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Abstract

This review of the current status of theoretically based behavioral research for chronic illness management makes the following points: (a) Behavioral interventions have demonstrated effectiveness for improving health outcomes using biomedical indicators, (b) current interventions are too costly and time consuming to be used in clinical and community settings, (c) translation of the conceptual models generated from studies of the problem-solving processes underlying self-management and the relationship of these processes to the self system and cultural and institutional contexts suggest new avenues for developing effective and efficient cognitive-behavioral interventions, and (d) it is proposed that integration of the conceptual developments in self-management with new approaches to the design of clinical trials can generate tailored, behavioral interventions that will improve quality of care.
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Health Psychology: The
Search for Pathways between
Behavior and Health
Howard Leventhal,
1
John Weinman,
2
Elaine A. Leventhal,
1
and L. Alison Phillips
1
1
Institute for Health, Health Care Policy and Aging Research, Rutgers, The State
University of New Jersey, New Brunswick, New Jersey 08901-1293;
2
Health
Psychology Section, Psychology Department, Institute of Psychiatry, King’s College
London, London SE1 9RT, United Kingdom; email: hleventhal@ifh.rutgers.edu
Annu. Rev. Psychol. 2008. 59:477–505
The Annual Review of Psychology is online at
http://psych.annualreviews.org
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10.1146/annurev.psych.59.103006.093643
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c
2008 by Annual Reviews.
All rights reserved
0066-4308/08/0203-0477$20.00
Key Words
behavioral interventions, self-management, chronic illness
Abstract
This review of the current status of theoretically based behavioral
research for chronic illness management makes the following points:
(a) Behavioral interventions have demonstrated effectiveness for im-
proving health outcomes using biomedical indicators, (b) current in-
terventions are too costly and time consuming to be used in clinical
and community settings, (c) translation of the conceptual models
generated from studies of the problem-solving processes underlying
self-management and the relationship of these processes to the self
system and cultural and institutional contexts suggest new avenues
for developing effective and efficient cognitive-behavioral interven-
tions, and (d ) it is proposed that integration of the conceptual de-
velopments in self-management with new approaches to the design
of clinical trials can generate tailored, behavioral interventions that
will improve quality of care.
477
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Contents
INTRODUCTION................. 478
WHY FOCUS ON PREVENTION
AND CONTROL OF
CHRONIC ILLNESS? .......... 479
EVIDENCE-BASED PRACTICE
AND BEHAVIORAL
INTERVENTIONS FOR
CONTROLLING CHRONIC
ILLNESSES ..................... 479
Translational Research and
Evidence-Based Medicine...... 479
The Diabetes Prevention Trials . . . 480
Do the Trials Meet Criteria for
Evidence-Based Practice? ...... 481
THE PROCESS OF
SELF-MANAGEMENT OF
CHRONIC ILLNESS ........... 481
Factors Affecting Chronic Illness
Management: Emotion and
Cognitive Traits ............... 482
Factors Affecting Chronic Illness
Management: Process
Analyses ...................... 484
Factors Affecting Chronic Illness
Management: Contextual
Factors of Self, Social
Networks, and Culture ........ 490
COGNITIVE-BEHAVIORAL
INTERVENTIONS TO
IMPROVE
SELF-MANAGEMENT ......... 494
Process Theories and Design
of Clinical Trials .............. 495
PAST, PRESENT, FUTURE:
CONCLUDING
COMMENTS ................... 496
INTRODUCTION
Health psychology research needs to satisfy
two goals: the development of theoretical
models describing the processes underlying
risky and healthy behaviors, and the creation
of effective procedures for behavioral change
that are usable in clinical and community
settings. The primary steps required for a
practice-oriented theory are to increase the
specificity and predictive power of theory by
adding concepts generated from observations
in clinical and community settings and to
develop increasingly complex models to
better understand how behavioral factors
contribute to health outcomes. The steps
required for practice are to develop interven-
tions that are theory-based and are usable
in clinical and community settings as well
as effective for helping individuals initiate
and sustain behaviors that will improve their
personal health. These goals are reflected in
the three major lines of research examined
in previous contributions to the Annual
Review of Psychology: biobehavioral studies
of direct pathways from behavior to illness
(e.g., stress illness research; Ader & Cohen
1993, Baum & Posluszny 1999), behavioral
interventions to control these direct pathways
(Kiecolt-Glaser et al. 2002, Schneiderman
et al. 2001), and behavioral studies focused
on the prevention and control of chronic
conditions (Rodin & Salovey 1989). This
review focuses on a subset of this third area
of behavioral studies: the processes involved
in initiating and maintaining behaviors for
reducing risk and controlling existent chronic
disease. These behaviors include lifestyle
changes such as diet, exercise, and adherence
to medication for reducing risk and control of
diabetes, hypertension, and congestive heart
failure. A narrow focus is necessary because
it is impossible to cover in the space allotted
the enormous number of behavioral studies
that have appeared since a previous and able
review by Rodin & Salovey (1989).
Our chapter is organized as follows: First,
we provide a brief justification for focus-
ing on prevention and control of chronic
illnesses. We argue that the movement for
evidence-based practice in the medical field
has created pressure on health psychologists
for effective and efficient (usable) theory-
based behavioral interventions for the con-
trol of chronic illness. Second, we review
478 Leventhal et al.
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ANRV331-PS59-18 ARI 5 November 2007 10:57
models and evidence respecting the self-
management process, i.e., how people man-
age (control and prevent) chronic conditions
in their home settings. This section is orga-
nized around the proposition that the social-
cognitive-behavioral model, with an emphasis
on cognitive processes, is the most compre-
hensive model for understanding behavioral
processes relevant to health. Third, we briefly
review new approaches to clinical trials for in-
creasing the effectiveness of behavioral inter-
ventions and whether integrating these inno-
vative approaches with self-regulation models
could create interventions that are usable in
clinical settings.
WHY FOCUS ON PREVENTION
AND CONTROL OF CHRONIC
ILLNESS?
Advances in public health and the economic
well-being of populations in the early twen-
tieth century in Western nations resulted in
chronic conditions, such as cardiovascular
diseases and cancers, replacing infectious
diseases as one of the top ten killers in
Western nations (Fries 2005, McKinlay &
McKinlay 1977). The recent surge in HIV
AIDS, an infectious condition, is not an
exception to this trend, because existing HIV
treatments are lifelong, i.e., chronic, and
require chronic, intensive self-management
(Siegel & Lekas 2002). Treatment of chronic
illnesses also absorbs well over half of the
health care budget of developed nations
(McKinlay & McKinlay 1977), and because
chronic conditions are more common with
advancing age, the financial burden will
increase as the population ages. The focus of
this chapter on chronic illness management is
congruent, therefore, with a major problem
for society and the health care system. As
human behaviors, including food intake,
physical activity, and cigarette smoking, are
causally related to both vulnerability and
management of chronic conditions, it is fully
justified to focus on their prevention and
control (Baum & Posluszny 1999).
Narrowing the focus to behaviors for the
prevention and management of chronic dis-
eases sets constraints on how we cover the
pathways to chronic illness that have been
identified by social, behavioral, and biomed-
ical investigators. For example, although sta-
tistical models have shown direct effects to
health through economic, ecological, and cul-
tural pathways (House et al. 1992, Kaplan
1992), we argue that many of these effects are
produced by behavior. Failure to detect be-
havioral mediators at the individual level may
be due to deficits in assessment of relevant
behaviors and to narrow definitions of behav-
ior that include only overt risky (smoking) or
healthy (exercise) behaviors and ignore gen-
eralized behaviors or sets such as chronic vig-
ilance. We also propose that direct pathways
from psychological traits such as trait negative
affect (trait NA) and cognitive competency
to health are often mediated by behavioral
factors, though many relationships between
traits and health indicators reflect interactions
of behaviors with third factors such as genetic
make-up and/or gene expression. All of the
pathways impact the individual and the indi-
vidual’s behaviors—healthy, risky, treatment
adherence, and lifestyle behaviors. It is rea-
sonable to expect, therefore, that the best way
to affect health outcomes will be through the
pathways influencing these behaviors.
EVIDENCE-BASED PRACTICE
AND BEHAVIORAL
INTERVENTIONS FOR
CONTROLLING CHRONIC
ILLNESSES
Translational Research and
Evidence-Based Medicine
Translational research is critical for both the-
ory and practice, and “the recasting of clinical
science along the principles of evidence-
based medicine provide[s] a better environ-
ment where translational research may now
materialize its goals” (Ioannidis 2004, p. 5).
The growth of evidence-based practice in
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medicine has created pressure on health psy-
chologists for effective and efficient theory-
based behavioral interventions for the con-
trol of chronic illness. Even though clinical
outcome trials provide information on the
efficacy of treatments, the mechanisms for
change are not delineated in clinical outcome
studies, a fact that limits their use for prac-
tice and theoretical development, and so we
must move beyond clinical outcome stud-
ies to translational research that investigates
the effects of individual, theoretical compo-
nents (Lerman 2003). In this way, our re-
search can be translated for and used by those
in clinical practice. A broad literature search
was conducted using two Ovid information
sources, PsycINFO and Medline, for random-
ized, controlled trials of behavioral interven-
tions conducted in the past decade whose
purpose was to study the prevention and man-
agement of chronic conditions. General sub-
ject terms were used in both search engines,
including all terms that were related to “be-
havioral intervention” or “lifestyle interven-
tion,” “chronic illness,” and “randomized tri-
als.” A total of 137 studies were collected using
the specified search terms; the studies were
then cut down to only those that met criteria
of being behavioral interventions, using ran-
domized and controlled trials, and having to
do with chronic conditions in the past decade.
The search results were further eliminated if
they were related to drug addictions or smok-
ing rather than chronic illnesses such as dia-
betes and heart failure. After all inclusion and
exclusion criteria were implemented, 26 stud-
ies remained. Of these 26 trials, 21 reported
significant and substantial benefits from a be-
havioral intervention. Although these trials
are few in number, 80% of them produced
some or all of their predicted benefits in health
outcomes. Thus, the best trials clearly satis-
fied the key criterion for effectiveness—the
behavioral changes reduced the onset and/or
progression of chronic disease—but fell short
of a second criterion: They were not efficient
and usable in the vast majority of clinical set-
tings, as has beenthe case for most effective in-
terventions (McDonald et al. 2002). In the fol-
lowing section, we focus on two diabetes pre-
vention trials that are excellent examples of ef-
fective behavioral interventions, and then we
address behavioral models that point to possi-
ble directions for achieving efficiency and/or
the clinical usability of such behavioral inter-
ventions. To be clinically usable, behavioral
interventions must be efficient, not only ef-
fective, so that physicians, nurses, and health
institutions have the time and resources for
implementation.
The Diabetes Prevention Trials
The Finnish Diabetes Prevention Study
Group (Lindstr
¨
om et al. 2003, Tuomilehto
et al. 2001), which conducted a randomized
trial comparing lifestyle with standard-care
treatment conditions, reported that 58%
fewer lifestyle participants became diabetic
relative to those in standard care over the
average four years of its intervention. Most
importantly, the benefit of lifestyle change
was sustained for three years following
termination of the intervention, though the
effect shrank somewhat at final follow-up
(58% to 46%). The trial of individuals at
high risk for diabetes that was conducted in
the United States (Diabetes Prev. Prog. Res.
Group 2002) confirmed the Finnish findings;
58% fewer of the 1079 participants in the
lifestyle intervention became diabetic in the
2.8-year post-intervention period (average
per-participant observation) in comparison
with the 1082 standard-care participants.
The 1073 participants taking medication also
fared better than control participants, 31%
fewer became diabetic, though they fared
significantly less well than the participants
in the lifestyle intervention. The quality of
these trials appears to be very high; adherence
to the interventions was excellent (80% or
more), and mediating factors, weight loss, and
hours engaged in physical activity increased
more in the lifestyle than in the control
conditions. Although it is difficult to compare
the time demands and extent of coverage for
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specific topics in these complex interventions,
the Finnish study appears to have been sig-
nificantly less time demanding than that used
by the U.S. working group (for reviews, see
Heneghan et al. 2006,Tuomilehto et al. 2005).
Do the Trials Meet Criteria for
Evidence-Based Practice?
Although the incidence of diabetes is clearly
lower, and impressively so, for participants
in lifestyle interventions than for those in
control or medication treatment conditions
(see Gillies et al. 2007, Yamaoka & Tango
2005), support for lifestyle interventions as
an evidence-based practice requires that the
interventions meet additional benchmarks.
First, diabetes is a lifetime condition, and
although the seven-year follow-up in the
Finnish trial is encouraging, it remains to be
seen if the behavioral changes and their bene-
fits will be sustained over a lifetime and can
be replicated in other trials. Second, there
are issues of cost effectiveness and usabil-
ity in clinical settings. The U.S. program
involved 16 one-on-one, hour-long sessions
with a cognitive-behavioral therapist as well
as meetings with nutritionists and nurses and
phone calls to reinforce and sustain behavior
change. Economic analyses of the U.S. and
a similar lifestyle program conducted in the
United Kingdom suggest they are cost effec-
tive for the health care system and for society
as a whole; the costs include direct medical
and nonmedical expenses and various indi-
rect costs (Diabetes Prev. Prog. Res. Group
2003, Teutsch 2003). Cost effectiveness on
a national scale does not, however, translate
into usability in clinical settings, where per-
sonnel skilled in the conduct of such inter-
ventions are lacking and the savings may go
to units (e.g., hospitals) other than those in
which interventions are conducted (e.g., spe-
cialty clinics). Furthermore, cost effectiveness
on a national scale does not necessarily trans-
late into cost effectiveness for the individual
patient, the people for whom the interven-
tion is aimed, because patient time is rarely
considered in cost analyses (Russell et al.
2005).
We propose that understanding the pro-
cesses underlying how patients act to detect
and manage chronic conditions will provide
ideas for effective and efficient interventions.
This proposal is consistent with, although dif-
ferent from, efforts to tune interventions to
stages that define participants’ readiness for
change (Prochaska et al. 2005), to target the
intervention to groups of participants, or to
tailor the interventions to individuals’ needs
(De Bourdeaudhuij & Brug 2000). A review
of tailored informational interventions (Ryan
& Lauver 2002) concluded that they were sig-
nificantly more effective than were standard
interventions for some but not all types of be-
havior (e.g., effective for dietary behaviors but
not for smoking behaviors), and these inter-
ventions were more likely to be effective when
they used ipsative feedback, which compares
a participant’s present and past behaviors. All
of the reviewed tailored informational inter-
ventions that were significant had only very
small effect sizes. Therefore, although these
interventions may be more efficient than the
lifestyle interventions to date, they are not
as effective. The challenge for interventions
is to be effective and efficient, and therefore
usable.
THE PROCESS OF
SELF-MANAGEMENT
OF CHRONIC ILLNESS
The creation of effective and efficient
evidence-based practices requires something
in addition to the translation of theory-
based interventions to practice settings: These
additions can be identified by the system-
atic investigation and conceptualization of
the processes underlying how patients use
treatments in their homes, workplaces, and
communities—their lived environments. We
propose that the incorporation of models and
concepts developed in field settings into the
conceptual structure of behavioral theory de-
veloped in laboratory settings, i.e., translation
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from the field to the laboratory, will facil-
itate the development and testing of effi-
cient and effective interventions for enhanc-
ing healthy behaviors. Translation from the
field is critical given that medical treatments
and lifestyle behaviors are performed in lived
environments.
Factors Affecting Chronic Illness
Management: Emotion and
Cognitive Traits
Studies of health care usage, disease risk
screening, and behavior for the prevention
and management of chronic conditions pro-
vide insights into mechanisms underlying
effective self-management behaviors. The
social-cognitive-behavioral framework that is
the basis for behavioral health research en-
compasses factors ranging from the cultural
and social environment through individual
or person factors, and most importantly, the
behavioral processes that initiate and sustain
healthy and risky behaviors. The framework
encompasses a multilevel set of control sys-
tems (Carver et al. 1989, Cooper & Shallice
2006, Powers 1973), with each level gener-
ating goals and strategies that influence ad-
jacent levels in the hierarchy. Understanding
how variables interact either within or across
levels is not captured by structural or hier-
archical statistical models that depict the ar-
chitecture of a system but do not describe its
software, i.e., how factors communicate with
one another. How factors communicate with
one another is critical information for the de-
sign of interventions. For example, there is
little evidence on how typical individual dif-
ference measures relate to within-individual
variation in behavior over time because indi-
vidual difference measures may not identify
and assess the self-perceptions and strategies
that control the temporal variation in intra-
person problem solving (Cervone 2004). We
illustrate these points below in our description
of what is known about the processes involved
in the regulation of treatment adherence
behaviors.
Emotion traits. For more than 30 years,
studies have reported on the relationship be-
tween individual differences in emotion char-
acteristics and healthy and risky behaviors
and health outcomes, e.g., mortality and mor-
bidity. Although measures of negative affect
such as trait anxiety are more or less con-
sistent predictors of morbidity and mortality
(Friedman & Booth-Kewley 1987), they are
somewhat less effective in predicting healthy
and/or risky behaviors (Mora et al. 2002,
2007). Individual differences in depressive af-
fect and angry/hostile behavioral styles are
somewhat an exception, as they have been
consistent predictors of morbidity and mor-
tality from cardiovascular disease (Barefoot
et al. 1983). Questions about these relation-
ships include the extent to which these con-
structs overlap with oneanother and with vari-
ables such as burnout and vital exhaustion, and
whether they affect health through the same
or through different physiological pathways
(Suls & Bunde 2005).
Although studies have generally failed to
detect robust direct effects of factors such as
neuroticism or trait anxiety on care seeking,
theory has suggested and data have identified
indirect pathways that merit further examina-
tion. One such path shows, as predicted, that
individuals with high scores on trait NA are
more likely to report asthma-specific health
worries that mediate the connection between
trait NA and the reporting of symptoms spe-
cific to asthma. Asthma-specific worries, how-
ever, do not affect the relationship of the
trait NA to reporting of generic, emotional
symptoms (Moral et al. 2007). Thus, being
high on trait NA increases susceptibility to
feeling fearful in response to illness threats
and focuses attention on the physical indi-
cators of threat, allowing the individual to
distinguish clearly between symptoms of ill-
ness and symptoms of emotional distress. Be-
cause illness-specific worry enhances atten-
tion to and accurate identification of illness
symptoms, and because symptoms are power-
ful initiators of health behaviors, it is clear that
illness-specific worry should predict seeking
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ANRV331-PS59-18 ARI 5 November 2007 10:57
health care; a specific worry, cancer worry,
has been shown to predict cancer screening
(Diefenbach et al. 1999, Hay et al. 2006).
Imaging studies have identified neural centers
that are likely the loci for memories that inte-
grate symptoms, subjective worry, and action
tendencies (Critchley 2005).
Depression appears to have direct effects
on a range of health behaviors. For exam-
ple, depression has been shown to reduce ad-
herence to treatment in patients who have
had a myocardial infarction (MI) (Ziegelstein
et al. 2000), to reduce attendance at programs
for lowering blood lipids post-MI and post-
bypass surgery (Sebregts et al. 2003), and to
delay care seeking following an MI (see re-
view by Dracup et al. 1995) and bowel ob-
struction (Bickell et al. 2005). The data sug-
gest, however, that these effects often reflect
only one of the components of depression,
i.e., its affective, cognitive, or somatic feature,
and not the entire construct. For example, a
cognitive component of depression, the be-
lief that other people disrespect and dislike
you, predicted reductions in perceived social
support over a two-year period in a sample
of 851 elderly individuals, whereas depressed
mood and somatic symptoms had no rela-
tionship to reductions in perceived support
(Maher et al. 2006). Social support is asso-
ciated with better health outcomes (Cohen
2004), and thus its erosion would increase risk
of illness, thereby defining an indirect path-
way from depression to physical illness. Con-
sistent with prior data (Dracup et al. 1995), in-
terviews with 433 post-MI patients found that
patients reporting depressive symptoms two
weeks prior to hospitalization delayed longer
(40+ hours) before seeking care in compari-
son with patients who did not report depres-
sive symptoms (22+ hours; Bunde & Martin
2006). This direct effect however, was due
entirely to two items in the Patient Health
Questionnaire-9 depression measure: fatigue
and sleep disturbance. Delay was not related
to the other components of depression, mood,
anhedonia, or feeling bad about the self, or to
the neuroticism scale from the Big Five In-
ventory (Costa & McCrae 1992). The find-
ings for white coat hypertension reported by
Spruill and colleagues (2007) resonate with
the Bunde & Martin (2006) data: situational
fear levels and not trait anxiety were associated
with (white coat) hypertension in the clinical
setting; white coat hypertension was detected
for individuals who had labeled themselves as
hypertensive regardless of their actual ambu-
latory blood pressure status. Kemeny’s (2003)
summary of multiple studies also shows that
situation-specific measures, and not general
measure of stress, predict HIV progression.
Thus, the results of these studies converge
in showing that situation-specific rather than
general conceptualizations and measurements
of emotion concepts are needed to predict
health outcomes (Leventhal et al. 2007a).
Cognitive/behavioral traits. The Big Five
factor of conscientiousness and its subfactor
of conventionality appear to have consistent,
modest relationships with lower levels of risky
and higher levels of healthy behaviors and bet-
ter health outcomes (Bogg & Roberts 2004).
A recent analysis of existent data found that
teacher ratings of conscientiousness were pos-
itively related to better health in their former
pupils 40 years later; some of the effect was
clearly indirect, i.e., from conscientiousness
through educational attainment and higher
levels of healthy and lower levels of risky
behaviors, although some of the relation-
ship was direct and unaccounted for by me-
diators in the best-fitting model (Hampson
et al. 2007). Conscientiousness may affectself-
management at many points in the behavioral
process: It may affect risk aversion, nondis-
counting of remote rewards, skills in gener-
ating action plans, and/or adherence to well-
organized, nonrisky, and not overly complex
lifestyles (Park et al. 1999). Behavioral pro-
cesses related to conscientiousness may play a
role in the “healthy adherer effect” (Simpson
et al. 2006); participants adherent to proto-
col in placebo conditions have been found to
have outcomes as favorable as those of treated
patients.
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Summary comment. It is clear that person
traits are related to health. What is not well
understood is how person factors relate to
specific behaviors or biological vulnerabilities
that mediate these effects. The identifica-
tion of the processes underlying how traits
influence problem solving (i.e., how health
threats are viewed, the strategies skills and
specific responses for threat management)
and how the outcomes of problem solving are
evaluated and translated into intermediate
beliefs (worries; strategies) requires analyses
that focus on intraindividual assessment
rather than individual-difference assessment.
As Cervone (2004) argues, stable factors
(traits) may have little or no relationship
to the process-level variables that affect the
day-by-day fluctuation in health-relevant
behaviors. The identification of relationships
to health behaviors and health outcomes
of specific health worries, components of
depression, or representations of specific self
vulnerabilities, and behavioral styles specific
to particular types of settings are consistent
with the proposition that domain-specific
person factors will better predict behavioral
episodes over time. This is true because they
are tuned to the specific cues, internal and
external, that activate behavioral processes
in that domain (Cervone et al. 2006). As we
argue in the final section, understanding how
moderators such as traits affect process-level
variables will be critical for the development
of effective and efficient interventions.
Factors Affecting Chronic Illness
Management: Process Analyses
Studies have identified a broad array of cul-
tural, community, and personal values and
beliefs and associated triggering factors that
initiate and sustain behaviors affecting the de-
velopment of chronic illnesses. For example,
obesity, a multiplier of risk factors for many
chronic conditions (Pi-Sunyer 1993), is af-
fected by factors ranging from availability and
cost of healthy foods to cultural values associ-
ated with portliness and thinness, to individ-
ual pathology affecting food intake (Wadden
et al. 2002). The picture for addictions, smok-
ing, and alcohol use is equally complex; cul-
tural, peer, and family environments as well
as individual propensity to risk taking and
emotional reactivity affect likelihood of ini-
tiation, rapidity of addiction, and difficulty
of cessation (Galea et al. 2004, Turner et al.
2004). Models depicting the processes in-
volved in healthy and risky behaviors typi-
cally place environmental factors (availabil-
ity; cost; socioeconomic status) on the far left,
belief variables such as personal vulnerability
next, then triggers that activate these beliefs
and motivate action, followed by response al-
ternatives and their associated expectations
(e.g., response efficacy and self-efficacy for
execution), a plan for action (Bandura 1989,
Leventhal 1970, MacGregor et al. 2006), and
post-action satisfaction (Baldwin et al. 2006,
Finch et al. 2005). Consistent with earlier data
(Leventhal 1970), a combination of motivat-
ing variables (attitudes, intentions) and action
variables, i.e., plans and efficacy (Leventhal
et al. 1965, Sheeran & Orbell 2000), appears
to be essential for healthy or risk-reducing be-
haviors; neither set alone appears to be suf-
ficient to generate behavior (Leventhal 1970,
Rothman 2000, Witte & Morrison 2000). For
example, a recent study of volunteer parent
participants in a smoking-cessation interven-
tion found that predictors of participation in
the program included recently receiving med-
ical care, a motivating factor, and planning
to make changes in smoking behavior (Mak
et al. 2006). Action plans play a key role in
converting attitudes to action; the associa-
tions are especially large with respect to per-
forming single, time-limited behaviors such as
screening for and inoculation against disease
threats (e.g., Orbell et al. 1997). Suggestions
as to how cultural-, social-, and person-level
factors affect the processes involved in self-
management of chronic illness are a central
concern of this review because interactions
among these factors are crucial for research
aiming to develop effective and efficient in-
terventions. Since lifetime management of
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diseases such as asthma, diabetes, and hyper-
tension is highly dependent upon contact with
the medical care system, we concentrate on
empirical studies examining the processes un-
derlying the use of health care and adherence
to lifestyle behaviors and medication for the
control of chronic conditions.
Triggers. When we distinguish visits to
health care providers that are patient driven
from those that are routine annual exams—
practitioner or employer scheduled visits—it
is no surprise that patient-driven visits are the
visits triggered by somatic changes. For ex-
ample, new symptoms triggered use of care
for 100% of 121 elderly individuals whose use
of care was tracked over a year; only 30% of
their matched controls reported new symp-
toms (Cameron et al. 1995). The new symp-
toms reported by the 30% of noncare users
were seen as not severe or of sufficient du-
ration to merit attention. Care-seeking de-
lay can be similarly predicted by a lack of
perceived relevance of a symptom to illness.
Burgess and colleagues (1998) found, for ex-
ample, that women who delayed care seeking
for breast cancer symptoms were more likely
to have nonlump symptoms than were those
who did not delay care seeking; that is, because
there was no lump in the breast, the women
who delayed seeking care did not realize the
severity of the initial, nonlump symptom.
Heuristics. The numerous empirical stud-
ies describing differences in how young and
elderly individuals evaluate and respond to
their symptoms (see Brody & Kleban 1983,
Stoller 1998) make up a vast repository of in-
formation with rich theoretical implications
for the appraisals that underlie seeking health
care. Investigators have begun to identify
the specific heuristics, or mental rules, that
people use to interpret somatic events and
to identify the illness schemata underlying
their use (Brownlee et al. 2000). Four classes
of heuristics have been identified (Leventhal
et al. 2007b): first, heuristics involving in-
nate, spatial-temporal maps of symptoms into
cerebral architecture (e.g., location, duration,
severity); second, heuristics involving patterns
of symptoms based on prior experience (e.g.,
schema related—chest pain means a heart
problem), novelty (ambiguous or incongruous
with underlying schema), trajectory (worsen-
ing, fluctuating), and control (e.g., did it or did
it not improve with self-care); third, heuris-
tics based upon cultural beliefs and social
experience (e.g., age-illness, gender stereo-
types, stress/illness, good feeling = good
health); and last, heuristics involvingactiveso-
cial comparisons (e.g., prevalence and severity
in one’s community, and similarity rules such
as similarity in exposure, temperament, phys-
ical characteristics). Heuristics give meaning
to somatic changes. For example, changes of
long duration and high severity imply that an
experienced somatic change may be a seri-
ous threat to function and/or life; both are
associated with high levels of care seeking
among elderly individuals (Mora et al. 2002).
Mild, chronic symptoms with unchanging tra-
jectories that lack a specific pattern and are
systemic rather than localized are readily at-
tributed to age rather than illness (Brody &
Kleban 1983, Prohaska et al. 1987). Since
multiple heuristics are involved in the inter-
pretation of a somatic event, it is possible to
predict interactions among them. For exam-
ple, in comparison to symptoms that are dis-
tinctive (e.g., patterned or in a specific lo-
cation, such as sore throats, stuffed nose, or
swelling), symptoms that are vague (e.g., in a
nonspecific location and/or lacking pattern,
such as fatigue or aching body) are readily
attributed to life stress and are unlikely to
trigger motivation for seeking medical care
(Cameron et al. 1995). However, when vague
symptoms were experienced in association
with life events a month or more in dura-
tion, care seeking was just as likely as it was
for distinctive symptoms. The perception that
vague symptoms may be indicators of illness
when associated with stressors of long dura-
tion is consistent with empirical data that pro-
longed stress increases the likelihood of de-
veloping a cold after exposure to rhinoviruses
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(Cohen et al. 1998, Cohen & Williamson
1991). There are instances, therefore, in
which people’s mental tool boxes, that is,
their heuristics, provide rules in accord with
empirical data.
The studies of heuristics suggest at least
three directions for future research. First, in
their study of delay in care seeking follow-
ing a myocardial infarction, Bunde & Martin
(2006) found opposite effects on delay for
mental rules and depression: location (chest
pain), pattern (left chest and arm), and novelty
(sweating) reduced delay, whereas depression
increased delay. Consistent with the parallel-
processing assumption that underlies illness
cognition models (Leventhal 1970), the ef-
fects of heuristics and depression were inde-
pendent of one another; i.e., the bivariable re-
lationships of depression and/or heuristics to
delay were unchanged in multivariable mod-
els. The effect of context on the indepen-
dence or interdependence of heuristics and
affect needs to be studied. Second, an indi-
vidual will act differently when heuristics join
potentially unique experiences into a common
conceptual framework versus when they do
not; e.g., an individual will seek health care if
chest pain, sweating, and arm pain are framed
within the concept of “heart attack” and not as
discrete events. Concepts allow the individual
to see similarities over occasions (prior his-
tory was related to swift care seeking; Bunde
& Martin 2006, Dracup et al.1995),to see cur-
rent symptoms as signals for later ones, and to
regulate behavior in line with the expectations
associated with the more abstract, conceptual
framework of “heart attack.” By contrast, car-
diac diseases such as congestive heart failure
lack the features necessaryto be coded as coro-
nary events; the chronic symptoms are often
mild (breathlessness, fatigue, swollen legs), at-
tributed to age, and are not conceptualized as
heart related (Horowitz et al. 2004). Although
patients are told they have heart disease, fail-
ure to connect their symptoms to a cardiac
concept (absence of depth) results in failure to
see worsening of chronic symptoms as an in-
dicator that more severe symptoms are on the
horizon. Patients who say they do not under-
stand their conditions do not act to counter,
change, and avoid hospitalization. The con-
ditions necessary for linkage to occur, i.e., the
time needed to see relationships among em-
bedded experiences, require research.
The third direction for future research in
relevant health heuristics concerns the rela-
tionship of these illness-oriented heuristics to
cognitive-search rules, such as representative-
ness and availability, which are factors related
to limitations in processing capacity (Tversky
& Kahneman 1974). Within the illness cog-
nition framework, availability and represen-
tativeness are conceptualized as attributes of
the domain-specific rules. Thus, the availabil-
ity and representativeness of a somatic/health
heuristic is a function of the schemata or
database underlying the search process. Inves-
tigations in this domain will be important for
understanding the conditions involved in the
biases affecting self-appraisals and sustained
self-management of chronic conditions.
Schemata and illness representations.
The initial question likely addressed by
heuristic processing is, “Am I sick or am I
well?” Crossing the threshold from perceiv-
ing no illness to perceiving illness involves
consideration of alternative schemata on the
“sickness” side of the equation. Early mul-
tidimensional scaling and cluster analysis of
illness labels found four clusters of illness rep-
resentations in a two-dimensional space: con-
tagious illnesses that are a threat to life and
those that are not, and noncontagious illnesses
that are a threat to life and those that are not
(Bishop 1991). Although scaling did not assess
the availability or salience of these categories,
Bishop (1991) identified a clear indicator of
salience by showing that memory for illness
information was better retained if consistent
with an underlying prototype. Evidence that
prototypes affect behavioral management of
chronic conditions was clear in the early stud-
ies of hypertension showing that diagnostic
labeling was associated with symptom report-
ing both for patients (Meyer et al. 1985) and
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for subjects in laboratory studies (Baumann
et al. 1989); the linkage of symptoms to a
label reflects the fundamental symmetry be-
tween the prototype and experience: “to be
sick means being symptomatic.” Patients hos-
pitalized for severe attacks of asthma agreed
that they “will have asthma all of their lives”
and then agreed that they “have asthma only
when they have symptoms” (Halmet al. 2006);
behavior was consistent with these beliefs as
they took both prevention medication (which
is to be used daily when asymptomatic) and
controller medication (which is to be used for
attacks) only when they were symptomatic.
Symptom management is also a pattern for
HIV, a contagious, chronic condition; when
symptoms clear up, patients with HIV are
likely to stop medication (Horne et al. 2004).
The schema most consistent with symp-
tom management is the acute illness model,
a schema with five domains identified by the
Illness Perception Questionnaire (Weinman
et al. 1996): (a) identity—symptoms and label,
(b) time line (time limited), (c) cause (external
cause), (d ) consequences (not life threaten-
ing), and (e) control via self-care or with medi-
cal treatment (Diefenbach & Leventhal 1996).
The acute representation is linked to pro-
cedures for management that alleviate (con-
trol) both symptoms and condition (identity),
are time limited (time line), nonthreaten-
ing (consequences), and work through routes
that are plausible given the underlying condi-
tion (cause; Horne 2003). The acute or time-
limited nature of symptom-focused models is
consistent with clinical observations and data
showing that patients stop treatment both
when symptoms resolve and when objective
indicators return to “normal values” (Horne
et al. 2004). An excellent study by Henderson
et al. (2007) showed that priming an illness
schema for the common cold (e.g., by writ-
ing about a recent experience with a cold) in-
creases color-naming response time to words
related to the common cold in the Stroop
color-naming test: Response times to neutral
words and words related to cardiovascular dis-
ease were unaffected. When a schema for car-
diovascular disease was primed, color-naming
response time was affected for words related
to cardiovascular disease but not to neutral
words or words related to the common cold.
Schemata are implicit, organized, and affect
behavior when activated.
Representations of treatment and health
behaviors. When a health threat is perceived
as imminent or as probable, procedures will be
entertained and elaborated for threat avoid-
ance and control (Wakslak et al. 2006). Thus,
stimulus events or inputs, such as symptoms,
physical dysfunctions, illnesses in others, and
a variety of social and media messages, ini-
tiate the development of mental representa-
tions of the output, or the behavioral side
of the control system for the regulation of a
chronic illness threat. Treatment behaviors,
whether prescribed or self-initiated, carry an
implicit set of expectations respecting their
consequences, time lines, efficacy (control),
and route of action (causal), and these expec-
tations are appraised against both experiential
and abstract criteria. For example, patients in
the Meyer et al. (1985) study were adherent
to medication and in better blood pressure
control if they perceived that medication was
controlling symptoms they attributed to hy-
pertension; symptoms however, were not re-
lated to blood pressure. Jamison (1995) gives
numerous examples of the conflict between
abstract, verbalized expectations and implicit
concrete expectations in the treatment of de-
pression. Although depressed patients have
the abstract knowledge, i.e., they “know” it
will take several weeks for medication to work,
they experience medication symptoms at the
onset of treatment without an improvement
in mood. Experience overwrites knowledge:
They feel the medication is working (creating
symptoms) but they also feel it is not work-
ing (not improving mood) these feelings often
lead to nonadherence. Treatments are embed-
ded in implicit schemata or representations,
and a treatment schema is linked to the rep-
resentation of the illness that is the target for
control.
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Examinations of treatment beliefs held by
chronically ill patients have identified gen-
eral and specific concerns about medication
use (general: doctors overprescribe medica-
tion; specific: medication canbe addictive) and
about specific beliefs respecting its necessity
(efficacy for maintaining health) and harm-
fulness (Horne & Weinman 1999). Endorse-
ment of these beliefs differs across chronic
conditions: Necessity of medication is more
strongly endorsed by patients with diabetes
than by patients with coronary and psychi-
atric conditions, and concerns about medi-
cation are somewhat higher among patients
with asthma (Horne & Weinman 1999). Since
these beliefs are focused on the response part
of the regulatory system, the data show, as
would be expected, that these beliefs about
treatments are more strongly associated with
treatment adherence than are related beliefs
about the illness. For example, adherence is
better among patients holding strong beliefs
about the necessity of their prescribed med-
ication than among patients who are highly
concerned about the illness but do not see the
medication as necessary (Horne & Weinman
1999, 2002). Medication beliefs were also re-
lated to participation in antiretroviral treat-
ment in the Highly Active Antiretroviral
Therapy study (Horne 2003, Horne et al.
2004) and to treatment adherence (Horne
et al. 2004).
The Theory of Planned Behavior (TPB;
Ajzen 1991) has been used to examine the
relationships of behavioral and/or treatment
beliefs to adherence for issues such as use
of condoms (Albarracin et al. 2001), mam-
mography (Tolma et al. 2006), screening for
colon-cancer (McCaffery et al. 2003), and
dietary and exercise behaviors (see Hagger
et al. 2002 and Smith 2004). In the major-
ity of TPB studies, as in several of the studies
from the perspective of self-regulation theory,
treatment/behavioral beliefs were found to be
more strongly related to behavioral intentions
and action than to illness beliefs. For example,
attendance at a colposcopy clinic for detection
of possible cervical dysplasia was predicted by
(a) the belief that one could readily attend,
(b) a belief of behavioral control, and (c) in-
tentions to attend. Measures of illness rep-
resentations did not predict behavior (Orbell
et al. 2006). Illness representations did predict
attendance as did perceptions of behavioral
control and intentions to act when attendance
at a colposcopy clinic was differentiated into
three categories of patients: did not attend, at-
tended when prompted, and attended without
prompting (Orbell et al. 2006, p. 611). Repre-
sentations of cancer, perceptions of behavioral
control, and intentions predicted attendance
for patients in need of prompting. Prompting
likely primed implicit illness models for these
patients.
In their fine study, Orbell and colleagues
stated their major goal to be the compari-
son of “two theories of health behavior”: self-
regulation and TPB (Orbell et al. 2006). This
goal merits comment because the study and
others similar to it compare the predictive
power of measures, not theories. Moreover,
the selection of measures was inappropriate
for a comparison of theories. Comparing ill-
ness representations as the measure of self-
regulation theory to behavioral beliefs and in-
tentions as the measure of TPB is inadvisable
because it compares only the first component
of the self-regulatory control loop and ig-
nores both treatment representations and out-
come expectations, components that are es-
sential for the completion of a self-regulatory
loop. A comparison of theories would assess
the action stage of the self-regulatory model
with the action components of TPB. And if
treatment beliefs (TPB) are conceptually the
same as treatment representations, then the
comparison would be between the two im-
plementations of these components and not
the entire theories. In addition, it is arbitrary
to include intention in TPB and to exclude
it from social-learning or self-regulation the-
ory; intentions are conscious verbalizations of
readiness to act; they are at home in any the-
ory that conceptualizes action readiness at im-
plicit and explicit levels. In summary, compar-
isons among measures are not equivalent to
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comparisons among models (Leventhal et al.
2007c).
Coherence between illness and treat-
ment representations; converting schemas
into scripts. The concept of coherence, i.e.,
whether an individual can make sense of her
or his illness experience, was introduced by
Antonovsky (1993). The concept influenced
other investigators (Moss-Morris et al. 2002)
and provided a link between health research
and basic research in experimental psychol-
ogy (Broadbent et al. 2006). Whether a rep-
resentation of illness and a representation of
its possible treatments form a cohesive pat-
tern is a core issue for self-regulation theory.
Self-regulation theory would hypothesize that
coherence between illness and treatment rep-
resentations arises when the actions taken to
manage an illness are seen as congruent with
the treatment representation, that is, that they
are perceived to be effective treatments. Per-
ceived effectiveness emerges when the expe-
rienced outcome of treatment matches the
individual’s expectations for both subjective
and objective indicators; these indicators or
targets are generated from the representa-
tion of the illness. The importance of co-
herence, or “goodness of fit,” between illness
and treatment representations can be seen in
studies of patients with hypertension. For ex-
ample, patients who believed treatment was
necessary (assessed using the Horne necessity
scale) were more adherent, and they perceived
their hypertension to have a longer time line,
more negative consequences, and to be more
amenable to control by treatment (Ross et al.
2004); their illness belief that treatment could
control their hypertension was coherent with
their treatment belief that their hypertension
medication was effective. Patients with coher-
ent asthma illness and treatment represen-
tations who saw treatment as necessary and
who were more adherent represented asthma
as a chronic condition. In contrast, patients
with noncoherent representations had con-
cerns about treatment, were less adherent, be-
lieved asthma to be less controllable, and per-
ceived their symptoms as side effects of treat-
ment (Horne & Weinman 2002). Patients re-
sist treatments that are inconsistent with their
illness representations; for example, patients
resisted the recommendation to exercise for
joint and back pain following myocardial in-
farction if they perceived excessive activity
as the cause of their heart attack (Weinman
et al. 2000). Rothman and colleagues (Baldwin
et al. 2006) found that maintenance of smok-
ing cessation was related to satisfaction with
the change is an alternative way of assessing
coherence.
Motivating behavioral change for disease
prevention may prove problematic for indi-
viduals identified as at genetic risk; behav-
ioral change may seem inappropriate for a
disease that is programmed in one’s genes.
For example, it was expected that testing
people at increased risk for familial hyper-
cholesterolemia would increase motivation
for medication and diet change among par-
ticipants with positive test findings, but this
was not the case (Marteau et al. 2004). Al-
though the evidence to date is not entirely
consistent, there are several indications that
people are likely to choose medical treat-
ment over lifestyle change (diet and exercise)
for risk reduction when an illnesses is per-
ceived as genetically caused (Marteau et al.
2004, Wright et al. 2006). It is sometimes the
case that simple communications can reverse
the lack of coherence between representations
of illness and treatment; women given a co-
herent explanation as to how smoking could
affect cervical cancer were more likely to un-
dergo cervical screening and express motiva-
tion for smoking cessation (Hall et al. 2004).
Unpacking the coherence concept suggests
that it might be better reframed as convert-
ing discrete representations, that of illness
and treatment, into behavioral scripts that are
generated when behavioral management pro-
duces an expected and satisfying outcome, i.e.,
when behaviors affect objective and subjec-
tive criteria as anticipated (Baldwin et al. 2006,
Finch et al. 2005, Meyer et al. 1985, Rothman
2000).
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Factors Affecting Chronic Illness
Management: Contextual Factors of
Self, Social Networks, and Culture
Illness and treatment representations are con-
structed within the perceived selfand may lead
to revised perceptions of the durability and
competence of the physical self and its abil-
ity to function in a variety of cognitive tasks
and social roles (Epstein 1973). Investigators
have focused on two aspects of the self con-
cept that are directly related to the problem-
solving process described in the prior section:
self-efficacy and beliefs respecting control—
both oriented toward the behavioral compo-
nent of the regulatory system, and optimism
and disengagement—two factors affecting the
appraisal of movement toward goals. To this
point, however, relatively few studies have
explicitly examined how feedback from the
problem-solving level, that is, feedback from
illness management, affects these factors or
other aspects of the self system. There also
is little empirical data showing how aspects
of the self, e.g., self-assessments of health and
feelings of vulnerability to specific diseases,af-
fect the construction and content of illnesses
and treatment representations.
Self as context. Self-efficacy, or the per-
ception that one is able to perform a specific
action in an efficacious manner (Bandura
1989, 2004), and internal control, or the
perception of personal control over and
responsibility for daily events (Rodin &
Langer 1996), are two self system concepts
commonly used in health behavior research.
Although some studies have treated these
variables as traits, they are basically dynamic
concepts—beliefs that are shaped by behavior
and that in turn affect behavior. It is easier,
however, to identify studies that demonstrate
how efficacy affects behavior than to identify
studies that examine how behavior affects ef-
ficacy; for example, studies have looked at the
effect of level of self-efficacy on taking med-
ication (e.g., Barclay et al. 2007), for healthy
eating (e.g., Shields & Brawley 2006), and for
exercising (e.g., Renner & Schwarzer 2005).
To be complete, studies of efficacy should also
include how and the conditions under which
the behavior affects or mediates changes
in self-efficacy (Maibach & Murphy 1995).
For example, exercise builds self-efficacy for
exercise behaviors if the exerciser experiences
positive affect and social support during the
activity (e.g., Dechamps et al. 2007). Experi-
encing positive affect and engaging in social
comparison as a result of the behavior elab-
orates the meaning of the action in cognitive
and experiential memory; experience-based
positive feedback conveys the value of the
behavior to the cognitive system.
Treating self-efficacy as a static trait in
research ignores two additional findings in
health research in addition to the data show-
ing how efficacy is modified by action. First,
self-efficacy may be more important for the
initiation than the maintenance of a be-
havioral change. For example, self-efficacy
was important for initiating smoking cessa-
tion, but satisfaction with cessation, not ef-
ficacy, was related to maintaining cessation
(Rothman 2000) (see Coherence Between Ill-
ness and Treatment Representation, above),
and neither self-efficacy nor satisfaction was
related to long-term maintenance once non-
smoking became habitual (Baldwin et al.
2006). Second, efficacy is domain specific;
thus, an individual’s self-efficacy for regulat-
ing diet is ineffective for regulating exercise
(Baldwin et al. 2006). Domain-specific differ-
entiations of self-efficacy have also proven es-
sential to understand the findings and pro-
cesses involved in rehabilitation following
myocardial infarction (Schwarzer & Fuchs
1995), initiation and maintenance of exer-
cise (Sallis et al. 1992), and in regulation
of healthy diets (Schwarzer & Fuchs 1995).
The differentiation of efficacy across do-
mains and its change over time is consistent
with its conceptualization as a dynamic fac-
tor rather than as a trait, and it is consistent
with the importance of specificity respect-
ing the assessment of affective and cognitive
traits.
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Investigators have questioned whether ef-
ficacy is merely a correlate or is an ac-
tual causal mediator of performance—i.e.,
whether efficacy has a functional relation-
ship to subsequent performance. Heggestad
& Kanfer’s (2005) studies show that prior be-
haviors can build efficacy but that the indi-
vidual’s prior behavior and not efficacy has a
causal relationship to subsequent behavior. It
has yet to be determined whether their find-
ings will hold for maintenance of a health be-
havior versus only initiation of the health be-
havior and whether efficacy can affect success
for some health behavior changes and not oth-
ers (Vancouver & Kendall 2006). When ef-
ficacy is assessed as an ability to achieve an
outcome rather than an ability to perform a
specific act or sequence of actions, it might be
an indicator of coherence; i.e., as mentioned
in the prior section, it might be an indicator
that control has been scripted and is on the
way to becoming automatic.
In addition to factors such as efficacy that
are related to performance skills, other aspects
of the self affect motivation for the initiation,
cessation, and/or maintenance of healthy and
risky behaviors. Three self-appraisals that af-
fect motivation for health behaviors are op-
timism (Carver et al. 1989), a self-regulation
strategy to conserve resources (e.g., not exer-
cising in order to conserve physical energy)
(Leventhal & Crouch 1997), and a strategy
for goal disengagement (e.g., giving up on an
unattainable goal by focusing on a new goal)
(Wrosch et al. 2003). For example, Duke et al.
(2002) found that community-dwelling older
adults who appraised themselves as optimistic
were more likely to initiate less vigorous activ-
ities (walking) to replace more vigorous activ-
ities (jogging) they had given up due to illness
a year earlier. These elderly adults were less
likely to make replacements, however, if they
believed it important to conserve resources.
In their examination of strategies for disen-
gagement, Wrosch and colleagues (2003) ar-
gue that failing to give up unattainable goals
can be a source of emotional distress that will
reduce quality of life and have adverse ef-
fects on health. Wrosch et al. theorize that el-
derly people high on internal control are more
likely to experience this syndrome of distress,
as well as reduced quality of life and negative
effects on their health, because they are more
likely to be motivated to reach for goals that
are unattainable within their limited remain-
ing life spans. In contrast, elderly people low
on control will more readily yield and identify
more attainable goals. Interestingly, Wrosch
and colleagues (2003) propose that internal
control beliefs will be beneficial for giving up
and replacing goals among younger persons.
Finally, rather than focusing on specific strate-
gies, Heidrich and colleagues (1994) showed
that the discrepancy between ideal and per-
ceived self accounted for the effects of can-
cer and social adjustment; the discrepancy be-
tween how the individuals wanted to be and
how they saw themselves accounted for, i.e.,
mediated, their social adjustment and most of
the effects of their illness on depression. Al-
though these studies have clear implications
for behaviors to prevent and control chronic
illness, such as medication adherence, dietary
control, and exercise, few provide evidence di-
rectly related to these behaviors.
Comment on self studies. It is clear that
the perceived and conceptual self (Kihlstrom
1993) and its overall and specific properties
(Swann et al. 2007) are intimately related to
risk perception and behaviors for the pre-
vention and control of chronic illness. Few
studies, however, examine direct connections
between factors of the self and the problem-
solving processes involved in chronic illness
management. For example, heuristics such as
novelty (e.g., if a symptom is novel it is more
likely to be perceived as serious; Leventhal
& Scherer 1987), location (e.g., chest pain
is often assumed to indicate heart problems
rather than a lung problem, since the chest
is most salient as the location of the heart),
severity, and timeline are rules for apprais-
ing deviation from an underlying, stable im-
age of the bodily self, but little attention has
been given to this aspect of self by health
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investigators (see Petrie & Weinman 1997
for examples). Self-appraisals such as opti-
mism, conservation of resources, and willing-
ness to yield life goals are coping strategies
that lead to the formation of coherent cog-
nitive, emotional, and expressive behavioral
scripts by encouraging similar and repeated
approaches to life and health problems. The
behavioral scripts and expressive behaviors as-
sociated with these self-ascribed orientations
could affect physical health outcomes through
the chronic activation of central autonomic
pathways. These issues need to be explored in
longitudinal studies that examine behavioral
processes at both psychological and physio-
logical levels. A possible approach to concep-
tualizing one aspect of the process involved
in communication between the self and ongo-
ing problem-solving processes would be to set
the social comparison process, i.e., whether
patients select upward or downward compar-
isons (Taylor & Lobel 1989), within the con-
text of patient models of disease and treat-
ment: upward when the representations and
current evidence suggest the need for acquir-
ing skills and hopeful outcomes, downward
when they point to a need to bolster self-
esteem. Finally, it is unclear whether person
factors, such as optimism or disengagement,
are traits and are less usable for predicting in-
traindividual outcomes or if they are prod-
ucts of domain-specific behavioral episodes
that capture both inter- and intraperson ef-
fects (Cervone 2004). Person factors gener-
ated within specific domains, such as conser-
vation of resources for physical survival, may
generalize to other areas at a conceptual level,
although instruments for assessment would
need to be worded to reflect the content of
each domain.
Cultural and social influences on health
outcomes. Historians and social scientists
alike have been quick to recognize the ef-
fects of environmental, cultural, and societal
resources on disease and longevity. Braudel’s
(1979, p. 39) sobering review of the expansion
and contraction in European and world popu-
lations illustrates how cycles of expansion and
contraction are related to changes in climate,
agricultural practices, and expanding trade.
Recent data show substantial associations be-
tween mortality, aging, and disease and risk in-
dicators with measures of social stratification,
e.g., county of residence, income, education,
religious involvement, etc. (House et al. 1992,
Kaplan 1992). The data highlight the need for
further investigation in three areas. First, in-
formation is needed as to how specific cultural
and socioeconomic factors affect factors at the
individual/psychological level. Studies of reli-
gion and health provide a more detailed view
about how religious participation, spiritual-
ity, and a sense of self reduce risky behaviors
and encourage healthy behaviors that affect
health outcomes (See Schaie et al. 2004). It
is not always clear, however, whether or how
a particular feature of the ecological context
and/or culture, e.g., religious attendance, so-
cial engagement, prayer, spirituality, or the
body as a temple of God (Hill et al. 2006),
affect the specific beliefs and behaviors that
affect health outcomes. The association of
cultural factors with healthy and risky behav-
iors could be mediated by common, cultur-
ally generated personal traits, social relation-
ships, lifestyles, representations of illness and
treatments, and/or approaches to planning for
prevention and management of illness and ill-
ness risks. Second, when social and cultural
analyses identify the specific behavioral fac-
tors correlated with disease, there are often
ambiguities as to how these behaviors “get
under the skin,” that is, how they influence
the physiological pathways leading to disease
and mortality (Taylor et al. 1997). Thus, al-
though associations between disease risk and
factors such as ecology, socioeconomic sta-
tus, and religious involvement identify impor-
tant areas for research, the data often fail to
indicate whether one or some combination
of environmental or social factors might be
responsible for the increase in disease. The
importance of identifying mediators between
superordinate factors such as socioeconomic
status and disease indicators can be seen by
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ANRV331-PS59-18 ARI 5 November 2007 10:57
the changing relationship between a superor-
dinate factor, in this case gender, and lung can-
cer. Lung cancer rates declined among physi-
cian cigarette smokers approximately 20 years
after Doll & Hill’s (1950) report relating lung
cancer to smoking. A similar decline occurred
for men in the United States after the 1964
Surgeon General’s report (U.S. Dept. Health
Human Serv. 1964). Lung cancer rates and
prevalence of smoking gradually increased,
however, among women during this same pe-
riod, when marketing campaigns focused on
women and the “light cigarette” (Kozlowski
et al. 1998). Identifying mediators for these
changes, particularly for the failure to observe
a decline in smoking among women, is not a
simple issue. Depression was thought to be
responsible for greater difficulties in smok-
ing cessation among women than among men,
but meta-analyses cast doubt on this hypoth-
esis as at least one type of depression, major
depressive disorder, neither moderates short-
or long-term cessation nor affects gender dif-
ferences in ease of quitting (Hitsman et al.
2003). Variation across studies in identifying
mediators may reflect inadequacies in sam-
ple size and the conceptualization and time
of assessment of mediating variables. Diary
data are beginning to describe the details of
social interactions responsible for behavioral
and affective factors that may lead to adverse
health outcomes (Rook 2003). The task re-
mains, however, to identify the factors that
mediated the relationship of social marketing
to the social context and role definitions that
are involved in the gender differences in ini-
tiation and cessation of smoking. As many of
the physiological pathways relating smoking
to lung cancer have been described, the data
succeed in identifying specific factors bridging
the social environment and individual behav-
ior to “get under the skin.”
Cognitive-behavioral anthropologists
(see, e.g., Garro 2000) have described some
of the processes involved in the link of culture
to health behaviors by assessing whether
beliefs about specific illnesses are shared
by multiple individuals within a specific
ethnic community. Garro (2000) identified
a culturally shared schema or prototype
for hypertension and two prototypes for
diabetes—one Western in nature, the other
specific to ethnic beliefs and practices. Each
of the diabetes prototypes identified specific
causes and routes for treatment that made
sense to individuals and guided their man-
agement of diabetes. Narratives of personal
history with diabetes meld personal experi-
ence with cultural prototypes and reflect the
storyteller’s degree of belonging to ethnic or
Western cultures. Cultural beliefs and their
associated use of Western, traditional, and
alternative care have been examined in men-
tal health (Cabassa et al. 2007, Karasz et al.
2003), cancer genetic counseling (Eichmeyer
et al. 2005), and other conditions (Buchwald
et al. 2000). This research was stimulated in
part by Pachter’s (1994) paper, which alerted
medical practitioners to the effects of ethnic
disparities in representations of diseases
among patients and practitioners that lead
to conflict between doctors and patients
and ineffective use of medical treatments by
patients.
Comments on social factors. The empha-
sis on the cognitive and affective components
of beliefs and the individual acculturation to
Western practices is directly relevant to the
cognitive processes examined in the construc-
tion of illness and treatment representations
discussed in the section above on problem
solving processes in health and illness, The
Process of Self-Management of Chronic Ill-
ness. It is important, however, not to over-
look the role played by institutions in the for-
mation of patient representations of illness
and treatment: Culturally established institu-
tions train practitioners in the management
of illness, determine the mixture of folk and
Western biomedical models involved in the
training of practitioners, establish the appear-
ance of the health care system, and establish
how care is delivered (Chrisman & Kleinman
1983). Three points related to social factors
are worthy of mention for the present review.
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First, practitioners have been sensitized to the
role of acculturation as a factor in rates of life-
threatening chronic illnesses—the causal fac-
tors of illnesses such as prostate cancer and
obesity ranging from diet and stress in new
environments to issues in migration ( Jasso
et al. 2004). Second, an extensive literature
has emerged on the role of linguistic com-
petency (e.g., Ngo-Metzger et al. 2003) and
ethnic match of patient and practitioner (e.g.,
Tarn et al. 2005) in communication and trust
in primary care settings. Third, practition-
ers’ questions and procedures in the medical
examination reinforce the heuristics patients
use in self-appraisal. Asking, “Where does it
hurt,” “How long has it been going on,” and
“How does it feel” reinforces heuristics of lo-
cation, duration, and patternfor self-diagnosis
and management. For example, by examining
the lungs, legs, and feet (location heuristic) of
patients with congestive heart failure, doctors
reinforce to the patients that their illness is not
related to the heart but instead to respiratory
function and circulation in the legs and feet.
The detailed analysis of the processes involved
in the contacts between patients and practi-
tioners should be helpful for the development
of interventions that are both effective and ef-
ficient for enhancing patients’ understanding
and management of chronic conditions.
COGNITIVE-BEHAVIORAL
INTERVENTIONS TO IMPROVE
SELF-MANAGEMENT
Our review of processes from problem solv-
ing through self and social contexts was
designed to raise questions and suggest direc-
tions for innovative approaches for interven-
tions that will meet criteria for effectiveness
and efficiency—i.e., for the development of
interventions that are as effective as those in
the diabetes prevention trials reviewed above
but simpler and less demanding of time and
skill by practitioners and patients. Current
findings provide both support and doubt as to
the feasibility of reaching this dual goal of ef-
ficiency and effectiveness. For example, meta-
analyses show that forming intentions and/or
plans for action (Leventhal 1970) are effective
for crossing the gap between intention to ac-
tion for simple, one-time behaviors, though
generally are ineffective for complex, time-
demanding behaviors that prevent and con-
trol chronic illnesses (exercise, dietary change;
Webb & Sheeran 2006). Moderate levels of
success have also been reported for behavioral
interventions for the control of chronic illness
that are implemented from a social-learning
framework (a process approach that is iden-
tical in many respects to the problem-solving
approach described in the present review) for
the control of some chronic conditions. For
example, hemoglobin A1c and blood sugar
levels for diabetes and blood pressure for hy-
pertension have been successfully controlled
through such interventions but symptoms of
osteoarthritis or rheumatoid arthritis have not
(Chodosh et al. 2005, Lorig et al. 2005). The
success of diabetes and hypertension interven-
tions is also balanced by mixed outcomes for
congestive heart failure—negative outcomes
have been obtained, including failure to pre-
vent recurrent episodes and hospitalization in
some sites (DeBusk et al. 2004), but positive
outcomes have been obtained in other sites
(Sisk et al. 2006).
The successes of social learning interven-
tions indicate that they have captured essen-
tial elements needed for improvement of hard
outcomes of chronic illnesses (Lorig et al.
1999). Although the interventions are less
complex and time demanding than the dia-
betes trials, their success rates are also less
impressive, due perhaps to the generality of
the interventions; they are not focused on
specific aspects of particular chronic condi-
tions (Wagner 2004). A central theme un-
derlying our review is that increasing the
specificity of behavioral management for par-
ticular diseases requires the addition of con-
cepts to self-regulation theory generated from
observations in the clinic and community,
i.e., bidirectional translation. This may en-
tail changes as simple as identifying the in-
valid subjective cues that patients use to guide
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ANRV331-PS59-18 ARI 5 November 2007 10:57
self-management (medication use) and devel-
oping behavioral procedures that teach them
to ignore subjective targets and use objective
indicators (blood pressure and/or blood sugar
readings) to guide self-management (Dunbar
2007). Other simple procedures may involve
reframing how a behavioral intervention is
implemented to insure, for example, that pa-
tients see their depressive symptoms as part
of their chronic physical illness and not as
a separate and unmanageable mental illness.
In short, current social learning interventions
may not have adequately considered how pa-
tients and their medical practitioners repre-
sent illnesses and how the treatment experi-
ence fits with the patients’ representations of
their chronic conditions. Once such issues are
considered, the effectiveness of the interven-
tions may improve substantially.
Process Theories and Design
of Clinical Trials
Investigators have recognized the need to in-
crease the effectiveness and efficiency of be-
havioral interventions and are proposing new
approaches to the analysis and design of clin-
ical trials. For example, Kraemer et al. (2002)
have discussed the need for assessments to de-
fine subgroups of participants (moderators)
prior to the implementation of behavioral in-
terventions and to identify and measure medi-
ators, i.e., factors recorded post intervention
that affect treatment adherence. They indi-
cate the need for such analyses in completed
multicenter trials and the need for a theo-
retically based approach to implementation
of such measures in ongoing and proposed
large-scale trials (Kraemer et al. 2002). These
recommendations assume that interventions
targeting specific subgroups are potentially
more effective and more efficient than inter-
ventions using common methods for all par-
ticipants. Cervone’s (2004) analysis suggests
the need for extreme caution, however, in ex-
pecting measures of traits or Diagnostic and
Statistical Manual of Mental Disorders (DSM)
categories to isolate the within-person fac-
tors that are responsible for the initiation and
maintenance of healthy and risky behaviors
in specific domains. Assessing factors such as
health worry that interact with specific situ-
ational triggers (Bem & Funder 1978) would
move individual-difference assessment closer
to the intraperson or process level by cap-
turing how participants experience and un-
derstand health threats and preventive and
treatment behaviors. Most clinical trials, how-
ever, have selected traits and/or DSM cate-
gories as moderators and therefore have not
assessed patients’ perceptions of their chronic
health problems, the psychological accom-
paniments of these problems, or the proce-
dures they have used or prefer to use for their
management. The deficits associated with us-
ing interindividual differences as moderators
are seen in clinical trials testing whether re-
ducing depressive symptoms would increase
treatment adherence in comorbid conditions.
The expectation that addressing depression
would improve patient care of comorbid con-
ditions seems reasonable because medication
adherence has been observed to be poorer in
those who are depressed [e.g., aspirin was not
taken daily, as prescribed, by patients hospi-
talized with acute coronary syndrome who
scored higher on the Beck Depression In-
ventory (Gehi et al. 2005)]. The expectation
is also reasonable given that decline in de-
pression was associated prospectively with in-
creased adherence (Rieckmann et al. 2006).
Interventions to reduce depression have been
unsuccessful, however, in improving adher-
ence (Haynes et al. 2005). It is unclear pre-
cisely which aspects of patients’ physical ill-
ness or social and personal contexts elicit and
sustain these depressive states or which as-
pects of patients’ affective reactions are re-
sponsible for nonadherence. Inconsistent and
negative findings of depression interventions
may be the result of using measures of in-
terindividual difference rather than intraindi-
vidual, self-management processes for match-
ing patients to treatments (Sobell & Sobell
2000). Identification of intraindividual mod-
erators at the level of process rather than trait
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calls for sophisticated, content-specific theory
and instruments (Cervone et al. 2006, Evans
2006) with sufficient validity to identify and
assess these factors at the outset of a clinical
trial.
Two alternatives for the development of ef-
fective and efficient behavioral interventions
that are now being tested are stepwise treat-
ment and self-assignment to treatment. In
stepwise treatments, all patients are assigned
to the least costly (with regard to time, ef-
fort, and negative side effects), highly effective
first-step treatment; the second-step treat-
ment is reserved for patients for whom the
first step of treatment fails. Second-step treat-
ments are often more tailored to the individ-
ual’s behavioral or biological system and are
often more intensive in terms of time and ef-
fort than are first-step treatments. Stepwise
approaches to behavioral interventions may
have problems less frequently encountered in
medication trials. For example, patients in a
medical trial may be more likely to attribute
failure of a first-step treatment to deficiencies
in the medication, whereas patients in behav-
ioral interventions may be likely to attribute
failure of a first-step treatment to deficien-
cies in themselves, a self-attribution that can
increase feelings of hopelessness and reduce
self-efficacy and motivation for the second-
step treatment (Wilson et al. 2000). Improve-
ments in stepwise behavioral treatments will
require conditions that prime patients to at-
tribute initial failure to treatment rather than
to themselves; this is similar to the goals of
treatments for addictions, in which patients
demonstrate the “abstinence violation effect”
by blaming themselves for losing control over
the negative, addictive behavior (Curry et al.
1987).
A direct approach to patient perceptions
of illness and treatment is involved in clin-
ical trials in which patients select their pre-
ferred treatments; discussion of the conduct
and analysis of these trials is under way (see
TenHave et al. 2003, Thornett 2001). Assign-
ment to pharmacological- or psychological-
behavioral treatments that is inconsistent with
patients’ preferences has been shown to have
negative effects on the treatment alliance.
For example, the perceived treatment al-
liance improves over time for patients as-
signed to their preferred psychological treat-
ment but declines if these patients are assigned
to a nonpreferred pharmacological treatment
(Iacoviello et al. 2007). Consistency with pref-
erences does not seem to affect the alliance for
patients who prefer a pharmacological treat-
ment. Because positive alliances are associ-
ated with treatment benefits (Martin et al.
2000), treating patients based on their pref-
erences may prove to be important for behav-
ioral interventions for chronic illnesses. It is
unknown whether the benefits of consistency
in assignment are mediated by the patient’s
perception of congruity between the repre-
sentations of the illness and the treatment
or from improved communication allowing
practitioners and patients to develop shared
goals respecting benefits in both subjective ex-
perience and objective function. In addition
to the above approaches to clinical trial de-
sign, Dunn & Bentall (2007) have proposed
the use of the instrumental variable method
to identify process variables in treatment in-
terventions. These methods are able to assess
not only whether an intervention is effective
but also are able to examine how it achieves
effectiveness. Thus, the method will allow
researchers to examine causal processes in-
volved in effective and efficient interventions.
PAST, PRESENT, FUTURE:
CONCLUDING COMMENTS
Our view of the status of behavioral research
for chronic illness can be summarized as
follows. First, changes in behavior can im-
prove health outcomes. The reductions in
lung cancer (Ebbert et al. 2003) and breast
cancer and the intervention trials for individ-
uals at high risk for diabetes are examples of
the effectiveness of behavioral change. Sec-
ond, to this point in time, interventions fo-
cused on changing the behavior of individ-
ual patients that have proven effective for
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ANRV331-PS59-18 ARI 5 November 2007 10:57
long-term behavioral change are complex and
time consuming; they meet the effectiveness
criteria for evidence-based practice but are
not cost effective or usable in most practice
settings. Third, the development of theoret-
ical concepts supported by substantial data
show that patients represent specific chronic
illnesses and treatments based upon their ex-
perience and perception of somatic changes
in themselves and observations and expo-
sure to information about illness in others.
These exposures affect the behavioral strate-
gies they perceive to be effective and within
their competence to perform for the preven-
tion and control of chronic illness. Fourth,
the translation of what has been learned
about how patients self-regulate health into
effective and usable interventions is at be-
ginning stages; interventions work for some
diseases, though it is unclear which compo-
nents are necessary and/or sufficient for suc-
cess. Finally, investigators are considering ap-
proaches to clinical trial design that may make
behavioral interventions more usable, i.e., ef-
ficient and accessible to the clinical environ-
ment, and these innovative approaches ap-
pear to address models of the processes un-
derlying self-management. The integration of
self-regulatory models with new approaches
to clinical trials is, however, a nontrivial prob-
lem because the models suggest that interven-
tions must focus on practitioners and not just
on patients. How patients’ and practitioners’
models affect communication with one an-
other, with family members, and in response
to messages from the surrounding culture will
determine whether interventions for broad
lifestyle changes or for use of specific medi-
cations are successful in meeting expectations
for changes in objective as well as subjective
criteria of benefit. Behavioral interventions of
the future may parallel the features of individ-
ualized medicine; the former involves treat-
ments matched to specific cognitive-affective
patterns of the individual patient, and the lat-
ter involves treatments matched to the spe-
cific expression of genes underlying the pa-
tient’s disease. Treatment effectiveness would
be evaluated by the accumulation of case-
by-case outcomes and, hopefully, the poste-
rior probabilities of success will exceed the
prior.
ACKNOWLEDGMENTS
This review was written with support from a National Institute of Aging grant, R24AG023958,
the Center for the Study of Health Beliefs and Behaviors. The authors thank Tamara Musumeci
for her help with the references.
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Annual Review of
Psychology
Volume 59, 2008
Contents
Prefatory
The Evolution of a Cognitive Psychologist: A Journey from Simple
Behaviors to Complex Mental Acts
Gordon H. Bower pppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppp1
Pharmacology and Behavior
Addiction and the Brain Antireward System
George F. Koob and Michel Le Moal pppppppppppppppppppppppppppppppppppppppppppppppppppppp29
Consummatory Behavior
The Brain, Appetite, and Obesity
Hans-Rudolf Berthoud and Christopher Morrison ppppppppppppppppppppppppppppppppppppppp 55
Sex
Neuroendocrine Regulation of Feminine Sexual Behavior: Lessons
from Rodent Models and Thoughts About Humans
Jeffrey D. Blaustein ppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppp93
Audition and Its Biological Bases
The Biological Basis of Audition
Gregg H. Recanzone and Mitchell L. Sutter pppppppppppppppppppppppppppppppppppppppppppp119
Color Perception
Color in Complex Scenes
Steven K. Shevell and Frederick A.A. Kingdom pppppppppppppppppppppppppppppppppppppppp143
Scene Perception, Event Perception, or Object Recognition
Visual Perception and the Statistical Properties of Natural Scenes
Wilson S. Geisler ppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppp167
v
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AR331-FM ARI 15 November 2007 15:19
Cognitive Processes
The Mind and Brain of Short-Term Memory
John Jonides, Richard L. Lewis, Derek Evan Nee, Cindy A. Lustig,
Marc G. Berman, and Katherine Sledge Moore pppppppppppppppppppppppppppppppppppppp193
Memory
Relativity of Remembering: Why the Laws of Memory Vanished
Henry L. Roediger, III pppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppp
225
Reasoning and Problem Solving
Dual-Processing Accounts of Reasoning, Judgment,
and Social Cognition
Jonathan St. B.T. Evans ppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppp255
Comparative Psychology, Ethology, and Evolution
Putting the Altruism Back into Altruism: The Evolution of Empathy
Frans B.M. de Waal pppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppp279
Anxiety Disorders
Social Bonds and Posttraumatic Stress Disorder
Anthony Charuvastra and Maryl`ene Cloitre ppppppppppppppppppppppppppppppppppppppppppp301
Inference, Person Perception, Attribution
Spontaneous Inferences, Implicit Impressions, and Implicit Theories
James S. Uleman, S. Adil Saribay, and Celia M. Gonzalez ppppppppppppppppppppppppppp329
Social Development, Social Personality, Social Motivation, Social Emotion
Motives of the Human Animal: Comprehending, Managing, and
Sharing Inner States
E. Tory Higgins and Thane S. Pittman ppppppppppppppppppppppppppppppppppppppppppppppppp361
Cognition in Organizations
Cognition in Organizations
Gerard P. Hodgkinson and Mark P. Healey ppppppppppppppppppppppppppppppppppppppppppppp387
Selection and Placement
Personnel Selection
Paul R. Sackett and Filip Lievens ppppppppppppppppppppppppppppppppppppppppppppppppppppppp419
vi Contents
Annu. Rev. Psychol. 2008.59:477-505. Downloaded from arjournals.annualreviews.org
by Rutgers University Libraries on 08/04/09. For personal use only.
AR331-FM ARI 15 November 2007 15:19
Education of Special Populations
The Education of Dyslexic Children from Childhood to Young Adulthood
Sally E. Shaywitz, Robin Morris, and Bennett A. Shaywitz ppppppppppppppppppppppppppp451
Health Promotion and Disease Prevention
Health Psychology: The Search for Pathways Between Behavior
and Health
Howard Leventhal, John Weinman, Elaine A. Leventhal, and L. Alison Phillips pppp477
Emotion
Human Abilities: Emotional Intelligence
John D. Mayer, Richard D. Roberts, and Sigal G. Barsade pppppppppppppppppppppppppppp507
Data Analysis
Sample Size Planning for Statistical Power and Accuracy
in Parameter Estimation
Scott E. Maxwell, Ken Kelley, and Joseph R. Rausch pppppppppppppppppppppppppppppppppp537
Timely Topics
A Comprehensive Review of the Placebo Effect: Recent Advances
and Current Thought
Donald D. Price, Damien G. Finniss, and Fabrizio Benedetti pppppppppppppppppppppppp565
Children’s Social Competence in Cultural Context
Xinyin Chen and Doran C. French ppppppppppppppppppppppppppppppppppppppppppppppppppppp591
Grounded Cognition
Lawrence W. Barsalou ppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppp617
Neuroeconomics
George Loewenstein, Scott Rick, and Jonathan D. Cohen ppppppppppppppppppppppppppppp647
Indexes
Cumulative Index of Contributing Authors, Volumes 49–59 pppppppppppppppppppppppp673
Cumulative Index of Chapter Titles, Volumes 49–59 ppppppppppppppppppppppppppppppppp678
Errata
An online log of corrections to Annual Review of Psychology articles may be found at
http://psych.annualreviews.org/errata.shtml
Contents vii
Annu. Rev. Psychol. 2008.59:477-505. Downloaded from arjournals.annualreviews.org
by Rutgers University Libraries on 08/04/09. For personal use only.
... Recently, steps have been made to progress the evidence base for developing behavior change interventions (Leventhal et al. 2008;Michie et al. 2011a). A taxonomy of behavior change techniques (BCTTv1), listing and describing 93 intervention components from 16 categories, has been developed to aggregate active ingredients that may be included in NPIs, providing a framework to categorize intervention content. ...
Article
Full-text available
Objectives The primary aim of this research was to use a taxonomy of behavior change techniques (BCTTv1) to identify, map, and describe the active components of intervention and comparator groups in studies evaluating the psychological well-being (PWB) of motor neuron disease (MND) carers. Secondary aims were to (a) identify absent active ingredients and (b) explore whether variability in the effectiveness of interventions targeting the PWB of MND carers could be better explained through improved characterization of the active content of these interventions. Methods Mixed-methods systematic review based on Joanna Briggs Institute methodology for quantitative, qualitative, and mixed-methods reviews and Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Content-coding of interventions targeting the PWB of MND carers using BCTTv1 was conducted. Results Sixteen manuscripts describing 14 studies were included. Forty-one of the possible 93 behavior change techniques (BCTs, 44%) were identified as active ingredients, while 52 BCTs (56%) were absent. BCTs were identified in all 14 intervention groups and 4 control groups. Four of the 16 overall BCTTv1 categories were absent. Eleven of the 14 studies demonstrated PWB benefits from their interventions. Significance of results Identified and absent BCTs and BCTTv1 categories were mapped for all study groups, enabling a transparent characterization of active intervention content associated with positive PWB outcomes. Directions to improve interventions in this nascent field of research included the investigation of relevant untested BCTs in this population and the management of reporting and methodological quality issues.
... The study showed that, overall, direct help-seeking is seen as more appropriate; it demonstrated that individual differences within cultures do not always fit our expectations on the generalized group communication styles. Formal support providers should closely assess and understand individual patients' help-seeking communication style, improve the patients' awareness of their typical help-seeking, and when desired, support them in adapting their help-seeking to strengthen their self-management capacity (Leventhal et al., 2008). At the end, it seems that we cannot generalize and say 'because Suriname is a collectivistic and high context culture, Surinamese prefer indirect help-seeking' or 'because the Netherlands has an individualistic and low context culture, Dutch prefer direct help-seeking'. ...
Article
Full-text available
Objective People with different cultural backgrounds can evaluate the appropriateness of direct and indirect support seeking differently. In this study we explored how direct and indirect communication rules for verbal support seeking by patients with diabetes were perceived among Dutch and Surinamese female participants, and whether the appropriateness differed for the ingroup, outgroup and intercultural support seeker-support provider interactions. Methods The study applied a 2 (direct versus indirect support seeking) X 2 (Surinamese patient versus Dutch patient) X 2 (Surinamese support provider versus Dutch support provider)-design. Dutch and Surinamese participants (N = 686) were randomly assigned to one of the eight conditions in which they were provided with a depiction of the patient, the direct or indirect request for help, and the help provider. The main outcome was the rated appropriateness of the help-seeking request in the specific context. Results The results revealed a significant main effect of communication style: both, Surinamese and Dutch participants evaluated the direct help-seeking as more appropriate compared to indirect help-seeking, independent of patient or provider culture. This effect was particularly strong in participants who scored high on the individual difference in independent self, as shown by a significant interaction. Discussion Literature usually identifies that Surinamese and Dutch populations have different cultural backgrounds and values that express themselves in different attitudes, in general more collectivistic and more individualistic, respectively. However, with regard to help seeking preferences the study results did not verify this expectation. These findings underscore the importance of the support providers’ role in assessing and understanding the individuals’ communication style with regard to help-seeking, rather than assuming communication preferences on the basis of cultural background.
... Active coping strategies include initiating direct action, increasing one's efforts, and trying to execute a coping attempt in a stepwise fashion and independently contributed to 16% of the variance in CPAP adherence (Stepnowsky, Bardwell, et al., 2002). The Leventhal Self-Regulation Model (Leventhal et al., 1997) is similar to the social cognitive models in sharing the assumption that individuals develop beliefs that influence the interpretation of information and one's experience which guides behavior (Leventhal et al., 2008), though illness representations have not been consistently studied in OSA patients. A previous study found that illness representations and family coping predicted PAP adherence, over a six-month period (Sampaio, 2013). ...
... As noted by Haenssgen et al. (2018), relying on awareness raising in addressing AMR has significant limitations pointing to the necessity for participatory educational efforts centred around knowledge co-creation as represented by the present article. Exploring, together with student youth, health literacy capabilities can potentially engage with what Haenssgen et al. (2018) termed the weak and ambiguous link between awareness, attitudes and behaviour that affect and inform youth's relationship to antimicrobials and resistance (Bloom et al., 2015;Leventhal, 2008;Ribera, 2011;Ocan et al., 2015). The youth emphasised that their health goal of becoming free from disease would lessen their need to visit health clinics and the potential need for and use of antimicrobials. ...
Article
Food security is an enduring sustainability challenge in the Southern African region. Food availability, accessibility and affordability have profound health impacts and affect the quality of life of a substantial proportion of the world’s population. This article aims to explore, together with students in educational settings, questions about the relationships between food and health, including the contextual conditions of food availability, accessibility and affordability. This provides opportunities to re-embody food by contextualising it as part of natural and built environments, thus engaging with how challenges of human health intersect with animal and environmental health. The research centres on co-creating knowledge with youth based on their valued beings and doings about health and considers how their health goals relate to food and the sustainability challenges of antimicrobial resistance (AMR). By considering how youths’ understandings, evaluations and decisions regarding health, including setting health goals, intersect with the determinants of food, we come to consider their health literacy capabilities to achieve nonpredetermined health goals that align with their valued beings and doings. As such, the implementation gap between knowing and doing is bridged through practices of health and well-being contextually grounded in the lives and experiences of the student youth. Keywords: health literacy, health education, capabilities approach, antimicrobial resistance, knowledge co-creation
... For example, social support predicts changes in health-related behaviours such as exercise, diet, smoking, contraceptive use, and safer sex practices [6][7][8][9][10]. It is also linked to help-seeking behaviour at the early stages of illness onset [11,12] and adaptation, adjustment, and quality of life as an illness develops [13][14][15]. Furthermore, social support and the absence of it in the form of social isolation and loneliness has also been linked with positive outcomes for the management of stress, pain, and chronic conditions such as diabetes, coronary heart disease (CHD), asthma, and cancer [16][17][18]. ...
Article
Full-text available
Purpose of Review Whilst research indicates the positive impact of social support across a number of health domains, including weight management, not all social support is beneficial. Recent Findings This paper reviews the evidence for both positive and negative social support in the context of behavioural interventions and surgery for obesity. It then presents a new model of negative social support focusing on sabotage (‘active and intentional undermining of another person’s weight goals’), feeding behaviour (‘explicit over feeding of someone when they are not hungry or wishing not to eat’), and collusion (‘passive and benign negative social support to avoid conflict’) which can be conceptualised within the context of relationships as systems and the mechanisms of homeostasis. Summary There is increasing evidence for the negative impact of social support. This new model could form the basis of further research and the development of interventions for family, friends, and partners to maximise weight loss outcomes.
... Patients believe that anesthesia and recovery are relatively simple and, therefore, restriction of activities after aesthetic surgery is not necessary [9,10]. Divergence between actual experience and expectations impacts treatment adherence and the patients' satisfaction [11]. Only one study examining patient satisfaction with postoperative recovery was identified in a systematic review of patient-reported outcomes following cosmetic surgery [12]. ...
Article
Full-text available
Background: Patients' expectations of an anticipated timeline of recovery and fear of anesthesia in aesthetic breast surgery have not been studied. Objective: This study aims to assess patient anxiety, expectations, and satisfaction after Enhanced Recovery after Surgery (ERAS) pathways for aesthetic breast surgery and the progress of postoperative recovery. Materials and methods: All consecutive patients who underwent aesthetic breast surgery between April 2021 and August 2022 were included in this single-center prospective cohort study. The ERAS protocol consists of more than 20 individual measures in the pre-, intra-, and postoperative period. Epidemiological data, expectations, and recovery were systematically assessed with standardized self-assessment questionnaires, including the International Pain Outcome Questionnaire (IPO), the BREAST-Q or BODY-Q, and data collection forms. Results: In total, 48 patients with a median of 30 years of age were included. Patients returned to most daily activities within 5 days. Eighty-eight percent of patients were able to accomplish daily activities sooner than expected. The time of return to normal daily activities was similar across all procedure types. There was no statistically significant difference regarding postoperative satisfaction between patients who recovered slower (12%) and patients who recovered as fast or faster (88%) than anticipated (p=0.180). Patients reporting fear of anesthesia in the form of conscious sedation significantly diminished from 17 to 4% postoperatively (p<0.001). Conclusion: Enhanced Recovery after Surgery (ERAS) pathways for aesthetic breast surgery are associated with rapid recovery and high patient satisfaction. This survey study provides valuable insight into patients' concerns and perspectives that may be implemented in patient education and consultations to improve patient satisfaction following aesthetic treatments. Level of evidence iv: This journal requires that authors assign a level of evidence to each article. For a full description of these Evidence-Based Medicine ratings, please refer to the Table of Contents or the online Instructions to Authors www.springer.com/00266 .
... As noted by Haenssgen et al. (2018), relying on awareness raising in addressing AMR has significant limitations pointing to the necessity for participatory educational efforts centred around knowledge co-creation as represented by the present article. Exploring, together with student youth, health literacy capabilities can potentially engage with what Haenssgen et al. (2018) termed the weak and ambiguous link between awareness, attitudes and behaviour that affect and inform youth's relationship to antimicrobials and resistance (Bloom et al., 2015;Leventhal, 2008;Ribera, 2011;Ocan et al., 2015). The youth emphasised that their health goal of becoming free from disease would lessen their need to visit health clinics and the potential need for and use of antimicrobials. ...
Article
Full-text available
Food security is an enduring sustainability challenge in the Southern African region. Food availability, accessibility and affordability have profound health impacts and affect the quality of life of a substantial proportion of the world’s population. This article aims to explore, together with students in educational settings, questions about the relationships between food and health, including the contextual conditions of food availability, accessibility and affordability. This provides opportunities to re-embody food by contextualising it as part of natural and built environments, thus engaging with how challenges of human health intersect with animal and environmental health. The research centres on co-creating knowledge with youth based on their valued beings and doings about health and considers how their health goals relate to food and the sustainability challenges of antimicrobial resistance (AMR). By considering how youths’ understandings, evaluations and decisions regarding health, including setting health goals, intersect with the determinants of food, we come to consider their health literacy capabilities to achieve nonpredetermined health goals that align with their valued beings and doings. As such, the implementation gap between knowing and doing is bridged through practices of health and well-being contextually grounded in the lives and experiences of the student youth. Keywords: health literacy, health education, capabilities approach, antimicrobial resistance, knowledge co-creation
Article
Fibromyalgia is a complex disease of unclear etiology that is complicated by difficulties in diagnosis, treatment, and clinical heterogeneity. To clarify this etiology, healthcare-based data are leveraged to assess the influences on fibromyalgia in several domains. Prevalence is less than 1% of females in our population register data, and about 1/10th that in males. Fibromyalgia often presents with co-occurring conditions including back pain, rheumatoid arthritis, and anxiety. More comorbidities are identified with hospital-associated biobank data, falling into three broad categories of pain-related, autoimmune, and psychiatric disorders. Selecting representative phenotypes with published genome-wide association results for polygenic scoring, we confirm genetic predispositions to psychiatric, pain sensitivity, and autoimmune conditions show associations with fibromyalgia, although these may differ by ancestry group. We conduct a genome-wide association analysis of fibromyalgia in biobank samples, which did not result in any genome-wide significant loci; further studies with increased sample size are necessary to identify specific genetic effects on fibromyalgia. Overall, fibromyalgia appears to have strong clinical and likely genetic links to several disease categories, and could usefully be understood as a composite manifestation of these etiological sources.
Article
Psikoloji, tıp ve fizyoloji araştırmalarındaki gelişmeler, sağlık ve hastalık hakkında yeni bir düşünme biçimine yol açmıştır. Bu kavramsal ağ, sağlığı ve hastalığı bilim adamı ve uygulayıcının bakış açısındaki biyolojik yönlerin ana odak noktası olan biyomedikal yaklaşımdan yeni bir alana taşımıştır. Yeni perspektifte biyolojik özelliklerin yani genetik yatkınlık ile davranışsal faktörler olan yaşam tarzı, stres, sağlık inançları ve sosyal koşullar örneğin kültürel etkiler, aile gibi faktörlerin bir kombinasyonunun ürünü olarak gören biyopsikososyal modeli oluşturmuştur. Bu paradigma değişiminde psikolojinin bir sağlık uzmanlığı alanı olan sağlık psikolojisi (tıbbi psikoloji olarak da anılır) tıbbi uygulamalarda ki modern bir araştırma ve uygulama alanı olarak gelişim göstermiştir. Modern tıbbi uygulamalarda beden, zihin ve davranış ilişkisinin anlaşılması, tıbbi sistemi ve uygulamayı önemli ölçüde değiştirmiştir. Biyomedikal paradigmadan biyopsikososyal tıbba doğru olan bu değişim ayrıca mevcut bütüncül sağlık hizmeti modelini de karakterize etmektedir. İnsanların ruh sağlığı sağlayıcıları da dahil olmak üzere disiplinler arası bir ekipten tedavi ihtiyaçları giderek artmaktadır. Bu değişim süreci ise klinik uygulamalarda sağlık psikolojisinin bütüncül bakış açısına uygulama alanı açmıştır. Davranış ve zihinsel süreçlerin bilimi olarak psikoloji bu tür yönler, örneğin yaşam boyu gelişim, öğrenme, motivasyonlar, deneyimler, duygular, biliş, sosyal davranış ve tutumlar, kişilik gibi faktörler hakkında eğitimi ve bilgiyi irdelemektedir. Bu biyolojik, davranışsal ve sosyal faktörlerin sağlığı ve hastalığı nasıl etkilediğini anlamaya çalışmak ise sağlık psikolojisinin pratikte özel çalışma alanını oluşturmaktadır. Bu çalışmada ise modern tıptaki sağlık ve hastalık hakkında ki paradigma değişimi ekseninde Türkiye’de sağlığın teşviki ve geliştirilmesinde sağlık psikolojisinin rolü tartışılmıştır.
Chapter
Naturalized bioethics represents a revolutionary change in how health care ethics is practised. It calls for bioethicists to give up their dependence on utilitarianism and other ideal moral theories and instead to move toward a self-reflexive, socially inquisitive, politically critical, and inclusive ethics. Wary of idealisations that bypass social realities, the naturalism in ethics that is developed in this volume is empirically nourished and acutely aware that ethical theory is the practice of particular people in particular times, places, cultures, and professional environments. These essays situate the bioethicist within the clinical or research context, take seriously the web of relationships in which all human beings are nested, and explore a number of the different kinds of power relations that inform health care encounters. Naturalized Bioethics aims to help bioethicists, doctors, nurses, allied health professionals, disability studies scholars, medical researchers, and other health professionals address the ethical issues surrounding health care.
Article
Full-text available
A stepped care approach to treatment decisions for alcohol problems consists of the application of decision rules derived from practice in other areas of health care. The treatment used should be (a) individualized, (b) consistent with the research literature and supported by clinical judgment, and (c) least restrictive but still likely to be successful. Used in this way, stepped care emphasizes serving the needs of clients efficiently but without sacrificing quality of care. Issues concerning stepped care are discussed, and the application of a stepped care approach to alcohol treatment services is described.
Article
Full-text available
The aim of the present study was to examine relations between behavior, intentions, attitudes, subjective norms, perceived behavioral control, self-efficacy, and past behavior across studies using the Theories of Reasoned Action (TRA) and Planned Behavior (TPB) in a physical activity context. Meta-ana-lytic techniques were used to correct the correlations between the TRA/TPB constructs for statistical artifacts across 72 studies, and path analyses were conducted to examine the pattern of relationships among the variables. Results demonstrated that the TRA and TPB both exhibited good fit with the corrected correlation matrices, but the TPB accounted for more variance in physical activity intentions and behavior. In addition, self-efficacy explained unique variance in intention, and the inclusion of past behavior in the model resulted in the attenuation of the intention-behavior, attitude-intention, self-efficacy-intention, and self-efficacy-behavior relationships. There was some evidence that the study relationships were moderated by attitude-intention strength and age, but there was a lack of homogeneity in the moderator groups. It was concluded that the major relationships of the TRA/TPB were supported in this quantitative integration of the physical activity literature, and the inclusion of self-efficacy and past behavior are important additions to the model.
Article
Many problems in randomized clinical trial design, execution, analysis, presentation and interpretation stem in part from an inadequate understanding of the roles of moderators and mediators of treatment outcome. As a result, 1) the results of clinical research are slow to have an impact on clinical decision making and thus to benefit patients; 2) it is difficult for clinicians or patients to apply randomized clinical trial results comparing two treatments (treatment versus control); 3) when such trials are conducted at various sites, the results often do not replicate; 4) when the results influence clinical decision making, the results clinicians obtain do not match what researchers report; and 5) the treatment effects comparing treatment and control conditions, particularly for psychiatric treatments, often seem trivial. In this review article, the author reviews and integrates the methodological literature concerning dealing with covariates in trials to emphasize their impact on clinical decision making. The goal of trials should ultimately be to establish who should get the treatment condition rather than the control condition (moderators) and to determine how to obtain the best outcomes with whatever is the preferred treatment (mediators). The author makes recommendations to clinicians as to which trials might best be ignored and which carefully considered, and urges clinical researchers to focus on studies best designed to reduce the burden of mental illness on patients.
Chapter
As health psychologists one of our primary goals is to understand the determinants of health-related behavior. Topics such as preventive health behavior, help seeking and the use of medical services, and compliance with medical recommendations occupy center stage in health psychology (Leventhal, 1983; Matarazzo, Weiss, Herd, Miller, & Weiss 1984; Stone, Cohen, & Adler, 1979). In each of these areas we seek to understand individuals’ responses to actual or perceived health threats. Further, we are concerned with developing interventions to promote desirable health-related behavior. In this chapter these issues are addressed through examination of cognitive representations of physical illness and the implications of these representations for specific health-related behaviors.
Article
Many decisions are based on beliefs concerning the likelihood of uncertain events such as the outcome of an election, the guilt of a defendant, or the future value of the dollar. Occasionally, beliefs concerning uncertain events are expressed in numerical form as odds or subjective probabilities. In general, the heuristics are quite useful, but sometimes they lead to severe and systematic errors. The subjective assessment of probability resembles the subjective assessment of physical quantities such as distance or size. These judgments are all based on data of limited validity, which are processed according to heuristic rules. However, the reliance on this rule leads to systematic errors in the estimation of distance. This chapter describes three heuristics that are employed in making judgments under uncertainty. The first is representativeness, which is usually employed when people are asked to judge the probability that an object or event belongs to a class or event. The second is the availability of instances or scenarios, which is often employed when people are asked to assess the frequency of a class or the plausibility of a particular development, and the third is adjustment from an anchor, which is usually employed in numerical prediction when a relevant value is available.
Article
BACKGROUND: Little is known about the effect of passing time on risk of resection among patients with complete small bowel obstruction. We sought to provide a benchmark of the relationship of time from symptom onset to surgical treatment on the need for resection in patients with complete small bowel obstruction. STUDY DESIGN: We performed an observational study of patients with surgically treated complete small bowel obstruction at an inner-city urban tertiary referral center and a municipal hospital. Patients were sampled randomly retrospectively (n = 60), and prospectively (n = 81), for a final sample of 141. Detailed clinical and time data were abstracted from medical records including out-of-hospital examinations. Risk of resection was calculated using actuarial life table methods. Linear regression was used to determine factors affecting time to treatment. RESULTS: All patients were treated surgically for obstruction; 45% underwent resection. Resected patients had longer (11 days versus 8 days; p = 0.01) and more complicated (31% versus 14% in ICU; p = 0.01) hospital stays. The risk of resection was 4% among patients with 24 hours of unresponsive symptoms; it increased to 10% to 14% through 96 hours, then dropped slightly but did not disappear. Patients treated first with a tube had longer times between first examination and operation, system-time (40.6 hours versus 10.2 hours; p = 0.0007), but this was not associated with an increased resection risk. System-times were shorter among patients seen first in the emergency department (median: 25.7 hours versus 59.7 hours; p = 0.0001). CONCLUSIONS: Physicians should be cautious in postponing surgery beyond 24 hours in patients with unresponsive symptoms from complete obstruction. The risk of resection rises dramatically, remains elevated through 96 hours of unresolved symptoms, then declines but does not disappear.