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Anorexia Nervosa: Lessons from a Follow-up Study

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Abstract

Presents data from 81 families with a member who was treated for anorexia nervosa between 1978 and 1987 and followed up in 1984 and 1987. Topics discussed include the triggering situations for disease onset, patients' symptoms, family therapies, and follow-up. Results of the follow-ups are discussed in terms of (1) patients' eating behaviors, weight, and menstruation; (2) their relationships with peers; (3) individuation from family of origin and development of family relationships; and (4) symptoms and complaints of other family members. Four cases involving female patients (aged 11–28 yrs) illustrate the range of clinical experience, as well as the methodological problems in assessment. (PsycINFO Database Record (c) 2012 APA, all rights reserved)
Anorexia Nervosa: Lessons from
a Follow-up Study
Helm Stierlin, MD,Ph.D., and Gunthard
Weber,
MD
In 1984 and 1987 we carried out follow-up studies on most of the anorexia
families we had been treating. The first time we included
31,
the second time 62
families. The findings from the first study have already been published (11).
With each study we had different aims in mind and employed different
methods. Before we focus on these, we would like to comment briefly on the
value and limits of outcome studies in general.
These studies provide information on the natural course of an illness or
disturbance and on the efficacy of therapeutic measures. Therefore, it should
not surprise us that there now exist over 50 studies, worldwide, which examine
the course of anorexia nervosa after various types of therapy. Recently Hsu (5)
gave a critical overview of such studies. When compared with other outcome
studies in the psychotherapeutic domain, studies of anorectics promise relatively
clear-cut results. They can measure not only "soft" psychosocial factors but also
"hard" data such as weight gain, menstruation, and observable changes in eating
behaviors. However, even here, a number of methodological problems remain
that have been insufficiently addressed by existing studies. For example, Hsu (5)
mentions several serious methodological failings of outcome studies in anorexia
nervosa. He mentions in particular:
lack of clinical data and inadequate diagnostic criteria;
lack of adequate description of treatment;
inadequate followup (e.g., short duration of follow-up, a high failure-to-
trace rate, indirect methods of evaluation, poorly defined outcome criteria,
failure to employ multiple outcome measures).
We may add to this list another failing: The health of the other family
members and the development of the whole family are not given enough
attention. Our experience as family therapists has taught us that frequently
Helm Stierlin, MD, Ph.D., is the medical director of the Department of Family Therapy, University of
Heidelberg Medical School, Heidelberg, West Germany. Gunthard Weber, MD, is a psychiatrist and
family therapist in private practice in Wiesloch, near Heidelberg, West Germany.
This article was written in collaboration with Arnold Retzer.
This article has been adapted with permission from a chapter in Unlocking the Family Door, by Helm
Stierlin, MD, Ph.D., and Gunthard Weber, MD. New York: Brunner/Mazel, 1989, pp. 179-230.
120 Family Systems Medicine, Vol. 7, No. 2,1989 © FSM, Inc.
This document is copyrighted by the American Psychological Association or one of its allied publishers.
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
... Following this theory, Minuchin encouraged parents to unite against the ED in a firm way in order to restructure enmeshed boundaries between the parents and child. Stierlin and Weber (1989) published longitudinal studies examining 62 families with a member who was struggling with AN and conceptualized the families as rigidly close, showing little individuation and high levels of control. Many ...
... Eating Disorder Treatment in Couples 257 systems theorists proposed strengthening the individualized identity of the client with an ED by creating distance and boundaries within the family system (Minuchin et al., 1978;Stierlin & Weber, 1989). Rather than building empathy for families that were coping with the stress of the effects of an ED, systemic conceptualizations of the 1970s and 1980s labeled these families as dysfunctional and unique from other families. ...
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... Humphrey (1986 Humphrey ( , 1987) too did not find that the same description fitted all families. The way of describing families that we wanted to use in this study was introduced by Stierlin and Weber (1989); this divides families into two groups: centrifugal or centripetal. This method of describing families was developed by Beavers and his co-workers (Hulgus et al., 1988; Beavers and Hampson, 1990). ...
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This study looks at family function in families with a child with anorexia nervosa, at the time when they begin treatment. We wanted to see how these families differed from normal, non-clinical families. Thus, we examined 26 families, picked from a consecutive series of patients and their families at the Eating Disorders Unit. The families were rated by means of self-report questionnaires?the FARS (FAmily Relation Scale) and the FCS (Family Climate Scale)?and videotaped family tasks. The differences between families with anorexia nervosa patients and non-clinical families seem to confirm the clinical description by Minuchin et al. in that the ratings done by independent observers describe families with anorexia nervosa patients as more enmeshed. However, the observers also found various family types within the anorexia nervosa group. Ratings based on self-report questionnaires showed that both fathers and mothers in the anorexia nervosa group scored high on cohesion as measured with the FARS.
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Evidence for the Effectiveness of Family Therapy for Anorexia NervosaIs There a Link between Particular Type of Family Functioning and Anorexia Nervosa?A Theory for Clinical PracticeA Model of TreatmentConclusion NoteReferences
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There is growing empirical evidence that family therapy is an effective treatment for anorexia nervosa, particularly in adolescence. This is in spite of the fact that the theoretical model from which most of the empirically based treatments are derived appears flawed. This paper provides a brief overview of the research evidence from treatment studies and studies of family functioning. It suggests that the main limitation of earlier theoretical models is their focus on aetiology rather than on an understanding of how families become organized around a potentially life-threatening problem. An alternative conceptual model is presented, and its application to family therapy and multiple-family therapy for adolescent anorexia nervosa is described. The treatment approach focuses on enhancing the families' own adaptive mechanism and mobiliz-ing family strengths.
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A consideration of interactional style is useful to both researchers and clinicians interested in family assessment. This paper offers data and process evaluation scales designed to determine family interactional style, conceptualized as a continuum ranging from centripetal (CP) to centrifugal (CF), and containing at the midpoint a mixed area in which facets of both the CP and the CF styles are found.
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A national sample of 628 women with eating disorders completed questionnaires in 1982 and again in 1984. According to initial simulated DSM-III diagnoses, 34 had anorexia nervosa with bulimic features, 392 had normal-weight bulimia, and 202 had a subdiagnostic eating disorder. Most respondents in the latter two groups met some criteria for alternative eating disorders. At follow-up, 29% of the anorexia nervosa group and 43% of the normal-weight bulimia group had improved enough to be classified as having a subdiagnostic disorder. Respondents who sought professional help between the initial survey and follow-up reported no more improvement than those who did not seek help.
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Synopsis ‘Weight pathology’ – defined by Kalucy et al. (1977) as ‘deviations in weight, shape, eating behaviour and activity’ – has been hypothesized to be unduly common in families with anorexia nervosa. It was investigated in this study by means of questionnaires evaluating both weight history and attitudes towards weight-related matters in 58 mothers of anorexia nervosa patients and 204 mothers of schoolgirls of similar age and socioeconomic status (SES). No support was found for the hypothesis. A family history of aberrant weight and mother's current weight and past weight histories showed no significant differences between the groups. 142 other mothers of schoolchildren and 446 attenders at Weight Watchers also completed the questionnaire on attitudes towards weight-related matters. Mothers of patients showed a lower concern on all scales than did all other groups. The findings are discussed in relation to earlier controlled studies of family factors in anorexia nervosa.
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