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The required competencies of physicians within palliative care from the perspectives of multi-professional expert groups: a qualitative study

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Background: Although statements on the competencies required from physicians working within palliative care exist, these requirements have not been described within different levels of palliative care provision by multi-professional workshops, comprising representatives from working life. Therefore, the aim of this study was to describe the competencies required from physicians working within palliative care from the perspectives of multi-professional groups of representatives from working life. Methods: A qualitative approach, using a workshop method, was conducted, wherein the participating professionals and representatives of patient organizations discussed the competencies that are required in palliative care, before reaching and documenting a consensus. The data (n = 222) was collected at workshops held in different parts of Finland and it was analyzed using a qualitative content analysis method. Results: The description of the competencies required of every physician working within palliative care at the general level included 13 main categories and 50 subcategories in total. 'Competence in advanced care planning and decision-making' was the main category which was obtained from the highest number of reduced expressions from the original data (f = 125). Competence in social interactions was another strong main category (f = 107). In specialist level data, six main categories with 22 subcategories in total were found. 'Competence in complex symptom management' was the main category which was obtained from the biggest number of reduced expressions (f = 46). A notable association between general level and specialist level data was related to networking, since one of the general level categories was 'Competence in consultations and networking' (f = 34) and one of the specialist level categories was 'Competence to offer consultative and educational support to other professionals' (f = 30). Moreover, part of the specialist level results were subcategories which belonged to the main categories produced from the general level data. Conclusions: The competencies described in this study emphasize decision-making, social interactions and networking. It is important to listen to the voices of the working-life representatives when planning curricula. Moreover, the views of the working-life representatives inform how the competencies gained during their education meet the challenges of the ordinary work.
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R E S E A R C H A R T I C L E Open Access
The required competencies of physicians
within palliative care from the perspectives
of multi-professional expert groups: a
qualitative study
Hanna-Leena Melender
1*
, Minna Hökkä
2
, Tiina Saarto
3,4
and Juho T. Lehto
5,6
Abstract
Background: Although statements on the competencies required from physicians working within palliative care
exist, these requirements have not been described within different levels of palliative care provision by multi-
professional workshops, comprising representatives from working life. Therefore, the aim of this study was to
describe the competencies required from physicians working within palliative care from the perspectives of multi-
professional groups of representatives from working life.
Methods: A qualitative approach, using a workshop method, was conducted, wherein the participating professionals
and representatives of patient organizations discussed the competencies that are required in palliative care, before
reaching and documenting a consensus. The data (n= 222) was collected at workshops held in different parts of
Finland and it was analyzed using a qualitative content analysis method.
Results: The description of the competencies required of every physician working within palliative care at the general
level included 13 main categories and 50 subcategories in total. Competence in advanced care planning and decision-
makingwas the main category which was obtained from the highest number of reduced expressions from the
original data (f= 125). Competence in social interactions was another strong main category (f = 107). In specialist level
data, six main categories with 22 subcategories in total were found. Competence in complex symptom management
was the main category which was obtained from the biggest number of reduced expressions (f = 46). A notable
association between general level and specialist level data was related to networking, since one of the general level
categories was Competence in consultations and networking(f = 34) and one of the specialist level categories was
Competence to offer consultative and educational support to other professionals(f = 30). Moreover, part of the
specialist level results were subcategories which belonged to the main categories produced from the general level
data.
(Continued on next page)
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* Correspondence: hanna-leena.melender@vamk.fi
1
Department of Social and Health Care, VAMK University of Applied Sciences,
Wolffintie 27-31, 65200 Vaasa, Finland
Full list of author information is available at the end of the article
Melender et al. BMC Palliative Care (2020) 19:65
https://doi.org/10.1186/s12904-020-00566-5
Content courtesy of Springer Nature, terms of use apply. Rights reserved.
(Continued from previous page)
Conclusions: The competencies described in this study emphasize decision-making, social interactions and
networking. It is important to listen to the voices of the working-life representatives when planning curricula.
Moreover, the views of the working-life representatives inform how the competencies gained during their
education meet the challenges of the ordinary work.
Keywords: Palliative medicine, Palliative care, Professional competence, Clinical competence, Curriculum,
Education, Qualitative research
Background
About 20 million people worldwide are annually in need
of palliative care and this demand is increasing in Eur-
ope due to the ageing population and the high preva-
lence of noncommunicable diseases [1]. The Assembly
from the Council of Europe calls on Member States to
strengthen palliative-care services and to ensure the ad-
equate training of palliative care for health-care profes-
sionals [2,3].
Palliative care services can be categorized into a mini-
mum of two or three levels. They are named as the pallia-
tive care approach, general palliative care and specialist
palliative care [4,5]; or primary, secondary and tertiary
palliative care [6]. To provide quality palliative care,
health-care professionals of all levels should have suffi-
cient competencies in palliative care [7,8].
The concept of competence in medicinemay be de-
fined as a holistic combination of the knowledge, skills,
values or attitudes required for the effective performance
of specified activities [9]. In the White Papers published
by the European Association for Palliative Care (EAPC),
important competencies for clinical practice in palliative
care are presented for all practitioners, with 10 core
interdisciplinary competencies [4,10]. The EAPC has
also presented recommendations for the development of
undergraduate curricula in palliative medicine at Euro-
pean medical schools, and many taskforces have con-
ducted surveys on the education in palliative medicine
for physicians in Europe [11]. In Ireland, the Palliative
Care Competence Framework was published in 2014 [5].
In a subsequent survey [12], mainly positive results were
found when assessing the knowledge, attitude and be-
havior of the key competencies of physicians. However,
there was also some variation in the scores.
In Finland, a national quality criterion complying with
the recommendations of the EAPC [7,8] defines that
within the specialized level of palliative care, the
personnel should have a special education of palliative
care and work as a multi-professional expert team, while
the undergraduate education for health care profes-
sionals should provide the ground level of competency
to work within the basic level of palliative care [13].
Health-care units providing a specialized level of pallia-
tive care include palliative care units in hospitals,
hospices and palliative home-care units (hospitals at
home). All other units, such as ordinaryhospital wards
or nursing homes, provide a general level of palliative
care [14]. In this study, the expression specialized level
competenciesrefers to competencies needed when pro-
viding palliative care in specialized level units as defined
here. The expression general level competencerefers to
competencies needed by all physicians when providing
basic palliative care, for example, at ordinaryhospital
wards or nursing homes.
Education in palliative care varies in Finland. Out of the
five faculties of medicine, only two have a curriculum and
chair in palliative medicine. No postgraduate education in
palliative care for physicians is available at the universities,
although special competence in palliative medicine,
awarded by the Finnish Medical Association, has been
available since 2007. To meet these educational chal-
lenges, the EduPal project (Developing Palliative Nursing
and Medical Education through Multidisciplinary Cooper-
ation and Working-life Collaboration), funded by the
Ministry of Education and Culture in Finland, aims to de-
velop national recommendations for both undergraduate
and specialist (postgraduate) education in palliative medi-
cine, among other areas. As a part of the project, the re-
quired competencies of professionals working within
palliative care at the general and specialist levels, described
above in a Finnish context, were explored in multi-
professional workshops.
Methods
The aim of this study was to describe the required compe-
tencies of physicians working within different levels of pal-
liative care, from the perspectives of multi-professional
groups of representatives from working life.
The study is a descriptive qualitative research design
with written material provided by multi-professional
groups working in workshops arranged for the purpose
of the study.
Data collection and sample
The data was collected in workshops attended by a pur-
posive sample of professionals working within the field
of palliative care, in order to present a diversity of health
care organizations, as well as representatives of patient
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organizations (Table 1). To find the best informants,
managers were contacted and asked to propose the best
representatives of their personnel to describe the re-
quired competencies of professionals in palliative care.
Based on the managersrecommendations, an invitation
letter was sent to the persons proposed. The letter in-
cluded information about the purpose of the study pur-
pose, the reasons for the study and the persons
responsible for it.
A descriptive qualitative approach was adopted. No
particular disciplinary or methodological roots are
claimed. The intention is to simply present a compre-
hensive summary of the phenomenon of interest [15].
The features of the research group members are pre-
sented in Table 2.
The 21 workshops were organized by the teachers of
the participating universities of applied sciences (UAS)
and they took place either at the UASs or at the work-
places of the workshop members. Some workshops cov-
ered more than one working group (WG), because in
some cases, a general level group and a specialist level
group were invited to the same workshop. All in all, data
was obtained from 36 WGs in 21 workshops. The
teachers of the UASs acted as moderators. Of the re-
search team members, one (H-L.M.) acted as a moder-
ator in one workshop. The participants were informed
that all the moderators had an interest in developing
palliative care through the development of the profes-
sionalseducation. The moderators did not establish any
relationship with the participants prior to commence-
ment of the study. In addition to the participants and
the moderators, no other persons were present in the
workshops.
The workshops started with a presentation about the
project and instructions for the workshop activities. The
WGs received a questionnaire which had been devel-
oped for the purposes of this project. This included 10
open-ended questions regarding the required competen-
cies of health care professionals and other aspects
concerning the development of palliative care. The ques-
tionnaire had been pre-tested among one WG. Based on
the pre-test, no changes had been made to the question-
naire and the pre-test data was included in the research
data. The workshop members worked through the ques-
tionnaire, discussing their views on the topics with the
other group members and documenting their answers,
mostly on paper and in some cases with a computer.
The moderators were available for the purpose of clarify-
ing any questions, but they did not participate in the dis-
cussions. However, they did observe the discussions and
made field notes. The duration of the workshops varied
between 2 and 4 h.
This paper reports on the findings of the data retrieved
from the following questions on the physicianscompe-
tencies in palliative care:
1. What are the required competencies of every
physician in palliative care at the general level?
2. What are the required competencies of a
specialized physician in palliative care at the
specialist level?
Data analysis
The original workshop data was transcribed verbatim
and placed into a matrix which was presented in a Word
document. In the analysis of the material, a qualitative
content analysis method [16] was used. The data analysis
was performed manually, i.e. using no software.
For the general level data, an inductive approach for
the analysis was used, meaning that the categories
emerged from the data and no theoretical framework
was used in the analysis [16]. In the analysis of the spe-
cialist level data, deductive and inductive approaches
fluctuated: the first part of this data was first analyzed
using a deductive approach, followed by an inductive
approach. The second part of the data was analyzed
inductively. (Table 3.)
Analysis of the general level data
The inductive content analysis of the general level data
was performed in three phases: reducing, clustering and
abstracting. Words, phrases, sentences or units of mean-
ing containing more than one sentence were used as
units of analysis. In the reduction phase, the coding of
the meaningful expressions was guided by the research
Table 1 Professionals who participated in workshops
Profession Number of
professionals
Physician on general level of palliative care 12
Physician on specialist level of palliative care 16
Registered nurse on general level of palliative
care
63
Registered nurse on specialist level of palliative
care
69
Licenced practical nurse on general level of
palliative care
25
Licenced practical nurse on specialist level of
palliative care
10
Expert of a third sector organization 7
Elderly care professional 1
Social worker 3
Physiotherapist 3
Nursing manager 9
Spiritual care professionals 4
Total 222
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question [16]. The material was read through and fol-
lowing questions were asked: What are the required
competencies of every physician in palliative care at the
general level?and What are the required competencies
of a specialized physician in palliative care at the special-
ist level?. The codes were such expressions which gave
answers to the questions. Coding was conducted manu-
ally in the matrix by coloring the codes. The codes were
also restored for the clustering phase by copying and
pasting them into a new cell of the matrix. An example
of the coding process is provided in Table 4.
In the clustering phase, the codes were grouped to-
gether based on the similarity of the content and then
finally, the clusters were abstracted. Abstracting meant
that the clusters were shaped into sub-categories and
main categories which were named based on their con-
tents [16] (Table 5). Only the manifest content was ana-
lyzed, which means that only what had been written
was analyzed and no interpretation about the latent in-
tentions of the participants, for example, was done [17].
The phases were not entirely separate [17], since already
during the reduction phase, clustering and abstracting
started to take shape. One researcher (H-L.M.) coded
and categorized the material. After that, two other mem-
bers of the research group (M.H. and J.L.) studied the
material and critically checked the analysis. The contents
of the categories were specified together [18]. The fre-
quencies (f) of the codes (reduced expressions) which
constituted each category were counted to show the
noteworthiness of the category in relation to the entirety.
The number of codes in total was 573 for the general
level data and 150 for the specialized level data; in both
cases the data was saturated. Saturation can be defined
as the point in coding where the researcher finds that no
new codes occur in the data. This can be seen as a point
where no new data would be needed [19]. In this study,
the entire data of the 36 WGs was collected before the
analysis started. During the analysis of the general level
data, saturation was noticed during the coding and sort-
ing of the codes of the WG 34 data when the same
codes started to appear in the data and no new codes
emerged to create any new categories in the subsequent
coding. For the specialized level data, a similar notifica-
tion of data saturation occurred during the coding and
sorting of the codes of the WG 33 data. However, a deci-
sion was made to analyze all the data and not close the
analysis at the saturation point, since we wanted to use
all the valuable material that the participating WG mem-
bers had provided in order to ensure that everyones
voices would be heard.
Analysis of the first part of the specialist level data
The specialist level data was reduced with the same
principles as the general level data described above. In a
deductive approach, a structured or unconstrained
matrix of analysis is operationalized based on previous
knowledge such as a model or theory [16]. The choice to
use this approach when analyzing the first part of the
Table 2 Features of the research team members
Author
(gender)
Credentials Occupation at the time of the
study
Education on qualitative research methods Experience on qualitative research
methods
H-L.M.
(female)
RNM, PhD, Docent
Principal Lecturer at a University of Applied
Science
Docent in a University
Formal Master and PhD level courses on
qualitative research methods
Has used qualitative methods in research
work earlier.
Has teaching and thesis supervisor
experience on qualitative research
methods.
M.H.
(female)
RN (Master), MNSc, PhD-student
Senior Lecturer and Project Manager at a
University of Applied Science
Formal Master and PhD level courses on
qualitative research methods
Has used qualitative methods in research
work earlier.
Has teaching and thesis supervisor
experience on qualitative research
methods.
T.S.
(female)
MD, PhD
Professor in a University and Chief Physician
in a University Hospital
Informal learning activities to embrace the
principles of qualitative research methods
Has used qualitative methods in research
work earlier.
Has thesis supervisor experience on
qualitative research methods.
J.L.
(male)
MD, PhD, Docent
Clinical teacher in a University and Chief
Physician in a University Hospital
Informal learning activities to embrace the
principles of qualitative research methods
Has used qualitative methods in research
work earlier.
Table 3 Approaches used in the analysis of different datasets
Data Approach
1. The general level data
(all)
Inductive approach: no theoretical
framework; the categories emerged from the
data (Table 5)
2.The specialist level
data (first part)
Deductive approach: the categorization of
the general level competencies was used as
a framework of the analysis (Table 6)
3.The specialist level
data (second part)
Inductive approach: no theoretical
framework; the categories emerged from the
data which did not fit into the framework of
the general level categorization (Table 6)
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specialist level data was based on the fact that many
WGs expressed in their answers that the specialist level
physicians should have all the same competencies as the
general level physicians, and moreover, under the same
main categories, they should have some advanced com-
petencies associated with the main categories. Based on
this, the categorization of the general level competencies
was used as a framework to build a structured matrix for
the analysis of the first part of the specialist level data.
At first, this data was coded for correspondence with the
general level main categories of the framework. After
that, only codes including new information, which was
unique to the specialist level, were chosen for further
analysis. Codes including information which had already
been found in the general level data were not chosen to
the specialist level categorization. The new codes were
then grouped together on the basis of the similarity of
the content and abstracted inductively into new sub-
categories which belonged to the main categories which
had already been created at the general level data ana-
lysis (Table 6).
Analysis of the second part of the specialist level data
The second part of the specialist level data consisted of
codes which were so unique for the specialist level phys-
ician work and differed so much from the general level
data that they did not fit into the framework of the gen-
eral level categorization. These codes were categorized
inductively in the same way as for the general level data,
by producing new main categories including relevant
sub-categories (Table 6).
Results
The required competencies at the general level of
palliative care
The description of the required competencies of every
physician in palliative care at the general level included
13 main categories with a total of 50 subcategories
(Table 5).
Competence in advanced care planning and decision-
makingwas the main category from the biggest number
of codes (f = 125). Examples of the original data are
given below:
Clear instructions about the future and medication
(what shall we do when the nausea increases, what
shall we do when the pain increases, what shall we
do if the medication does not help anymore) so that
we could then react rapidly, when the situations
change or the symptoms change or increase.(WG 7)
Having enough courage to make a decision about the
transfer to palliative care/end-of life care.(WG 18).
Withholding therapies and making care decisions.
Making decisions about end-of-life care timely.
Knowing basic things about symptom management,
advanced care planning(WG 20).
Competence in social interactionswas another strong
main category, as it was found in 107 codes. The follow-
ing citations are examples of the original data:
to be able to bring up the death coming close.
(WG 15).
When it comes to psychologically and emotionally
difficult decisions about care and policy, the phys-
ician has to be able to understand the need of an
unhurried discussion with the patient and the family
Table 4 An example of the coding procedure: how the
subcategory Methods of pain managementwas produced
inductively
Examples of the substantive
material
Reduced expressions
(codes)
Subcategory
management of cancer pain
catastrophizing (WG 1)
management of cancer
pain catastrophizing
Methods of
pain
management
morphine-based pain
medication (WG 2)
morphine-based pain
medication
basic morphine pain pump
(WG 2)
basic morphine pain pump
pain pump* (WG 3) pain pump
to be able to manage pain
symptoms (WG 6))
manage pain symptoms
Non-pharmacological pain
management (WG 12)
Non-pharmacological pain
management
Physicians sufficient
medical competence when
it comes to symptom
management: pain
medication (WG 14)
pain medication
Physicians sufficient medical
competence, for example,
knowing how to prescribe
the pain medication and
having courage to do that.
(WG 14)
prescribe the pain
medication... having
courage to do that
Medication: few opioids (no
fear of addiction, dosing,
adverse effects, change
from p.o. to s.c. etc.) (WG
15)
Medication: few opioids
(no fear of addiction,
dosing, adverse effects,
change from p.o. to s.c.
etc.)
Starting the use of a pain
pump (WG 21)
the use of a pain pump
Competence in pain
management. Basic
methods, for example, pain
pump the physician has
to know it (WG 22)
pain management. Basic
methods pain pump
*) In Finland, pain pumpis a commonly used expression for equipment for
patient-controlled analgesia
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An ability to take up the position of the patient
when explaining difficult things with as ordinary
spoken language as possible (not with medical terms)
Respectful encounter.(WG 27).
The art of listening and discretion.(WG 30).
Knowing how to react to the shame of the patient.
(WG 36).
The required competencies at the specialist level of
palliative care
The first part of the specialist level results, which are
subcategories belonging to the main categories produced
from the general level data, are shown in the first part of
Table 6. Out of them, the biggest number of codes fell
into the subcategory Special methods and techniques of
pain management.
As some WGs expressed:
Table 5 Required competencies for the general level
Main categories Subcategories
(1.) Competence in advanced care
planning and decision-making (f =
125)
(1.) Withholding therapies and
setting goals of care (f = 62)
(2.) Timely decision-making (f = 38)
(3.) Advanced care planning (f = 19)
(4.) Coordination of care (f = 6)
(2.) Competence in social
interactions (f = 107)
(5.) Encountering patients and
significant others (f = 37)
(6.) Verbal communication (f = 16)
(7.) Social interactions as part of a
physicians work in palliative care
(f = 15) **
(8.) Sensitivity and empathy (f = 15)
(9.) Breaking the bad news (f = 11)
(10.) Professional behaviour (f = 6)
(11.) Social interactions with special
groups (f = 5)
(12.) Active role in social
interactions (f = 2)
(3.) Competence in basics of
palliative care (f = 79)
(13.) Holistic attention of patients
physical, psychosocial and
existential needs (f = 22)
(14.) Involvement of the significant
others with care (f = 12)
(15.) Recognition of the need for
palliative care and practicing
palliative care based on the
guidelines (f = 10)
(16.) Knowledge on basic principles
of palliative care (f = 9)
(17.) Recognition of the dying
patient (f = 9)
(18.) Definitions of palliative and
end-of-life care (f = 8)
(19.) Palliative care in different
diseases (f = 5)
(20.) Practices related to patients
death (f = 4)
(4.) Competence in the
management of other symptoms
than pain (f = 74)
(21.) Methods of management of
different symptoms (f = 45)
(22.) Recognition of symptoms (f =
13)
(23.) Symptom management as
part of a physicians work within
palliative care (f = 11) **
(24.) Evaluation of the patients
drug therapy within palliative care
(f = 5)
(5.) Competence in consultations
and networking (f = 34)
(25.) Recognition of the need for a
consultation (f = 17)
(26.) Skills in networking (f = 11)
(27.) Consultations in a physicians
work within palliative care (f = 6)
(6.) Competence in pain
management (f = 31)
(28.) Management of pain as part
of a physicians work within
palliative care (f = 14) **
(29.) Methods of pain management
(f = 11)
(30.) Assessment of pain (f = 6)
(7.) Juridical and ethical
competence (f = 30)
(31.) Respect of patients rights (f =
13)
(32.) Patients autonomy (f = 6)
(33.) Respect of a human being
(f = 4)
(34.) Honesty (f = 3)
(35.) Doing good (f = 2)
Table 5 Required competencies for the general level
(Continued)
Main categories Subcategories
(36.) Patients freedom of choice
(f = 1)
(37.) Accountability (f = 1)
(8.) Patient education competence
(f = 26)
(38.) Guidance of a patient and
significant others as part of a
physicians work in palliative care
(f = 19) **
(39.) Conduct of guidance (f = 7)
(9.) Competence in
multidisciplinary teamwork (f = 21)
- (No subcategories)
(10.) Competence in
documentation (f = 18)
(40.) Documentation of goals and
limits of care (f = 9)
(41.) Documentation as part of a
physicians work within palliative
care (f = 3) **
(42.) Making medical certifications
and verdicts (f = 3)
(43.) Detailed and real time
documentation (f = 2)
(44.) Responding to notes (f = 1)
(11.) Competence at existential
dimension (f = 12)
(45.) Relieving existential suffering
(f = 7)
(46.) Encountering death (f = 5)
(12.) Cultural competence (f = 10) (47.) Significance of a cultural
perspective within palliative care
(f = 8)
(48.) A member from another
culture in a team (f = 2)
(13.) Competence in taking care of
ones own professional
competence and well-being at
work (f = 6)
(49.) Taking care of ones own
professional competence (f = 3)
(50.) Taking care of ones own well-
being at work (f = 3)
**) Subcategories number 7, 23, 28, 38 and 41 constituted from very short and
simple expressions about the thing named in the beginning of the
subcategorys name. Thus, the analysers concluded that the experts just
expressed the importance of the issue within palliative care
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Mastery of invasive pain management methods.
(WG 12).
To be able to see whats behind the pain if there is
mental agony or anxiety in the background.(WG 6).
The second part of the specialist level results are six
main categories with 22 subcategories in total, which are
unique for the specialized level only (the second part of
Table 6). Competence in complex symptom manage-
mentwas the main category which was derived from
the biggest number of codes (f = 46). As some work-
groups expressed:
to be capable of providing symptom manage-
ment; pleural paracentesis, sedation (for example, in
psychological restlessness or anxiety). And have the
courage to make the decision of sedation. The phys-
ician must be capable to see if there is emotional
agony or anxiety behind the pain.(WG 6).
Management of catastrophic situations.(WG 12).
Research and development competencewas obtained
from 31 expressions. The following citations are exam-
ples of the original data:
Table 6 Required competencies for the specialist level
Main categories (1, 2, 3 and 6 produced already for the general
level) (see Table 5)
Subcategories (Subcategories documented with Bold were created from the
specialist level data)
(1.) Competence in advanced care planning and decision-making
(f = 125 on the general level)
(f = 126 on the general and specialist levels in total)
Four subcategories on the general level (see Table 5)
(51.) Demanding decision-making (f = 1) (a specialist level subcategory)
(2.) Competence in social interactions
(f = 107 on the general level)
(f = 110 on the general and specialist levels in total)
Eight subcategories on the general level (see Table 5)
(52.) Special skills in social interactions (f = 3) (a specialist level
subcategory)
(3.) Competence in basics of palliative care
(f = 79 on the general level)
(f = 81 on the general and specialist levels in total)
Eight subcategories on the general level (see Table 5)
(53.) Children as significant others (f = 2) (a specialist level subcategory)
(6.) Competence in pain management
(f = 31 on the general level)
(f = 40 on the general and specialist levels in total)
Three subcategories on the general level (see Table 5)
(54.) Special methods and techniques of pain management (f = 9) (a
specialist level subcategory)
Main categories (Inductively produced for the Specialist level
only)
Subcategories (Specialist level only)
(14.) Competence in complex symptom management (f = 46) (55.) Widespread and specialized symptom management as part of advanced
competencies (f = 16) ***
(56.) Evidence based management of symptoms (f = 14)
(57.) Therapeutic procedures within palliative care (f = 10)
(58.) Management of emergencies within palliative care (f = 5)
(59.) Making home visits (f = 1)
(15.) Research and development competence (f = 31) (60.) Developing palliative care (f = 23)
(61.) Performing research (f = 4)
(62.) Coordination of palliative care pathway (f = 4)
(16.) Competence to offer consultative and educational support to
other professionals (f = 30)
(63.) Offering and coordinating consultations (f = 18)
(64.) Offering education to other professionals (f = 12)
(17.) Competence to offer palliative care to all patients, including
special groups (f = 14)
(65.) Children and adolescents in palliative care (f = 6)
(66.) Patients with substance abuse in palliative care (f = 1)
(67.) Mentally handicapped patients in palliative care (f = 1)
(68.) Psychiatric patients in palliative care (f = 1)
(69.) Spinal cord injury patients in palliative care (f = 1)
(70.) Patients with respiratory diseases in palliative care (f = 1)
(71.) Patients with heart diseases in palliative care (f = 1)
(72.) Special aspects of palliative care in cancer (f = 1)
(73.) Patients with rare diseases in palliative care (f = 1)
(18.) Verifiable competence to work on a specialized level of palliative
care (f = 12)
(74.) Formally acquired educational competence to work on a specialized
level of palliative care (f = 8)
(75.) Adequate working experience needed for specialized level of palliative
care (f = 4)
(19.) Competence in providing specialist level of psychosocial support
(f = 2)
- (No subcategories)
***) Subcategory number 55 constituted from very short and simple expressions, such as widespread symptom managementor specialized symptom
management. Thus, the analysers concluded that the experts just expressed that specialist level physicians should have broad competence in
symptom management
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Readiness to participate in research projects and
development work.(WG 19).
Readiness to conduct research in the contexts of
palliative care and end-of-life care(WG 26).
Discussion
This study aimed to describe the required competencies
of physicians in palliative care from the perspectives of
multi-professional groups of representatives from work-
ing life. As a result, a comprehensive description of the
required competencies based on the workshop data was
presented. Earlier competence descriptions [4,5,10]or
recommendations for the development of undergraduate
curricula within palliative medicine at European medical
schools, as well as surveys on the postgraduate education
within palliative medicine for physicians [11], have re-
ported some similar competencies that were also de-
scribed as main categories in this study.
General level competence needs
Within the general level, Competence in advanced care
planning and decision-makingwas the main category
emerging with the highest number of reduced expres-
sions. In the consensus papers by EAPC, the core com-
petencies in palliative care include the expressions
tailored plan of care,decision-makingand care co-
ordination[4,10]. However, advanced care planning
(ACP) is not mentioned as clearly as it was in this study,
which emphasizes the need for well-timed decision-
making and ACP as basic skills for every physician to
enable high-quality palliative care. Likewise, the Irish
Palliative Care Competence Framework states that as a
health care professional, all physicians should demon-
strate an understanding of ACP, and when they receive
more training, the requirements for their competence in-
crease to achieve skills in facilitating and leading ACP
[5]. Development in medicine has increased the possibil-
ities of taking care of patients with very advanced dis-
eases but attempts to prolong life at any cost may be
futile [20]. Recognizing the need for palliative care plays
a key role in good quality care. A recent qualitative study
on European experts by Paal et al. [21] reported an abil-
ity to design care plans based on patients and families
wishes integrating multiprofessional and interdisciplin-
ary approachesas one key learning goal of postgraduate
palliative care education for all healthcare providers in
Europe. Thus, the WGsviews in this study that skills in
ACP are highly relevant already within the general level
of palliative care are in line with previous studies and
recommendations.
Competence in social interactionswas another strong
main category, including many diverse subcategories
describing the multifaceted nature of this competence
area. Verbal communicationwas one of the subcategor-
ies, including similar things that were found by Paal
et al. [21] who reported a learning goal to listen and
self-reflect. This competence has been presented already
in earlier papers [3,10,11]. In particular, communica-
tion skills have long been recognized as a major compe-
tency needed in palliative care [5,11]. Today, shared
decision-making with patients, families and physicians is
considered the preferred model when it comes to mak-
ing complex clinical decisions [22,23]. The practice of
ACP and making truly shared decisions call for skilful
communication. Therefore, it is understandable why our
participants emphasized competencies both in decision-
making and social interactions, e.g. verbal communica-
tion. Social interactions also included aspects of team-
work, although this also had its own main category
(multidisciplinary teamwork). Thus, teamwork probably
had a stronger overall importance than could be stated
purely by the expressions clearly related to it.
Competence in documentationwas partly related to
the care plan and partly related to other aspects of the
physicians work. Our result seems to highlight the im-
portance of a written plan and decisions (e.g. DNR-
orders) allowing the continuum of care between differ-
ent care providers. Documentation has also been pre-
sented as a recommended learning content by EAPC
[11].
Competencies in symptom control (management of
pain and other symptoms) were expectedly important in
basic level competencies, but the frequency of the codes
related to these competencies were lower than those of
decision-making and social interactions. This is not
quite in line with the EAPC recommendations for
undergraduate education in palliative care, where man-
agement of symptoms has the largest proportion of the
total teaching time [11]. In addition, the Irish Palliative
Care Competence Framework states that all physicians
should understand how the palliative care approach can
enhance the assessment and management of symptoms
[5]. We suggest, however, that our result may reflect the
significant problem in decision-making and planning
palliative care as well as social interactions in Finland,
rather than diminish the importance of symptom
control.
Specialist level competence needs
As for specialist level competencies, in addition to the
competencies which are required on the general level,
the WGs described specialized competencies which are
required on this level only. Competence in complex
symptom management, reported also in other papers [5,
12,21], comprised the biggest number of reduced ex-
pressions. Although some of the expressions did not
Melender et al. BMC Palliative Care (2020) 19:65 Page 8 of 11
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specify complex symptom management, expressions that
did emerge were therapeutic procedures, taking care of
emergencies and especially, the evidence base of the
management. The latter is in line with the Research and
development competence. This may reflect poor re-
search activity in the field of palliative medicine, not
only in Finland but worldwide. For the future develop-
ment of palliative care, however, research and improve-
ment in the academic position of palliative medicine are
vital. Evidence-based practice, research and development
are presented also as indicators of competence in the
Irish Palliative Care Competence Framework [5].
Participantsstatements to require Verifiable compe-
tence to work on a specialized level of palliative careare
probably related to the current state of specialization
within palliative medicine in Finland. There has been a
special competency in palliative medicine since 2007 in
Finland. This training, including 150 h of theoretical stud-
ies and a 6 monthsworking period in a specialized pallia-
tive care unit, is arranged by the Finnish Association for
Palliative Medicine and the Finnish Medical Association
gives a certification for this special competency [24]. How-
ever, universities are not responsible for or formally in-
volved in this education. Thus, palliative medicine is not a
specialty in Finland as it is in some other European coun-
tries [25]. This might have influenced the participants
needs to emphasize the formal special education in the
specialized level of palliative care.
Competence needs within both the general and specialist
level
Consultations and networking emerged as categories
Competence in consultations and networkingwithin
the general level of palliative care and Competence to
offer consultative and educational support to other pro-
fessionalswithin the specialized level. Consultation has
been presented as an indicator of competence of all phy-
sicians in palliative care in the Irish Palliative Care Com-
petence Framework [5]. Moreover, similar things have
been presented, for example, as to act as a resource to
others in the team[10]. However, Networkingas a
concept has not been presented before. Similar expres-
sions have been presented earlier, for example, fostering
greater communication within the team and with other
professional colleagues[10]andestablish collegial part-
nerships and in the context of palliative care contribute
to the professional development of students, peers, col-
leagues and others through consultation, education,
leadership, mentorship and coaching[5]. One plausible
explanation for these results, related to consultations
and networking in this study could be due to the rela-
tively poor palliative care service network in Finland so
far. This, in combination with a poor education level in
this area, increases the need for consultation.
In our study, the need for organizing palliative care
pathways and networks, both within the general and spe-
cialized level, emerged. This was in addition to shared
decision-making and consultation. It is possible that our
participants were already aware of the recently published
recommendations by the Ministry of Social Affairs and
Health [14] regarding palliative care, and this may have
partly affected their perception of the need for palliative
care in Finland.
Strengths and limitations of the study
The trustworthiness [18] of this study was strengthened
by the method being suitable for the purposes of the
study. As the sample was large and presented diverse
professions, it can be estimated that the data represents
the whole phenomenon of interest quite well. Because
the managers proposed the best representatives of their
personnel, we do not know if there were refusals. None
of the professionals whose contact details we received
refused to participate when we contacted them. The
workshop questionnaire was carefully designed and pre-
tested, which strengthens the trustworthiness. The se-
lected unit of analysis was appropriate for the purposes
of this study, because it was neither too narrow nor too
broad [18]. The results clearly represent the views of the
participants of this study, since we analyzed only the
manifest content [16].
Because the workshops were organized only once,
there was no possibility to ask any further questions
about the topic in order to gain a deeper understanding
of the phenomenon of interest. The transcripts were not
returned to the participants for comments and/or cor-
rection, nor were the findings returned so that they
could provide feedback. These aspects all weaken the
trustworthiness of the study. Although the sample pre-
sented diverse professions, a limitation is that the group
of nurses in total was so much bigger compared with
other professions and thus, the results may reflect their
views more than it would reflect the othersviews.
Within the Finnish health care sector, the managers are
responsible for the human resource management of phy-
sicians [26] and nurses [27]. Based on this, they are sup-
posed to know the competencies of their personnel and
thus, it can be assumed that the managers succeeded at
choosing the best representatives of their units for the
workshops. However, it could be possible that some
good experts have not been included in the sample.
One experienced qualitative researcher analyzed the
whole data. Two other researchers examined the analysis
made by her. The researchers exchanged views on the
analysis and interpretation of the findings to create cat-
egories in a meaningful way [18]. All the authors
checked that there would not be any overlap in the
categorization and that it was logical. The results were
Melender et al. BMC Palliative Care (2020) 19:65 Page 9 of 11
Content courtesy of Springer Nature, terms of use apply. Rights reserved.
presented for a multidisciplinary group of professionals
within palliative care (n= 44). This group confirmed that
the results were plausible, which confirmed the face val-
idity of the findings. Consolidated criteria for reporting
qualitative research (COREQ) guidelines [28] were ad-
hered to ensure explicit and comprehensive reporting of
the study.
At both the general and specialist level, some subcat-
egories consisted of a small number of codes. Although
these subcategories do not appear as central as the
stronger ones, they are, however, important, as they
show the rich and diverse nature of the competencies re-
quired in palliative care.
Conclusions
This study adds to the knowledge by describing the per-
spective of Finnish multi-professional groups of repre-
sentatives from working life who qualitatively described
the required competencies of physicians working within
different levels of palliative care. The competencies de-
scribed in this study emphasize decision-making, social
interactions and networking. Symptom management,
which is often emphasized in curricula, also appeared in
this study, but with a smaller emphasis. This may have
been due to the informants considering symptom man-
agement so self-evident that they did not name it, or be-
cause the lack of competence in it may not be such a big
problem in working-life, compared with the lack of other
competences mentioned above. It is important to listen
to the voices of the working-life representatives when
planning curricula. The views of them inform how the
competences gained during education meet the chal-
lenges of the ordinary work.
Supplementary information
Supplementary information accompanies this paper at https://doi.org/10.
1186/s12904-020-00566-5.
Additional file 1.
Abbreviations
ACP: Advanced care planning; COREQ: Consolidated criteria for reporting
qualitative research; EAPC: European Association for Palliative Care;
WG: Working group
Acknowledgements
The authors wish to thank all the professionals of palliative care who
participated in this study.
Ethics approval and informed consent to participate
The Ethical Committee of North Ostrobothnias Hospital District was
contacted regarding the need for an application for an ethical approval. The
Ethical Committee stated that formal approval was not needed for this
study. Participation in the study was voluntary and a written informed
consent was obtained from all participants. All research material was coded
with the workshop group numbers, not with the personal details of
individual participants, and confidentiality was reassured for the participants.
Authorscontributions
H-L.M., M.H., T.S. and J.L. designed the study methodology. H-L.M., M.H. and
J.L. collected and analyzed the data. H-L.M., M.H., T.S. and J.L. drafted and re-
vised the manuscript. Furthermore, all the authors read and approved the
final manuscript.
Funding
This work was funded by the EduPal-project, which was funded by the Minis-
try of Education and Culture (Decision 29.3.2018 OKM/258/523/2017) in
Finland and the participating higher education institutions. The funders had
no role in the design of this study, in the collection, analysis and interpret-
ation of data, or in writing the manuscript. The content of this article reflects
only the EduPal group membersviews and the funders are not liable for
any use that may be made of the information contained herein.
Availability of data and materials
The datasets generated during and/or analyzed during the current study are
not publicly available due to the reassurance to the study participants that
the data will be retained confidentially Within the limits of confidentiality,
more detailed, but anonymous, data is available from the corresponding
author on reasonable request. The English language version of the cover
letter and the questionnaire developed specifically for use in this study are
presented in the Supplementary material.
Consent for publication
Not applicable.
Competing interests
The authors declare that they have no competing interests.
Author details
1
Department of Social and Health Care, VAMK University of Applied Sciences,
Wolffintie 27-31, 65200 Vaasa, Finland.
2
School of Health, Kajaani University of
Applied Sciences, PL 52, Ketunpolku 4, 87101 Kajaani, Finland.
3
Faculty of
Medicine, University of Helsinki, Helsinki, Finland.
4
Helsinki University Hospital,
Cancer Center, PL 180, 00029 HUS Helsinki, Finland.
5
Faculty of Medicine and
Health Technology, Tampere University, Tampere, Finland.
6
Department of
Oncology, Palliative Care Unit, Tampere University Hospital, Teiskontie 35,
R-building, 33520 Tampere, Finland.
Received: 21 October 2019 Accepted: 22 April 2020
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... Therefore, the development of a structure of services alone is not enough, since there is a need to systematically develop the practice and education of palliative care to strengthen the competence of healthcare professionals within palliative care (Martins Pereira et al., 2021;Smets et al., 2018). Previous studies have focused on the required palliative competencies of physicians (Mäenpää et al., 2021;Melender et al., 2020), registered nurses Vihelä et al., 2020) and licensed practical nurses (Vattula et al., 2020) working within palliative care. Palliative patient care is carried out by a multi-professional team comprising physicians, registered nurses, licensed practical nurses and other members of social welfare and healthcare professionals. ...
... The competence requirements within palliative care are broadly similar, but they are linked to the professional roles and responsibilities of each professional group member as well as the competence required at different levels of palliative care provision (Gamondi et al., 2013a(Gamondi et al., , 2013bRyan et al., 2014). Ensuring competence through palliative care education, together with the development of palliative care structures, are prerequisites that can enable equal and timely palliative care, regardless of the stage of the disease process Melender et al., 2020) or the location of the patient's residence (Saarto, 2017;Saarto & Finne-Soveri, 2019). Moreover, a holistic approach and optimal quality in palliative care necessitate multidisciplinary expertise (Connor, 2021;Ryan et al., 2014;Salin et al., 2021). ...
... It is also worth noting that although these competencies were based on the professional boundaries, roles and responsibilities of each professional group member, there was still some variation in these competencies within and between professional groups. The results are largely congruous with those found in previous research regarding the competencies of physicians working at the general level (Melender et al., 2020). Especially patients and their significant others have been found to appreciate the competencies of physicians in advance care planning, psychosocial support (Mäenpää et al., 2021) and empathic and person-centered encounters (Oishi & Murtagh, 2014). ...
... The final report identified ways to harmonise teaching, for example by formulating highly relevant topics. The report also noted that basic knowledge and skills must be covered in a separate/distinct course, while the additional expertise can be taught through 'horizontal integration' within different courses [7]. ...
... When comparing the training in Estonia with the recommendations of the Finnish report, it is noticeable that horizontal integration (teaching within different speciality courses) is used more in Estonia than in Finland. This may improve the integration of palliative care, but care needs to be taken that there is parity in horizontal integration within speciality courses [7]. The main teaching methods in Estonia were lectures and seminars, which when appropriately structure can effectively disseminate knowledge and provide opportunities for critical discussion and reflection with a large number of students. ...
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Background A minority of European countries have compulsory training in palliative care within all medical schools. The aim of the study was to examine palliative care education in Estonia. Methods We used the adapted version of the Palliative Education Assessment Tool (PEAT) to evaluate palliative care education at the University of Tartu, the only medical school in Estonia. The PEAT comprises of different palliative care domains and allows for assessing the curricula for palliative care education. Results 26 hours (h) of palliative care is taught within the basic medical curriculum, which is divided between 14 courses. Ethical issues (4 h, lecture and seminar) and basics of palliative care (2.5 h, lecture) are well covered however, pain and symptom management (12.5 h, lecture, seminar, workshop), psychosocial, spiritual aspects (5.5 h, seminar), and communication (1.5 h, lecture) teaching do not reach the recommended number of hours. Teamwork and self-reflection are not taught at all. Conclusions Increased time, more diverse teaching strategies and clear learning outcomes are required to enable the development of palliative care education in Estonia. The teaching and learning of palliative care is a process that requires constant development and collaboration.
... To work in an NH requires a general level of competence in providing basic palliative care. Competence in medicine is described as a holistic combination of knowledge, attitudes, skills, and values in specific activities [33]. The physicians in the current study focused on factors beyond medical treatment. ...
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Background Advance care planning is a way of facilitating conversations with patients about future health care, values, and preferences at end of life. Nursing home physicians have the medical responsibility and the main obligation to facilitate planned meetings with patients. Although there has been a great deal of focus on establishing advance care planning in Norwegian nursing homes, it has yet to be widely implemented. Stated reasons are that the work routines in a nursing home do not include such meetings or that implementation seems complex due to frail patients. The aim of this study is thus to explore how physicians understand and experience advance care planning and follow-up of care plans in Norwegian nursing homes. Methods The study has a qualitative research design with a phenomenological-hermeneutic approach based on interviews of twelve nursing home physicians working in community care. Interviews were conducted in February 2023 to May 2023, using a semi-structured interview guide. All interviews were recorded on audio files, transcribed, and analyzed using structural text analysis. Results The findings are presented based on the following themes: (1) advance care planning is a dialog and a process, (2) advance care planning implies clarifying mutual expectations, and (3) advance care planning that brings relief and hope to patients is a medical art. Conclusions Advance care planning is a complex and dynamic process that implies medical treatment, decisions on treatment level, pain relief, and formulation of care plans where the patient’s self-determination and personal values are respected. It implies an ongoing dialogue between physicians, patients, and their relatives about values such as dignity, self-understanding, social relations, and existential questions at end of life. Advance care planning requires a holistic approach that meets patients’ psychological and existential needs such as comfort, trust, hope, and respect as well as their preferences and concerns.
... The issue of networking may have particular importance in the discipline of palliative medicine, since competence in teamwork, networking, and social interactions can be considered paramount for specialists working in palliative medicine. 27,31 An adequate technical infrastructure, reliable internet access, and skills in information and communication technology (ICT) are essential for E-learning programs to work. 10,28,32,33 In our study, the technical aspects and functionality of the platforms were rated as being good. ...
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Objective: To study whether E-learning methods are feasible in the post-graduate education of palliative medicine. Methods: A mixed-methods study. Evaluations from pilot course attendees were analyzed numerically and answers to open-ended questions about E-learning were analyzed using inductive content analysis. A national pilot E-learning-based post-graduate course in palliative medicine with 24 participating physicians in Finland. The evaluation of teaching modules and different aspects of the course was achieved from the participants through numerical statements and open-ended questions. Results: The feedback on most aspects of the course was good. For example, issues of pain and symptom control, lectures, pre-exams, and group discussions were deemed suitable for E-learning, while studying communication and existential issues through E-learning was considered more challenging. The benefits of E-learning included efficacy, better accessibility, and the possibility to go back to the teaching material. Reduced networking and face-to-face interactions were stated as challenges of E-learning. Conclusions: E-learning is feasible in the post-graduate education of palliative medicine and can be 'surprisingly rewarding'. It allows easy access to learn many important topics, while social networking may fall short. Further studies are needed to assess the increase in competence by different learning methods.
... But how can this be done? On the one hand, the increase of palliative care seminars and courses in medical and nursing schools is evident, yet the challenge is to take this knowledge of humanized care outside the science faculties and so spread the message of palliative care as widely as possible [4,12]. On the other hand, how does one teach compassion or humanity? ...
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Introduction The message of palliative care can be promoted using creative thinking and gamification. It can be an innovative strategy to promote changes in behaviour, promote thinking, and work on skills such as empathy. Aim Design, test and evaluate a gamified social intervention to enhance palliative care awareness among young university students from non-health background. Methods Participatory action research study with mixed methods, Design Thinking and using the Public Engagement strategy. Forty-three undergraduate students participated in a Palliative Care Stay Room and completed the Test of Cognitive and Affective Empathy (TECA) before and after the game. At the end of the game, a ten-minute debriefing was held with the participants, which was concluded with an open conversation. The content analysis was done independently and the sum of the scores of each dimension was compared before and after the activity. Findings The Stay Room improved the participants’ knowledge and new perspectives about palliative care. Before the game, their views focused on the end of life and after the game on their values, highlighting the dedication of the healthcare professionals who do not treat death but the life until death. After de game, participants (N = 43: female = 23; male = 20; x̄ 19.6 years old) presented higher values in perspective adoption (intellectual ability to put oneself in the other’s place) p = 0.046 and in emotional understanding (ability to recognize emotional states) p = 0.018, and had high scores on empathic joy (p = 0.08). Conclusion Gamification can be used in teaching and transmitting positive attitudes. Palliative Care and can help young university students to think positively about care issues.
... 96% of interns showed that this session stimulated inquisitiveness to learn about palliative care, and only 4% showed neutral responses, which further suggested that developing competency for pain management in palliative care is very much helpful to them in routine as well as future practice. Competencies for palliative care during undergraduate education were not included in the earlier curriculum, even though management of pain and other symptoms are expectedly important in basic level competencies [11]. ...
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Background: Palliative care has become increasingly important in the last decades with a rise in needy patients and subsequent shortage of health care professionals serving palliative care, making it a global public health concern. Patients and methods: Educational interventional study conducted in the Department of Anaesthesiology of a tertiary care teaching institute. Pre- and post-tests by standardized validated multiple choice questions for assessment of knowledge and awareness were conducted before and after the session. Interactive didactic lectures integrated with faculty narrative from the Department of Palliative Care, demonstration among small groups, and live demonstration on patients under the aegis of the Anaesthesia Department were given after the pre-test. A feedback questionnaire in the form of a Likert scale for assessment of students’ satisfaction and attitude was done at end of a session. Results: Fifty (50) interns participated in the study. Out of 50, 28 (56%) were male and 22 (44%) were female interns. The mean pre-test score was 8.82 ± 2.13 (range 4–12) out of a total of 20. The mean post-test score was 14.44 ± 1.72 (range 11–17). The pre- and post-test results difference was significant (p < 0.0001). The percentage gain in knowledge and awareness was 63.95%. Conclusions: Most professionals will need basic skills of various management modalities in supportive therapy in near future to fully fill the demand for palliative care which is going to be doubled within the next few decades so the need for conducting more such sessions regularly amongst young budding doctors including interns at a very early stage to develop competency for palliative care was observed.
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Background: Palliative care demands in the United States are growing amid a comparatively small workforce of palliative care clinicians and researchers. Therefore, determining research and clinical practice priorities is essential for streamlining initiatives to advance palliative care science and practice. Objectives: To identify and rank palliative care research and clinical practice priority areas through expert consensus. Design: Using a modified Delphi method, U.S. palliative care experts identified and ranked priority areas in palliative care research and clinical practice. Priorities were thematically grouped and analyzed for topic content and frequency; univariate analysis used the median of each priority item ranking, with a cutoff median of ≤8 indicating >76% agreement for an item's ranking. Results: In total, 27 interdisciplinary pediatric and adult palliative care experts representing 19 different academic institutions and medical centers participated in the preliminary survey and the first Delphi round, and 22 participated in the second Delphi round. The preliminary survey generated 78 initial topics, which were developed into 22 priority areas during the consensus meeting. The top five priorities were (1) access to palliative care, (2) equity in palliative care, (3) adequate financing of palliative care, (4) provision of palliative care in primary care settings, and (5) palliative care workforce challenges. Conclusions: These expert-identified priority areas provide guidance for researchers and practitioners to develop innovative models, policies, and interventions, thereby enriching the quality of life for those requiring palliative care services.
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Background Most studies on palliative medicine (PM) undergraduate education have focused on contents and organizational issues but not the outcome. Students’ learning outcomes should be studied to improve teaching in medical schools. Methods A questionnaire about perceived PM education and attitudes on palliative care (PC) was sent to 543 last year students in all five Finnish medical schools in 2018–2019. In total, 175 (32 %) responses were received from four universities. The students evaluated both the quantity and quality of their PM teaching, implementation of European Association for Palliative Care (EAPC) guidelines and their satisfaction to the training. There were two palliative case scenarios, and the students were asked to find the best treatment option. Results In the Finnish universities, PM education was available mainly integrated with oncology, geriatrics, and general medicine. A total of two universities also offered a specific PM course. In average, 50–70% of the EAPC curriculum was covered by lectures, small-group teaching, seminars, and bedside teaching with significant differences between faculties. Only 30–60 % of students were satisfied with the education received. The highest rankings were given in the universities with a special PM course. Conclusions In Finland, the coverage of EAPC curriculum is satisfactory, but the PM education is mainly given integrated with other specialties. The dedicated course on PM was associated with increased perceived knowledge and satisfaction of PM education. However, PM training was not associated with students’ attitudes on PC.
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Background: Today's health systems require the collaboration of diverse staff such as physicians, nurses, social workers, and other healthcare professionals. In addition to professional competencies, they also need to acquire interprofessional competencies. Effective interprofessional collaboration among healthcare professionals is one of the solutions that can promote the effectiveness of the health system using existing resources. Materials and methods: A systematic review was conducted in 2021 according to the PRISMA and through searching Web of Science, Scopus, PubMed, ProQuest, Science Direct, Emerald, Springer Link, Google Scholar, SID, and Magiran databases. The official websites of WHO, United Nations, and World Bank were also searched. The time frame for the research was from 2010 to 2020, and included both the English and Persian languages. Out of 7267 initially retrieved articles, 17 articles finally met the quality evaluation criteria and were analyzed through qualitative content analysis. Then their full texts were retrieved and analyzed in MAXQDA software, and final results were categorized. Results: Competencies have been explored in various areas of health care, especially in the clinical field. The competencies introduced were extracted and categorized into six domains of "patient-centered care," "interprofessional communication," "participatory leadership," "conflict resolution," "transparency of duties and responsibilities," and "teamwork." The competence of "transparency of duties and responsibilities" was mentioned in all studies and is required for any collaboration. Conclusions: Interprofessional competencies provide quality, safety, and patient-centeredness through effective collaboration. Integrating interprofessional competencies into the educational curriculum, in-service training, and continue education is essential to form effective interprofessional collaboration.
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Background Every year 4,428,663 people die with serious health related suffering in Europe, with estimated 138,913 of them being children. Access to palliative care (PC) would greatly ease suffering of these patients. Last assessment of PC development across Europe was conducted in 2013 and therefore, our aim is to provide an updated analysis on the development and integration of PC across the Region. Methods We conducted a systematic review to identify the most commonly used national-level indicators on PC development. Policy, medicine-related, education and service provision indicators were identified and rated by a committee of international experts in a two-round RAND/UCLA Delphi consensus process. Additional indicators exploring the integration of PC into different levels of care, diseases and disciplines were derived from interviews with the EAPC Task Force leaders on paediatrics, long-term care facilities, primary care, volunteering, public health and cardiology. All these indicators were sent through on-line surveys to qualified national experts in their field. Additional databases on opioids (International Narcotic Control Board), professional activity (EAPC databases), and PC integration into oncology (ESMO databases, Clinical.Trials.gov and Scopus) were consulted. Results We received response from 321 experts from 94% (51/54) of European countries. The survey identified 6,388 specialised services for adults (a median of 0.8 adult services per 100,000 inhabitants) and a variety of programmes specific to PC for Children in 38 countries: home care teams (n=385), hospital programmes (n=162) and hospices (n=133). Most countries have established legal frameworks for the provision of PC, with specific laws reported in eight countries and other laws or decree-laws present in 63% of the countries. Twenty-nine nations have a process of specialisation in Palliative Medicine for physicians and PC has been included in the undergraduate curricula of medical and nursing schools in 43% of the countries with variations in the number of teaching hours and clinical practice. Full professors have been reported in medical schools in 14 countries and in nursing schools in five. The average of opioid consumption is 107 mg morphine equivalent/ capita/year. The integration of PC into different fields is noticeable. Although only 12/34 countries have systems to identify patients in need of PC at the primary level, the majority of countries provide PC in the last month of life. PC is being integrated into oncology and clinical trials on early integration of PC in the course of the oncological disease registered in 10 countries. Furthermore, eight reference cardiology centres providing PC were also identified and the presence of PC trained staff in Long-Term Care Facilities is increasingly common (14/19 countries). Volunteers are active throughout Europe and eight countries report over 1000 registered PC volunteers while others even report the existence of volunteer-led hospices. The professisonal vitality of the discipline is demostrated by the rise of national PC associations in 41/51 countries. This Atlas presents a set of 51 country reports highlighting key data on national policies, use of medicines, education and PC services provision and does not offer secondary comparative analysis between countries. Conclusion PC health policies developed in recent years have promoted vigorous development across Europe. Preliminary data on the integration of PC into different fields are encouraging though inequalities between countries and sub-regions persist. Further comparative analysis exploring factors leading to uneven progress may inform strategies to provide PC for all people in need.
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Objective Palliative care training at basic, intermediate, and specialist levels, recommended by the World Health Organization (WHO), is challenging to access in resource-poor countries and regions. Providing support in this regard would seem a moral imperative for all countries with established palliative care education systems and a strong resource base. In collaboration with WHO European Office and European Association for Palliative Care, this paper looks into the educational requirements in palliative care at postgraduate level within Europe. Method A survey was specifically designed to gather opinions and comments on elements of palliative care education from European experts. Participants were invited to assess the European Association for Palliative Care core competencies on a five-item scale and to define essential learning goals. Survey data were statistically analyzed using IBM SPSS Statistics Software. Qualitative data were thematically analyzed. Result A total of 195 data sets were recorded; 82 were completed fully. The statistical analysis revealed a high agreement regarding the key elements of palliative care education. The thematic analysis indicated that at postgraduate level all healthcare providers need to (1) comprehend the palliative care philosophy, (2) be able to demonstrate the complex symptom assessment and management competencies, (3) be able to design care plans based on patients and families wishes integrating multiprofessional and interdisciplinary approaches, and (4) be able to listen and self-reflect. Significance of results According to the WHO, inadequate skills and capacities of healthcare workers are one of the four barriers hindering the access to palliative care. This paper contains a new and comprehensive list of learning goals essential for multidisciplinary postgraduate palliative care education. Besides highlighting the relevant competencies, the article provides best-practice toolboxes with teaching and assessment methods. The article comments on the WHO's palliative care definition and underpins the importance of the role of the education in knowledge development and skills acquisition.
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Saturation has attained widespread acceptance as a methodological principle in qualitative research. It is commonly taken to indicate that, on the basis of the data that have been collected or analysed hitherto, further data collection and/or analysis are unnecessary. However, there appears to be uncertainty as to how saturation should be conceptualized, and inconsistencies in its use. In this paper, we look to clarify the nature, purposes and uses of saturation, and in doing so add to theoretical debate on the role of saturation across different methodologies. We identify four distinct approaches to saturation, which differ in terms of the extent to which an inductive or a deductive logic is adopted, and the relative emphasis on data collection, data analysis, and theorizing. We explore the purposes saturation might serve in relation to these different approaches, and the implications for how and when saturation will be sought. In examining these issues, we highlight the uncertain logic underlying saturation—as essentially a predictive statement about the unobserved based on the observed, a judgement that, we argue, results in equivocation, and may in part explain the confusion surrounding its use. We conclude that saturation should be operationalized in a way that is consistent with the research question(s), and the theoretical position and analytic framework adopted, but also that there should be some limit to its scope, so as not to risk saturation losing its coherence and potency if its conceptualization and uses are stretched too widely.
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This paper describes the research process – from planning to presentation, with the emphasis on credibility throughout the whole process – when the methodology of qualitative content analysis is chosen in a qualitative study. The groundwork for the credibility initiates when the planning of the study begins. External and internal resources have to be identified, and the researcher must consider his or her experience of the phenomenon to be studied in order to minimize any bias of his/her own influence. The purpose of content analysis is to organize and elicit meaning from the data collected and to draw realistic conclusions from it. The researcher must choose whether the analysis should be of a broad surface structure (a manifest analysis) or of a deep structure (a latent analysis). Four distinct main stages are described in this paper: the decontextualisation, the recontextualisation, the categorization, and the compilation. This description of qualitative content analysis offers one approach that shows how the general principles of the method can be used.
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Cardiopulmonary resuscitation (CPR) after cardiac arrest is utilized indiscriminately among unselected populations. Cancer patients have particularly low rates of return of spontaneous circulation (ROSC) and survival to hospital discharge after CPR. Our study determines rates of ROSC and survival to hospital discharge among cancer patients undergoing CPR in our cancer center. We examined whether these rates have changed over the past decade. This IRB-approved retrospective observational study was conducted in our cancer center. The ED and cancer center provide medical care for ≥ 115,000 patients annually. Cases of CPR presenting to the cancer center for years 2003-2012 were identified using Institutional CPR and Administrative Data for Resuscitation and Billing databases. Age, gender, ethnicity, ROSC and Discharge Alive using a modified Utsein template was used to compare proportions achieving ROSC and survival to hospital discharge for two time periods: 2003-2007 (Group 1) and 2008-2012 (Group 2), using traditional Pearson chi-square statistics. One hundred twenty-six cancer center patients received CPR from 2003-2012. Group 1 (N = 64) and Group 2 (N = 62) were similar; age (60 vs. 60 years), gender (63% vs. 58% male), and race/ethnicity (67% vs. 56% White). Proportions achieving ROSC were similar in the two time periods (36% Group 1 vs. 45% Group 2, OR = 1.47, 95% CI 0.72 - 3.00) as was survival to hospital discharge (11% Group 1 vs. 10% Group 2, OR 0.87, 95% CI 0.28 - 2.76). ROSC after CPR in cancer patients and survival to hospital discharge did not change over time.
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Full integration of oncology and palliative care relies on the specific knowledge and skills of two modes of care: the tumour-directed approach, the main focus of which is on treating the disease; and the host-directed approach, which focuses on the patient with the disease. This Commission addresses how to combine these two paradigms to achieve the best outcome of patient care. Randomised clinical trials on integration of oncology and palliative care point to health gains: improved survival and symptom control, less anxiety and depression, reduced use of futile chemotherapy at the end of life, improved family satisfaction and quality of life, and improved use of health-care resources. Early delivery of patient-directed care by specialist palliative care teams alongside tumour-directed treatment promotes patient-centred care. Systematic assessment and use of patient-reported outcomes and active patient involvement in the decisions about cancer care result in better symptom control, improved physical and mental health, and better use of health-care resources. The absence of international agreements on the content and standards of the organisation, education, and research of palliative care in oncology are major barriers to successful integration. Other barriers include the common misconception that palliative care is end-of-life care only, stigmatisation of death and dying, and insufficient infrastructure and funding. The absence of established priorities might also hinder integration more widely. This Commission proposes the use of standardised care pathways and multidisciplinary teams to promote integration of oncology and palliative care, and calls for changes at the system level to coordinate the activities of professionals, and for the development and implementation of new and improved education programmes, with the overall goal of improving patient care. Integration raises new research questions, all of which contribute to improved clinical care. When and how should palliative care be delivered? What is the optimal model for integrated care? What is the biological and clinical effect of living with advanced cancer for years after diagnosis? Successful integration must challenge the dualistic perspective of either the tumour or the host, and instead focus on a merged approach that places the patient's perspective at the centre. To succeed, integration must be anchored by management and policy makers at all levels of health care, followed by adequate resource allocation, a willingness to prioritise goals and needs, and sustained enthusiasm to help generate support for better integration. This integrated model must be reflected in international and national cancer plans, and be followed by developments of new care models, education and research programmes, all of which should be adapted to the specific cultural contexts within which they are situated. Patient-centred care should be an integrated part of oncology care independent of patient prognosis and treatment intention. To achieve this goal it must be based on changes in professional cultures and priorities in health care.
Article
Background: Although the provision of palliative care (PC) is fundamental to the role of the physician, little research has assessed the competence of trainee and experienced physicians in PC. Aim: To describe the development of a competence questionnaire and assess the level of competence of medical doctors in Ireland to provide PC to individuals with life-limiting conditions and their families. Design: A survey-based cohort study was employed using a questionnaire based on the Palliative Care Competence Framework, developed specifically for this study. Setting: The sample was accessed via the Royal College of Physicians of Ireland. All specialties in adult medical care and direct patient contact were included. Results: A pilot study demonstrated comprehensiveness and ensured face validity. In the main study, all subscales showed internal reliability and evidence of a normal distribution. Strong correlation was noted between knowledge and behavior while moderate correlations were noted between attitudes and behavior and attitudes and knowledge, respectively. As expected, palliative-trained participants scored significantly higher in attitudes, behavior, and knowledge. Conclusions: The study provides baseline data on the level of competence of PC of doctors working in Ireland. The study also offers a novel assessment tool that has the potential to be used for future research.