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The International Telecommunication Union's Report on Telemedicine and Developing Countries

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This paper reviews some of the main conclusions and recommendations from the Report on Telemedicine and Developing Countries, which was prepared for the International Telecommunication Union (ITU). The report is the result of three years' effort by a group of experts in telecommunications and telemedicine from around the world. It provides an extensive survey of the telemedicine experience of various countries. It discusses the different types and applications of telemedicine, the technologies used, costs and benefits, trends, prospects for global standards, and provides guidelines and recommendations to developing countries for implementation of telemedicine services. The ITU study group which prepared the report is expected to begin some new tasks in 1998, including the identification of a set of pilot telemedicine projects for developing countries.

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... H ALF THE POPULATION in the world's poorest countries lacks access to health care. 1 Provider shortages are likely to persist, as many countries do not have the means to train adequate numbers of medical personnel. 2 Cambodia ranks 174th among member states of the World Health Organization on overall health system performance. 3 The average Cambodian has only 0.35 contacts per year with organized health services-the lowest contact rate in the region. ...
... Communications technologies have the potential to help overcome some of the challenges of providing health care in remote regions, by transporting medical knowledge to even the most traditionally inaccessible areas of the globe and increasing provider efficiency. 2 Only a handful of programs have described their clinical experience in the medical literature prompting a call for publication of outcomes from telemedicine projects in the developing world. [5][6][7][8][9][10] We report the results of a pilot study of the case load of the clinic in Th'naut Malou, Cambodia, describing the type and chronicity of patient complaints and patients' satisfaction and willingness to pay for services. ...
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Since 2001, a monthly telemedicine clinic has helped provide health care to residents in a remote region in Cambodia. Physicians at Massachusetts General Hospital and Brigham and Women's Hospital in Boston, Massachusetts, and Sihanouk Hospital of HOPE in Phnom Penh, Cambodia, provide consultations via e-mail to a mobile nurse in the district of Rovieng, Cambodia. We describe the operations of the monthly clinic and report the results of a retrospective case review of the first 28 months of consultations. We also report the results of a satisfaction and willingness to pay survey. A total of 264 visits were made during the 28 monthly sessions. Mean duration of chief complaint at initial visit declined from 37 months to 8 months during the first and last 6 months of the study period, respectively. Thirty-six percent (n = 76) of new patients complained of abdominal pain. Nine percent (n = 20) of new patients were given an empiric diagnosis of goiter. The percent of patients requiring referral to a hospital outside of the village decreased over time. All patients surveyed were either "very satisfied" or "satisfied" with their care, and most patients were willing to pay for a visit, with a median amount of USD 0.63. We conclude that store-and-forward e-mail consultative support for mobile nonphysician health care workers is a feasible model for delivering care in the developing world. Further research is needed to demonstrate improvement in health status, cost effectiveness, and sustainability.
... While 85% of the population live in rural areas, only 13% of government health workers work there [3]. Initiatives to improve access to healthcare in less developed countries like Cambodia face major obstacles such as poor basic infrastructure and inadequate resources to train more medical personnel [5]. However, communication technologies have the potential to leapfrog such barriers to bring health care to traditionally poorly served remote regions by providing access to distant medical expertise [5]. ...
... Initiatives to improve access to healthcare in less developed countries like Cambodia face major obstacles such as poor basic infrastructure and inadequate resources to train more medical personnel [5]. However, communication technologies have the potential to leapfrog such barriers to bring health care to traditionally poorly served remote regions by providing access to distant medical expertise [5]. We have initiated two monthly telemedicine clinics that are successfully providing healthcare to residents in a remote region of Cambodia with very limited medical services. ...
... The central focus was the information infrastructure and ongoing use of ICT in the health sector of Bangladesh. In 2009, TRCL (Telemedicine Reference Center Ltd.) has celebrated successful completion of 1st decade in Telemedicine, e-Health and m-Health businesses [1]. ...
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... The International Telecommunication Union defines 6 videoconferencing as an audiovisual interactive chat service that provides a bi-directional and real-time exchange of audio and video signals among user groups in two or more locations. ...
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... Developing countries should consider undertaking some telemedicine pilot projects in order to identify the most cost-effective solutions to the provision of health care, especially to those living in remote and rural areas…There is a need for some quantitative analysis based on actual telemedicine experience, for example from pilot projects, which could demonstrate to policy makers and funding bodies the cost-benefits of telemedicine. (28) Perhaps no time is more appropriate than now to effectively address the health needs of the world's poor with the power of Internet technology. This has become the impetus of the Andean e-Health Initiative and is the driving force for the development of a teleconsultation service in rural Ecuador. ...
... In the industrialized part of the world, telemedicine is more and more regarded as a viable tool for delivering health care services in rural and remote areas. Considering the limitations of health care delivery in developing countries, the possibility to deliver medical services at a distance is an attractive idea and the concept of utilizing telemedicine in developing countries has been propagated for a long time [176]. Few pilot studies have shown that telemedicine may be applicable for the support of health care providers in developing countries. ...
... [14] Medical care at a distancethe images are transmitted, because patient and treating physician are not located at the same place. [76] Computer-based monitoring and communication with remote objects. The term comes from the Greek tele = remote, and metron = measure. ...
... Por otra parte, resulta evidente la potencialidad de Internet, comunicaciones móviles, dispositivos portátiles e instrumentación electrónica en el desarrollo de servicios de e-Salud para monitorización, seguimiento y control extrahospitalario de pacientes 8 . No obstante, es obvia la existencia de importantes problemas en su difusión y adopción generalizada por los servicios de salud 9 , más allá de prototipos que han servido para valorar la viabilidad de ciertos servicios e identificar las tecnologías a integrar 10,11 . ...
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... The potential for telemedicine to play a useful role in the developing world has been the focus of attention for several years 15±21 . The dearth of formal evaluations of the costeffectiveness of telemedicine projects and the almost complete lack of evaluations of the outcomes of telemedicine interventions have unfortunately militated against the wider use of telemedicine 21 International Telecommunication Union has reviewed the telemedicine experience of various countries and published its recommendations for the development of telemedicine services in developing countries 17,18 . A major recommendation was that developing countries should undertake pilot projects in order to identify the most cost-effective telemedicine solutions, especially for the provision of health-care to people living in remote and rural areas. ...
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... 1 The cost effectiveness of telemedicine in the developing country can be demonstrated by (a) identifying the potential telemedicine projects; (b) establishing one or more pilot projects in order both to establish technical feasibility and to measure the benefits to the health care systems; and thereafter (c) calculating the cost of large scale deployment. 2 The International Telecommunication Union has reviewed the telemedicine experience of various countries and published its recommendations for the development of telemedicine services in developing countries. 3,4 One major recommendation urges developing countries to undertake pilot projects in order to identify the most cost effective telemedicine solutions, especially for the provision of health care to people living in remote and rural areas. ...
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... Por otra parte, resulta evidente la potencialidad de Internet, comunicaciones móviles, dispositivos portátiles e instrumentación electrónica en el desarrollo de servicios de e-Salud para monitorización, seguimiento y control extrahospitalario de pacientes 8 . No obstante, es obvia la existencia de importantes problemas en su difusión y adopción generalizada por los servicios de salud 9 , más allá de prototipos que han servido para valorar la viabilidad de ciertos servicios e identificar las tecnologías a integrar 10,11 . ...
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One objective of the growing telehealth and telemedicine literature base is to inform potential adopters and raise their awareness through pilot projects. However, pilot studies often fail to create sustainable solutions because certain conditions are needed for long term success: (1) matching needs to appropriate solutions: while needs assessment can identify needs, adopters must view, test, and experience potential solutions under a number of circumstances; (2) change and new technology: technological implementation brings both foreseen and unforeseen changes, difficult to forecast, and pilot projects can create artificial expectations; (3) awareness of context: there has been a pervasive tendency to treat telemedicine or telehealth as separate from the context of health care delivery, but telemedicine is only a communication and information tool, and should not be considered as separate from other health care delivery activities; (4) availability of long term funding; while loans, government grants and private sector partnering can bridge gaps temporarily, sustainable solutions require that savings from existing systems can be applied to pay for telehealth and telemedicine installations. This paper makes a case for adopting best practices by proposing that a data base of case studies documenting best practices and success factors be developed and made widely available.
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We report on a clinical-genetic study of 16 Wolf-Hirschhorn syndrome (WHS) patients. Hemizygosity of 4p16.3 was detected by conventional prometaphase chromosome analysis (11 patients) or by molecular probes on apparently normal chromosomes (4 patients). One patient had normal chromosomes without a detectable molecular deletion within the WHS "critical region." In each deleted patient, the deletion was demonstrated to be terminal by fluorescence in situ hybridization (FISH). The proximal breakpoint of the rearrangement was established by prometaphase chromosome analysis in cases with a visible deletion. It was within the 4p16.1 band in six patients, apparently coincident with the distal half of this band in five patients. The extent of each of the four submicroscopic deletions was established by FISH analyses with a set of overlapping cosmid clones spanning the 4p16.3 region. We found ample variations in both the size of the deletions and the position of the respective breakpoints. The precise definition of the cytogenetic defect permitted an analysis of the genotype-phenotype correlations in WHS, leading to the proposal of a set of minimal diagnostic criteria, which in turn may facilitate the selection of critical patients in the search for the gene(s) responsible for this disorder. We observed that genotype-phenotype correlations in WHS mostly depend on the size of the deletion, a deletion of <3.5 Mb resulting in a mild phenotype, in which malformations are absent. The absence of a detectable molecular deletion is still consistent with a WHS diagnosis. Based on these observations a "minimal" WHS phenotype was inferred, the clinical manifestations of which are restricted to the typical facial appearance, mild mental and growth retardation, and congenital hypotonia.
Article
Wolf-Hirschhorn syndrome (WHS) is a multiple malformation syndrome caused by partial monosomy of 4p16.3. Pitt-Rogers-Danks syndrome, first thought to be a distinct entity, is a similar condition associated with a microdeletion overlapping the WHS critical region. In this paper we evaluate three WHS patients showing a microdeletion of 4p and remarkable development with respect to the clinical spectrum of WHS.
Article
Telemedicine is often proposed as a solution to certain health-care problems in the developing world. There seems to be little published experience on which to make judgements. A literature search revealed 39 articles, of which only two related to any kind of direct clinical work; most of them were review articles or editorials. The majority of the work reported was educational in nature, and there has been little clinical experience. It seems probable that telemedicine can help with the education of health-care workers and patients; it seems likely that it could bring major benefits to the organization of health-care. Without proper trials, it will be impossible to determine the place of health-care in the developing world. Trials are the only way in which rational decisions can ultimately be reached regarding whether scarce resources should be devoted to telemedicine in developing countries, or whether they should be employed in more conventional health-care measures whose outcomes are known to be cost-effective.
Article
Health care in some developing countries is now at a level that makes programs for care of children with cancer feasible. Examples of successful international programs in this field include twinning programs, nongovernmental assistance organizations, such as the National Children's Cancer Society, and committees of professional organizations, such as the International Society of Pediatric Oncology (SIOP). The international outreach program at St. Jude Children's Research Hospital includes training programs within the hospital, partner sites in 13 countries, a school for Latin American nurses, a distance learning website, and telecommunications programs, which are described in detail. Future programs should be designed to maximize and evaluate impact, report accomplishments and failures, and avoid duplication.
Article
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An e-mail link with the facility to send high-resolution digital images is a cheap and uncomplicated telemedicine method. The Swinfen Charitable Trust helped establish such a link in Patan Hospital Kathmandu, Nepal in March 2000. Over 12 months using this link 42 telemedicine referrals were sent to specialists throughout the world. Referrals were: 36% respiratory medicine; 21% neurology, 21% dermatology; 14% cardiology; 5% nephrology; and 3% radiology — 28 had digital pictures attached, of which 96% were of high enough quality on which specialists were able to comment. Thirty-nine replies were received. The average time for a specialist reply was 2 days, and 45% were answered within 24 hours. All replies were judged by independent assessors to be helpful or very helpful for diagnosis, management and education. The assessors decided that in 50% of cases the advice if acted upon would have shortened hospital stay. This pilot study has shown that a low-cost telemedicine link is technically feasible and can be of significant benefit for diagnosis, management and education in a developing world setting.
Article
Developing countries are exploring the role of telehealth to overcome the challenges of providing adequate health care services. However, this process faces disparities, and no complementarity in telehealth policy development. Telehealth has the potential to transcend geopolitical boundaries, yet telehealth policy developed in one jurisdiction may hamper applications in another. Understanding such policy complexities is essential for telehealth to realize its full global potential. This study investigated 12 East Asian countries that may represent a microcosm of the world, to determine if the telehealth policy response of countries could be categorized, and whether any implications could be identified for the development of complementary telehealth policy. The countries were Cambodia, China, Hong Kong, Indonesia, Japan, Malaysia, Myanmar, Singapore, South Korea, Taiwan, Thailand, and Vietnam. Three categories of country response were identified in regard to national policy support and development. The first category was "None" (Cambodia, Myanmar, and Vietnam) where international partners, driven by humanitarian concerns, lead telehealth activity. The second category was "Proactive" (China, Indonesia, Malaysia, Singapore, South Korea, Taiwan, and Thailand) where national policies were designed with the view that telehealth initiatives are a component of larger development objectives. The third was "Reactive" (Hong Kong and Japan), where policies were only proffered after telehealth activities were sustainable. It is concluded that although complementarity of telehealth policy development is not occurring, increased interjurisdictional telehealth activity, regional clusters, and concerted and coordinated effort amongst researchers, practitioners, and policy makers may alter this trend.
Article
Wolf-Hirschhorn syndrome (WHS, OMIM 194190) is a chromosomal disorder characterized by retarded mental and physical growth, microcephaly, Greek helmet appearance of the facies, seizures/epilepsy. Closure defects of lip or palate, and cardiac septum defects occur in 30-50% of cases. Its cause is a deletion in the short arm of chromosome 4. We present a male patient, born after 37 weeks gestation, as the fourth pregnancy of non-consanguineous healthy parents, with unilateral cleft lip and palate, hypertelorism, a right-sided ear tag, and mild epispadias. At age 10 weeks he developed acute respiratory distress and acute bowel obstruction requiring emergency laparotomy. This revealed a left-sided posterolateral diaphragmatic defect, type Bochdalek, with incarceration of the small intestines necessitating major bowel resection. Clinical genetic investigation suggested a chromosome anomaly, but regular karyotyping was normal. However, FISH analysis showed a microdeletion in the short arm of chromosome 4 (4p-), consistent with WHS. A combination of this syndrome with congenital diaphragmatic hernia (CDH) has been rarely described. CDH can present either as an isolated defect at birth, or with multiple congenital abnormalities, or as part of a defined syndrome or chromosomal disorder. Therefore CDH, although not common in WHS, can lead to its diagnosis relatively early in life. We strongly recommend a clinical genetic evaluation of each CDH patient with facial anomalies taking into consideration 4p- deletion syndrome.
Article
This article analyzes telemedicine, the use of distant communication technologies within the context of clinical health care, and the effects it has on health communication. The main effect is that telemedicine has the capacity to substantially transform health care in both positive and negative ways and to radically modify personal face-to-face communication (Turner, 2003). This has tremendous implications for health communication scholars in that they can extend the telemedicine debate by integrating fresh insights into more acceptable approaches that will refine and humanize mediated channels of health communication. There are several key areas of telemedicine that need to be discussed (i.e., e-health services, clinical encounters, etc.), all of which are identified in this article. In addition to describing the past and current applications of telemedicine, this article provides a better understanding of unique needs, resources, problems, and opportunities germane to telemedicine services.
Article
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The wide development of multimedia clinical applications and the use of inter and intra-hospital communication networks require a specific analysis to increase the efficiency of e-Health services. In this paper we study the optimum combinations of the application parameters needed to fulfil the quality of service (QoS) thresholds according to monitored network measurements in the new healthcare services. A remote diagnosis service has been evaluated establishing good-performance areas, depending on available resources.
Article
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Nearly half a century ago, telemedicine was disregarded for being an unwieldy, unreliable, and unaffordable technology. Rapidly evolving telecommunications and information technologies have provided a solid foundation for telemedicine as a feasible, dependable, and useful technology. Practitioners from a variety of medical specialties have claimed success in their telemedicine pursuits. Gradually, this new modality of healthcare delivery is finding its way into the mainstream medicine. As a multidisciplinary, dynamic, and continually evolving tool in medicine, researchers and users have developed various definitions for telemedicine. The meaning of telemedicine encapsulated in these definitions varies with the context in which the term was applied. An analysis of these definitions can play an important role in improving understanding about telemedicine. In this paper we present an extensive literature review that produced 104 peer-reviewed definitions of telemedicine. These definitions have been analyzed to highlight the context in which the term has been defined. The paper also suggests a definition of modern telemedicine. The authors suggest that telemedicine is a branch of e-health that uses communications networks for delivery of healthcare services and medical education from one geographical location to another. It is deployed to overcome issues like uneven distribution and shortage of infrastructural and human resources. We expect that this study will enhance the level of understanding and meaning of telemedicine among stakeholders, new entrants, and researchers, eventually enabling a better quality of life.
Conference Paper
The State of Hawaii has been promoting telehealth implementation by developing health policy, soliciting financial endowments, and facilitating the development of a telecommunications infrastructure. Telemedicine or telehealth has been in existence for 40 years, but has yet to make the transition from a feasible tool to an integrated tool in health care delivery. In the emerging and fast changing health care environment, public and private sector organizations find an increasing need to collaborate. Hawaii's Telehealth Planning Project used the multi-sectoral collaborative approach to address telehealth challenges. The paper traces the Project's community development, and identifies Hawaii's legal and regulatory activities along with federal and international activities
Article
Telemedicine may be a useful technique for delivering health care in the developing world. However, there is little practical experience to draw on and real concerns that if additional resources were to become available telemedicine might not be the most appropriate use for them. The logical steps to determine the place of telemedicine in the developing world therefore appear to be: (1) to identify potential telemedicine projects-the Telecommunication Development Bureau of the International Telecommunication Union is trying to do this and has recently sponsored missions to various countries in Africa and Asia; (2) to carry out properly controlled pilot projects in order to demonstrate technical feasibility and to quantify the benefits to the healthcare system; (3) to calculate the costs of large-scale deployment. Assuming that telemedicine is shown to be beneficial, it is only at this final stage that a rational decision can be made about whether telemedicine would be an appropriate use of additional resources in a developing country, as opposed to alternative uses of those resources to solve other important problems of health care.