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Anthropological Contributions to AIDS Research

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... In recent years, the participation of Anthropology in health research has been increasing (Singer, 1994). Especially, in the 1980s anthropologists were drawn the AIDS programme to make catalogue cultural practices that might carry the risk of HIV transmission (Marshall and Bennett, 1990). Since then, anthropology has developed a more prominent point of view by advocating an approach to culturally specific behaviours and beliefs related to HIV/AIDS (Gatter, 1995). ...
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HIV/AIDS is a global pandemic. From the biomedical perspective, HIV is a virus. HIV stands for Human Immunodeficiency Virus. The virus attacks the immune system, and weakens the body’s ability to fight infection and disease. In recent years, the participation of anthropology in health research has been increasing. Especially, in the 1980s anthropologists were drawn the AIDS programme to make catalogue cultural practices that might carry the risk of HIV transmission. By an anthropological perspective, the HIV/AIDS epidemic is caused by poverty, starvation and hunger, war, unemployment, uneven regional development, sex traffic, migration and working away from home, prostitution and selling sex, drug transactions, and discrimination. This work considers the way in which poverty affects the HIV/AIDS epidemic, and the causes of spreading HIV pandemic are not just evaluated by poverty, also is evaluated considering by wealth.
... Some researchers, especially those interested in sexuality and gender issues, have noted the significance of anthropological studies to different aspects of the AIDS epidemic (Gorman, 1986;Feldman, 1986;Herdt, 1987;Herdt et al, 1990;Frankenberg, 1988;Marshall and Bennett, 1990;Bolton, 1991). They stress the collaborative role of anthropology in education and prevention of HIV infection with epidemiology, social psychology and nursing studies. ...
Thesis
This dissertation examines specific issues surrounding the experience of living with HIV and AIDS in Rio de Janeiro, Brazil. It focuses on the process of identity formation in relation to local forms of social organization within the context of the AIDS epidemic since the mid-1980s. These processes are closely associated with factors, such as sexuality, gender and illness. Based on a historical and ethnographic perspective, fieldwork was mostly carried out in the metropolitan area of Rio de Janeiro. To investigate the social world of AIDS, I visited AIDS non-governmental organizations (NGOs), gay activist groups, and clinical settings involved with AIDS treatments and care. As a case-study, I conducted ethnographic research in the Grupo Pela Vidda-Rio, the leading AIDS NGO in the State of Rio de Janeiro. The thesis is composed of nine chapters. The first and second chapters give an introduction to the main research topics, aims, fieldwork, selected methodologies and a critical overview of the studies on sexuality, identity and AIDS in Brazil. Chapter three discusses the discursive practices and the cultural representations produced by the Brazilian news media, which contributed to popularize dominant cultural conceptions of the epidemic, particularly a stigmatizing identity: the "aidetico". Chapter four articulates the idea of the AIDS epidemic as a health crisis, which emerged alongside other moral and social problems. I focus on the role of Brazilian AIDS public policy and health structures in the social reproduction and incorporation of sexual and clinical identities, namely, "seropositive" and "seronegative" identities. Chapter five deals with the different forms of civil mobilization and social organization that constitute the social world of AIDS in Rio de Janeiro in relation to national and global levels. The local influence of global discourses on "solidarity" is analysed in its links to particular models of identity construction, especially discourses on the cultural meanings of "people living with HIV and AIDS". Chapter six is an ethnographic case-study of the Grupo Pela Vidda-Rio, its activities, composition, ideological aims and historical changes. As a final step to understand the broad determinacy of processes of identity formation, chapters seven and eight give an ethnographic analysis of how a range of identities (gender, sexual, and clinical ones) can be socially and culturally performed in the specific social setting of Grupo Pela Vidda. The complex logic of sociability and the power of social hierarchies in the definition and incorporation of identities are largely discussed in these two chapters. My main contribution, therefore, is to give a better understanding of the constitutive tension between broad processes and specific contexts of identity formation. This tension is fueled by different organizational and ideological models at work within the particular social world of AIDS in Rio de Janeiro.
... While anthropology was initially slow responding to the HIV epidemic in the early 1980s, this changed rapidly with a growing interest amongst medical researchers regarding supposed differences in sexual behaviour between different "cultural groups" (Marshall and Bennett 1990). This produced a research agenda that, as Fassin (2007) bluntly states, exoticized ethnographic knowledge and focused on the "customs of the natives". ...
Chapter
In Bushbuckridge, as HIV prevalence and AIDS death increased, rumours about purposeful HIV infection and death flourished. In the late 1990s and early 2000s, rumours targeted scientists, medical professionals and technologies in tales of purposeful infection, casting HIV as a threat posed by external and foreign agents. However, by the mid to late 2000s, stories about young attractive women and wealthy men purposefully infecting people with HIV replaced these earlier rumours. I argue that this represents shifting comprehensions of AIDS from an external to an internal threat, its domestication and construction through cultural framings of moral personhood.
... Además de que el SIDA se considere la pandemia más dramática del último tercio del siglo XX, a cuya rápida expansión ha contribuido la intensificación de los desplazamientos de población, su expansión, las reacciones sociales a la enfermedad y las intervenciones políticas al respecto han ido dejando al descubierto desequilibrios estructurales, factores culturales y prejuicios sociales y morales (Schoepf, 2001). Desde que se iniciaron las primeras investigaciones, éstas se han ido diversificando hasta convertirse en uno de los temas que mayor interés ha despertado en la antropología médica, centrándose fundamentalmente en aspectos relacionados con la prevención del VIH (Marshall y Bennett, 1990). ...
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Beyond "National Character": Anthropology Addressing Global Challenges: Since the beginning, social and cultural anthropology has been interested in global connections of culture. However, this interest has been increased in the last decades due to the social and cultural consequences of globalization, diversifying not only research fields, but also contexts, analytical units, research techniques, and applications. While exploring and proposing new alternatives, anthropologists are seeking new interdisciplinary approaches in different fields such as health, development, education, or migration. In doing so, current ethnographies are focusing on family, social networks, communities at local, national, and transnational level, civil organization, citizenship, human rights, or social networks in Internet. By contextualizing these changes and developments in what has traditionally been known as applied anthropology, this article seeks to analyze how current approaches and applications are addressing socialcultural challenges posed by globalization. Aunque el interés por las conexiones globales de la cultura se ha dado en la Antropología desde sus inicios, éste se ha intensificado ligado a las consecuencias socioculturales de los actuales procesos de globalización. De ahí que no sólo se haya ido diversificando sus ámbitos de estudio, sino también contextos, unidades de análisis, técnicas de investigación y ámbitos de aplicación, explorando y proponiendo alternativas. Y en esa misma medida, sus posibilidades de intervención en ámbitos como la salud, el desarrollo, la educación o los desplazamientos de población; y con enfoques específicos en familias, redes sociales, comunidades locales, nacionales o transnacionales o en ciberespacios participativos. Contextualizando las distintas propuestas de investigación y aplicación que se han ido dando en la disciplina, este artículo pretende analizar distintas propuestas teóricas, etnográficas y aplicadas que se están dando
... The role of anthropology in the study of HIV and AIDS has long been recognized in the development of "analytical perspectives which transcend conventional host-vector epidemiology" (El-Bayoumi and Morsy 1993:1). Anthropologists have engaged in research aimed at elucidating the meaning of AIDS in particular cultural contexts (Marshall and Bennett 1990) and the subjective experience of AIDS in different social and cultural environments (Alcano 2009;Whyte 2009). As HIV disease has evolved into a chronic condition in which individuals can experience long periods of good health, anthropological examination of the sick role (Crossley 1998) and clinician and patient's differing chronic illness models take on added significance (Hunt and Arar 2001;Sobo 1999). ...
Article
Children born with HIV in the 1980s and 1990s are surviving into adolescence and adulthood, due to the availability of highly active antiretroviral therapy (HAART). Growing up with a chronic and stigmatized disease presents considerable challenges as young people explore their sexuality, develop relationships, and take steps to become independent and productive adults. Adherence to HAART is an essential and life-long practice for the maintenance of health and longevity. For adolescents born with HIV, a daily medication schedule is one aspect of disease management that also includes medical visits, HIV status acceptance, bouts of illness, and disclosure of HIV status to others. This research uses a framework of medical ecology to explore the personal, socio-familial, and medical contexts in which perinatally HIV-infected adolescents, as competent social actors, navigate the complexities of HIV disease management. It examines personal behaviors and attitudes, family dynamics, peer relationships, and health care structures and relationships that affect their adherence to HAART. A key finding of this study was increased agency and adaptation to HIV among adolescents who learned their diagnosis earlier in life and whose caregivers demonstrated acceptance of HIV and support for the adolescents. They were able to adhere to their medication regimens, despite busy schedules, non-disclosure to friends, and treatment fatigue, and also had a somewhat better understanding of the medical aspects of HIV and HAART. Yet all of the adolescents had gaps in their understanding of clinical indicators and viral resistance, and the relationship between adherence and HIV transmission. This deficit in a medical conceptualization and understanding of HIV and its ramifications is another important finding of this study. The adolescents' notions and actions regarding HIV disease, based on social, cultural, and medical norms and interactions within their environment, have a significant impact on the natural history of HIV. The level and consequent infectiousness of HIV as it responds to medications, mutates in their absence, and multiplies or is suppressed, depends on the individual's strict adherence to medications and attention to medical details, and affects HIV transmission to the individual's sexual partners. From both an individual medical and a public health perspective, an understanding of the ramifications of adherence and non-adherence to HAART is crucial. Early acceptance and understanding of HIV increase the possibility of successful medication adherence and overall disease management. In order to facilitate perinatally-infected adolescents' disease management and adherence to medications, it is recommended that the process of disclosure of HIV diagnosis to the child begin early so that the child is fully aware by the age of ten. The acceptance of HIV in the family and clear-cut roles and responsibilities for disease management should be facilitated by ongoing instruction and counseling. Adolescents should be given thorough, if basic, instruction on the medical aspects of HIV, and should be encouraged to have friends, and especially sexual partners, accompany them to their clinic visits. This will encourage greater understanding of HIV and perhaps lead to less stigmatization of HIV and those living with HIV. Finally, providers and adolescent patients should construct a partnership in which their individual models of disease management are integrated and power and responsibility are appropriately shared.
... While anthropology was initially slow to respond to the challenge of research on AIDS in the early 1980s, this changed rapidly with a growing interest within biomedical research on sexual behaviours and meanings between different 'cultural groups' (Marshall & Bennett 1990). This research has produced an agenda that, as Fassin (2007, 25) bluntly states, focuses on the 'customs of the natives' that promote the spread of AIDS and anthropological knowledge tends to be exoticized. ...
Thesis
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From the early 1990s, rates of HIV infection increased dramatically in South Africa and by the early 2000s, AIDS emerged as the main cause of death for adult South Africans. During the first half of the 2000s, the South African government’s response to this crisis was inadequate, marked by denial and delays in implementing prevention and treatment, resulting in thousands of preventable deaths. Yet, apart from the challenges posed by the predominantly urban-based Treatment Action Campaign (TAC), the absence of a social response to this crisis is notable, especially in rural settings. This scenario forms the broad backdrop to this ethnographic study that draws on participant observation and interviews undertaken over a three-year period (2002-2005) in KwaBomba village previously in the Gazankulu Homeland, now located in the Bushbuckridge municipality of the South African lowveld. An ethnographic perspective provides an intimate vantage point from which to view peoples’ experiences of the AIDS epidemic and their responses in context. This perspective draws attention to gaps in public health and biomedical understandings of the epidemic and suggests alternatives to these understandings. In Bushbuckridge, mortality and morbidity due to AIDS became visible in the late 1990s and early 2000s. Households were incapable of dealing with the burden of illness and death while the health services were often unwilling and ill-prepared. HIV prevention campaigns based on individual behaviour change were not well suited to a context in which HIV spread through sexual networks. Despite widespread awareness of the threat of AIDS, the disease was subjected to public censorship and AIDS suffering was concealed. Public discourses of AIDS were hidden within gossip and rumour and articulated as witchcraft suspicions and accusations. Although these discourses appear to deny and suppress the reality of AIDS, I suggest that they are active attempts to deal with the AIDS crisis: gossip and rumour allocate blame and construct a local epidemiology through which the epidemic can be surveilled; interpreting AIDS as witchcraft creates the possibility of avenging untimely death. These discursive forms are critical in informing individual and social responses to the AIDS epidemic. While the absence of public acknowledgement of AIDS as a cause of illness and death suggests denial and fatalism and appears to limit public action, subaltern discourses create shared secrets to manage the AIDS epidemic at the local level. Furthermore, these discourses may constitute a form of resistance against biomedical models of causality. Ethnographic enquiry at the local level offers a nuanced understanding of social responses to the AIDS epidemic. By examining forms of expression that lie outside the domain of public health, the book reveals how these constitute significant forms of social action in response to the epidemic.
Chapter
Drawing on ethnographic material collected over almost two decades in the South African lowveld district of Bushbuckridge, this chapter discusses the social and cultural implications of global discourses of the “end of AIDS”. I argue that in Bushbuckridge, antiretroviral therapy (ART) heralded the transformation of the epidemic into an “epidemic of ARVs” and that this consequently threatened to invisibilize social suffering in the past and the present and exposed the disjunctures between local experiences and global narratives of HIV.
Thesis
HIV officially arrived in Vietnam with the reporting of the first case in December 1990. All available research pointed to the fact that Vietnam was about to become part of the AIDS pandemic. Through the complex, dynamic exchanges of discourses between development agencies, HIV prevention groups and governments, the 'threat' of HIV and AIDS was created. 1 At the same time, Vietnam was experiencing rapid and extreme social and economic changes. This thesis explores the modalities through which the threat of HIV and AIDS has been socially constructed in contemporary Vietnam. It was a time when Vietnam increased its efforts to modernise and become once again part of the global economy and thus it was especially vulnerable to particular readings of the dominant global discourses about the disease.
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M. Margaret Clark is the 1992 recipient of the Society's Malinowski Award, which was presented at the SfAA's 52nd annual meeting in Memphis, Tennessee. This annual award is given to a senior colleague in recognition of efforts to understand and serve the needs of the world through social science. Dr. Clark is Professor Emerita in the Division of Medical Anthropology, Department of Epidemiology and Biostatistics, School of Medicine, University of California, San Francisco CA 94143. The following is the lecture delivered by Dr. Clark on the occasion of her receiving the Malinowski Award.
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Chapter
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