ArticlePDF Available

10 Domains of Music Care: A Framework for Delivering Music in Canadian Healthcare Settings

Authors:
  • Room 217 Foundation

Abstract

Music care is a developing approach to care that allows the therapeutic principles of music to inform caring practices in both formal healthcare settings and community or home-based contexts, and to create an integral role in developing more relational and person-centered cultures in caregiving. A significant part of the music care approach is a conceptual framework describing 10 domains of delivery. This article is the third in a three-part series on the theory and applications of a music care framework. Music is increasingly being recognized in health care communities as an effective psychosocial and rehabilitative intervention, increasing many aspects of quality of life. Currently, there is little standardization as to how music may best be integrated into individual care goals and care settings, though a growing body of literature supports the important impact of music in health care. It is this absence of standardization that has led the authors to develop a music care conceptual framework, so the varying scopes of practice that integrate music can be distinguished from one another and new possibilities for optimizing music in care can be identified. While the first study in this series examined how music care is understood in Canadian long term care facilities (1), the purpose of the second study explored how music could be optimized in complex continuing care environments, using one such facility in Ontario, Canada, as an exploration site (2). The 10 Domains of Music Care presented in this paper can be used as both a research tool and a practical, actionable tool for healthcare providers, managers, and decision makers. The paper discusses the 10 domains of music care delivery, need for a music care conceptual framework, and the implications and applications the framework provides. (1) Foster, B., Bartel, L. (2016) Understanding music care in Canadian facility-based long term care. Music Med, 1(8) 29-35. (2) Nelson, M., Foster, B., Pearson, S., Berends, A., Ridgway, J., Lyons, R., Bartel, L. (2016) Optimizing music in complex rehabilitation and continuing care: A Community Site Facility Study (Part 2 of 3), Music Med, 8(3) 128-136.
Music & Medicine | 2016 | Volume 8 | Issue 4 | Pages 199206 Foster, Pearson & Berends | 10 Domains of Music Care
!
!
!
!
!
MMD | 2016 | 8 | 4 | Page 199
Introduction
This paper introduces a developing framework for
understanding music care, which is a developing approach to
care that draws on the inherent health-promoting effects of
music for overall well-being. The paper introduces and defines
music care; it presents the rationale for a conceptual
framework of music care delivery; and it discusses the impact
and possibilities this framework offers.
Culture of Care
In today’s healthcare system in Canada, an emphasis on
relational care [1,2], also known as “person-centered care” [3-
4], “patient-centred care” [6-9], and “whole person care” [10-
13], are increasingly being embraced as standards of care.
There are various models of relational care nuancing certain
aspects of human experience in care i.e. human beingness,
relational autonomy, and cultural factors [14-19]. What is
clear in each model or emphasis is that the focus of the care
professional is on an individual’s needs, preferences, and
quality of experience rather than on the pathology of the
disease or condition.
This is reflected in Canadian public health care settings,
and can be seen in various sectors of Canadian health care. For
example, Cancer Care Ontario recently published a Person-
Centered Care Guideline, in which they state that the goals of
this emerging care approach are to “give patients a voice in
the design and delivery of the care they receive, and enable
patients to be more active in their journey in order to deliver
better health outcomes” [20]. The report also states that
although the Person-Centred Care Guideline is cancer
specific, many of its principles are relevant to any and all
health care (and other) professionals that interact with
patients, their family members and caregivers.”
McGill University’s Faculty of Medicine in Montreal has
pioneered “Programs in Whole Person Care” to promote this
emerging approach to care through conferences, workshops,
publications and continuing education opportunities. The
program’s mission statement promises “to transform Western
!
PRODUCTION NOTES: Address correspondence to:
Bev Foster MA, BEd, BMus, ARCT, AMus E-mail:
bfoster@room217.ca | COI statement: The author declared that
no financial support was given for the writing of this article. The
author has no conflict of interest to declare.
Copyright © 2016 All rights reserved.
International Association for Music & Medicine (IAMM).
Full-Length Article
10 Domains of Music Care:
A Framework for Delivering Music in Canadian Healthcare Settings (Part 3 of 3)
Bev Foster1, Sarah Pearson1,2, Aimee Berends1
1Room 217 Foundation, Ontario, Canada
2Wilfrid Laurier University, Waterloo, Ontario, Canada.
Abstract
Music care is a developing approach to care that allows the therapeutic principles of music to inform caring practices in both
formal healthcare settings and community or home-based contexts, and to create an integral role in developing more relational
and person-centered cultures in caregiving. A significant part of the music care approach is a conceptual framework describing
10 domains of delivery. This article is the third in a three-part series on the theory and applications of a music care framework.
Music is increasingly being recognized in health care communities as an effective psychosocial and rehabilitative intervention,
increasing many aspects of quality of life. Currently, there is little standardization as to how music may best be integrated into
individual care goals and care settings, though a growing body of literature supports the important impact of music in health
care. It is this absence of standardization that has led the authors to develop a music care conceptual framework, so the varying
scopes of practice that integrate music can be distinguished from one another and new possibilities for optimizing music in care
can be identified. While the first study in this series examined how music care is understood in Canadian long term care facilities
(1), the purpose of the second study explored how music could be optimized in complex continuing care environments, using
one such facility in Ontario, Canada, as an exploration site (2). The 10 Domains of Music Care presented in this paper can be
used as both a research tool and a practical, actionable tool for healthcare providers, managers, and decision makers. The paper
discusses the 10 domains of music care delivery, need for a music care conceptual framework, and the implications and
applications the framework provides.
(1) Foster, B., Bartel, L. (2016) Understanding music care in Canadian facility-based long term care. Music Med, 1(8) 29-35.
(2) Nelson, M., Foster, B., Pearson, S., Berends, A., Ridgway, J., Lyons, R., Bartel, L. (2016) Optimizing music in complex
rehabilitation and continuing care: A Community Site Facility Study (Part 2 of 3), Music Med, 8(3) 128-136.!
Keywords: music care, person centered care, health arts, music therapy
10 domains of music care.
multilingual abstract
Music & Medicine | 2016 | Volume 8 | Issue 4 | Pages 199206 Foster, Pearson & Berends | 10 Domains of Music Care
!
!
!
!
!
MMD | 2016 | 8 | 4 | Page 200
medicine by synergizing the power of modern biomedicine
with the potential for healing of every person who seeks the
help of a health care practitioner” [21]. McGill University is
among other Canadian medical schools acknowledging a
whole person care approach.
Relational care is also reflected in the long term care
(LTC) sector and in care for older adults. A compelling report
from the Canadian Healthcare Association in 2009 [22] called
on the government to address the larger issue of quality of
care, specifically in LTC, de-emphasizing the sole focus on
tasks of physical care and prioritizing emotional, cognitive,
social and spiritual care. The Canadian Alzheimer’s Society
released a briefing in 2012 calling for new language to be used
when discussing persons with dementia that would help
validate personhood rather than victimhood [23].
The very title of Canada’s Mental Health Commission’s
2012 national strategy for mental health is called “Changing
Lives, Changing Directions”, indicating change is occurring in
this sector as well. A tendency towards person-centered
approaches towards mental health are the basis of this change.
The opportunity is for everyone’s effortslarge and small,
both inside and outside the formal mental health systemto
help bring about change. One of the calls to action encourages
every Canadian to “promote mental health in everyday
settings and reduce stigma by recognizing how much we all
have in commonthere is no ‘us’ and ‘them’ when it comes
to mental health and well-being” [24]. Personhood calls for
mutual respect and human dignity as strong tenets of this
strategy.
Canadian hospitals and community health agencies are
emphasizing person-centered approaches to care at the end-
of-life. In 2005, the Government of Ontario initiated an
advisory committee to improve access to palliative care that
was integrated and interdisciplinary, that would both improve
access to pain and symptom management protocol, and focus
on addressing whole person values [25].
Music Care: A Developing Approach to Care
Music is an intensely and inherently human activity [26],
relational in nature, and can be used as a method of validating
the whole person within healthcare systems. Music therapy is
recognized in many Canadian hospitals and LTC settings as a
respected allied health practice. The healing power of music
can be experienced beyond the clinical relationships of music
therapy, and there is potential for other healthcare
professionals, community musicians, volunteers and family
members to integrate music effectively into their care.
Understanding the myriad of possibilities of how music may
be delivered in care settings is essential for administrators and
program leaders in order to responsibly and effectively
navigate and steward resources wisely for optimal impact.
The increasing value being placed on relational care is a
natural context from which the music care approach can
emerge. Music care” has been developing as a working
umbrella term by the authors, as an approach that integrates
the use of music into care goals. Situated within the context of
relational care standards, and within a wider appreciation
towards arts in health, music care is aligned with an overall
change in the culture of care taking place in Canada.
The music care approach allows the therapeutic principles
of sound and musical effect to inform caring practices in both
formal healthcare settings and community or home-based
contexts. Music care is not a specific practice, rather a
paradigm within which music enhances quality of life and
well-being, and plays an integral role in care and care settings
[27].
In 2013 the authors were invited to collaborate on a
research study with an Ontario complex rehabilitation and
continuing care hospital on the optimization of music in this
facility [28]. In order to conduct this research, the researchers
recognized that they would need to develop a tool for defining
and assessing music care. This became the basis for a
conceptual framework for music care delivery. This
framework was called “10 Domains of Music Care”, and is the
foundation of this paper. It has also been used by one of the
authors in 2014 as a mapping tool in a pan-Canadian music
care study in Canadian long term care [29].
Among the authors are two music therapists working
within interdisciplinary, medical teams as well as a music
educator who has performed music in long term care settings.
These authors have recognized ongoing misconceptions about
using music for wellness (music therapy vs. other therapeutic
practices), and also see how the use of music can be more
effectively leveraged for care goals in healthcare settings. This
developing framework is motivated by addressing these needs.
Based on the authors’ professional experiences as well as
the music care research projects which have tested the
working structure in two different healthcare settings, the
music care delivery conceptual framework is grounded in
both practice and research theory.
Why Do We Need a Music Care Delivery Framework?
With growing acceptance of using music in healthcare, as well
as current interest in music in health and wellbeing from
varied disciplines, there is a need for understanding and
conceptualizing relationships among them. McDonald, Kreutz
and Mitchell compiled a book of multidisciplinary articles
“echoing the huge interest in the relationships between music,
health and wellbeing”[30]. In this book, they recognize the
need to be able to categorize different types of health-
musicking activities, and propose a conceptual framework
which they define as “a multitude of [health-musicking]
approaches and many different epistemologies”. They
integrate them into four general, overlapping categories,
including music education, music therapy, community music,
Music & Medicine | 2016 | Volume 8 | Issue 4 | Pages 199206 Foster, Pearson & Berends | 10 Domains of Music Care
!
!
!
!
!
MMD | 2016 | 8 | 4 | Page 201
and everyday uses of music, all of which have positive
outcomes for health and wellbeing [31].
A music care delivery framework addresses needs that are
emerging in caregiving practices and professional issues
relating to music in health. This framework addresses a need
for clearer terminology around music therapy and music care.
As of 2016, there is no scope of practice defined by the
Canadian Association for Music Therapy. While some
provinces are beginning to establish government-regulated
colleges that control the act of psychotherapy, the terms
“music” and “therapy” are not protected terms. Meanwhile,
many other self-regulating practices and programs that use
music as a modality for care are emerging, such as Music for
Healing and Transition [32], and the Music and Memory
“iPod project” [33]. This presents a challenge for the public
receiving music care services, and for employers/managers
seeking music care specialists, in understanding what services
they are receiving.
The misunderstanding about music therapy and other
music care-related services reflects the reality that music is
and can be used by health care providers or other community
members outside the context of music therapy, and other self-
regulated practices, and that sometimes there can be a lack of
clarity between the ways music is used in care. The music care
conceptual framework may help clarify confusion, or lack of
knowledge and understanding by identifying areas of music
care delivery with more precise meaning and clearer language.
In this way, music care practices can be distinguished from
one another by healthcare providers and by the general public.
The music care framework provides a navigational tool
through which to locate oneself or other practitioners of music
care within a particular domain. By introducing the 10
Domains of Music Care, one can map more specifically and
easily the type of music care being delivered. In this way,
healthcare settings can appraise what sort of music care
delivery is being offered at any given time.
The music care framework can also expand ways that
healthcare providers consider using music in their care, giving
them a structure for generating new ideas. It provides a
method of assessing how music care is already being delivered
in a context, and the different domains can act as prompts for
considering new music care options. It gives guidance to
administrators, managers and other decision- makers, and
helps healthcare workers think “outside the box” of what has
been traditionally included in care settings.
The Framework: 10 Domains of Music Care
The music care delivery framework was developed as a
research tool to support a hospital-based research study on the
feasibility of music optimization [34]. It emerged through the
research team of music care experts triangulating the different
perceived aspects of music care delivery with current research
and grey literature. It was then tested against the collected
data. The music care approach posits that music care consists
of 10 domains of music delivery, which are shown below in
Table 1.
For the purposes of this paper, the individual care receiver
in whatever healthcare context is referred to as “person(s)”.
Care partners refer to all members of the circle of care,
including persons, healthcare providers, volunteer and family
caregivers, and other community members.
Domain
Key delivery activity
Community
Accessing music performance between
healthcare site and community-at-large
Specialties
Performing therapeutically-intended music
by practitioners with certified training
Music Therapy
Providing treatment using music within a
therapeutic relationship as an accredited
scope of practice
Musicking
Engaging informally and spontaneously with
music
Programming
Integrating music formally in programs
Technology
Incorporating technology to deliver music for
a care-related goal
Sound
Environment
Bringing intentionality to sounds made in the
care environment
Music Medicine
Administering prescriptive music-based
interventions for medically related outcomes
Training
Training to integrate music into regular care
practice
Research
Investing in evidence-based research using
music and music strategies to enhance care
Table 1. 10 Domains of Music Care
Each music care domain presents a way that music care
can be distinctly used and delivered in health care settings.
1. Community
This domain represents individuals or organizations from the
community-at-large who partner with the onsite
programming teams to provide live musical services or
entertainment within the facility. School groups, community
bands, church choirs may volunteer their time to share music.
Professional entertainers may be hired for special occasions.
Community music may also include access for persons to
attend musical events outside the facility, in the community-
at-large e.g. symphony concert, fiddle club, musical theatre.
2. Specialties
Music care specialists are individuals who bring their training
and experience in music care to a healthcare setting, such as
music thanatologists at end of life [35] or harp therapists [36-
39]. These two specializations have formal training and
certification requirements, though are not regulated by any
Music & Medicine | 2016 | Volume 8 | Issue 4 | Pages 199206 Foster, Pearson & Berends | 10 Domains of Music Care
!
!
!
!
!
MMD | 2016 | 8 | 4 | Page 202
government agency. Music care specialists perform
therapeutically-intended music, often at the bedside. Music
educators and professional musicians can also be considered
music care specialists, particularly if they have extensive
experience applying their musical training to care
relationships and settings like the Health Arts Society [40],
Artists in Healthcare Manitoba [41], or Music Can Heal [42].
3. Music Therapy
Music therapy is a specific scope of music care practice that
uses music and musical tools to address clinical goals and
objectives within a therapeutic relationship. Music therapists
practice in a variety of settings e.g. palliative care, long term
care, schools, hospitals, mental health, and are accredited by a
regulating body [43]. In certain Canadian provinces,
legislation is being passed to make therapies, including music
therapy, a controlled government-regulated activity. In
Ontario, for example, music therapists are regulated under the
College of Registered Psychotherapists and Counsellors.
4. Musicking
The term “musicking” was coined by ethnomusicologist
Christopher Small, who suggests that music as a verb, is an
inclusive activity that can be participated in regardless of skill
[44]. Musicking may involve playing a musical instrument,
singing, dancing, and humming. According to Small, it also
includes being a listener or audience member, helping
organize musical experiences, teaching, etc. [28] In the music
care context, musicking refers to informal or spontaneous
music-making within person-centered care models, where
persons, families of persons, facility staff and volunteers all
participate in the act of musicking, and where musicking
activities are specific to the interest, ability and personal
relationship to music of each care partner. For the purposes of
the 10 domains, musicking is distinguished by its spontaneity
and lack of being “programmed”.
5. Programming
Programming implies the use of staff or volunteers within a
facility, or care partners in the community or at home, who
plan for and employ the use of music into recreational or
therapeutic programs that are delivered individually or in
groups [45]. Programming may include music appreciation
e.g. music of Latin America, Beatles’ music, learning about the
polka; games e.g. music bingo, music crosswords, name that
tune; or sing-alongs e.g. live or recorded. Programming might
mean that music is central to the activity itself e.g. going to a
concert, playing piano, or integrated, where music
complements the main activity e.g. peer support groups [46]
adding music to an exercise class [47], singing during
procedures such as bed transfers or dressing changes [48],
playing a selected music program to cue mealtimes [49].
6. Technology
This domain refers to the intentional use of technology to
deliver music for particular therapeutic intention.
Personalized music may be delivered through personal devices
like iPods or iPads [50]. Patient engagement systems which
bring various media together on a single digital platform make
music available right at the bedside [51]. Virtual music
instruments are technologically designed to improve
functionality of music-making where there may be a deficit i.e.
technology for quadriplegics who have lost use of arms and
make music by head movement or eye blinking [52].
7. Sound environment
Sound environments refer to the aural climate of a care space.
It can include ambient healing sounds set intentionally in the
facility such as running water, music, and/or protocol put in
place by the facility or personal home to regulate ambient
noises, such as radio, call bells, appliances, volume of speaking
levels [53]. Environmental psychologists state that audio
environment is an environmental factor in health care, one
that influences health outcomes and can increase or decrease
stress of patients [54,55]. This domain can also include
infrastructural considerations, such as consideration of
acoustics when designing a space, PA systems and general
sound equipment in a space that will impact overall sound
environment.
8. Music Medicine
Music medicine is an umbrella term to describe the
prescriptive use of music-based strategies in interventions for
medically related outcomes [56]. Examples of music medicine
are Rhythmic Auditory Stimulation [57] which stabilizes gait;
Melodic Intonation Therapy [58] a musical intervention to
improve language reacquisition, and low-frequency sound
stimulation [59] which uses sound waves to treat pain from
fibromyalgia.
9. Training
This domain focuses on educating care providers, caregivers
and other stakeholders in the integration and implementation
of music in care. Music care training helps caregivers gain
confidence to integrate music into regular care practice [60-
62]. Music care training may occur at the corporate or facility
level, in the community, online or as a continuing education
course of study at a college or university. While providing
training opportunities for music care in a facility is not
directly a mode of music care delivery to persons, it does
signify an organizational value in a healthcare context that
music is important and relational care is prioritized.
10. Research
Research includes the use of systematic evidence for music
and its use in health care, embracing a range of topics, fields of
study and applied contexts. Music-based research institutes
Music & Medicine | 2016 | Volume 8 | Issue 4 | Pages 199206 Foster, Pearson & Berends | 10 Domains of Music Care
!
!
!
!
!
MMD | 2016 | 8 | 4 | Page 203
exist in Canada including the Music and Health Research
Collaboratory [63], McMaster Institute for Music and the
Mind [64], Conrad Institute for Music Therapy Research [65],
S.M.A.R.T. Lab (Science of Music, Auditory Research and
Technology) [66], Laboratory for Music Perception,
Cognition and Expertise [67]. Peer-reviewed journals about
arts in health is increasing, making it easier to build a case for
funding academically- and/or scientifically-rigorous studies
on the impact of music in care. Examples of such journals
include: Music and Medicine, Arts in Health Care, Music
Perception, Journals of Music Therapy, and The Arts in
Psychotherapy. Similar to the previous domain, while research
in music care areas is different than direct care using music,
engaging in this research indicates the presumed or perceived
value of music in the care culture of that setting.
Discussion and Implications
The 10 Domains of Music Care is meant to be used for three
purposes: for clarification, mapping and optimization. The
framework gives us clearer language for talking about how
music is being used, and helps to clarify the difference
between, for example, music delivery by a community
entertainer, a recreation therapist facilitating a “Remembering
Frank Sinatra program” and a speech pathologist working for
language reacquisition.
The 10 domains provides a mapping tool to help locate
music care delivery that already is taking place in a setting. In
this way, current music care delivery can be identified,
supported and celebrated. Furthermore, the 10 domains
provide a reporting structure for key accountabilities in music
care.
The framework stimulates ideas and possibilities for
music care optimization. It may never have occurred to a care
provider to consider changing the sound environments in a
setting, or adding music medicine interventions to a
rehabilitation program, or providing baseline music care
training for staff and volunteers. The 10 domains can prompt
these ideas as well as provide a strategic planning tool for
growth.
Each of the domains can stand alone, or could be
organized and grouped to reflect aspects of music care
delivery in healthcare settings. The domains may especially
affect person-centered care when grouped into objective areas
by decision-makers. The following discussion speculates on
groupings based on delivery: who delivers music care, who
music care is delivered to, focus and care proximity of
delivery.
Who delivers music care? While music care is something
we can all deliver at some level, musical competencies are
associated with each domain. Musical performance skills and
music care training are two determinants in who delivers what
type of music care. For example, a staff member untrained in
music may decide spontaneously to hum with a person, thus
engaging in musicking. A harp therapist with extensive
musical and therapeutic training may be engaged to play in a
palliative care unit.
To whom is music care delivered? While all care partners
may be the recipients of music care delivery, the music care
domains primarily target one of these three primary groups:
person, caregiver, all care partners. For example, a hospital
sets up a new environmental sound protocol to limit the
amount of distressing noises in the space, thus impacting all
care partners in the facility. By contrast, a self-care program
for family caregivers may be delivered by a music therapist.
What is the delivery focus? Leadership may choose to
focus music care delivery on a person’s leisure time, or on a
specific goal through intervention, or on systemic change. For
example, a person’s care plan might include listening to
familiar music during unstructured time, training gait during
physiotherapy, or elevating mood at all times by integrating
ambient sound into the care environment. It may also focus
on improving morale and strengthening relationships between
all care partners by generally supporting more live musicking
in the space.
What is the care proximity of delivery? Leadership may
also choose to direct resources according to the proximity of
music’s effect on the person, which can be described in three
ways: direct, situational and corroborative. The direct
domains represent domains that come face to face with the
care receiver. Situational domains are present in the care space
and have more of an indirect impact on the care receiver.
Corroborative domains represent delivery domains that
support using music in care. For example, if leadership
decides to integrate music care more effectively into direct
care goals, they may target direct proximity domains.
Meanwhile, research investment into the impact of music on
care goals and culture, or developing technological music
interventions are examples of corroborative proximity.
Table 2 is an example of how the 10 domains can be
mapped according to these different factors. This mapping
may vary depending on the context of care. Specific delivery
methods can fall under more than one domain. For example,
using iPods in memory care falls under the category of
technology and can also be used as programming and to
encourage musicking. A symphony musician playing at a
children’s hospice is an example of community music that
may also be mapped to programming and might generate
musicking.
Music & Medicine | 2016 | Volume 8 | Issue 4 | Pages 199206 Foster, Pearson & Berends | 10 Domains of Music Care
!
!
!
!
!
MMD | 2016 | 8 | 4 | Page 204
Table 2. Example of Domain Groupings Based on Music Care Delivery
The music care framework may serve as a basis for a
strategic comprehensive approach to integrating music into a
care setting. In this way, initiatives can be planned and
budgeted for by administrators as clearly defined budget lines
for music care. Currently, music care practices are often
buried in budget lines such as “programming” or
“recreational therapy”. Strengthening music care’s credibility
and versatility as defined in the 10 Domains of Music Care
may, in fact, persuade administrators towards innovation and
commitment to sustain music care delivery in all of its facets
in regular operational budgets.
Further research and application of the music care
delivery framework could be explored. For example, does
music care delivery function similarly in other countries?
Does this framework suit healthcare best, or could it be used
to deliver music care in other settings as well i.e. schools?
Could the 10 Domains of Music Care provide a model for
framing dimensions of delivery in other health arts?
Conclusion
Initially designed to meet research needs, the 10 Domains of
Music Care can be used as a tool for music care delivery in
healthcare settings by providing clarifying language, a
mapping tool, and a format to generate new ideas for ways of
incorporating music into care. As the importance of music in
care gains more recognition, so does the importance of having
standardized language to discuss and understand it. Having a
music care delivery conceptual framework with which to
locate, understand, and optimize the practice of music in care
not only aligns itself with the changing culture of care in
Canada, but may itself, be an agent of transformation.
References
1. Wyer, P, Alves S, Post S, Quinlan, P (2014). Relationship-centred
care: Antidote, guidepost or blind alley? The epistemology of 21st
century health care. Journal of Evaluation in Clinical Practice;
20.6, 881-889.
2. Downie, J, Llewellyn, J (2008). Relational theory & health law
and policy. Health Law Journal, Special Edition, 193-210.
3. Kitwood, T., & Bredin, K. (1992). Towards a theory of dementia
care: personhood and well-being. Ageing and Society, 12 , pp.
269-287.
4. Kitwood, T. (1997). Dementia reconsidered: the person comes
first. Open University Press.
5. Carlstrom, E, Ekman, I (2012). Organizational culture and
change: implementing person-centred care. Journal of Health
Organization and Management, 26(2) pp 175-191.
6. Squire, S, Greco, M, O’Hagan, B, Dickinson, K, Wall, D (2006).
Being patient-centred: creating health care for our
grandchildren. Clinical governance, 11 (1); ABI/INFORM
Collection.
7. Epstein, R, Street R (2011). The values and value of patient-
centred care. Annals of Family Medicine, 9:100-103,
doi:10.1370/afm.1239.
8. Feo, R, Kitson A (2016). Promoting patient-centred fundamental
care in acute healthcare systems. International Journal of
Nursing Studies, 57 (May) 1-11.
9. Armstrong D (2011). The invention of patient-centred medicine.
Social Theory and Health Suppl. Special Issue: ESHMS Ghent
Congress; 9.4, 410-418.
10. Hutchinson, T (Ed) (2011). Whole person care: A new paradigm
for the 21st century. New York: NY, Springer Science and
Business Media.
11. Hansen, E, Walters, J, Howes, F (2016). Whole person care,
patient-centred care and clinical practice guidelines in general
practice. Health Sociology Review, 25.2, 157-170.
12. Donado, G. (2005). Improving health care delivery with the
transformational whole person care model. Holistic Nursing
Practice, 19.2, 74-77.
Domain
Who Delivers
Delivered to
Leadership Delivery Focus
Delivery Proximity
Musician
Musician
+
Training
Health Care
Professionals
+
Training
Any
one
Person
Care
Giver
All
Care
Professional
s
Leisure
Inter-
vention
Systemic
change
Direct
Situatio
- nal
Corro-
borative
Community
X
X
X
X
Specialities
X
X
X
X
Music Therapy
X
X
X
X
Musicking
X
X
X
X
Programming
X
X
X
X
Sound
Environment
X
X
X
X
Technology
X
X
X
X
Music
Medicine
X
X
X
X
Training
X
X
X
X
Research
X
X
X
Music & Medicine | 2016 | Volume 8 | Issue 4 | Pages 199206 Foster, Pearson & Berends | 10 Domains of Music Care
!
!
!
!
!
MMD | 2016 | 8 | 4 | Page 205
13. Freeman, J (2015). Providing whole-person care: integrating
behaviour health into primary care. North Carolina Medical
Journal, 76.1:24-5
14. Bloom, J (2013). Jewish Relational Care A-Z: We Are Our Other’s
Keeper. London: Routledge.
15. McDonald, KM et al (2007). Closing the Quality Gap: A Critical
Analysis of Quality Improvement Strategies (Vol.7: Care
Coordination). Rockville MD: Agency for Healthcare Research
and Quality, 04 (07)-0051-7.
16. Ells C, Hunt, MR, Chambers-Evans, J (2011). Relational
autonomy as an essential part of person-centered care.
International Journal of Feminist Approaches to Bioethics, 4(2)
79-101.
17. Barkan, B (2003). The live oak regenerative community:
Championing a culture of hope and meaning. Journal of Social
Work in Long-Term Care, 2(1), 197-221.
18. Thomas, W H, & Johansson, C (2003). Elderhood in eden.
Topics in Geriatric Rehabilitation, 19(4), 282-290.
19. Canadian Aboriginal Aids Network (2008). Relational Care: A
guide to health care and support for aboriginal people living with
aids. Available at: http://caan.ca/wp-
content/uploads/2012/05/Relational-Care-20081.pdf. Accessed
on January 16, 2016.
20. Biddy R., Griffin C., et. al. (2015). Person Centered Care
Guideline. Cancer Care Ontario. Available at:
https://www.cancercare.on.ca/common/pages/UserFile.aspx?file
Id=340815. Accessed on December 21, 2015.
21. McGill Programs in Whole Person Care. Available at:
https://www.mcgill.ca/wholepersoncare/whole-person-care.
Accessed on December 21, 2015.
22. Canadian Healthcare Association (2009). New Directions for
facility-based long term care. Available at:
http://www.healthcarecan.ca/wp-
content/uploads/2012/11/CHA_LTC_9-22-09_eng.pdf.
Accessed on May 12, 2015.
23. Canadian Alzheimer’s Society (2012). Person-centered language.
http://www.alzheimer.ca/~/media/Files/national/Culture-
change/culture_person_centred_language_2012_e.pdf .
Accessed on July 29, 2015.
24. Canadian Mental Health Strategy (2012). Changing Lives,
Changing Directions. Available at:
http://strategy.mentalhealthcommission.ca/pdf/strategy-images-
en.pdf . Accessed Mar. 1, 2016
25. Palliative pain and symptom management consultation
program, Southwestern Ontario, Canada (2007). Fundamentals
of hospice palliative care. London, ON.
26. Small, C. (1998). Musicking. Middletown CT: Wesleyan
University Press.
27. Foster B, Pearson S. (2014). The fundamentals of music care:
theory and context. Music Care Certificate Program Student
Manual, Level 1, p 16. Port Perry: The Room 217 Foundation.
28. Nelson, M, Foster, B, Pearson, S, Berends, A, Ridgway, J, Lyons,
R, Bartel L (2016). Optimizing music in complex rehabilitation
and continuing care: A community site facility study. Music and
Medicine, 8 (3) 128-137.
29. Foster, B, Bartel, L (2016). Understanding music care in
Canadian facility-based long term care. Music & Medicine, 8(1)
29-34.
30. MacDonald, R, Kreutz, G, Mitchell, L (2012). Music, Health &
Wellbeing. London: Oxford University Press.
31. Ibid. p 7-8.
32. Music for Healing and Transition Program. www.mhtp.org.
33. Music and Memory. www.musicandmemory.org .
34. Nelson, M, Foster, B, Pearson, S, Berends, A, Ridgway, J, Lyons,
R, Bartel L (2016). Optimizing music in complex rehabilitation
and continuing care: A community site facility study. Music and
Medicine, 8 (3) 128-137.
35. www.chaliceofrepose , Therese Schroeder-Sheker, founder music
thanatology.
36. Sand-Jecklen K, Emerson H. (2010). The impact of live
therapeutic music intervention on patients' experience of pain,
anxiety and muscle tension. Holistic Nursing Practice, 24(1): 7-
15.
37. Williams, S (2006). Harp beat affects heartbeat. The Harp
Therapy Journal, 11(1), 1-12.
38. Briggs, T (2003). Live harp music reduces anxiety of patients
hospitalized with cancer. The Harp Therapy Journal, 03, V.8-#4,
pp. 1,4,15.
39. Aragon, D, Farris, C, & Byers, J (2002). The effects of harp
music in vascular and thoracic surgical patients. Alternative
Therapies, 8(5), 52-60
40. Health Arts, www.healtharts.og
41. Artists in Healthcare Manitoba, artistinhealthcare.com
42. Music Can Heal www.MusicCanHeal.org
43. Canadian Association of Music Therapy. www.musictherapy.ca
44. Small, C (1998). Musicking. Middletown CT: Wesleyan
University Press.
45. Smith-Marchese K. (1994). The effects of participatory music on
the reality orientation and sociability of Alzheimer’s residents in
a long-term care setting. Activation, Adaptation and Aging.
18(2): 41-55.
46. Theurer, K (2015). The need for a social revolution in residential
care. J Aging Stud, 9(35)201-10
47. O’Konski, M, Bane, C, Hettinga, J, Krull K (2010). Comparative
effectiveness of exercise with patterned sensory enhanced music
and background music for long-term care residents. Journal of
Music Therapy, Summer 2010, 47:2:120-136.
48. Hammar L et al (2010). Reactions of persons with dementia to
caregiver singing in morning care situations. Open Nursing
Journal, 4:35-41, DOI: 10.2174/1874434601004010035.
49. Hicks-Moore, S L (2005). Relaxing music at mealtime in nursing
homes: effects on agitated patients with dementia. Journal of
Gerontological Nursing,31(12): 26-32.
50. Janata, P (2012). Effects of widespread and frequent personalized
music programming on agitation and depression in assisted
living facilities. Music Medicine, 4(1) 8-15.
51. Gerdner LA, Schoenfelder DP (2010). Individualized music for
elders with dementia. Journal of Gerontological Nursing. 36:6: 7-
15.
52. Music and Memory Project and the Alive Inside Documentary
Film, 2014. www.musicandmemory.org,
53. Drahota A, Ward D, MacKenzie H, Stores R, Higgins B, Gal D,
Dean T. (2010). Sensory environment on health-related
outcomes of hospital patients. Cochrane Review.
DOI: 10.1002/14651858.CD005315.pub2
54. Mazer S. (2014). Music as environmental design. Healing
Healthcare Systems. 1-7.
55. Ulrich R S. (2010). Effects of Healthcare Environmental Design
on Medical Outcomes. International Academy for Design and
Health. WCDH 1-11.
56. Racette, A., Bard, C., Peretz, I. (2006). Making non-fluent
aphasics speak: Sing along! Brain: American Journal of
Neurology, 129 (Pt 10): 2571-2584.
57. Thaut, M H, McIntosh G C, Rice R R, Miller R A, Rathburn T,
Brault J M. (1996). Rhythmic auditory stimulation in gait
training for Parkinson’s Disease patients. Journal of Movement
Disorders. 11(2) 193-200.
58. Norton A, Zipse L, Marchina S, Schlaug G. (2009). Melodic
Intonation Therapy Shared insights on how it is done and why
it might help. The Neurosciences and Music III: Disorders and
Music & Medicine | 2016 | Volume 8 | Issue 4 | Pages 199206 Foster, Pearson & Berends | 10 Domains of Music Care
!
!
!
!
!
MMD | 2016 | 8 | 4 | Page 206
Plasticity: Annals of New York Academy of Sciences. 1169:431-
436.
59. Naghi L, Ahonen H, Macario P, Bartel L. (2015). The effect of
low-frequency sound stimulation on patients with fibromyalgia:
a clinical study. Pain Research Management. 20(1): 21-27.
60. Thaut MH, Hoemberg V, (2014). Handbook of Neurologic Music
Therapy. Oxford University Press.
61. Music therapy continued education training
www.musictherapyed.com
62. Music care training, www.room217.ca
63. Music and Health Research Collaboratory
www.uoftmusicmahrc.ca
64. McMaster Institute for Music and the Mind
www.mimm.mcmaster.ca
65. Conrad and Penny Manfred Institute for Music Therapy
Research https://wlu.ca/programs/music/graduate/music-
therapy-mmt/index.html
66. S.M.A.R.T. Lab http://www.ryerson.ca/bpac/frankrusso.html
67. Laboratory for Music Perception, Cognition and Expertise
http://daniellevitin.com/le
Biographical Statement
Bev Foster, MA, is the Founder and Executive Director of the
Room 217 Foundation, an organization dedicated to care
through music.
Sarah Pearson, MMT, MA, is a Music Therapist specializing in
inpatient oncology and palliative care, the program
development coordinator at the Room 217 Foundation, and a
clinical music therapy supervisor at Wilfrid Laurier University,
in Waterloo, ON.
Aimee Berends, MMT, MTA, MT-BC, is a Music Therapist and
Musician in Vancouver, working predominantly in mental
health and addictions.
... The practice of implementing arts into health care has gained traction in recent years for the many health benefits it offers [1]. One approach that can utilize the arts to improve health is the person-centered approach, which is becoming increasingly more popular, especially in Canada [2]. Person-centered care promotes patient autonomy and allows patients to have a voice in their care plan by considering their needs, preferences, and quality of experience in the approach [2]. ...
... One approach that can utilize the arts to improve health is the person-centered approach, which is becoming increasingly more popular, especially in Canada [2]. Person-centered care promotes patient autonomy and allows patients to have a voice in their care plan by considering their needs, preferences, and quality of experience in the approach [2]. For example, art programs are being offered more and more to elders in long-term care (LTC) (especially those with dementia) with the goal of creating meaningful personal experiences [3]. ...
... The perceived lack of autonomy and control is linked to negative physical and mental health side-effects, namely including depression [18] which has also been linked to dementia as a risk factor and symptom [19]. Giving the residents the choice to have their family participate and allowing them to choose which art type and performer to connect with is a form of person-centered care [2] which can mitigate the negative mental and physical health side-effects that result from a perceived lack of autonomy and control. ...
Article
Full-text available
The arts offer many health benefits and can be especially impactful in hospital or continuing care facilities through group art interventions or personalized art activities. Arts can also be socially prescribed to fulfill social needs, improve emotional well-being, and have a positive impact of the social determinants of heath. This feasibility study explores the value of a pilot program that brought personalized virtual 1-on-1 art performances to residents in long-term care (LTC) during the Covid-19 pandemic which limited social activities and caused feelings of uncertainty and stress for many people. The purpose of this study was to document the process of developing and executing this pilot program, to evaluate its feasibility, and to provide a testimony to the benefits of art programs in LTC. This study qualifies as a feasibility study because it aimed to evaluate the quality, efficiency, and financial feasibility of the pilot project, making the primary objective of this research quality improvement. Online surveys were completed by the participating LTC residents, the Recreation Staff in the LTC facility, the hired artists, and the organizing team (Radical Connections). The results of the surveys strongly indicate that the pilot was successful and proved to be viable; the sessions were high quality, person-centered artistic care was made accessible to a vulnerable population at a sustainable cost, and most importantly, a demand for this type of program was revealed.
... This broader movement involves a range of initiatives including: music therapy, where trained therapists use music prescriptively for health and wellbeing; music medicine, where the sonic, vibrational, and rhythmic properties of music and sound are used as medicine; other kinds of music-based programming, like offering care home residents personalized playlists; and organizations like the Room 217 foundation which offers caregivers, with and without musical skill, the training and resources to integrate music into many aspects of their practice in order to deliver 'music care' [56]. Music Connects Us primarily addresses the music care domain of musicking, which is the promotion of spontaneous and informal engagement with music (e.g., listening, music-making) [57], and offers residents a specialized, time-limited musical experience. The time-limited nature of Music Connects Us, as well as the fact that it can only reach select residents from a care home, are key limitations to its potential impact. ...
... Our team raised these concerns, and we continue to explore how to address these issues moving forward. Including care providers in sessions may prime care home organizations to become interested in a broader 'music care' program such as that offered by the Room 217 Foundation and which aims to engage all care providers to integrate music into residents' daily lives [57], bringing complementary interventions together to extend their positive effects. Future research should explore the complementary, synergistic qualities of distinct music-based interventions with the aim to develop the evidence base for various uses of music in care environments. ...
Article
Full-text available
There is a need for intervention research to understand how music-based group activities foster engagement in social interactions and relationship-building among care home residents living with moderate to severe dementia. The purpose of this conceptual paper is to describe the design of ‘Music Connects Us’, a music-based group activity intervention. Music Connects Us primarily aims to promote social connectedness and quality of life among care home residents living with moderate to severe dementia through engagement in music-making, supporting positive social interactions to develop intimate connections with others. To develop Music Connects Us, we adapted the ‘Music for Life’ program offered by Wigmore Hall in the United Kingdom, applying an intervention mapping framework and principles of engaged scholarship. This paper describes in detail the Music Connects Us program, our adaptation approach, and key adaptations made, which included: framing the project to focus on the engagement of the person living with dementia to ameliorate loneliness; inclusion of student and other community-based musicians; reduced requirements for care staff participation; and the development of a detailed musician training approach to prepare musicians to deliver the program in Canada. Description of the development, features, and rationale for Music Connects Us will support its replication in future research aimed to tests its effects and its use in clinical practice.
... Research has demonstrated that the benefits of music care, a non-invasive means of improving QoL, extend beyond negating the consequences of disease. Music care, distinct from music therapy, is an approach to care that provides the means for anyone, regardless of their musical competence or credentials, to use music in their day-to-day care of patients (Foster B et al., 2016). The music care approach was developed in a Canadian context by the Room 217 Foundation and has been tested and applied within the UK health and social care system. ...
Article
Full-text available
The nature of hospice and palliative care (HPC) settings necessitates supporting residents’ ever-changing needs and responding to unforeseeable situations – as such, this unpredictability has historically challenged the collection of high-quality data in such settings. Through a feedback consensus approach, this pilot study sought to determine the feasibility of implementing a clinical trial aiming to understand the impact of a recorded music care intervention on quality of life (QoL) in HPC settings. Four participants with a palliative performance scale (PPS) score of ≥ 40 were recruited. Pre-developed music care albums designed for HPC were used as an intervention for a minimum duration of 30-minutes. The Edmonton Symptom Assessment Scale, Hospice Quality of Life Index, and State-Trait Anxiety Inventory were implemented to mirror a future randomised controlled trial (RCT) design but were not statistically interpreted in this pilot study. Data collectors also recorded participants’ and care providers’ perspectives. Through feedback from participants, healthcare professionals, and music care experts, the intervention duration was reduced to a minimum of 15-minutes, and the PPS inclusion criteria requirement was eliminated. The number of outcome measures was reduced from three to one to mitigate participant burnout. Finally, participants indicated that the recorded music intervention was therapeutic, therefore justifying further study of QoL outcome measures. Implementing a second pilot to validate the changes to the RCT study protocol will be a critical step in the research process, although the results of this study can be considered by researchers conducting RCTs in HPC to inform best practices.
... Zahlreiche Verwendungen von Musik im Gesundheitswesen können hilfreich oder sogar heilsam sein, ohne dabei unter eine Definition von MT zu fallen -auch wenn sie von Musiktherapeut:innen ausgeführt werden. Foster, Pearson & Berends führen unter dem Oberbegriff Music Care zehn unterschiedliche "Domänen" auf, von denen MT eine ist ( [22], S. 201). Zu den anderen Domänen zählt etwa die MusikMedizin ( [23], S. 14) oder die Pflege des "Sound Environment" der Klinik bzw. ...
Article
Full-text available
The definition of a therapeutic discipline provides an important position-fixing and offers orientation for patients, interested parties and professional actors in health care. The definition of music therapy (MT) serves both the self-portrayal of music therapists and the professional classification in the institutions of the public health care system. Thus it contributes decisively to the professional political profiling. There is currently no definition of music therapy in Germany that fits well into the German health system. In this article, different definitions are presented and critically questioned. Against the background of new developments within MT, the necessity for a new definition is shown. This is presented and explained in its conceptual components.
... Music is a non-pharmacological tool that can be used to elicit positive social outcomes in the LTC context [17]. "Music care" is defined as the intentional use of music by anyone to enhance the quality of care provided [18,19]. Associations exist between engagement and decreased odds of loneliness when examining receptive arts activities for older adults [20]. ...
Article
Full-text available
This qualitative study aims to understand the lived experience of residents and other stakeholders during the implementation of a comprehensive music program in long-term care. It was conducted using a subset of 15 long-term care homes from the Room 217 Foundation Music Care Partners (MCP) “Grow” study in Ontario, Canada. The MCP program’s approach to music delivery uses therapeutic music practices such as “music care” to improve the care experience for caregivers and residents in long-term care homes. Thirty-two participants were interviewed, including staff, volunteers, and residents. Data were transcribed and analyzed using a modified grounded theory approach based on emergent themes. In total, seven themes arose from the data: limited resources, distinct experiences, life enrichment, dynamic relationships, program flexibility, potential continuity, and enhanced socialization. This study provides insight on barriers, enablers, and outcomes of the MCP program and on key considerations for implementing a novel interdisciplinary music program in a healthcare setting.
... The "community music intervention" in this study was designed to incorporate several interconnecting principles, including connection, engagement, involvement, and humanity [36,38]. The present study details qualitative findings related to a multi-year intervention for adults with ADRD and their caregivers. ...
Article
Full-text available
(1) Introduction: Caring for an adult with dementia is both challenging and rewarding. Research indicates that community-based, social support, and/or arts engagement interventions can play a key role in ameliorating the negative outcomes associated with caregiving while enhancing its more positive attributes. This study explores the psychosocial outcomes experienced by dementia caregivers who participated in a multi-year, multidimensional intervention aimed at promoting caregiver and care recipient well-being. This intervention included bringing caregivers and people with Alzheimer’s disease or related dementias (ADRD) to local symphony performances, hosting a social reception prior to the performance, and assessing the outcomes of participation for both caregiver and the care recipient. (2) Materials, Methods, and Analysis: Qualitative data from participant phone interviews (n = 55) as well as focus groups are analyzed using thematic analysis from a phenomenological perspective. (3) Results: Across three years of participation, caregivers reported three main program benefits: relationship building (both with other participants as well as within the broader community); restored humanity (experiencing a greater sense of personal dignity and momentary return to normalcy), and positivity (experiencing positive emotions during the program). (4) Discussion: These findings point to the value of creating caregiver programming that brings together multiple dimensions of successful interventions in order to enhance caregiver experiences and positive intervention outcomes.
... One current concept that is gaining traction is the music care approach [55], which promotes the use of sound and music to meet challenges of care. It is an approach that values and engages the musical efforts of all caregivers, not just those who are musically trained. ...
Article
Full-text available
This paper is in three sections. Section One presents a historical overview of international initiatives that have expanded the role of music in healthcare, from the initial formalization of music therapy to its more research-based rehabilitation focus to recent decades that have seen an increasing role for professional and community musicians, paraprofessional music services, music-oriented service organizations, and a very large increase in medical funding for music effects. “Music Care” is a particular and comprehensive concept promoted by the Room 217 Foundation in Canada, featuring an inclusive and integrated approach to optimizing the use of music in healthcare settings. It is part of an expanding landscape of global practices and policies where music is used to address specific issues of care. Section Two is provided as an illustration of the growing scope of the concept of using music in healthcare. It reports on a multi-year project that engaged 24 long-term care homes in conducting individualized action research projects using the fundamental approach of “Music Care”, empowering all caregivers, formal and informal, musicians and non-musicians, to use music to improve quality of life and care. Section Two presents only high-level results of the study focused on using music care to reduce resident isolation and loneliness. Section Three draws on the results from the study reported in Section Two to inform the potential and path to the future of music optimization in any healthcare setting.
Conference Paper
Full-text available
In almost every country in the world, the proportion of people aged over 65 years is growing faster than any other age group. An aging population is accompanied with concerns about health and well-being. Being a caregiver seems to be inevitable, and death is more certain. Music care is an approach that believes all of us can use music for health and well-being in our own lives and in those we care for. Music care integrates sound, silence, and music into life and death, paying close attention to how interpersonal connection and human contact is enhanced through musical associations. Music care aims to enhance well-being and quality of life for all people. The Room 217 Foundation is a social enterprise that uses music to leverage a more human approach to care. With a focus on the aging population, Room 217 develops music care resources for vulnerable populations, comes alongside caregivers to help integrate music into regular practice, and leads applied research, building evidence in music’s efficacy as a person�centred and non-pharmacological means of care. This chapter chronicles the Room 217 story, its compelling beginning, unfolding mission and results, and vision for the future.
Technical Report
Full-text available
The music care approach is a paradigm being developed by the Room 217 Foundation which promotes the use of sound and music to meet challenges of care, such as social isolation and loneliness of LTC residents. This approach empowers staff to use music as a holistic and human solution. Music Care Partners is the next phase of development in the music care approach. The Partners pilot study has collected outcomes data to show that music care is a viable change agent that addresses needs and challenges of persons living in LTC. Room 217 received a seed grant from the Ontario Trillium Foundation to conduct the research in 3 Ontario LTC homes: Fenelon Court, Fenelon Falls, Port Perry Place, Port Perry, and Lakeview Manor, Beaverton. In this pilot study, an adapted participatory action research methodology was used. The process included exploring (reconnaissance between investigators and LTC site team, defining the issues), training (baseline music care training including sound and music theory with experientials and strategies), planning (choosing a strategic goal with the music care delivery framework, determining evaluation tools and recruitment criteria, establishing steps, timelines and assigning responsibilities), acting and evaluating (implementing the music care initiative plan, collecting and analyzing the qualitative and quantitative data), reflecting (LTC site team/community making meaning of the results), and pivoting (celebrating the music care initiative or intervention and results, determining next steps). Through this pilot study conducted in the context of LTC, Room 217 has developed the Integrated Model of Music Care (IMMC). The IMMC bundles essential components of music care delivery into an actionable and measurable plan, which may be adaptable across the care spectrum to make meaningful change in other healthcare settings.
Chapter
The arts and dementia is a vibrant and multidisciplinary area of healthcare research, policy and practice. Uniquely situated at the intersection of various academic disciplines, paradigms and traditions, what tools and approaches are most effective for understanding this diverse and burgeoning field? This chapter explores how the arts and dementia evidence base has been strengthened by blending methodological approaches from the humanities and sciences to demonstrate how arts interventions can benefit people with dementia. In what ways can researchers identify, ‘measure’ and communicate the impact, effectiveness and outcomes of arts interventions for people with dementia? How can researchers reconcile scientific rigour with creative understandings and person-centred insights? By combining mutually enhancing methods, it is possible to generate multidisciplinary findings that are as robust as they are rich.
Article
Full-text available
Loneliness and depression are serious mental health concerns across the spectrum of residential care, from nursing homes to assisted and retirement living. Psychosocial care provided to residents to address these concernsik is typically based on a long-standing tradition of 'light' social events, such as games, trips, and social gatherings, planned and implemented by staff. Although these activities provide enjoyment for some, loneliness and depression persist and the lack of resident input perpetuates the stereotype of residents as passive recipients of care. Residents continue to report lack of meaning in their lives, limited opportunities for contribution and frustration with paternalistic communication with staff. Those living with dementia face additional discrimination resulting in a range of unmet needs including lack of autonomy and belonging-both of which are linked with interpersonal violence. Research suggests, however, that programs fostering engagement and peer support provide opportunities for residents to be socially productive and to develop a valued social identity. The purpose of this paper is to offer a re-conceptualization of current practices. We argue that residents represent a largely untapped resource in our attempts to advance the quality of psychosocial care. We propose overturning practices that focus on entertainment and distraction by introducing a new approach that centers on resident contributions and peer support. We offer a model-Resident Engagement and Peer Support (REAP)-for designing interventions that advance residents' social identity, enhance reciprocal relationships and increase social productivity. This model has the potential to revolutionize current psychosocial practice by moving from resident care to resident engagement.
Article
Full-text available
... of workplaces than do comparable groups with views of built environments, and ... by emphasizing the inclusion of characteristics and opportunities in the environment that re ... the following general guidelines are proposed for creating supportive healthcare environments: • Foster ...
Article
Full-text available
Integrated primary care in a patient-centered medical home is the best way to invite patients to engage in better self-care, to move from provider-based care to team-based care, and to address whole-person needs. However, primary care-whether rural or urban, public or private-cannot become the default mental health system for North Carolinians with severe mental illness.
Book
A ground-breaking new volume and the first of its kind to concisely outline and explicate the emerging field of whole person care process, Whole Person Care: A New Paradigm for the 21st Century organizes the disparate strains of literature on the topic. It does so by clarifying the concept of 'whole person' and also by outlining the challenges and opportunities that death anxiety poses to the practice of whole person care. Whole person care seeks to study, understand and promote the role of health care in relieving suffering and promoting healing in acute and chronic illness as a complement to the disease focus of biomedicine. The focus is on the whole person -- physical, emotional, social, and spiritual. Using concise, easy-to-read language, the early chapters offer practitioners a thorough understanding of the concepts, skills and tools necessary for the practice of whole person care from a clinician-patient interaction standpoint, while the last two chapters review the myriad implications of whole person care for medical practice. An invaluable resource for all areas of medical practice and for practitioners at all stages of development, from medical students to physicians and allied health providers with many years of experience, Whole Person Care: A New Paradigm for the 21st Century will have a profound impact on western medical practice in North America and elsewhere.
Article
This article is the second in a three-part series on the theory and applications of a music care framework. Music is increasingly being recognized in health care as an effective psycho-social and rehabilitative intervention. Currently, there is little standardization as to how music may best be integrated into health care settings. It is the absence of standardization that prompted the authors to identify new possibilities for integrating music in health care. The purpose of this study was to explore how music could be optimized in complex rehabilitation and continuing care environments, using one such facility in Ontario, Canada, as an example. Data collection focused on the feasibility of incorporating music in care delivery by surveying stakeholders regarding the potential for music in the facility, and collecting specific ideas for the integration of music within the space. Participants’ perspectives were collected using 4 methods: design charrettes, a musical café, an electronic questionnaire and ‘idea boxes’. Data revealed participants’ perceived values and assumptions about the importance of music in care. The researchers utilized a conceptual framework of music care, which was designed to help clarify various dimensions of music in care, assist in the mapping of existing music care initiatives, and identify opportunities to optimize the use of music in care. The study concluded with site specific recommendations, which may be applicable to other health care settings.
Article
Clinical practice guidelines (CPGs) are a central technique within the evidence-based medicine (EBM) movement. General practice is an area of medicine that seems to be particularly resistant to the use of CPGs. This article contributes to the debates about GPs and CPGs by reflecting on three different Australian studies conducted by the authors in an attempt to better understand variations between GPs’ practices and the recommendations found in relevant CPGs. These projects focused on dementia, chronic obstructive pulmonary disease and hypertension (high blood pressure). A common finding across the three studies was that GPs described how their focus on the whole person and their patients’ priorities and needs meant that the recommendations found in CPGs were not always appropriate or easy to apply. In doing this, our study participants were describing tensions between the holistic/whole person and patient-centred approach of GPs and the narrow disease-specific focus of guidelines. Our work provides insight into the rationality of GPs and illustrates some of the ways that whole person care and patient-centred care create operational challenges to the application of EBM in the form of CPGs.
Article
Meeting patients’ fundamental care needs is essential for optimal safety and recovery and positive experiences within any healthcare setting. There is growing international evidence, however, that these fundamentals are often poorly executed in acute care settings, resulting in patient safety threats, poorer and costly care outcomes, and dehumanising experiences for patients and families. Whilst care standards and policy initiatives are attempting to address these issues, their impact has been limited. This discussion paper explores, through a series of propositions, why fundamental care can be overlooked in sophisticated, high technology acute care settings. We argue that the central problem lies in the invisibility and subsequent devaluing of fundamental care. Such care is perceived to involve simple tasks that require little skill to execute and have minimal impact on patient outcomes. The propositions explore the potential origins of this prevailing perception, focusing upon the impact of the biomedical model, the consequences of managerial approaches that drive healthcare cultures, and the devaluing of fundamental care by nurses themselves. These multiple sources of invisibility and devaluing surrounding fundamental care have rendered the concept underdeveloped and misunderstood both conceptually and theoretically. Likewise, there remains minimal role clarification around who should be responsible for and deliver such care, and a dearth of empirical evidence and evidence-based metrics. In explicating these propositions, we argue that key to transforming the delivery of acute healthcare is a substantial shift in the conceptualisation of fundamental care. The propositions present a cogent argument that counters the prevailing perception that fundamental care is basic and does not require systematic investigation. We conclude by calling for the explicit valuing and embedding of fundamental care in healthcare education, research, practice and policy. Without this re-conceptualisation and subsequent action, poor quality, depersonalised fundamental care will prevail.
Chapter
The Live Oak Regenerative Community has been applying a new culture of aging throughout the continuum of life for elders since 1977. Among a number of models for culture change, the Live Oak Regenerative Community is distinguished by its focus on building a healthy culture for aging rather than on mitigating the negative effects of aging. This paper tells the story of the development of the Live Oak Regenerative Community. it describes the values, the processes and the roles that enable the model to impact the lives of elders and to transform institutions. it describes the theoretical framework for the Regenerative Community and presents stories that illustrate how the approach has worked. A vision is offered for the Live Oak Elders Guild, an approach to creating a new role for elders of the new millennium.
Article
The Live Oak Regenerative Community has been applying a new culture of aging throughout the continuum of life for elders since 1977. Among a number of models for culture change, the Live Oak Regenerative Community is distinguished by its focus on building a healthy culture for aging rather than on mitigating the negative effects of aging. This paper tells the story of the development of the Live Oak Regenerative Community. It describes the values, the processes and the roles that enable the model to impact the lives of elders and to transform institutions. It describes the theoretical framework for the Regenerative Community and presents stories that illustrate how the approach has worked. A vision is offered for the Live Oak Elders Guild, an approach to creating a new role for elders of the new millennium.