo 12. Results The Three Star Approach for WASH in Schools was noted as a promising approach for implementing policy commitments to make school WASH services accessible. However, policy commitments to disability-inclusive WASH were not always enacted systematically at all levels. Organizations of Persons with Disabilities faced challenges when advocating for disability rights at WASH sector meetings and people with disabilities were inconsistently supported to participate in commune WASH meetings. Poor access to assistive devices (e.g., wheelchair) and inaccessible terrain meant few people with disabilities could leave home and many had inadequate WASH services at home. Few could afford accessible WASH services and most lacked information and knowledge about how to improve WASH access for people with disabilities. Caregivers had guidance about how to carry out the role and few had assistive devices (e.g., commodes, bedpans) or products (i.e., lifting devices), so supporting WASH for people with disabilities was physically demanding and time-consuming. Conclusion This study has noted several areas where Cambodia's WASH systems are focusing efforts to ensure people with disabilities gain access to WASH, but it has also highlighted aspects where implementation of policy commitments could be strengthened. A more comprehensive and cross-sectoral approach to progressively realizing the rights to water and sanitation for people with disabilities and challenging disability discrimination more broadly could significantly disrupt the vicious cycle of poverty and disability.
... The Convention on the Rights of Persons with Disabilities has been ratified by almost all countries in the world 43 . However, our findings indicate that this national-level initiative is not always transferred to a lower or local level, as found in other contexts 6 . In the Indonesian context, a national-level policy will be easier to implement if there is an implementing or local regulation at the lower level, e.g. at the provincial or district levels. ...
... www.nature.com/scientificreports/ Capacity building of relevant government bodies and stakeholders is necessary, so they can effectively involve and gather the opinions of PWDs, either in small-scale discussions or community meetings, as also noticed in other studies 6,45 . For example, the meeting's moderator should be directed to allocate time for PWDs to express their opinions in the community meeting, or there should be training on creating a discussion situation where PWDs can express their opinions conveniently. ...
Article
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Access to inclusive sanitation for people with disabilities (PWDs) remains a global challenge, including in Indonesia, where 10–15% of its population is disabled. Inclusive sanitation facilities can be achieved when PWDs are involved in the sanitation-related decision-making process, e.g., designing toilet that meets their needs. This study aims to investigate the situation of the sanitation facility in houses of PWDs and understand knowledge, attitude, and practices related to PWD participation in sanitation programs using a case study in two provinces in Indonesia: Nusa Tenggara Barat and Nusa Tenggara Timur. Quantitative data were taken from 129 PWD households, and qualitative data were from in-depth interviews with relevant stakeholders. The latter was presented in a causal loop diagram. Less than 5% had inclusive sanitation at home, mainly due to no supportive tools and bins. The knowledge levels related to sanitation and PWDs participation in sanitation programs were relatively low. Economic condition was one of the barriers for PWDs to participate in the sanitation program. Statistical analysis found that a higher household head education level was associated with a more positive attitude and higher PWD participation in sanitation programs. Although Indonesian law supports PWD participation, the implementation remains a challenge. This study also underlines the need for capacity building in facilitating PWDs’ involvement in sanitation programs and community meetings. Finally, barriers to PWD participation can come from different levels and actors, e.g., the family, the community, the district level, and the PWD itself, indicating the need to involve actors at all levels to enhance PWD participation in the sanitation program that leads to inclusive sanitation facilities for all groups.
... Even without overt discrimination, the lack of accessible facilities and other accommodations could lead to social isolation or force children to rely on their peers for often uncomfortable tasks such as using toilets or being carried to and from classrooms. Inaccessible toileting facilities and the lack of support in using these facilities have been highlighted in other studies as a barrier to education for children with disabilities [42,43]. It is also a particular concern for girls with disabilities as they enter menarche if they cannot manage their menstruation according to social norms [44,45]. ...
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This study explores factors affecting children with disabilities' enrolment and experience in school in Tamil Nadu, India. In-depth interviews were conducted with 40 caregivers and 20 children with disabilities. Children were purposively selected to maximise heterogeneity by gender, impairment type and enrolment status, using data from a previous survey. Overall, caregivers recognised the importance of school for their children's future livelihoods or at least as a means of socialisation. However, some questioned the value of school, particularly for children with intellectual or sensory impairments. Other barriers to school enrolment and regular attendance included poor availability and affordability of transport, safety concerns or school staffs' concerns about children's behaviour being disruptive. While in school, many children's learning was limited by the lack of teacher training and resources for inclusive education. Poor physical accessibility of schools, as well as negative or overly protective attitudes from teachers and peers, often limited children's social inclusion while in school. These findings carry implications for the implementation of inclusive education in India and elsewhere, as they indicate that despite legislative progress, significant gaps in attendance, learning and social inclusion remain for children with disabilities, which may not be captured in traditional metrics on education access.
... We have used a version of this tool recently adapted to the WASH sector, in assessment of inclusion of the 21 concepts in national WASH policies and programmes in Cambodia, Bangladesh and Nepal, for people with disabilities. 28 For this adaptation, the key language and key questions were adapted to reflect the needs and rights of people with disabilities in the WASH sector, by mapping the core concepts against the 'Human right to water and sanitation', adopted by the United Nations General Assembly in 2010. 23 The 21 core concepts, and the adapted key language and key questions of each are shown in table 1. ...
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Purpose: People with disabilities are at increased risk from COVID-19. Access to water, sanitation and hygiene (WASH) services and facilities is a fundamental right for all, and is vital in stopping the transmission of COVID-19. However, people with disabilities often face difficulties accessing WASH. Various international organisations have published guidance and recommendations on WASH service provision during the COVID-19 pandemic, and this must include information of relevance to people with disabilities. This study aimed to investigate the inclusion of core concepts of rights for people with disabilities in guidance on WASH during the COVID-19 pandemic. Method: We used the EquiFrame content analysis tool to analyse the inclusion of 21 core concepts of rights for people with disabilities in international guidance documents on WASH during the pandemic. 29 documents were included from multilateral entities, international consortiums and non-governmental organisations. Key information from the included guidance documents was extracted for each of the 21 core concepts. Results: One-third of the WASH guidance did not include any reference to the rights of people with disabilities, and the majority of information was provided by just one guidance document. Most commonly referenced across all was access to WASH, including details on accessible infrastructure (eg, handwashing stations) and communication strategies. Information on many important rights and considerations, such as the affordability of services and caregiver support, was rarely included. Conclusion: Although some information is provided in international WASH guidance, this often has a narrow focus on access, rather than the full array of rights and considerations that are important for people with disabilities. International guidance should continue to be reviewed and updated to include further information of relevance to people with disabilities, informing a disability-inclusive approach to WASH during the remainder of the COVID-19 pandemic and future crises.
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One in six people worldwide experiences significant disability. Many of these people living in low-and middle-income countries (LMICs) are disproportionately affected by inadequate access to water, sanitation and hygiene (WASH) services, a fundamental necessity for health and well-being. This review aimed to examine the existing evidence on disability and WASH in LMICs, identify gaps and make recommendations to strengthen disability-inclusive WASH research, policies and practices to make significant progress by 2030. While evidence of WASH challenges faced by people with disabilities has grown in the last decade, revealing significant inequalities, there is a lack of controlled studies to assess the impact of disability-inclusive WASH interventions. This research gap makes it difficult to prioritise investments for scalable solutions. This review proposes three key recommendations: 1) Further expand research on WASH challenges faced by people with disabilities, prioritising climate risks, health impacts, and educational inequalities. 2) Design and test evidence-based disability-inclusive WASH interventions. 3) Rigorously evaluate these interventions to determine what successfully reduces WASH disparities for people with disabilities and their caregivers cost-effectively. This review is the first to synthesise available evidence across disability and WASH and offer a roadmap for future efforts to drive improvements in disability-inclusive WASH by 2030.
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Purpose Migrants and refugee youths’ (MRY) sexual and reproductive health and rights (SRHR) is a global health issue. MRY tend to encounter adverse SRH experiences because of their limited access to and knowledge of SRHR services. Using a socioecological framework, this study examined the barriers affecting MRY’s SRHR. Methods A cross-sectional study utilising a participatory action research design was used. 87 MRY (ages 16-26, from 20 different cultural groups living in Greater Western Sydney, Australia) participated in the study and completed seventeen focus group discussions on MRY’s experiences of SRHR. Focus groups were co-facilitated by youth project liaisons for authenticity and validity. The data were analysed thematically and interpreted using socioecological theory. Results The findings identified socioecological barriers such as lack of awareness and access to services, sociocultural dissonance, and under-implementation of SRHR services. These barriers include cultural disconnects, language barriers, remote service locations, intergenerational cultural conflicts, and ineffective SRHR services. Key themes included traditional and institutional stigma, lack of SRH education, reliance on social media for SRH information and privacy concerns. Conclusion There is limited consideration of MRY’s SRHR and the impact of intergenerational discordance and stigma on MRY's rights. The findings suggest the necessity for a collaborative SRHR strategy and policy design that empowers MRY's agency across multicultural contexts.
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Introduction: Safe drinking water, sanitation, and hygiene (WASH) are crucial to human health. It is essential to reduce inequalities and ensure universal access to WASH to achieve the agenda of sustainable development. We aimed to measure access to WASH, understand the situation and factors affecting WASH practices among the ethnic minority population in Bangladesh, and whether it is related to structural racism towards them. Methodology: We utilized data from the multiple indicator cluster survey-2019. We used the chi-square test for bivariate analysis and multiple logistic regression analyses to identify the effect of ethnicity on WASH in Bangladesh after controlling education, wealth, religion, region, and place of residence. Furthermore, we systematically reviewed the WASH-related policies and programs of Bangladesh to identify structural racism. Findings: While 98.5% of Bengali had access to basic drinking water services, the percentage is 60.6% for the ethnic minority population. For improved sanitation facilities not shared with others, the difference between Bengali and ethnic populations was 22.3% (64.6% vs. 42.3%). On the other hand, 75% of the Bengali population had a handwashing facility with water and soap, and 50% of the ethnic population had them. Ethnicity appeared to be a statistically significant predictor of every component of WASH. Compared to Bengali, the ethnic population had 92%, 39%, 44%, and 18% less access to water (aOR=0.08, p≤0.001), sanitation (aOR=0.61, p≤0.001), and handwashing (aOR=0.56, p≤0.001), and WASH facilities aOR=0.82, p≤0.001), respectively. Among the policies of Bangladesh, only one identified actions for WASH rights of the ethnic, indicating structural inequality. Conclusion: Government should identify the issues of WASH among the ethnic minorities and represent them adequately in the policies for achieving the aim of ‘leaving none behind’ of sustainable development goals.
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Depok City in an effort to create a clean, comfortable, safe and healthy area, so it is necessary to establish and organize a Healthy City. In order to realize the implementation of a Healthy City, it is necessary to support the quality of the physical, social environment, change people's behavior through the active role of the community and the private sector as well as the Regional Government in a directed, coordinated, integrated and sustainable manner. The aim is to realize hygienic and sanitary community behavior independently in order to improve the health status of the community as high as possible, in an effort to create a clean, comfortable, safe and healthy area condition. The method used is qualitative with data triangulation. The data was obtained from interviews conducted with community beneficiaries of sanitation development, village officials, sub-district officials, and officials serving in the Depok City Government. Findings in the field that the Depok City area, especially areas that have slum settlements, are polluted by polluted soil, water and environment conditions. This condition occurred in 73 areas where soil and water samples were taken for laboratory testing. There were 67 (91.78%) locations that were polluted and did not meet the requirements, while there were 6 (8.22%) locations that were not polluted and met the requirements.
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Background Menstrual hygiene management (MHM) is a recognised public health, social and educational issue, which must be achieved to allow the realisation of human rights. People with disabilities are likely to experience layers of discrimination when they are menstruating, but little evidence exists. Methods The study aims to investigate barriers to MHM that people with disabilities and their carers face in the Kavrepalanchok, Nepal, using qualitative methods. Twenty people with disabilities, aged 15–24, who menstruate and experience ‘a lot of difficulty’ or more across one or more of the Washington Group functional domains were included, as well as 13 carers who provide menstrual support to these individuals. Purposeful sampling was applied to select participants. Different approaches were used to investigating barriers to MHM and triangulate data: in-depth interviews, observation, PhotoVoice and ranking. We analysed data thematically, using Nvivo 11. Results Barriers to MHM experienced by people with disabilities differ according to the impairment. Inaccessible WASH facilities were a major challenge for people with mobility, self-care and visual impairments. People with intellectual impairments had difficulty accessing MHM information and their carers despaired when they showed their menstrual blood to others, which could result in abuse. No support mechanisms existed for carers for MHM, and they felt overwhelmed and isolated. Menstrual discomfort was a major challenge; these were managed with home remedies, or not at all. Most participants followed menstrual restrictions, which were widespread and expected; many feared they would be cursed if they did not. As disability is often viewed as a curse, this demonstrates the layers of discrimination faced. Conclusion Issues related to MHM for people with disabilities is more complex than for others in the population due to the additional disability discrimination and impairment experienced. Research exploring these issues must be conducted in different settings, and MHM interventions, tailored for impairment type and carers requirements,should be developed. Attention to, and resourcing for disability inclusive MHM must be prioritised to ensure ‘no one is left behind’.
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Background: Menstrual hygiene management (MHM) is a recognised public health, social and educational issue, which must be achieved to allow the realisation of human rights. People with disabilities are likely to experience layers of discrimination when they are menstruating, but little evidence exists. Methods: The study aims to investigate barriers to MHM that people with disabilities and their carers, face in the Kavrepalanchok, Nepal, using qualitative methods. Twenty people with disabilities, aged 15-24, who menstruate and experience ‘a lot of difficulty’ or more across one or more of the Washington Group functional domains were included, as well as 13 carers who provide menstrual support to these individuals. Purposeful sampling was applied to select participants. Different approaches were used to investigating barriers to MHM and triangulate data: in-depth interviews, observation, PhotoVoice and ranking. We analysed data thematically, using Nvivo 11. Results: Barriers to MHM experienced by people with disabilities differ according to the impairment. Inaccessible WASH facilities were a major challenge for people with mobility, self-care and visual impairments. People with intellectual impairments had difficulty accessing MHM information and their carers despaired when they showed their menstrual blood to others, which could result in abuse. No support mechanisms existed for carers for MHM, who overwhelmed and isolated. Menstrual discomfort was a major challenge; these were managed with home remedies, or not at all. Most participants followed menstrual restrictions, which were widespread and expected, for fear of being cursed if they did not. As disability is often viewed as a curse, this demonstrates the layers of discrimination faced. Conclusion: Issues related to MHM for people with disabilities is more complex than for others in the population due to the additional disability discrimination and impairment experienced. Research exploring these issues must be conducted in different settings, and MHM interventions, tailored for impairment type and carers requirements, must be developed. Attention to, and resourcing for disability inclusive MHM must be prioritised to ensure ‘no one is left behind’.
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Objective This study aimed to provide clarification on the benefits of water, sanitation and hygiene (WASH) alone separately and combined with nutrition in improving child growth outcomes. Design Systematic review and meta-analysis. Methods We conducted a systematic review using the Preferred Reporting Items for Systematic Review and Meta-Analyses guidelines. PubMed, MEDLINE, EMBASE, Scopus, Cochrane Library, Web of Science and Science Direct were searched in May 2018 and last updated in April 2019. We included studies that reported WASH interventions alone separately or combined with nutrition. Fixed and random-effects models were used to estimate pooled effect in mean difference (MD). Heterogeneity and publication bias statistics were performed. Results A total of 18 studies were included: 13 cluster randomised controlled trials (RCTs) and 5 non-randomised controlled trials (non-RCTs). Non-RCTs showed effect of WASH interventions alone on height-for-age z-score (HAZ) (MD=0.14; 95% CI 0.08 to 0.21) but RCTs did not. WASH alone of non-RCTs and RCTs that were delivered over 18–60 months indicated an effect on HAZ (MD=0.04; 95% CI 0.01 to 0.08). RCTs showed an effect for children <2 years (MD=0.07; 95% CI 0.01 to 0.13). Non-RCTs of WASH alone and those that included at least two components, improved HAZ (MD=0.15; 95% CI 0.07 to 0.23) but RCTs did not. WASH alone of non-RCTs and RCTs separately or together showed no effect on weight-for-age z-score (WAZ) and weight-for-height z-score (WHZ). Combined WASH with nutrition showed an effect on HAZ (MD=0.13; 95% CI 0.08 to 0.17) and on WAZ (MD=0.09; 95% CI 0.05 to 0.13) and was borderline on WHZ. Conclusions WASH interventions alone improved HAZ when delivered over 18–60 months and for children <2 years. Combined WASH with nutrition showed a strong effect on HAZ and WAZ and a borderline effect on WHZ. Integrated WASH with nutrition interventions may be effective inimproving child growth outcomes.
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Background: Significant developmental challenges in low-resource settings limit access to sustainable water, sanitation, and hygiene (WASH). However, in addition to reducing human agency and dignity, gendered WASH inequities can also increase disease burden among women and girls. In this systematic review, a range of challenges experienced by women relating to inadequate WASH resources are described and their intersection with health are explored. We further assess the effectiveness of interventions in alleviating inequalities related to the Sustainable Development Goals (SDGs) three (health), five (gender), and six (water). Methods: We searched the MEDLINE database to identify research articles related to water (i.e., WASH), gender, and sustainability. An analysis of both observational and interventional studies was undertaken. For each study, content analysis was performed to identify the relevant WASH, gender, and health related outcomes, and the main conclusions of the study. Results: Key themes from our search included that women and girls face barriers toward accessing basic sanitation and hygiene resources, including a lack of secure and private sanitation and of Menstrual Hygiene Management (MHM) resources. In total, 71% of identified studies reported a health outcome, suggesting an intersection of water and gender with health. Half of the research studies that included a health component reflected on the relationship between WASH, gender, and infantile diseases, including under-5 mortality, waterborne parasites, and stunting. In addition, we found that women and girls, as a result of their role as water purveyors, were at risk of exposure to contaminated water and of sustaining musculoskeletal trauma. A limited number of studies directly compared gender differences in accessing WASH resources, and an even smaller fraction (N = 5, 8.5%) reported sex-disaggregated outcomes. Educational, infrastructural, and programmatic interventions showed promise in reducing WASH and health outcomes. Indeed, infrastructural WASH interventions can be successful if long-term maintenance is ensured. Conclusions: Significant WASH inequities in women and girls further manifest as health burdens, providing strong evidence that the water-gender-nexus intersects with health. Thus, addressing gender and water inequities holds the potential to alleviate disease burden and have a significant impact on achieving the SDGs, including SDG three, five, and six.
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Background: Under nutrition is linked with poor water, sanitation and hygiene (WASH) condition. However, there is conflicting evidence on the effect of WASH on nutritional status of children. This review was, therefore, conducted to estimate the pooled effect of WASH interventions on child under nutrition. Methods: All published and unpublished cluster-randomized, non-randomized controlled trials, and before and after intervention studies conducted in developing countries were included. Relevant articles were searched from MEDLINE/PubMed, Cochrane Collaboration's database, Web of Science, WHO Global Health Library, Google Scholar, Worldcat and ProQuest electronic databases. The methodological quality of the included studies was assessed using JBI critical appraisal checklist for randomized and non-randomized controlled trials. The risk of bias was assessed using the Cochrane Collaboration's tool for assessing risk of bias in randomized trials. The treatment effect was expressed as standardized mean differences (SMD) with 95% confidence interval (CI). Results: This meta-analysis of 10 studies including 16,473 children (7776 in the intervention and 8687 in the control group) indicated that WASH interventions significantly associated with increased pooled mean height-for-age-z-score (SMD = 0.14, 95% CI = (0.09, 0.19); I2 = 39.3%]. The effect of WASH on HAZ was heterogeneous in age and types of interventions. WASH intervention had more effect on HAZ among under two children [SMD = 0.20, 95% CI = (0.11, 0.29); I2 = 37%]. Children who received combined WASH interventions grew better compared with children who received single interventions [SMD = 0.15, 95% CI = (0.09, 0.20); I2 = 43.8%]. Conclusion: WASH interventions were significantly associated with increased mean height-for-age-z score in under 5 years old children. The effect of WASH on linear growth is markedly different with age and types of interventions, either single or combined. Implementing combined WASH interventions has a paramount benefit to improve nutritional status of children.
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Introduction Healthcare-associated infections (HCAIs) are the most frequent adverse event compromising patient safety globally. Patients in healthcare facilities (HCFs) in low-income and middle-income countries (LMICs) are most at risk. Although water, sanitation and hygiene (WASH) interventions are likely important for the prevention of HCAIs, there have been no systematic reviews to date. Methods As per our prepublished protocol, we systematically searched academic databases, trial registers, WHO databases, grey literature resources and conference abstracts to identify studies assessing the impact of HCF WASH services and practices on HCAIs in LMICs. In parallel, we undertook a supplementary scoping review including less rigorous study designs to develop a conceptual framework for how WASH can impact HCAIs and to identify key literature gaps. Results Only three studies were included in the systematic review. All assessed hygiene interventions and included: a cluster-randomised controlled trial, a cohort study, and a matched case-control study. All reported a reduction in HCAIs, but all were considered at medium-high risk of bias. The additional 27 before-after studies included in our scoping review all focused on hygiene interventions, none assessed improvements to water quantity, quality or sanitation facilities. 26 of the studies reported a reduction in at least one HCAI. Our scoping review identified multiple mechanisms by which WASH can influence HCAI and highlighted a number of important research gaps. Conclusions Although there is a dearth of evidence for the effect of WASH in HCFs, the studies of hygiene interventions were consistently protective against HCAIs in LMICs. Additional and higher quality research is urgently needed to fill this gap to understand how WASH services in HCFs can support broader efforts to reduce HCAIs in LMICs. PROSPERO registration number CRD42017080943.
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Background Attention to women’s and girls’ menstrual needs is critical for global health and gender equality. The importance of this neglected experience has been elucidated by a growing body of qualitative research, which we systematically reviewed and synthesised. Methods and findings We undertook systematic searching to identify qualitative studies of women’s and girls’ experiences of menstruation in low- and middle-income countries (LMICs). Of 6,892 citations screened, 76 studies reported in 87 citations were included. Studies captured the experiences of over 6,000 participants from 35 countries. This included 45 studies from sub-Saharan Africa (with the greatest number of studies from Kenya [n = 7], Uganda [n = 6], and Ethiopia [n = 5]), 21 from South Asia (including India [n = 12] and Nepal [n = 5]), 8 from East Asia and the Pacific, 5 from Latin America and the Caribbean, 5 from the Middle East and North Africa, and 1 study from Europe and Central Asia. Through synthesis, we identified overarching themes and their relationships to develop a directional model of menstrual experience. This model maps distal and proximal antecedents of menstrual experience through to the impacts of this experience on health and well-being. The sociocultural context, including menstrual stigma and gender norms, influenced experiences by limiting knowledge about menstruation, limiting social support, and shaping internalised and externally enforced behavioural expectations. Resource limitations underlay inadequate physical infrastructure to support menstruation, as well as an economic environment restricting access to affordable menstrual materials. Menstrual experience included multiple themes: menstrual practices, perceptions of practices and environments, confidence, shame and distress, and containment of bleeding and odour. These components of experience were interlinked and contributed to negative impacts on women’s and girls’ lives. Impacts included harms to physical and psychological health as well as education and social engagement. Our review is limited by the available studies. Study quality was varied, with 18 studies rated as high, 35 medium, and 23 low trustworthiness. Sampling and analysis tended to be untrustworthy in lower-quality studies. Studies focused on the experiences of adolescent girls were most strongly represented, and we achieved early saturation for this group. Reflecting the focus of menstrual health research globally, there was an absence of studies focused on adult women and those from certain geographical areas. Conclusions Through synthesis of extant qualitative studies of menstrual experience, we highlight consistent challenges and developed an integrated model of menstrual experience. This model hypothesises directional pathways that could be tested by future studies and may serve as a framework for program and policy development by highlighting critical antecedents and pathways through which interventions could improve women’s and girls’ health and well-being. Review protocol registration The review protocol registration is PROSPERO: CRD42018089581.
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Around the world, there are between 93 million and 150 million children and adolescents living with disabilities (WHO and World Bank, 2011). An estimated 80% live in low- and middle-income countries (LMICs), where 80% of persons with disabilities live below the poverty line (ibid.). While we know that adolescents with disabilities are far more likely than their peers without disabilities to be denied their basic rights to education, health, recreation and general wellbeing, research aimed at exploring their needs and identifying how best to support their transitions from childhood to adulthood is nascent. Even as adolescence has been recognised by scientists and development actors alike as a key window of opportunity (Sheehan et al., 2017; Steinberg, 2015; UNICEF, 2011), given the rapid physical, psycho-emotional, cognitive and social changes that occur during the second decade of life, and even as disability has moved up the development agenda as part of the ‘leave no one behind’ mandate, adolescents with disabilities have remained largely invisible in policy, programming, and research. The estimated costs of inaction are staggering on multiple dimensions. In China, for example, each additional year of education can raise a child with a disability’s income in later life by 8% (Liao and Zhao, 2013). This report takes stock of current evidence from LMICs, drawing on findings from a thematic evidence review combined with emerging findings from the Gender and Adolescence: Global Evidence (GAGE) survey and qualitative research baseline studies in Bangladesh, Ethiopia, Jordan and Palestine. These interviews involved more than 6,000 adolescents and their caregivers – including approximately 600 girls and boys with physical, visual, hearing or intellectual impairments, alongside service providers and policy actors. The report draws attention to the multiple and intersecting capabilities that need to be supported in order for adolescents with disabilities in LMICs to reach their full potential. It goes beyond a focus on their access to education and health services, and also considers their rights to psychosocial wellbeing, protection from violence, mobility and opportunities to participate within their communities, as well the skills, assets and support they need to become economically independent once they transition into adulthood.
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Water sector is crucial to sustainable development. It sustains the natural resources, livelihood of the people and facilitates to operate economic activities of the country. Currently, the water sector of Bangladesh is under severe threats particularly due to impacts of climate change. The Fourth Assessment Report of International Panel on climate change confirms that the water sector will be one of the most vulnerable sectors to climate change. Climate change impacts are being manifested in the form of extreme climatic events and sea-level rise followed by salinity intrusion into the groundwater and wetlands. The Government of Bangladesh has formulated policies to address the climate-induced water vulnerabilities. However, the existing policies are heavily leaned towards strategising adaptation options to address short-run climate-induced water vulnerabilities. Implementation of long-term approaches to combating climate change require laying groundwork which include extensive research on determining the future impacts of climate change on water resources. The article aims to assess some of the major policies, including National Water Policy, Bangladesh Climate Change Strategy and Action Plan, National Strategy for Water Sanitation and Hygiene, The National Sustainable Development Strategy, National Adaptation Programme of Action and Bangladesh Delta Plan 2100, through the lens of climate change to determine that up to what extent these policies have addressed the climate-induced water vulnerabilities. The article has recommended to emphasise on conducting a comprehensive research with proper institutional setup on the long-run impacts of climate change on water resources and undertake subsequent water adaptation strategies to address the water-related problems.