ArticleLiterature Review

Rethinking patient education

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Abstract

The aim of this paper is to critically examine and challenge some of the assumptions which underpin the research and non-research based literature on patient education. Doubts are expressed concerning the transferability of theories of adult learning to patient education; and concern is expressed over the imbalance in the literature where emphasis is placed on the psychological benefits of teaching, rather than physical outcomes. In the light of the available evidence which suggests that nurses are not ‘good patient teachers’ the case is made to support the suggestion that patient education should become the responsibility of specialist nurses. In addition, computer-assisted learning (CAL) is proffered as the solution to a number of the problems facing patient educators. CAL is seen as a means of empowering the patient, rather than the nurse to take control, and this is viewed as a positive move in the direction of self-care. The paper concludes by suggesting that CAL might be used with good effect by patients with particular learning difficulties; for example the blind or partially sighted, and people who are illiterate or have a low reading ability.

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We examined the effect of diabetes knowledge and attitudes on self-management and quality of life (QoL) of people with type 2 diabetes mellitus (T2DM). We employed a cross-sectional study design. A total of 137 female and 129 male participants with T2DM completed the diabetes knowledge scale (DKN), Diabetes Integration Scale-19 (ATT19), Summary of Diabetes Self-care Activities (SDSCA) scale, and Diabetes Quality of Life (DQoL) scale, measuring diabetes knowledge, attitudes, self-management, and QoL respectively. The SDSCA scale measures diet, exercise, blood glucose monitoring, and foot care. The DQoL scale measures satisfaction and impact of QoL. An initial path model that tested the inter-relationships of the study variables was first identified based on previous research. Then, the path model was tested using Mplus 7.3. In the final model, diabetes knowledge was a significant predictor of attitudes and self-management in terms of blood glucose monitoring and foot care. Attitudes was a significant predictor of impact of QoL. Self-management in terms of blood glucose monitoring was a significant predictor of impact of QoL and diet was a significant predictor of satisfaction and impact of QoL. Exercise and foot care aspects of Self-management were significant predictors of satisfaction and impact of QoL respectively. The final model showed a good fit to the data: RMSEA = .045 (90% CI: .009, .071; Clfit = .601), CFI = .950, SRMR = .058. The findings suggest a theoretical basis to direct the development of appropriate health programs and interventions for improving QoL in people with T2DM and warrant replication in diverse samples.
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The domesticated Andean grain chenopod, Chenopodium quinoa, is sympatric with closely related wild types that are classified as two species. Large-fruited (1.5-1.8 mm diam.), broad-leaved plants are placed with C. quinoa, as either subsp. milleanum or var. melanospermum. Plants with smaller fruits (1.0-1.5 mm) and rhombic to tri-lobed leaves are treated as Andean varieties of C. hircinum, a species originally described from the eastern plains of South America. This alignment was evaluated by comparative analysis of electrophoretic and morphometric data taken from populations occurring throughout the range of C. hircinum (s.l.). Samples from the eastern Andean slopes and plains of Argentina (C. hircinum s. str.) form a coherent group that is positioned at one extreme in the pattern of leaf and fruit variation. These samples, characterized by small, obtuse-margined fruits and acute, lobed leaves, are linked to material from the high Andes through a series of intermediate Andean samples. Andean material shows a wide range of variation in fruit size and shape. Leaf shape is more conservative, although samples from Bolivia trend toward the acute, trilobed condition. In contrast to morphological relationships, allozyme variation is simple and well defined. Andean material is homogeneous (Ī > 0.98), with unique alleles widely dispersed, mainly in southern populations. Populations of C. hircinum (s. str.) are more variable (Ī = 0.951) and well differentiated from the highland group (\bar{I} = 0.825) by a relatively common set of unique alleles. Minimal electrophoretic differentiation among Andean samples indicates that the companion weed of C. quinoa is a single biological entity that may represent an Andean element of C. hircinum, although the pattern of fruit variation suggests linkage to C. quinoa.
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Three educational interventions for the control of essential hypertension in ambulatory patients were based on analyses of the educational needs of patients and providers. The educational program increased reported compliance with medication, improved the proportion of patients losing weight, and improved appointment keeping. Most important, there was a favorable effect on blood pressure (BP) control. The proportion of patients with BP under control in the group assigned to all three interventions increased by 28% (from 38% to 66%), while the proportion in the control group receiving standard medical therapy with no educational interventions remained unchanged at 42%. (JAMA 241:1700-1703, 1979)
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The present research was designed to identify psychosocial correlates of adherence among patients receiving hemodialysis at two outpatient clinics. The 116 participants were interviewed concerning their knowledge of treatment, health beliefs, treatment history, social support, personal characteristics, and adherence to the medication, diet and fluid-intake aspects of the regimen. In addition, medical record data were obtained on serum phosphorus and serum potassium levels, and on between-dialysis weight gains. The magnitude of relationships between predictors and adherence measures varied, depending on the method used to measure adherence. For the self-report measures, beliefs concerning the efficacy of the behavior and barriers to the behavior, along with reported family problems, proved to be consistent predictors. Other beliefs and characteristics did not contribute significantly. For the medical chart information, however, the predictive factors were less consistent. In general, situational factors seem to be the major contributors to patient adherence, and adherence itself is seen as a complex and multidimensional phenomenon.
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In this paper it is argued that the time has now come for nurses to take on a more active health education role in response to continuing changes in society and trends in illness and morbidity.The implications of such shifts in priority and emphasis within the nurse's role are discussed in the context of the need for radical changes in the attitudes and perspectives of the profession in general and nurse education in particular.
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Reports the development of a method of identifying the motivational qualities and educational value of microcomputer software from the student's viewpoint. Student assessments of 3 categories of educational software were compared with those of 2 samples of classroom activity covering similar mathematics topics. 20 male and 18 female 6th-grade Ss were asked to identify motivational and learning attributes of computer (CO) and classroom (CL) activities and to rate each aspect of the activities using a scale of 1 to 10 (low to high). A significant difference in mean ratings between the 2 types of learning activities was found for motivational, but not for educational aspects. Results show gender differences in the perception of motivational characteristics: Males identified aspects in both CL and CO settings related to achievement/challenge, and females noted aspects of animation in the CO condition and problem calculation in the CL condition. Ss' reports identified a broader range of motivational characteristics in CO than in CL activities. (23 ref) (PsycINFO Database Record (c) 2012 APA, all rights reserved)
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This paper describes an experiment testing the effect of informing patients about barium X-rays on their emotional reactions before and during the procedure. A self-report scale of emotions was used to compare the level of anxiety reported by the informed patients with that of control subjects who did not receive this information. The barium meal study showed no differences in anxiety scores between informed and control subjects, most of whom reported low levels of anxiety. The enema study, however, showed significant differences in these scores. Informed patients reported less anxiety during the X-ray than controls, who frequently reported high levels prior to and during X-ray.
Article
The literature review has been carried out to examine the role of nurses as patient teachers. It attempts to determine why patient education is necessary and why it should be part ofthe nurse's role. Included is an account ofthe abilities required by the nurse in order to function in that role. It is generally agreed that it is part ofthe nurse's role to educate patients but this is often not carried out in reality. Where it is done it is mostly unplanned and haphazard in manner and the effectiveness uncertain. There are many reasons cited why this is the case and many of these reasons relate to the inadequate education and training of nurses for this role. Registered nurses are responsible for the nursing care of patients which should include their education. In order to be able to provide the necessary education nurses must have the opportunity to be taught to develop the appropriate skills during basic training. As a result, a study is now underway to attempt to determine the extent to which student nurses are being prepared for their role as patient educators during basic training.
Article
Implicit images of human behaviour influence most research endeavours. Studies of patients' “compliance” with doctors' instructions have generally used an ideal image of the patient as a passive, obedient and unquestioning recipient of medical instructions. Divergence from this ideal—“defaulting”—is seen as irrational in the light of medical rationality. The blame for “default” is seen as lying with the patient. The research problem is then to find out what there is about the patient that makes him a defaulter. This is a view of the problem from the point of view of the medical profession. An alternative approach from the perspective of the patient is suggested. The focus is then on the social context in which illnesses are lived and treatments used. A more active view patients is entailed in which patients have expectations of the doctor, evaluate the doctor's actions, and are able to make their own treatment decisions. Rather than “defaulting” being found in certain types of individuals, almost anyone can be a “defaulter” at some time or another.
Article
38 hypertensive Canadian steelworkers who were neither compliant with medications nor at goal diastolic blood-pressure six months after starting treatment were allocated either to a control group or to an experimental group who were taught how to measure their own blood-pressures, asked to chart their home blood-pressures and pill taking, and taught how to tailor pill taking to their daily habits and rituals; these men were also seen fortnightly by a highschool graduate with no formal health professional training who reinforced the experimental manoeuvres and rewarded improvements in compliance and blood-pressure. Six months later, average compliance had fallen by 1.5% in the control group but rose 21.3% in the experimental group. Blood-pressures fell in 17 of 20 experimental patients (to goal in 6) and in 10 of 18 control patients (to goal in 2).
Article
This paper describes an experiment testing the effect of informing patients about barium X-rays on their emotional reactions before and during the procedure. A self-report scale of emotions was used to compare the level of anxiety reported by the informed patients with that of control subjects who did not receive this information. The barium meal study showed no differences in anxiety scores between informed and control subjects, most of whom reported low levels of anxiety. The enema study, however, showed significant differences in these scores. Informed patients reported less anxiety during the X-ray than controls, who frequently reported high levels prior to and during X-ray.
Article
A theoretical model is described whose particular emphasis is directed towards operationalizing the statements: ‘effective teaching bridges the gap between information and practice’ or ‘teaching is more than telling’. It concentrates on nurse behaviours (facilitation) designed to actively engage the patient in learning, whereby he accepts his diagnosis or situation, projects the effects of prescribed therapy on his future life, and commits his intentions to practice. It utilizes principles of learning derived from the perceptual (phenomenological) approach and indicates the nurses' responsibilities. The model identifies four critical elements in the engagement process–the patient's values, his perception of the disease threat, his perceived utility of the prescription, and the facilitating behaviours of the nurse. The strategy is adapted from a combination of the Health Belief Model and the Personal Choice Model .
Article
In an effort to compare different methods of instructing patients, 99 women 18-25 years of age were given computer, spoken, weitten, or no instructions for the collection of a clean voided urine specimen. The group who received computer instructions was the most uniform in its performance (P less than 0.002, F-test) and reported the fewest procedural problems (P less than 0.02, Fisher test). In addition, this group had fewer contaminating bacteria than the group who received written instructions (P less than 0.03 , Mann-Whitney test). The group who received no instructions had more bacteria (P less than 0.0001, Mann-Whitney test) than any of the other groups. The effectiveness of the computer instruction was probably related to numerous attributes, including the individualized quality of the dialogue, self-pacing, self-testing, and privacy.
Article
Both the conceptualization and the measurement of satisfaction have been of major concern in medical care research. Some scholars used satisfaction as a determinant of utilization, others as a consequence of utilization. Measures of satisfaction are largely content oriented. Reliabilities are reported, but validity is usually assumed (face validity) or assessed through correlations with a criterion variable like "wish to change providers." Using multidimensional scaling techniques, this study identifies several components in the construct "satisfaction" and relates them to the utilization of services. A general satisfaction measure provides us with an assessment of physicians and the medical care delivered, a specific satisfaction measure assesses past experience with the regular source of the care. Both of these can be divided into a positive and negative subcluster. Regressions were computed predicting satisfaction from utilization, and utilization from satisfaction, each time controlling in a preceding step for sociodemographic factors. The relationships varied strongly by provider; as a rule, a larger proportion of the variance could be explained analyzing for one provider at a time than for all providers combined. Analyzing one provider at a time showed that satisfaction substantially increased the proportion of explained variance in utilization in hierarchical regression, but utilization did not increase the explained variance in satisfaction.
Article
This study investigated the relationship between the individual difference variable, locus of control, and a patient's response to diabetes. Since internal persons have been found to be active information seekers as compared to external persons, it was predicted that internal diabetics would know more about their disease and would, therefore, demonstrate more control over it. As predicted, internal diabetics did have more diabetic information, although this superiority over externals diminished as the length of the disease increased. Contrary to prediction, internal diabetics seemed to incur more problems with disease than externals as the disease progressed. This finding was interpreted as presenting a limiting case to the usual thinking about the superiority of an internal's response to problem situations.
Article
Over the past two decades, hundreds of articles, editorials, and commentaries have been published describing the considerable disruptive effects on quality of care of individuals noncompliance with health and medical advice. While much research has been directed at determining factors responsible for poor compliance, past studies have tended to focus upon easily measured characteristics of the patients, regimen, or illness which, unfortunately, are usually neither predictive nor alterable. This paper systematically reviews the literature on patient acceptance of recommended health behaviors, attempting to find social-psychological and related variables which have proven to be consistent predictors of compliance. The review suggests that certain health beliefs (especailly personal estimates of vulnerability to, and seriousness of, the disease, and faith in the efficacy of care), health-related motivations, perceptions of psychological and other costs of the recommended action, various aspects of the doctor-patient relationship, and social influence are the most productive dimensions for present intervention and further exploration. Building upon an earlier formulation, an hypothesized model is presented which combines these elements for explaining and predicting compliance behavior. Further research should, with standardized questionnaires and analysis techniques, employ prospective, experimental designs for a variety of population groups, settings, and regimens, to evaluate the ability of practical attempts to modify the model variables and thus enhance compliance.
Article
Helping patients with hypertension achieve effective coping outcomes entails the implementation of multiple, autonomous nursing interventions specifically related to teaching and support. By teaching specific cognitive and behavioral strategies, the nurse assists the patient in developing effective means of incorporating the treatment regimen into a more healthful lifestyle. The supportive nursing actions help the patient make the necessary changes by providing the environment in which change may occur. As a result, the patient may reappraise the diagnosis of hypertension and its therapeutic regimen as less threatening and may consequently assume a more active role in its management.
Article
A program of 8 lessons on various aspects of osteoarthritis (OA), its treatment, and patient self-care was prepared on an Apple IIc computer. The courses were then field-tested and evaluated by 72 older (age range 52-88) OA patients in community centers for senior citizens. Statistical analysis of the findings showed significant increases in knowledge and significant self-reported, beneficial behavior changes, including increased exercise, use of heat, and rest. Our findings demonstrate that older persons can use the computer to learn to cope with OA when a thoughtfully planned program is made available in a community setting.
Article
Careless or confused use of terms such as information giving, teaching and counselling may lead to inadequate understanding and practice. In view of the progress made in this area, designed to help patients cope with illness and treatment, this paper aims to clarify and identify similarities and differences between these activities and discuss their relevance for those in most need of these types of care. Having recognised the complexity and persistence of such needs, patients, their relatives and nurses should perhaps decide their respective roles and work towards improving the quality of and opportunities for such interventions.
Article
The expanding role of the nurse in educating patients and consumers necessitates media that can be adapted to a variety of learners, topics, and settings. Quality patient education in the health care field must meet accreditation and legal mandates, satisfy demands of consumers for information, and promote cost effectiveness. The microcomputer, with its unique capacity for individualized instruction, portability, and adaptability, is a potential medium for addressing these issues.
Article
Seventy-two hypertensive patients visiting an emergency department (ED) were randomized to one of four study groups to test the effect on compliance of a health belief model (HBM) intervention: a control group, a group receiving an HBM clinical intervention in the ED, a group receiving an HBM telephone call two days after the ED visit, and a combination clinical plus telephone intervention. Patients receiving any HBM intervention were 50% more likely to make, and 47% more likely to keep, a follow-up referral appointment than control group patients.
Article
The aim of this paper is to shed some light on the way trained nurses responded to the challenge of teaching patients to manage life on Continuous Ambulatory Peritoneal Dialysis (CAPD). This topic is of interest since nursing skills and knowledge are central to the successful management of patients on CAPD. More importantly, the treatment has the potential to keep patients alive who would not previously have been treated. Hence the assumption underpinning this work is that the opinions which nurses hold regarding this form of treatment may in due course influence its future. The data on which this paper is based were collected by means of participant observation over a period of nine months on one male and one female medical ward. Supplementary data were collected during this time at the out-patient clinic and at multidisciplinary CAPD meetings. The findings reported here are impressionistic and hypothesis-generating, but nevertheless they do provide sound insights into the way nurses reacted to patients on this new form of treatment. The type of patient selected for treatment and the ward workload were found to be the most influential factors in the way nurses regarded CAPD patients. It seemed that patients were viewed as 'members' of a collectivity rather than as individuals. Hence the job of the nurse was to rationalize competing demands on her time. Our data suggest that nurses viewed CAPD patients as generating 'extra work' and these patients were more likely to be viewed unfavourably.(ABSTRACT TRUNCATED AT 250 WORDS)
Article
In order to evaluate the effectiveness of a structured respiratory teaching programme, clients with chronic obstructive pulmonary disease who were hospitalized in a 13-month period both prior to and following the implementation of the programme were compared on several parameters to assess changes in their ability to manage their disabilities. The study demonstrated that clients who participated in the teaching sessions had fewer hospital admissions, shorter lengths of hospital stay, and longer stays in the community. A sub-group of clients who were or had been in at-risk occupations was identified as representing the 'revolving door' client with shorter hospital and community stays. The teaching programme is described as well as specific elements that can be used for a shorter teaching experience to respond to time constraints when necessary.
Article
The purpose of this study was to describe the amount of congruence in the perceptions of 38 matched nurse-patient dyads concerning the nurse's role in patient education. The perceptions of nurses and patients from two hospital settings were measured with two complementary sets of questions, developed for this study; t-tests were used to compare the mean responses of nurses and patients within and between the two settings to each set of complementary questions. The results indicated that incongruencies existed between nurses' and patients' perceptions of the nurse's role in patient education. Patients identified a general teaching function for nurses. When asked who they preferred to have teach them the specific information related to their condition, patients most frequently chose a physician. Nurses most frequently chose a nurse as the current and most desired patient teacher. Nurses incorrectly assumed that the desires of their patients for patient education were similar to their own. The results suggest that nurses need to develop a clear definition of their role in patient education, to validate patients' desires for teaching, and to examine organizational factors influencing their performance of the patient teaching role.
Article
The coping demands of diabetes may be insurmountable to the unprepared and unwary. The psychosocial, self-management, and knowledge/skill demands of diabetes can affect every aspect of a person's life. Planning ways to cope with this unique circumstance may help a diabetic person adjust to a complex and difficult lifelong problem. Viewing the client, family and friends, nurse, physician, dietitian, and relevant other team members as a full corporate partnership, with individual and shared responsibility, also lays the groundwork for realistic problem-solving and coping by all concerned.
Article
The present study compared a computerized health education format to face-to-face and written methods. The effects of delivery method on the retention of health information and on participant evaluation of the condition were assessed. College student participants (N = 200) were randomly assigned to one of four conditions (computerized, face-to-face, written, or control) such that each condition contained 25 males and 25 females. The experimental groups reviewed a lengthy text on sexually transmitted diseases (STD) whereas the control group received no information. Participants were then assessed for self-report anxiety, appraisement of the experience, and recall of the text. Results showed participants in the computer and written conditions freely recalled at an equivalent rate which was superior to the face-to-face format. No differences emerged between high and low computer experience subgroups of the computer condition. The face-to-face and computer conditions were assessed in positive terms with the written format being assessed more negatively. Although, detailed analysis revealed there was the potential for more negative perception of the computer method in association with increased anxiety. Results are discussed in terms of their demonstrating support for a computerized approach to health education.
Article
A descriptive survey was conducted at an urban university medical center to ascertain the opinions of patients undergoing vascular surgery to a booklet used for preoperative teaching. In the postoperative period 21 patients reported their perceived value of the booklet in modifying their feelings about the surgical event, helping them to feel in control of postoperative pain, preparing them to participate in postoperative activities, and providing them with overall preoperative preparation. Patients also identified needs that the booklet did not meet and suggested modifications that might better meet patients' preoperative learning needs. Ninety percent of responding patients described the booklet as helpful in meeting their preoperative learning needs, and 95% said they would recommend the booklet to a friend. Patients who had discussed the booklet with a health-team member consistently described the value of the booklet more favorably than did patients who had not discussed the booklet before surgery. Nurses were identified as the health-team members who most often discussed the content of the booklet with the patient. The findings suggest that patients with no education beyond grammar school might have difficulty appreciating the value of the preoperative teaching booklet.