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Factors Related to Caregiver State Anxiety and Coping With a Child's Chronic Illness

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Abstract

The resiliency of families, based on family functioning and family hardiness, may influence caregivers' anxiety while their child is in the hospital undergoing treatment for his or her chronic illness. The current study assessed the relationship among these factors for caregivers of children with various chronic illnesses who were residing at a local Ronald McDonald House (RMH). Caregivers completed paper-based questionnaires to assess family hardiness, functioning, and parent state anxiety and interviews to identify positive and negative strategies and behaviors affecting how they were coping with their child's illness. Findings indicated that family functioning mediated the relationship between family hardiness and caregiver anxiety as a resilience factor that further reduced caregiver anxiety. During interviews, caregivers suggested that support from family members strengthened their coping abilities. Negative interactions with their child's medical team and not knowing how or being equipped to help their child live with his or her illness heightened caregiver stress. Future research should focus on developing, implementing, and measuring the effectiveness of interventions to improve caregiver support, such as by holding caregiver support groups at local RMHs, especially during a child's hospitalization. (PsycINFO Database Record (c) 2013 APA, all rights reserved).
Factors Related to Caregiver State Anxiety and Coping With a
Child’s Chronic Illness
Laura A. Nabors, PhD
University of Cincinnati
Jessica C. Kichler, PhD
Cincinnati Children’s Hospital Medical Center,
Cincinnati, Ohio
Anne Brassell, BA
University of Vermont
Sunny Thakkar, BA
Cincinnati Children’s Hospital Medical Center,
Cincinnati, Ohio
Jennifer Bartz, BA, Jordan Pangallo, BA, Bevin Van Wassenhove, BA, and
Heidi Lundy, BA
University of Cincinnati
The resiliency of families, based on family functioning and family hardiness, may
influence caregivers’ anxiety while their child is in the hospital undergoing treatment
for his or her chronic illness. The current study assessed the relationship among these
factors for caregivers of children with various chronic illnesses who were residing at a
local Ronald McDonald House (RMH). Caregivers completed paper-based question-
naires to assess family hardiness, functioning, and parent state anxiety and interviews
to identify positive and negative strategies and behaviors affecting how they were
coping with their child’s illness. Findings indicated that family functioning mediated
the relationship between family hardiness and caregiver anxiety as a resilience factor
that further reduced caregiver anxiety. During interviews, caregivers suggested that
support from family members strengthened their coping abilities. Negative interactions
with their child’s medical team and not knowing how or being equipped to help their
child live with his or her illness heightened caregiver stress. Future research should
focus on developing, implementing, and measuring the effectiveness of interventions to
improve caregiver support, such as by holding caregiver support groups at local RMHs,
especially during a child’s hospitalization.
Keywords: family resilience, caregiver anxiety
Hospitalization of children with medical con-
ditions can often be a traumatic and stressful
experience for caregivers, who may experience
significant anxiety and distress while their child
is hospitalized (Barakat & Alderfer, 2011;Cof-
fey, 2006). When a child with a chronic illness
faces treatment, caregivers may need to adapt
and cope with stress related to their child’s
treatment before they and their child can begin
to adapt to the medical illness itself (Kazak &
Barakat, 1997). Although there are individual
differences in caregiver adjustment (Wallander
Laura A. Nabors, University of Cincinnati; Jessica C.
Kichler, Cincinnati Children’s Hospital Medical Center, Cin-
cinnati, OH; Anne Brassell, University of Vermont; Sunny
Thakkar, Cincinnati Children’s Hospital Medical Center, Cin-
cinnati, OH; Jennifer Bartz, Jordan Pangallo, Bevin Van Was-
senhove, and Heidi Lundy, University of Cincinnati.
The authors thank Bevin Van Wassenhove, Amanda
Strong, and Halley Shipley for their assistance with data
collection. Great appreciation is extended to staff and par-
ents at the RMH of Greater Cincinnati.
Correspondence concerning this article should be ad-
dressed to Laura Nabors, Mail Location 0068, School of
Human Services, College of Education, Criminal Justice
and Human Services, University of Cincinnati, Cincin-
nati, OH 45221-0068. E-mail: naborsla@ucmail.uc
.edu
This document is copyrighted by the American Psychological Association or one of its allied publishers.
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
Families, Systems, & Health © 2013 American Psychological Association
2013, Vol. 31, No. 2, 171–180 1091-7527/13/$12.00 DOI: 10.1037/a0031240
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... and thought regulation are supported by constructs that promote well-being and may alleviate the negative impact of hospitalization. Keywords: coping; hospitalization ; family; positive psychology Introdução A internação hospitalar de uma criança é um momento difícil para as famílias, sendo compreendida como um evento estressor e um momento de crise no desenvolvimento (Nabors et al., 2013;Salvador et al., 2015). Ao mesmo tempo, as famílias possuem forças, virtudes, emoções positivas, entre outros fatores, que se mostram como recursos para o enfrentamento da situação (Martins & Paduan, 2010;Moskowitz, Addington, & Cheung, 2019). ...
... Ao revisar estudos nacionais e internacionais sobre o enfrentamento de familiares durante a hospitalização de crianças, observa-se a variedade de enfoques dados ao tema em termos de delineamentos, tipos de doenças e/ou procedimentos médicos e contextos das famílias (Marsac, Mirman, Kohser, & Kassam-Adams, 2011;Nabors et al., 2013;Palmer et al., 2011;Sabman et al., 2012;Salvador et al., 2015;Tehrani, Haghighi, & Bazmamoun, 2012;Tremolada et al., 2011;Zapata, Bastida, Quiroga, Charra, & Leiva, 2013). Desse modo, denota-se a complexidade do fenômeno, uma vez que existem diferentes combinações dos fatores que influenciam o melhor enfrentamento da situação. ...
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