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Purpose: While research has begun to explore the management of aphasia across the continuum of care, to date there is little in-depth, context specific knowledge relating to the speech pathology aphasia management pathway. This research aimed to provide an in-depth understanding of the current aphasia management pathway in the acute hospital setting, from the perspective of speech pathologists. Method: Underpinned by a social constructivist paradigm, the researchers implemented an interpretive phenomenological method when conducting in-depth interviews with 14 Australian speech pathologists working in the acute hospital setting. Interview transcripts and interviewer field notes were subjected to a qualitative content analysis. Results: Analysis identified a single guiding construct and five main categories to describe the management of aphasia in the acute hospital setting. The guiding construct, First contact with the profession, informed the entire management pathway. Five additional main categories were identified: Referral processes; Screening and assessment; Therapeutic intervention; Educational and affective counselling; and Advocacy. Conclusions: Findings suggest significant diversity in the pathways of care for people with aphasia and their families in the acute hospital setting. Additional support mechanisms are required in order to support speech pathologists to minimise the evidence-practice gap. Implications for Rehabilitation Significant diversity exists in the current aphasia management pathway for people with acute post-stroke aphasia and their families in the acute hospital setting. Mechanisms that support speech pathologists to minimise the evidence-practice gap, and consequently reduce their sense of professional dissonance, are required.
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‘I do the best I can’: An in-depth exploration of the aphasia management pathway in
the acute hospital setting
Abby M. Foster1, Linda E. Worrall1, Miranda L. Rose2, & Robyn O’Halloran2
1. School of Health and Rehabilitation Science, The University of Queensland, Brisbane, Australia
2. School of Allied Health, La Trobe University, Melbourne, Australia
Address for correspondence:
Professor Linda Worrall
School of Health and Rehabilitation Sciences
The University of Queensland
Brisbane QLD 4072 AUSTRALIA
Telephone: +61 7 3365 2891
Email: L.Worrall@uq.edu.au
KEYWORDS: aphasia; acute hospital settings; speech and language pathology; clinical
decision making
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ABSTRACT
Purpose: While research has begun to explore the management of aphasia across the
continuum of care, to date there is little in-depth, context specific knowledge relating to the
speech pathology aphasia management pathway. This research aimed to provide an in-depth
understanding of the current aphasia management pathway in the acute hospital setting, from
the perspective of speech pathologists.
Method: Underpinned by a social constructivist paradigm, the researcher implemented
interpretive phenomenological method when conducting in-depth interviews with 14
Australian speech pathologists working in the acute hospital setting. Interview transcripts and
interviewer field notes were subjected to a qualitative content analysis.
Results: Analysis identified a single guiding construct and five main categories were
identified to describe the management of aphasia in the acute hospital setting. The guiding
construct, First contact with the profession, informed the entire management pathway. Five
additional main categories were identified: Referral processes; Screening and assessment;
Therapeutic intervention; Educational and affective counselling; and, Advocacy.
Conclusions: Findings suggest significant diversity in the pathways of care for people with
aphasia and their families in the acute hospital setting. Additional support mechanisms are
required in order to support speech pathologists to minimise the evidence-practice gap.
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The provision of speech pathology intervention for people with aphasia in the acute hospital
setting has the potential to result in improved longer-term communicative outcomes [1], an
increased sense of satisfaction for people with aphasia with regards to their healthcare [2], an
improved ability to have healthcare needs met, and a reduction in hospital-based adverse
events [3]. These strong rationales, in combination with advances in the awareness of
potential clinical applications of neuroplasticity principles [4] and a growing organisational
focus on the implementation of evidence-based practice (EBP), have resulted in an increased
interest in the management of aphasia in the acute phases of recovery.
Exploring the literature in relation to the management of aphasia in the acute hospital setting
is, however, not without its challenges. Within the aphasia literature terminology such as
‘acute phase’ or ‘early stage’ tends to be indicative of time post onset (i.e., 1-3 months post
onset), and as such does not take into account the location of services being provided (i.e., the
acute hospital setting or the rehabilitation ward) [5]. This acts as a hindrance to understanding
practice as barriers to the provision of aphasia management that may not occur in other
settings may exist in the acute care hospital.
Clinically, two distinct treatment paradigms exist in relation to the management of aphasia.
These paradigms are informed by the International Classification of Functioning, Disability
and Health (ICF) [6]. Impairment-based approaches refer to intervention targeting the Body
Functions and Structures section of the ICF. Approaches to intervention addressing the
Activity and Participation components of the ICF are most often described by speech
pathologists as functional approaches. Within the available literature, two distinct schools of
thought regarding the management of aphasia in the acute hospital setting can be identified:
those who advocate for the provision of information, support, and counselling by consultant
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speech pathologists [5,7-9], and those who advocate for very early, impairment-based
intervention [1,10,11]. Those advocating for a consultative role for speech pathologists
believe that education, counselling, and compensatory efforts to maximise communication
are primary goals [5] in the acute hospital setting. They use the anticipated positive effects of
spontaneous recovery, and a lack of feasibility of impairment based intervention in the
majority of cases, as a rationale for this approach. Conversely, those supporting very early
impairment-based interventions cite the potential for therapy-induced recovery in line with
the application of the neuroplasticity principles of ‘use it or lose it’ and ‘use it and improve it’
to aphasia rehabilitation [4]. Much of the research literature in this area to date is based upon
expert opinion, and reflects the different beliefs about what the goals of assessment and care
should be [5]. It is clear that research questions in this area remain [12].
Recommendations for best practice in the management of aphasia in the acute hospital
setting
Speech pathologists report that clinical guidelines are the main source of research evidence
used to guide their aphasia management [13]. Derived from a critical, systematic evaluation
of all relevant literature, clinical guidelines provide a series of ‘best-practice’ statements to
facilitate collaborative clinical decision making within specific areas of healthcare practice
[14]. Rather than stipulating the timing of specific interventions, clinical experience and
reasoning must be utilised to ascertain the relevance of a specific recommendation at any
given time, based on the clinicians understanding of the practice context and the patient’s
wishes. Despite this, some concerns have been raised in relation to the rigid implementation
of guidelines without consideration of the broader patient and contextual factors [15].
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Internationally, a range of clinical guidelines which describe the management of aphasia exist
[e.g., 16,17-20]. In Australia, the Australian Aphasia Rehabilitation Pathway (AARP) [21]
was also recently made available. These guidelines represent the breadth of speech
pathologists’ practice in the management of aphasia in the acute hospital setting, and across
the continuum of care. A systematic evaluation of the quality of guidelines exploring aphasia
management available at the time has suggested significant variability in the guideline
development process, and also in the scope of the recommendations provided within the
guidelines [22]. While the majority of synthesised research included in current guidelines
garners only a low-level grading for the aphasia-related recommendations, it is important to
acknowledge that the strength of this grading is not necessarily reflective of the clinical
importance of the recommendation, but rather a reflection of research design and the stage of
research development in the area [18].
A number of factors, however, have been reported to influence the implementation of clinical
guidelines. In the first in-depth qualitative study exploring stroke guideline implementation
by speech pathologists, Miao, Power and O’Halloran [23] indicated that speech pathologists
considered the perceived relevance of the guidelines to their workplace, the degree of change
required compared to the available resources, and their personal motivation to make change
in their clinical practice when attempting to integrate recommendations into practice.
Explorations of current practice in acute aphasia management
Despite the number of guidelines available, little is known about current aphasia management
practices in the acute hospital setting (i.e., what specific services and intervention are
provided by speech pathologists), or the clinical decision making that underpins the
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management pathway. A number of issues make understanding current practice in aphasia
management difficult. These include:
(a) Some of the existing literature focuses on a single practice domain, such as
assessment [24], and as such does not provide a comprehensive overview of current
practice;
(b) The rapidly changing healthcare climate means that existing literature is likely to
become rapidly outdated [e.g., 13,25];
(c) Data about aphasia practices collected from clinicians across the continuum of care
[e.g., 13,25,26] may not represent the service provided by clinicians working in the
acute care setting; and,
(d) Survey data alone is insufficient to allow for a comprehensive understanding of the
reasons underlying the clinical decisions which underpin the current management
pathway.
Current data about aphasia practice in the acute hospital setting is, however, in agreement that
the amount of time devoted to people with aphasia in is incongruent with best practice
recommendations [e.g., 25,27,28-30].
Despite these limitations, the national survey by Rose et al. [26] does provide some data
regarding current aphasia practice across the continuum of care. The researchers sought to
explore current aphasia rehabilitation practices in Australia, and did include data collected
from speech pathologists working in the acute hospital setting. The findings reported that
dysphagia was the main caseload for 89% of clinicians working in the acute hospital setting.
Cognitive neuro-psychological, social, and group approaches to the management of people
with aphasia were considered less appropriate in the acute phase of care. Time restrictions,
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perceived limitations on scope of practice, and the expectations of family members were also
reported to shape the service provided to people with aphasia in acute care settings.
Pertinently, responses to open-ended questions by clinicians in the acute hospital setting
indicated the dissonance experienced by some clinicians in relation to the de-prioritisation of
aphasia services.
While this provides us with some preliminary data regarding current practice, a greater
understanding of current practice is required in order to support speech pathologists working
in this field, within this context. The need for current data is especially important in the
context of an evolving healthcare system, in which greater demands are placed on clinicians’
time within the acute hospital setting and clinicians time is therefore prioritised. In order for
clinicians to be able to provide effective and efficient interventions which meet the economic
needs of the healthcare organisation and the needs of people with aphasia and their families,
whilst also providing professional satisfaction for the speech pathologists, a cohesive picture
of current management approaches which explores the underlying decision making is
essential. Hence the aim of this study is to understand current aphasia management practices
by speech pathologists who work in the acute hospital setting.
METHODS
Research purpose
This research forms part of a larger qualitative study exploring the experience of aphasia
management in the acute hospital setting from multiple perspectives. The aim of this
particular study was to understand the current acute aphasia management pathway from the
perspective of speech pathologists.
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Research paradigm and strategy
A qualitative research approach is essential when a deep and detailed understanding of a
complex phenomenon is sought [31]. In addition, this approach is supported when little is
known about the topic under investigation [32]. As such, within this study qualitative
research methods were utilised as a means to document and describe the lived experience of
acute aphasia management from the speech pathologists’ perspective. A social constructivist
paradigm provided the foundation for this study. Social constructivism relies on the use of
inductive methods within naturalistic settings to understand experience through the
perspectives of individuals [32-34]. An interpretive, or hermeneutic, phenomenological
research strategy was implemented. This choice is supported by two main arguments. Firstly,
it is consistent with the aims of the research in that it allows for the development of a deep
understanding of a particular phenomenon from multiple perspectives [35]. As the purpose of
this research is to understand the aphasia management pathway in the acute hospital setting
from the perspective of speech pathologists, the selection of a research strategy that allowed
the researcher to move beyond description in attempt to understand underlying perceptions
was considered appropriate. Secondly, interpretive phenomenology is consistent with the
underlying paradigm, with both acknowledging the role of the participant, researcher, and
their personal experiences in the co-construction of knowledge [33,36,37]. Ethical approval
was granted by The University of Queensland’s Behavioural and Social Sciences Research
Ethics Committee prior to the commencement of this research.
Participants
Speech pathologists currently working with (or having recently worked with) people with
post-stroke aphasia in acute hospitals across Australia were invited to participate in this
study. Participants were recruited through a range of sources in order to appropriately sample
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the target population. Recruitment was initiated through the distribution of expression of
interest forms: (a) at meetings, forums, and conferences; (b) through listservs targeting speech
pathologists practising or interested in the management of adult clients; and, (c) to the speech
pathology departments of hospitals reported as having a stroke care unit or greater than one
hundred stroke admissions a year. A total of 36 speech pathologists expressed interest in
participating in this research. Those who expressed interest in the research were solely from
the eastern states of Australia: Queensland, New South Wales, Victoria, and Tasmania. A
purposive, maximum variation sampling [38] technique was utilised in order to achieve
variation in participants across: (a) duration of clinical experience; (b) regional and
metropolitan workplace settings; (c) private and public sector workplace settings; and, (d) the
presence or absence of an acute stroke unit (ASU) in the participant’s workplace setting.
Meaningful selection of participants in order to provide adequate data to elucidate the
phenomenon of aphasia management was central to the selection of participants, rather than
attempts to create a representative sample [38] or generalise the information [33]. As such, no
set formula was applied to determine sample size in this study [38,39]. A flexible approach to
sampling was used, without pre-established and rigid knowledge of the number of
participants to be recruited [32]. The sample size was influenced by our desire to interview
speech pathologists across different variation criteria, and to approach a sense of saturation.
Fifteen speech pathologists were selected to take part in this research; however one speech
pathologist’s interview data was excluded when it became known that she was not currently
practising (and had not recently practised) in an acute hospital setting. Interview data from 14
speech pathologists was included in the final analysis. Participant characteristics are
illustrated in table 1. Diversity in state of clinical practice was also achieved, with the sample
including clinicians from New South Wales (n=3), Queensland (n=3), Tasmania (n=1), and
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Victoria (n=7). All participants were allocated a pseudonym for the purposes of the research
and all subsequent reporting.
Table 1. Participant characteristics (n = 14)
Participanta
Duration of clinical
experience as a
speech-language
pathologist
Setting of clinical
role
Presence of acute
stroke unit in
hospital of
employment
Sector of
employment
Ada
< 5 years
Metropolitan
ASU present
Public
Amy
< 5 years
Metropolitan
ASU present
Public
Beth
< 5 years
Non-metropolitan
ASU present
Public
Celeste
< 5 years
Metropolitan
ASU present
Private
Danielle
>15 years
Metropolitan
ASU present
Public
Josie
< 5 years
Metropolitan
ASU present
Public
Karen
5-15 years
Metropolitan
ASU present
Private
Leah
5-15 years
Metropolitan
ASU present
Public
Mae
>15 years
Metropolitan
ASU present
Private
Monica
5-15 years
Non-metropolitan
No ASU
Public
Rachael
>15 years
Metropolitan
ASU present
Public
Stella
5-15 years
Metropolitan
No ASU
Public
Tess
5-15 years
Non-metropolitan
No ASU
Public
Viv
< 5 years
Non-metropolitan
ASU presentb
No ASUb
Publicb
Privateb
a Pseudonyms were used
b Clinician worked across two clinical settings
Research method
Methodological congruence was achieved through the selection of a research method which
philosophically aligned with the underlying research paradigm and strategy. Semi-structured,
in-depth interviews engage the participant in conversation to elicit their understanding and
interpretations, by reflecting on their lived experience [40-42]. In order to generate discussion
about the speech pathologists’ experience of working in acute aphasia management, speech
pathologists were instructed to Tell me about your experiences of working with people with
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aphasia and their families in the acute hospital setting. Additional topics probed include: the
standard speech pathologist management pathway for people with acute post-stroke aphasia;
the influences on decision making in acute post stroke aphasia management; and, the barriers
and facilitators to achieving evidence-based practice in acute post stroke aphasia
management. A broad topic guide was used, however the interviews were characterised by
flexibility in the order and the wording of questions, allowing the researcher to follow the
participant’s lead. The interviews were recorded on a digital audio recorder, and were later
transcribed verbatim by the primary researcher or an independent transcription professional.
Data analysis
All data were stored and managed within NVivo 9 [43]. The data were analysed using
qualitative content analysis [44]. This allowed for systematic analysis of the data [45], during
which the categories and their content were derived inductively from the data [44]. Consistent
with phases of inductive content analysis described by Elo and Kyngäs [44], following a
period of open coding, categories were grouped together under higher order headings. These
were then reduced into broader, higher order categories, at which point each category was
named using content-characteristic words.
Rigour
Within qualitative research, the rigour of the methodology can be established by the degree to
which the study demonstrates credibility, transferability, dependability and confirmability
throughout the research process [46]. Within the current study, a process of peer checking
and debriefing was used. This allowed for the discussion of transcripts and emergent
categories between all authors to ensure interpretations being made were reasonable and were
strongly linked to the source data. Debriefing sessions were also an opportunity for the
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research team to employ reflexivity, acknowledging the potential influence of their prior
clinical and research experiences on the process of data generation and analysis and
identifying any sources of potential bias. In addition to this, an audit trail, containing
documentation of theoretical, methodological and analytic choices, was kept by the primary
researcher. A record of evidence consisting of the raw data, products of data analysis, and
products of data synthesis form the audit trail in this study. Additional strategies included
member checking of transcript accuracy, whereby interview transcripts were sent to
participants and amendments to or clarifications of content and/or meaning could be provided
prior to analysis. Moreover, the presentation of preliminary findings at international
conferences was used to ascertain the resonance and value of the findings to researchers and
clinicians. Finally, rigour is supported in the reporting process (demonstrated in this
manuscript) through the use of thick description [32], illustrative quotations from the
interview transcripts, and a comparison of the findings with the existing research literature
[31].
RESULTS
A single guiding construct and five main categories were identified to describe the
management of aphasia in the acute hospital setting. The guiding construct, First contact with
the profession, was identified as it informed the entire management pathway. Five additional
main categories, related more specifically to the tasks undertaken as a part of acute aphasia
management, were identified: Referral processes; Screening and assessment; Therapeutic
intervention; Educational and affective counselling; and, Advocacy. Each of these categories
is discussed below.
Guiding construct
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What [are they] gonna think of me in a year?: First contact with the profession
A number of speech pathologists who participated in this research indicated that they were
acutely aware that, as they worked in the acute hospital setting, they may be the first contact
that people with aphasia and their families had with the profession.
‘I always kind of have in the back of my mind I am the first person that’s gonna talk to
them, that is going to talk to them about it. And I always wonder what, what they’re
gonna think of me in a year when they’re actually, they’ve improved’ (Josie)
This responsibility was weighty, as it had the potential to establish the long-term perception
that patients held of the profession. Perhaps in response to this, the speech pathologists in this
study felt the need to build strong relationships and provide hope, but also temper
expectations.
Relationship building is important
Possibly as a result of the desire to create a positive impression of the profession, the
participants in this study placed emphasis on relationship building with people with aphasia
and their families. Notably, equal if not greater emphasis was placed on building
relationships with the family members. Ada reports ‘…taking those initial few sessions to
really spend time with the family, really try as, as much as you can to, to build rapport and
relationship with that patient .
Giving hope
Instilling hope in people with aphasia and their families was articulated as an explicit goal of
acute speech pathologists by a number of participants in this study. Beth articulated the
importance of this, suggesting that using the acute hospital stay as a time to build motivation
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and hope was an essential element to prepare people with aphasia for the hard work
essential to moving towards living successfully with aphasia.
In the acute phase you spend just that time building rapport for that little bit before
you push them to do too much hard stuff. Um, and more of that recognition of what’s
happened with their communication before you actually start. And just saying to them,
You know, we can do some work around this,” and that sort of thing. There’s hope.’
(Beth)
Participants described that clinically, this manifested in discussions regarding the potential
for linguistic recovery, but also in discussions of the nature of communication. Rachael
reported that one of the first messages I usually try and give to the families…is that, you
know, “You will still communicate. You know, there will still be communication”’, alluding to
the multimodal nature of communication. The importance of instilling hope in people with
aphasia and their families is illustrated in Rachael’s words: Hope, I think, is the key.
Tempering expectations
Some speech pathologists saw it as important to balance the provision of hope with the
provision of realistic expectations regarding linguistic recovery post-stroke. One less
experienced speech pathologist in particular found this a difficult challenge, saying, I think
there’s always those, um, patients who, unfortunately, might have too much hope. And it’s
always, you know, so distressing to kind of, bring them back down…just acknowledging that,
might not get much better but it could get a bit better (Josie).
In addition to tempering the expectations of recovery, the need to moderate the expectations
of service delivery was also considered to be an important role. As the first point of contact
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with the profession, these speech pathologists also felt that it was their responsibility to set up
realistic expectations for the person with aphasia and their family. Firstly, it was perceived as
being important that the acute speech pathologists provided a clear idea of their capacity to
provide service to people with aphasia in the acute hospital setting. This was especially
important for speech pathologists who did not feel their service was consistent with best
practice recommendations, who felt it important to just mak[e] patients and families aware
that, you know, research would say that I should be seeing you every day or thereabouts and
I would like to, but we’re short staffed and so that’s not gonna happen’ (Leah). In addition to
this, one speech pathologist reported that she tried to avoid ‘setting the bar too high’ in terms
of the service that would be provided in the rehabilitation setting, suggesting that this would
be unfair to the rehab therapists (Josie). This was in stark contrast to a number of other
speech pathologist participants who reported that people with aphasia were much more likely
to get a service which approximated the recommended intensity in the rehabilitation setting.
Main categories
Primarily, it is important to note that there was no ‘standard’ pathway for the management of
aphasia across the participants in this research project. Even clinicians practising in the same
Australian state did not share common management practices. Each participant described a
unique pathway, with emphasis placed on different roles played by the speech pathologist in
this setting. The lack of consensus regarding the ‘correct’ management approach was
highlighted by one participant, who reported, I guess I've been, um, it's been tossed around a
little bit to try and come up with the best pathway for acute management. Um, personally
tossing up, “Oh, it is more important to do the education or the assessment, or is the
assessment even relevant?” Um, so it has been a bit tricky, actually. And I…I don't think that
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I have answer (Celeste). Despite these differences, some commonality was evident, and the
following categories were derived from these common elements.
Referral processes
The referral processes for people with aphasia in acute hospital settings varied greatly
between settings. A continuum of referral mechanisms was observed. At one end of the
continuum, a blanket referral for speech pathology assessment of communication was made
in order to ensure that every patient who comes in with a TIA or CVA gets screened for
communication problems (Amy). This method of referral was most common in hospitals in
which an acute stroke unit was present. At the other end of the spectrum, people with aphasia
were at times not referred to speech pathology until the point of discharge, at which time
speech pathologists were told, ‘“Oh, this patient’s going home but they’re still having some
word finding difficulties, can you see them?”’ (Leah). Delayed or inefficient referral
mechanisms were more commonly described in the private sector, or in hospitals without
acute stroke units.
Most speech pathologists who participated in this study indicated that referrals to speech
pathology in the acute hospital setting are often generated in response to dysphagia, rather
than communication impairments. Leah reported that this was due to the perceived urgency
of dysphagia management, suggesting that the referral will usually happen because their
swallowing needs assessing. You know, urgently (Leah). For referrals to be generated for
aphasia, a marked aphasia easily recognised by staff less familiar with communication
impairments needed to be present in some settings. It would depend on their severity of
their, um, aphasia as to whether we'd get called down or not (Tess). It was suggested,
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however, that regardless of the reason for referral, receiving timely referrals was important
and allowed early access to people with communication impairments. In Stella’s words, we
are very lucky here that our nursing staff…refer all the strokes to us, but from a swallow
point of view, from a swallowing perspective. But at least that’s a referral, so that means that
we can then see them, and we still will screen them and if need be they’ll get the input for
their aphasia that they need. So we are lucky in that way (Stella).
One speech pathologist’s experience of different referral mechanisms led to her reflecting on
the potential influence that these have on the timeliness and amount of speech pathology
intervention able to be offered to people with aphasia in the acute hospital setting.
At [metropolitan public hospital] they have an alert, so we all know that a stroke
patient has come into the hospital into ED and I can go down as soon as I get that
page. Whereas, um, at [outer metropolitan public hospital] or at [metropolitan
private hospital], um, I won't know that there's a stroke patient here until the
consultant refers me. So I'm, in terms of getting acute aphasia management, I might
miss that really important first couple of days and maybe only get referred later down
the track. (Celeste)
While some expressed frustration at their current referral mechanisms, implicit in their
responses was a perceived inability to directly affect change in this area and an acceptance of
current practice.
We need to know what's wrong with you so we can help you: Focus on screening and
assessment of aphasia in the acute hospital setting
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The accurate assessment of aphasia was seen by these speech pathologists to be the cardinal
component of speech pathology intervention in this setting, with every participant describing
a mechanism for identifying the presence and severity of aphasia. Rachael reported that
obviously she needed to do an assessment with the patient, and Viv characterised
assessment by saying the main thing that we want to do is assess our patients right, you
know correctly. Screening and assessment was considered by the participants to be of
importance for a number of reasons, including: (a) to provide diagnostic information; (b) to
provide a structure in which to discuss the patient’s function with their families; and (c) to
determine suitability for rehabilitation planning and facilitate discharge planning.
Throughout the interviews there was little, if any, differentiation between the terms screening
and assessment, with many of the participants using the terms interchangeably. Participants
were, however, keen to distinguish their assessment from assessments or screenings
undertaken by other professions, such as the medical team, in terms of content, depth, and the
rationale for undertaking the assessment.
The method for assessing language in the acute hospital varied significantly across clinicians.
By far the most widely described means of screening or assessing communication in people
with aphasia within the acute hospital setting was an ‘informal communication screener’.
This terminology, although not consistent across participants, was used to describe a tool
which had not been validated or standardised, and for the most part had been designed ‘in
house’ as a conglomeration of sub-tests from existing, formalised language assessment tools.
Informal screening tools were described as being able to be modified without concern, and
also allowed clinicians ‘to assess what’s happening across modalities’ (Rachael). This
informal approach was strongly advocated for by some, who suggested there would be
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certainly no formal assessment with the patient at that stage (Tess). Rather, their preference
was to ‘get that overall feel for [the person with aphasia’s] language’ (Amy), while
simultaneously protecting the person with aphasia from the experience of failure which may
accompany formalised assessment and conserving precious time. The ability to use a less
structured, more informal approach to assessment was described as a skill which evolved
with clinical experience. Viv suggested her capacity to use informal conversation to provide
an assessment had grown, and contrasted this to her previous reliance upon structured,
written tools. This notion was supported by Josie, a newer clinician, who described her
process of making the change from structured to informal methods.
‘Maybe we’ll just try to have a chat about their garden or something. I think going
about the assessment in a different way. I think I’ve started trying a lot more of that’
(Josie)
A preference for formalised screening tools was expressed by some participants who felt that
the standardised nature of the screening homogenised the process, provided a structure upon
which to provide education, and was a baseline measure to which outcomes can be compared.
I always like to do a standardised assessment with everybody, and whether that's a
screening - um, the Frenchay or the Sheffield - I feel like I like to have a formalised
assessment for everybody rather than, um, an informal questions type thing. So I do
one for everybody and then I have something that I can tell the family or that I can do
a baseline for, so I know that I've got that information (Celeste)
A complete, formalised language assessment in the acute setting was considered essential for
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some clinicians, like Karen who recounted, I'll do a formal language assessment, even
before they get down to rehab, just so I know where I'm going. I don't wait for them to go to
rehab to do that stuff. Josie described the potential to undertake a formalised language
assessment, but her language was littered with conditional terminology: ‘…if it was the right
patient, um…and if there was not that many people on the caseload, I could definitely start
one (authors’ emphasis). In contrast to this, Tess reported that there would never be a
circumstance in which she would administer a formalised language assessment in the acute
setting as the time to do a full assessment on [people with aphasia] doesn't exist. In addition
to this, rapid changes in communication presentation of the person with aphasia, short length
of stay, environmental design and the patient’s linguistic background were cited as reasons
for not undertaking formalised language assessment.
The assessment tasks described were mostly focused on the identification of deficit in the
individual with aphasia. The tasks described by participants, including object naming, single
word comprehension, and repetition, had an impairment-based focus. Some described a
preference for impairment-based assessment as ‘it’s nice to have something that’s a bit more
concrete (Rachael). Functional assessment of communication was considered by most to be
secondary, something that goes alongside (Rachael) the impairment-based assessment.
While the value of functional assessment was recognised by some, such as Ada who asked,
What can we put in place to make this person um, able to get their needs and wants across to
the nurses and their family the best they can? there was little discussion of how these
evaluations were undertaken.
Speech pathologists indicated the importance of communicating the assessment findings and
recommendations, and placed emphasis on the transmission of this information to nursing
21
staff. Participants depicted a range of different explicit communication strategies, including
bedside signage, documentation in the medical record, and direct interaction with nursing
staff. Leah contrasted the way in which the findings of a swallowing assessment were
communicated with the way communication recommendations were communicated, saying:
‘[Following a dysphagia assessment] we put up a sign about the beds, saying ‘This is
what diet they’re on’. But we don’t put a sign saying, “This is how they communicate
with this person. Please put my hearing aid in, please speak Russian to me, please
write down key words”. You know. From a total communication point of view, I don’t
think we’re doing that well.
In addition to this, speech pathologists discussed the implication of assessment findings not
being understood or adhered to. This experience, it was suggested, was deeply frustrating for
the speech pathologist.
‘It’s frustrating when…you’re with someone else but you can see your stroke patient
over there and the nurse doing an awful interaction with them, and you just, it is it’s
really frustrating (Stella)
I do the best I can: Approaches to aphasia intervention
Goal setting for therapy
Notable in the transcripts of these interviews was a paucity of discussion surrounding goal
setting. Little emphasis was placed on the process goal setting in the acute hospital setting,
and the difference in goal setting in the acute and the sub-acute sectors was accentuated. Amy
suggested that in the acute setting, goals are - sometimes I feel like they’re not quite so
individual for the patient but just sort of general goals. Clinical experience across the
continuum of care was reported to influence goal setting in the acute hospital setting, with
Stella suggesting that as a result of that experience she could see where that line is of “what
22
they need to be doing on an acute ward”, and what they need to be doing once they get to
rehab and they, they’re trying to get back to their old way of life”’. The language used in the
discussion of goal setting with people with aphasia tended to lack inclusive terminology,
suggesting that the process was clinician- rather that patient-driven. For example, Josie
reported that I suppose I try to set them what I think could be attainable goals (authors’
emphasis). Of the few participants who discussed goal setting, the setting of small, achievable
goals was described as being important in the acute hospital setting, as was preparing the
person with aphasia for the sort of goals which may be addressed in the rehabilitation setting.
Provision of therapy
Variation between participants was observed in relation to the provision of therapy in the
acute hospital setting. Very few participants reported providing daily intervention to people
with aphasia in the acute hospital setting. Clinicians who did provide intensive therapy tended
to be more experienced, and employed in clearly delineated roles where their expertise in
communication disorders was recognised by both the speech pathology and multidisciplinary
teams. One such clinician provided insight into her personal motivation to provide therapy in
the acute hospital setting, suggesting that she didn’t want to focus on assessment alone and
was thus driven to provide therapeutic intervention. The more dominant narrative, however,
was one of not being able to achieve this in the context of competing priorities, as described
by Tess:
If they're straight aphasic with nothing else, because of prioritisation and, um,
because of just your time limitation…the time to be seeing them for daily therapy
doesn't exist and it's a huge gap. And, it frustrates me because I like [laughs] working
with aphasia and I think there's so much potential for things to be done on the acute
ward (Tess)
23
Participants also suggested some alternatives to providing direct therapy to people with
aphasia in the acute hospital. The first of these was ‘being available’. Josie indicated that
‘being available is my key thing…even if I can’t do anything for them, at least I can talk to
them about it, or, and be honest (Josie). The other alternative was a ‘communication check’,
which was characterised by participants as a brief contact in which an informal review of the
person with aphasia’s language was undertaken.
Viv recognised that not providing direct therapy represented an evidence-practice gap in her
clinical work, and expressed concern that the evidence is saying, you know, a couple of
hours [of therapy] a day, well…I really can’t get that done on the acute siteSo I do the best
I can. A dissonance created by the inability to provide intervention as level consistent with
best-practice recommendations was reported by many of the speech pathologists participating
in this research.
Underlying therapeutic paradigms
While a difference in underlying perspective was noted in the responses of the participants,
the paradigms underpinning their practice were not discussed explicitly by the participants in
this research. Participants touched on intervention across the ICF [6] domains, however
discussion of the integration of these components was limited.
These speech pathologists, for the most part, described taking an impairment based approach:
I feel, um [pause] it's very impairment based. I don't do a lot of functional… it just doesn’t
seem as relevant in that acute stage (Karen). A variety of interventional modalities
including tablet applications and worksheets were described as targeting the language
24
impairment of the person with aphasia. The use of impairment-based worksheets was the
most widely described approach to intervention, although the limitations of this were
discussed. Worksheets were generally required to be completed independently, or with the
support of family if they were present. Stella suggested that the intensity of rehabilitation
could be increased if ‘it’s exercises that are easy to grab, and easy to give to someone else to
do. Of concern, one less experienced clinician suggested a lack of critical thinking in the
provision of impairment-based therapeutic activities, reporting ‘I’ll choose something or
maybe one or two things, just from a folder that’s been upstairs for probably a long time’
(Josie).
Approaches to intervention addressing the activity and participation components of the ICF,
most often described by speech pathologists as ‘functional approaches’, were recognised by
these participants as being of value and importance to people with aphasia. Rachael, an
experienced clinician, described it as being important to try and encourage those people with
aphasia to be as independent as possible and to be as, um, empowered I suppose as possible
and not reliant on a, a relationship, um, that can’t necessarily, um, extend, you know, out into
the community and you know (Rachael). Another experienced clinician, Tess, also favoured
a functional approach which demonstrated what [people with aphasia] can do and not just
seeing what they can't do (Tess). Some of the implications of people with aphasia not being
included in communicative interactions in the acute hospital setting described by the
participants included low mood, increased risk of adverse events, an inability to express their
needs, and a reduction in participation in healthcare decision making. One speech pathologist
described communication groups being run in the acute hospital setting to meet the needs of
people with aphasia in a functional way. Others described including people with aphasia in
conversation, although did not explicitly characterise this as an intervention. Primarily, the
25
functional interventions that were described as being used in the acute hospital setting were
limited to the use of personally relevant vocabulary.
We might work on naming people in the photos…but not much work on taking them
into an environmental setting or conversing with other people…not really much on
training them with a conversational partner (Amy)
It was also acknowledged by the participants that the goals of speech pathology practice may
differ between the acute and sub-acute settings, with acute focussing on health from a
medical perspective and sub-acute adopting a biopsychosocial perspective. These differences
in perspectives, which underpin clinical practice, may go some way to explaining the
reported practice in the acute care setting.
Very blurred line: Educational and affective counselling by speech pathologists for
people with aphasia and their families in the acute hospital setting
Speech pathologists who participated in this study discussed their roles in the provision of
both educational and affective counselling to people with aphasia and their families in the
immediate aftermath of stroke. All saw educational counselling as a central role of the
profession; however, divergence in opinion existed regarding the role of the speech
pathologist in the provision of affective counselling. Of interest, many reported a lack of
distinction between the two counselling domains, suggesting that that the boundaries between
educational and affective counselling were not clearly delineated in the management of
aphasia.
I think the process of educational counselling often has a very blurry line into some
emotional support. Um, because it, it just brings up all the things that they can’t do,
or all the things that they’re having a little bit of trouble with that they used to be able
26
to do very well, and so you then…yeah it’s, it’s a very blurred line I think between
education and yeah, emotional counselling (Ada)
Provision of information
Information provision was described by all participating speech pathologists as being carried
out as part of their standard management pathway for people with aphasia. Despite this, no
consistent process was identified. Information provision took two primary forms: provision of
written information, and provision of verbal information. Written information was generally
reported as taking the form of standardised, in house produced documents, handouts
produced by the National Stroke Foundation, or on occasion guides published by the
Australian Aphasia Association. The content of verbally provided information was not
explicitly discussed by participants. What was evident, however, was that the majority of
information regarding stroke and aphasia was provided to the families of people with aphasia
rather than the people with aphasia themselves in the acute hospital setting. This is of
concern as communication professionals, through their behaviour, may be perceived as
endorsing a model of care in which people with aphasia are unable to understand, to be
included, or to participate in their own healthcare.
Generally I find with somebody who is clearly going to be aphasic long term, the
initial time is spent very much with supporting the family - um, educating the family,
giving them lots of information, reassuring them about communication and the
broader kind of, um, aspects of communication and describing what I think might be
happening with their, their loved one. Um, so a lot of that acute time is spent with
family rather than the patient
27
Josie extended this thought, reporting that she ‘think[s] it’s funny what things we as a team
keep from not just as speech pathologists not keep from patients but we don’t always
discuss everything that we know is probably going to happen.
The content of education provided to the families of people with aphasia was reported to be
very dependent as well on the family’s acceptance and the family’s ability to take that on
board (Stella). Additional characteristics that promoted the provision of education to the
families of people with aphasia are described by Leah, who suggested that ‘a family who’s,
who’s concerned and present and interested, I will be putting more of a focus on educating
them. Leah went on to characterise this as a manifestation of her family-centred practice,
suggesting that every patient’s different, and every family’s different. And I think that tends
to drive, in a way, the way that you work.
Despite their focus in clinical practice being on the provision of education to the families of
people with aphasia, some participants in this study also acknowledged an awareness of
people with aphasia reporting limited access to education in the acute hospital setting.
That counselling role can be quite tricky: Affective counselling
Participants acknowledged the emotional experience that people with aphasia and their
families experience in the immediate post-stroke period, with the associated feelings of loss
and grief. Ada felt that part of the reason speech pathologists may be asked to take the role of
affective counselling is because ‘we’re the ones that understand that communication better
out of all of the team members, and so the families tend to look to you and unload a little bit
on you. However, in contrast to the congruence of opinion on the provision of informational
counselling, substantial inconsistency was noted between participants when they described
28
their involvement in the provision of affective counselling. Three distinct groups of speech
pathologist participants emerged: (1) those who perceived counselling to be very much a part
of their role; (2) those who put boundaries around the extent to which they would engage in
counselling; and, (3) those who did not participate in the provision of counselling.
Leah suggested that ‘[counselling people with aphasia is] our role more than anyone’s. So, I
can’t shirk that’. Agreeing with this statement, Rachael identified the significant role she
played in counselling the families of people with aphasia, but also finished her statement with
a concession that this may not be true for all speech pathologists.
Certainly a lot of my role is a counselling role, um, especially I think…with families
in that traumatic kind of devastating acute setting, our role is, it definitely crosses
over into pure counselling, um, without question - or certainly my role does
(Rachael)
In contrast, a large group of participants felt that ‘it’s a very important part of our role to
counsel about aphasia (Stella; authors’ emphasis). They were eager to point out, however,
that there were boundaries around their counselling service provision, and identified that
‘there’s definitely been times where I have to put my hand up and say, “You know what, I
don’t think I’m the right person for you to talk to”’ (Ada).
Finally, there were those who felt that counselling was definitely not the role of the speech
pathologist, and created clear role distinction between themselves and other members of the
multidisciplinary team more suited to the role (i.e., clinical psychologists, social workers).
They suggested that, when [people with aphasia] start talking about that emotional loss, not
just about communication…things are no longer in my expertise to talk about’ (Karen).
29
Amy discussed feeling that ‘it’s hard because we’re not quite trained in counselling’. She
went on to describe her lack of confidence and perceived skill in the provision of counselling:
I think the informational type of counselling, I have the knowledge to be able to
answer most of the questions, and so that’s a lot easier than if it’s to do with their
emotions. Being able to, I guess, be supportive of them and knowing what to say is
more difficult (Amy)
The provision of affective counselling by participants in this study to people with aphasia and
their families in the acute hospital setting was noted to relate not with their level of clinical
experience, as may be anticipated, but rather with their perception of their role and their
confidence in undertaking this task. For example, while the moderately experienced Karen
and Stella did not see affective counselling as part of their role, the less experienced Celeste
was more willing to take on the role.
‘We’re their voice when they don’t have one’: The advocacy role of speech pathologists in
acute aphasia management
Advocating for people with aphasia was described by these participants as one of the roles
they placed great emphasis on in the acute hospital setting, with some characterising
advocacy as my number one [thing I can do for people with aphasia] (Tess). The
significance of this role was considered to be greater in the context of language impairment
of people with aphasia, and their perceived inability to act as advocates for themselves as a
result. In the words of Viv, I think we do take on [the role of advocate], um, and because we
can be their voice often, we’re their voice when they don’t have one’ (Viv). The advocacy
role taken on by these speech pathologists took two main roles: (1) advocacy for greater
awareness of aphasia within the acute hospital setting; and (2) advocacy for access to
30
intervention for people with aphasia.
Advocacy for greater awareness of aphasia within the acute hospital setting
Raising the profile of aphasia, and other communication-related impairments, was considered
by the participants in this study to be important as a means of advocating for people with
aphasia. The inevitable comparison with the awareness of and focus on dysphagia
management was drawn by many. One relatively inexperienced clinician commented that:
I suppose the sad thing is, is that everybody really focuses on, “Can they eat?” and
which is very important but um…you know, the more I’m working in stroke the more
I’m, I’m starting to realise that we, I just need to advocate more for communication
impairments (Josie)
The perceived response to this is that aphasia gets left behind a little bit on the ward (Tess).
However, while this was reported to be important by these speech pathologists, few discussed
explicit strategies that they used to raise the profile of aphasia.
It was suggested by the participants that awareness of aphasia was greater in acute stroke
units, where everybody, um, knows about communication impairments and knows they exist
(Josie), than on general acute wards. Despite this increased awareness, Josie reported that
staff in acute stroke units will often say the patient is confused when they’re actually
aphasic, and I suppose, um, advocating for a patient is, can be a bit tricky, especially when,
when um, you know it’s a, it’s a pure aphasia and they’re not confused. Um, and just
constantly reminding people about that (Josie).
Advocacy for access to intervention for people with aphasia
31
The primary role of speech pathologists in advocating for access to intervention for people
with aphasia was to promote the necessity of their access to rehabilitation service post-
discharge. However, one participant working in the private healthcare sector additionally
described the need to advocate for her patients in order to access an increased length of stay
for people with aphasia. I mean, um, if the doctors want to push someone to be discharged
because they're able to walk, they're able to eat and drink, but they're not able to
communicate, um, I definitely do say that I want more time (Karen). An increased length of
stay was considered essential in this setting, as private patients may not have access to
intensive rehabilitation services in the community.
A greater proportion of participants, however, spoke about their role in fighting for access to
rehabilitation services for people with aphasia outside of their ward. Some reported arguing
to have people with aphasia transferred to rehabilitation as soon as possible especially
because you know that they’re not getting the time that they, um, really should be getting
while they’re here in the acute setting’ (Stella). Others suggested that their advocacy was
required in order to have the need for rehabilitation acknowledged at all, I guess advocating
for the potential for change. Let's advocate for them to be able to go to rehab and have a go.
Um, it doesn't mean instant nursing home, it doesn't mean instant care (Tess). This
advocacy role was described by some as a battle (Josie), but one considered worth fighting
in order to allow people with aphasia access to that intensive input that they deserve and that
they need to improve (Stella).
DISCUSSION
The most striking finding of this research is the implication that there is no standardisation in
the management of people with aphasia in the acute hospital setting, with significant diversity
32
described between participants. This is perhaps not surprising given speech pathologists
documented reliance on clinical expertise as a primary source of evidence [47,48]. Duffy and
his colleagues [5] account for some of this variability by discussing the need to situate a
hospital within a broader healthcare journey for people with aphasia with a variety of
entrance and exit points, which may have a major influence on the nature and extent of
hospital care (p. 49). However, the practice inconsistencies raise some questions regarding
the equity of service being provided to people with aphasia and their families. While the
authors do not advocate for rigid, formulaic practice an oft cited concern of those in
opposition to evidence-based practice [15] we do support the need for clinicians working in
aphasia intervention in the acute hospital setting to be supported to approximate best-practice
recommendations. True evidence-based practice (EBP) requires the integration of the
research evidence, clinical expertise, the views and values of the client, and consideration of
the practice context [49-51].
The variability in the acute aphasia management pathway may in part be attributable to
variable levels of confidence [52] and self-efficacy [53] in the speech pathologists
interviewed. This may, in part, reflect limited exposure to people with aphasia. As discussed
in the introduction, dysphagia is considered to be the primary caseload for the vast majority
of clinicians working in the acute hospital setting [26]. This imbalance of services was
reiterated by the participants in this study, many of whom report a high representation of
people with swallowing disorders on their caseload. Variation in levels of confidence and
self-efficacy are strikingly overt in the participants’ discussion of the provision of affective
counselling, where discussion of their lack of confidence was explicit, consistent with the
findings of another recent Australian study [54]. Insecurity regarding their role in
communication management may be inferred by the emphasis these clinicians place on
33
advocating for rather than providing direct therapeutic intervention to people with aphasia.
The focus of energy on advocating for access to rehabilitation rather than providing
rehabilitation may be considered conciliatory. The extent to which variability in other areas
of practice may also be attributable to this a lack of confidence is worthy of further
consideration, and may account for some of the unease expressed by the participants.
The speech pathologists who participated in this study reported a clear awareness of the
current best-practice recommendations for the management of aphasia. Findings suggest an
inherent awareness of the underlying neuroplasticity principles that apply in the acute phases
of stroke recovery. In addition, acute speech pathologists are acting as advocates for the
profession and the value of intervention for people with aphasia. However, they also
demonstrated a perception of little capacity to enact management consistent with these
evidence-based recommendations, and articulated recognition of an evidence-practice gap.
The dissonance arising from this evidence-practice gap is clearly articulated in this research,
and is reinforced by similar findings in the literature [26,55].
Also evident in this study was a lack of consistent terminology across the country in relation
to the management of aphasia. This was most notable in the interchangeable use of the terms
‘screening’ and ‘assessment’. In these times of healthcare rationalisation, clarity of
terminology in this area may facilitate clearer role delineation, and the potential for
acceptance of alternative service delivery models. For example, communication screening
may be undertaken by a trained nurse or allied health assistant, freeing up speech pathologists
for formalised assessment and/or therapeutic intervention.
34
Speech pathologists working in the acute hospital setting work within the medical model
imposed by the setting. Consistent with the medical model, the terminology used across the
interview suggested a focus on the communication impairment being experienced by the
person with aphasia. This is evident in the title of some of the main categories, including we
need to know what’s wrong with you so we can fix you (authors’ emphasis), and ‘we’re their
voice when they don’t have one’ (authors’ emphasis). While this perspective was not shared
by all participants, the concern in relation to this narrative is that the focus on impairment and
diagnosis has the potential to disable rather than enable people with aphasia. An alternative
narrative could, for example, adopt a therapeutic assessment approach [56] in order to
identify the strengths of people with aphasia, and supporting people with aphasia to actively
participate in their own healthcare by interviewing them to understand their communication
needs in this setting [57] and through the creation of a supportive communicative
environment in the acute hospital.
The findings of this research support survey data exploring aphasia rehabilitation practices
within Australia [26], fleshing out the data by providing in-depth, personal accounts of
current practice within the specific context of the acute hospital setting. Additionally, since
the completion of data collection in this research project, the Australian Aphasia
Rehabilitation Pathway (AARP) [21] was released. The AARP provides a series of best
practice statements, supporting references, and useful resources, and aims to enhance
clinicians’ access to research evidence as a means of improving the patient experience for
people with aphasia and their close others across the continuum of care. Of interest, many of
the Core Areas identified in the AARP correlate with the categories emerging from the
participants’ discussion of their current management pathways (see table 2).
35
Table 2. A comparison of Core Areas from the Australian Aphasia Rehabilitation Pathway (AARP; 2014) and
the categories emerging from the current research
AARP Core Areas
Categories emerging from the current research
Receiving the right referrals
Referral processes
Optimising initial contact
‘What [are they] gonna think of me in a year?’: First contact with the
profession
Setting goals and measuring
outcomes
-
Assessing
‘We need to know what's wrong with you so we can help you’: Focus
on screening and assessment of aphasia in the acute hospital setting
Providing intervention
‘I do the best I can’: Approaches to intervention
Enhancing the communicative
environment
-
Enhancing personal factors
-
Planning for transitions
‘We’re their voice when they don’t have one’: The advocacy role of
speech-language pathologists in acute aphasia management
Comparison also reveals a number of ‘gaps’ present in the speech pathologists’ descriptions
of their practice. It must, however, be noted that the AARP represents the entire rehabilitation
process, rather than the acute hospital setting particularly, and as such some divergence is to
be anticipated. Some gaps, however, are worth commenting on. Goal setting, for example,
was discussed in a limited capacity by a small number of participants only within the
category of ‘I do the best I can’: Approaches to aphasia intervention, however did not
emerge as an independent category. Explicit description of a process of collaborative goal
setting was not provided. This could, in part, be accounted for by the passive role sometimes
assigned to people with aphasia in the acute hospital setting. Alternatively, consistent with
the findings of Laver et al. [58] that the acute post-stroke period is more likely to be used as a
motivational phase for goal setting [59], in which patients build knowledge and develop
understanding to facilitate goal creation later in their rehabilitation journey. Perhaps of
greater concern is the limited discussion regarding enhancing the communicative
36
environment. Communication access has been identified as being an issue in the acute
hospital setting [60]. The potential influence that poor communicative access may have on
people with aphasia’s satisfaction with their healthcare experience [2], risk of inappropriate
or inadequate service provision [3], and likelihood of occurrence of adverse events [61]
suggests that this should be a priority in this setting. In addition to this, enhancing personal
factors did not emerge as a category within the interviews. While some individual speech
pathologists discussed the need to accommodate people from culturally and linguistically
diverse backgrounds, as a group the participants did not place emphasis on this area of
practice. This is surprising within a culture that purports to be focused on patient-centred
care.
Strengths and limitations
The strength within this study is derived from its rigorous qualitative design, with strategies
to strengthen rigour implemented in the design, data collection, and data analysis phases. In
addition, the context-specific nature of the research focused on participants from the acute
hospital setting alone limit the breadth but maximise the depth of data collected.
One potential limitation of this research is the possibility that clinicians with an interest in
aphasia management were more likely to self-select as participants. While this possibility is
present, the participants’ reported experiences with aphasia management suggest variability
in their level of interest in this practice area, as represented by statements such as, I
acknowledge all biases; dysphagia I love working in the area” (Monica). An additional
potential limitation of this research is that the findings may represent the aspirational rather
than actual aphasia management practice of the participants. While this poses some
challenges, it should be noted that the aim of this research was to represent the participants’
37
understanding of their current practice. The meeting of this aim was supported by the
selection of an interpretive phenomenological research strategy. It is also possible that, unlike
survey methodology, the relational element created by the interview process particularly
given the perception of ‘sameness’ achieved as a result of the research and participants’
common professional background facilitated a more open reflection of practice. Future
research could supplement the interviews with observational data and/or ethnographic
methods.
CONCLUSIONS
The findings suggest that there is significant diversity in the pathways of care for people with
aphasia and their families in the acute hospital setting. Additional support mechanisms are
required in order to support speech pathologists to minimise the evidence-practice gap, with
the additional aim of reducing their sense of professional dissonance.
The understanding of the current pathway for aphasia management that this research provides
allows us to better understand current practice, and acts as a benchmark for comparison in the
future. This, in combination with recently published knowledge regarding speech
pathologists perceptions of the factors that influence their practice [52] and their relationship
with EBP in this context [53], creates a foundation of understanding from which speech
pathology has the capacity to shape and modify the current pathway, allowing for greater
integration of evidence-based practice guideline recommendations. Future research exploring
the knowledge translation strategies which could promote a reduction in the evidence-
practice gap in this area is required. A demonstrable increase in evidence utilisation within
aphasia management in the acute hospital setting is paramount as evidence-based practice
becomes progressively more important for effective healthcare delivery.
38
Declaration of interest: The authors report no conflicts of interest. The authors alone are
responsible for the content and writing of the paper.
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... 6,7 Despite clinical guideline recommendations 7 for early aphasia assessment and intervention in the acute and inpatient subacute phases of care, speech-language pathologists (SLPs) have identified ongoing challenges and barriers to providing care in this setting. 8 These include inadequate resources and time, limited evidence to support the acute phase of care and the diversity of people with aphasia, namely people from culturally and linguistically diverse backgrounds. 9 Many terms exist to describe people who are not monolingual native English speakers including, non-English-speaking background, English as a second language (ESL) and culturally and linguistically diverse (CALD). ...
... All of the SLP studies discussed barriers to comply with best practice for CALD people with aphasia. 8,28,29,32,[39][40][41] Within the inpatient setting the key barriers identified were access to interpreters, 29,39-41 limited culturally and linguistically appropriate assessment and therapy resources, 28,29,40,41 limited multilingual therapists- 28,39 and reduced knowledge and confidence and training to service this population. 28,29,39,41 ...
Article
Background Due to language and cultural barriers, people with aphasia from culturally and linguistically diverse (CALD) backgrounds are at risk of disadvantage in their access to comprehensive care. They are at higher risk of poorer inpatient outcomes in addition to challenges in receiving appropriate aphasia assessment and intervention. Objectives This study aims to examine the extent and nature of what is known about the inpatient phase of aphasia rehabilitation for CALD stroke survivors and identify potential research gaps in the literature for investigation. Methods A scoping review with systematic search was conducted in September 2020 following the PRISMA Scoping Review checklist. Five electronic databases were searched using a combination of terms pertaining to “aphasia,” “inpatient care” and “CALD.” Key variables were extracted from studies that met the inclusion criteria for analysis. Results Eighteen studies were yielded. Data regarding the inpatient phase of care indicate that CALD people with aphasia do not always receive comprehensive assessment or intervention in all their languages that may impact their discharge destination and access to community services. Speech-language pathologists (SLPs) report numerous barriers to service provision for this population. No studies investigated the degree and nature of differences in outcomes between CALD and non-CALD stroke survivors with aphasia. Conclusions CALD stroke survivors with aphasia inconsistently access SLP services in hospital. Assessment is unlikely to be conducted in patient primary languages and therapy is usually provided in the language of SLPs. Further research is required to determine whether this impacts functional outcomes and health services.
... Speech pathologists provide assessment and intervention to improve communication outcomes [7,8]. However, variability in service models (e.g., workforce shortages, inflexible funding models) and clinical care pathways (e.g., evidence-practice implementation gaps, restricted re-entry to services) impact upon service provision and are known complications to managing care [9][10][11]. Improving outcomes for people with aphasia requires a context-specific understanding of speech pathologists' experiences of service provision. ...
Article
Full-text available
Introduction and Aims Stroke survivors with aphasia (impaired language/communication) have poor outcomes and gaps in the clinical implementation of best practice contribute to this. Little is known, however, about speech pathologist perspectives on the touchpoints (key moments shaping experiences) in the clinical care pathway that have the greatest impact on service delivery nor how this varies by geographical location. We explored the experiences of speech pathologists who provide aphasia services to establish priorities for improvement and design. Methods and Analysis This is the initial experience gathering and priority identification stage of an experience‐based co‐design (EBCD) project. Speech pathologists were recruited from 21 geographically diverse Hospital and Health Services in Queensland, Australia. Speech pathologists working in acute, rehabilitation and community services shared positive and negative experiences of delivering aphasia care in interviews and focus groups. Experiential data were analysed using qualitative thematic analysis to determine touchpoints. Priorities for service design were identified using an adapted nominal group technique. Results Speech pathologists (n = 62) participated in 16 focus groups and nine interviews and shared 132 experiences of delivering aphasia care. Providing care in teams with poor awareness of the impacts of aphasia was identified as a key challenge, as poor patient‐provider communication was perceived to increase risk of adverse outcomes for patients. Speech pathologists identified areas for improvement related to their own professional needs (e.g., greater access to clinical supervision); collaborative health care (e.g., better coordination and interdisciplinary care to increase therapy time); and the service context and environment (e.g., psychological services able to support diverse communication needs). Conclusions Speech pathologist delivery of aphasia services could be improved through increased access to clinical supervision, opportunities for peer debriefing and interdisciplinary care. Priorities for service design varied by geographical location and included: education to support care transitions (remote areas), improved referral pathways and service linkage (regional areas) and dedicated aphasia staffing (metropolitan areas). Patient or Public Contribution A consumer advisory committee comprising people with aphasia (n = 3, authors K.M., K.D. and B.A.), their significant others (n = 2, authors J.D. and P.M.), and a Cultural Capability Officer (author G.B.) guided this research. The team: (1) reviewed participant information; (2) co‐designed surveys and workshop resources; (3) copresented research outcomes and contributed to publications. Research questions and study design (e.g., analysis methods and assessment measures) were developed by the research team (authors L.A., V.J.P., D.A.C. and S.J.W.).
... Thus, outcome measures should not just be a practice that clinicians implement routinely solely to comply with guidelines but can serve as an integral part of evidence-informed decision-making in clinical care. Interestingly, few studies have explored aphasia outcome and treatment practices collectively [8,11,17] and limited evidence exists related to factors influencing clinicians' decision-making processes in integrating outcome data to support goal setting and treatment planning in real-world aphasia care [24,25]. We have begun to address this gap by first examining outcome and treatment practices along the continuum of care within the United States [11]. ...
Article
Purpose: To identify clinician-perceived barriers and facilitators to the delivery of outcome measurement and evidence-based treatment practices and integration of these practices in aphasia rehabilitation. Materials and methods: Using a convergent mixed methods design, aphasia clinicians (n = 87) across care settings in the United States completed an online survey designed within the Theoretical Domains Framework (TDF). Participants responded to open-ended questions and rated Likert scale statements. Qualitative data were analyzed using content analysis and quantitative data were summarized using descriptive statistics. Results: Factors related to the TDF domain of "environmental context and resources" (priority and productivity demands; characteristics of resources) were cited as primary barriers in 70% of qualitative responses for both outcome and treatment practices and were consistent with Likert rating statements. Facilitators were associated with TDF domains of "memory, attention, decision-making" (decision-making processes), "knowledge" (awareness of evidence) and "social influences" (client and caregiver preferences). Conclusions: Organizational-level factors and the misalignment of the research evidence with clinical needs are barriers to delivering evidence-based care in aphasia rehabilitation. Theoretically informed strategies such as establishing organizational infrastructure for practice change, developing clinically relevant evidence through research-practice partnerships, and implementing algorithms to support clinical decision-making can address barriers and leverage facilitators.
Article
Purpose: Communication difficulties are highly prevalent in the stroke population, with implications for patient experience, safety and outcomes. This study explores the experiences of people with aphasia and family members regarding healthcare communication in acute and subacute stroke settings. Methods and materials: A phenomenological approach was used to understand participants' experiences. Participants took part in a focus group and data were analysed using an inductive thematic approach. Results: For individuals with aphasia (n = 4) and family members (n = 2), five themes were generated: "aphasia makes it hard to communicate," "hospital staff focus on the patient's medical status only," "people with aphasia do not get the help they need to improve," "staff lack the skills to communicate with people with aphasia," and "staff are crucial to improving healthcare communication." Conclusions: The stroke team has expertise in the medical management of stroke but struggle to communicate with patients with aphasia. Patients' experience of healthcare communication is often one-way and limited to following instructions, with missed opportunities to discuss core topics such as prognosis, rehabilitation, and person-specific needs. Patients and families assert that all members of the stroke healthcare team should be able to adapt communication to accommodate patients.
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Afazi Tanımlama ve Sınıflandırma Özgül AKIN ŞENKAL Afazi ve Diğer İletişim Bozuklukları Tuğçe Gül ÇAĞLAR Afazide Semptomlar Şule MIDIK, Sebahattin TUNCER Afazide Nörolojik ve Nöropsikolojik Ek Bulgular Şule ÇEKİÇ Hata Analizi Şule MIDIK Afazide Sendrom Yaklaşımı ve Kognitif Yaklaşımlar Bünyamin ÇILDIR Dil ve Beyin Berna Deniz AYDIN, Tuğçe Gül ÇAĞLAR Afazi Sebepleri ve Prognoz Tuğçe Gül ÇAĞLAR, Şuayp KÜÇÜK, Fatma Men KILINÇ, Serpil DEMİR Afazide Linguistik Temeller Berkay ARSLAN İşitsel İşlemleme Basamakları Meral Didem TÜRKYILMAZ, Tuğçe Gül ÇAĞLAR, Berna Deniz AYDIN Normal ve Afazik İşlemleme Şuayp KÜÇÜK, Banu ERGÜNAL KÖSE Afazide Üretim Problemleri Tuğba EMEKCİ, Özgül AKIN ŞENKAL Afazide Davranışsal Değerlendirme Hale HANÇER, Emine DEMİREL AKSOY Afazide Teknoloji Kullanımı Hale HANÇER Afazide Anlaşılırlık ve Bilişsel Fonksiyonların Değerlendirilmesi Müge Müzeyyen ÇİYİLTEPE İnme ve Yutma Müge Müzeyyen ÇİYİLTEPE Afazi ve Ergoterapi Tuğba EMEKCİ Afazi için Terapi Yaklaşımları Müge Müzeyyen ÇİYİLTEPE
Article
Purpose: Over 140 000 Australians live with aphasia after stroke, with this number of people living with aphasia increasing significantly when aphasia arising from traumatic brain injury, neoplasm, and infectious and progressive neurological diseases is also included. The resulting communication disability frequently compromises every aspect of daily life, significantly impacting everyday activity, employment, social participation, mental health, identity, and family functioning. Rehabilitation services rarely meet the needs of this group who have, for example, poorer healthcare outcomes than stroke peers without aphasia, nor address long-term recovery and support needs.Method: In this discussion paper, I argue that given the broad impacts of aphasia, a biopsychosocial approach to aphasia rehabilitation is required. Rehabilitation must include: interventions to improve the communication environment; programs that directly target identity, wellbeing, and mental health; and therapies focusing on functional activity, communication participation, and long-term self-management.Result: The evidence for these approaches is mounting and includes strongly stated consumer needs. I discuss the need for multidisciplinary involvement and argue that for speech-language pathologists to achieve such comprehensive service provision, an expanded scope of practice is required.Conclusion: There is a need to rethink standard therapy approaches, timeframes, and funding mechanisms. It is time to reflect on our practice borders to ask what must change and define how change can be achieved.
Article
Background Assessment is an essential part of aphasia management. There are many tools available for aphasia assessment, but relatively scant attention has been paid to how speech pathologists carry out their assessment sessions, or how these sessions are experienced by people with aphasia and their families. The evidence that is available suggests that people with aphasia do not always understand the purposes of the assessments they undertake or receive much useful feedback on their performance. Connections between adult learning and aphasia therapy are being made more explicit, such as through the Life Participation Approach to Aphasia, but the potential for a relationship between adult learning and aphasia assessment has not yet been fully recognised. Aims This paper aims to stimulate thinking to improve current aphasia assessment practices. It uses an adult learning lens and explores theoretical approaches underpinning assessment in adult education contexts. Main Contribution In this commentary paper, we summarise the current, dominant practices around aphasia assessment and then briefly review evidence-based recommended practice for assessment in higher and professional education. We explore useful parallels between the two fields and discuss how we might reassess assessment in aphasia rehabilitation. Conclusions Aphasia assessments have greater potential to be therapeutic than we currently assume. Ideas from adult education are useful to challenge clinicians to reconsider aspects of their practice. Assessments can be a powerful motivator for learning and engagement in therapy. Through a greater focus on formative and sustainable assessment, and changed feedback practices, there are opportunities to capitalise more fully on the potential for learning during these sessions. Attention to the rich development of ideas about assessment in education is a useful way to challenge our assumptions and perhaps prepare our clients with aphasia for a more productive and sustainable learning journey to support their recovery.
Article
Purpose In the aphasia literature, motivation has been described as potentially influencing rehabilitation outcomes, and there are reports that researchers and clinicians have acted to promote it. However, studies directly investigating the range of beliefs and practices surrounding motivation do not exist currently. The purpose of this scoping review is to develop themes related to the beliefs and practices appearing in the recent aphasia literature. Method Four databases (CINAHL, PsycINFO, PubMed, and Google Scholar) were searched using keywords aphasia and motivation (including derivatives such as motiv*) for articles published between 2009 and 2020. Searches returned 19,731 articles; after deleting duplicates and applying inclusionary criteria, 365 articles remained. In each article, text surrounding the term motivation was highlighted and thematic analysis was applied to these quotations. Results Sixteen themes were developed through thematic analysis and placed into two groups. The first group contained five themes suggesting that researchers believed that motivation should be studied and recognized the value of motivation in person(s) with aphasia when participating in research or clinical activities. The second group contained 11 themes reporting diverse beliefs and practices in how motivation is incorporated in research and clinical activities. Conclusions Results from this scoping review suggest that aphasia researchers, clinicians, and persons with aphasia hold beliefs about motivation that can influence clinical and research decisions. In general, beliefs and decisions related to motivation appeared to be guided by intuition rather than theories of motivation. These themes are discussed within the context of three psychological needs proposed by self-determination theory: competency, autonomy, and relatedness. Applying theories of motivation to future study in aphasia rehabilitation will guide work that can provide empirical support for these beliefs.
Article
Background The Australian stroke guidelines recommend aphasia-friendly formatting of written health information to improve comprehension for people with aphasia. Despite recommendations, accessible written health information is not routinely provided to people with aphasia. Previous researchers have explored barriers and facilitators to the provision of aphasia-friendly information; however, questions remain about what factors influence provision of aphasia-friendly information across the continuum of stroke care. Aims To explore speech pathologists’ perceptions regarding current practice and the factors influencing the provision of aphasia-friendly written information to people with post-stroke aphasia across the stroke care continuum. Methods and Procedures Semi-structured interviews were conducted with twelve speech pathologists working across acute, subacute and community-based settings. Data were analysed using an inductive thematic approach and themes mapped to the Theoretical Domains Framework (TDF). Outcomes and Results Speech pathologists from all settings reported inconsistent provision of aphasia-friendly written information. Key factors influencing practice were identified and mapped to eight of the 14 TDF domains. Environmental context and resources and Beliefs about consequences were related to 13 of the 24 factors identified as influencing practice. Key factors influencing practice included lack of time and resources, aphasia severity, patients’ psychological well-being, relevance of information, patient priorities, clinical setting and multidisciplinary team collaboration. Conclusions A wide range of factors influenced provision of aphasia-friendly written information in the healthcare setting. Implementation of practice requires consideration of the environmental context and resources, clinicians’ beliefs, and team collaboration in stroke information provision.
Article
Introduction People with communication disability after stroke need interventions to optimise healthcare communication and rehabilitation outcomes. Current evidence syntheses do not adequately inform the management of communication disability during the first 90 days post-stroke. Purpose To explore the scope of literature for the management of communication disability in the first 90 days after stroke. Materials and methods A scoping review was conducted using a systematic keyword search of six databases. A descriptive synthesis was generated using communication-related domains related to the biopsychosocial framework of the International Classification of Functioning, Disability, and Health (ICF). Results A total of 129 studies met eligibility criteria. Aphasia was the most frequently addressed communication disability after stroke (76/129 studies) with a paucity of evidence investigating other acquired neurogenic communication impairments. Management predominantly focused on communication-related: body functions and structures (62 studies) (e.g., linguistic-behavioural therapies), followed by environmental factors (39 studies) (e.g., communication partner training/support); activities and participation (15 studies) (e.g., augmentative and alternative communication); and personal factors (13 studies) (e.g., assessment of depression after aphasia). Conclusion A coordinated, integrated approach to developing and testing acute and subacute interventions for all communication disabilities across all communication-related domains is required. • IMPLICATIONS FOR REHABILITATION • Interdisciplinary stroke clinicians need to manage communication disabilities in the first 90 days after stroke to optimise healthcare communication and rehabilitation outcomes. • There is some evidence to guide clinicians in aphasia management but less in other disabilities of speech and cognitive functioning. • Most interventions to inform clinical practice address communication-related body functions and structures (e.g., linguistic and speech therapies). Clinicians need to address all domains and more evidence is needed to address environmental factors (e.g., communication support); activities and participation (e.g., person-centred goal setting); and personal factors (e.g., psychological care).
Article
Full-text available
Psychological well-being is essential to overall health; however, there is a paucity of research on how to address psychological well-being in stroke survivors with aphasia. This study describes the current beliefs, attitudes and practices of Australian speech-language pathologists in addressing psychological well-being in people with aphasia after stroke. A 26-item web-based survey consisting of open and closed questions was distributed to Australian speech-language pathologists through four electronic databases. Australian speech-language pathologists (n = 111) utilized counselling and clinical approaches to address psychological well-being in people with post-stroke aphasia. The majority of speech-language pathologists did not feel comfortable with addressing psychological well-being in people with aphasia and sought support from other health professionals in this practice. Self-perception of being under-skilled was the main barrier identified to adequate practice in this domain, followed by inadequate time, inadequate staffing and people with aphasia declining referral to counselling. The main facilitators reported by speech-language pathologists to address psychological well-being included personal interest, personal and professional experience and availability of counselling health professionals for people with aphasia. There were small-to-medium statistically significant correlations between speech-language pathologists reporting additional training in counselling and perceived knowledge of, confidence in and satisfaction with managing psychological well-being in people with aphasia. This study identifies factors requiring attention in order to enable speech-language pathologists to facilitate improved psychological well-being in people with aphasia.
Chapter
This chapter takes the reader on a step-by-step journey through the process of conducting a qualitative research study using research conducted with Traditional Healers (THs) in Malaysia and how they diagnose and treat cancer. Upwards of 80% of Malaysians consult traditional healers before seeing a medical doctor, resulting in late-stage diagnoses and thus higher mortality rates. However, prior to our research, little was known about the role of healers and their willingness to work with, rather than outside, the Western medical system. Within this context, the theoretical framework, the specific research problem and the research questions were identified. Next, the author discusses purposive sampling and data collection strategies, which included interviews, documents, and observations. She then presents a data analysis exhibit showing how they captured specific data from the interviews to address the research questions. Finally, the author discusses writing and publishing the results of the research.
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Article
Background: An evidence-practice gap has been identified in current acute aphasia management practice, with the provision of services to people with aphasia in the acute hospital widely considered in the literature to be inconsistent with best-practice recommendations. The reasons for this evidence-practice gap are unclear; however, speech pathologists practising in this setting have articulated a sense of dissonance regarding their limited service provision to this population. A clearer understanding of why this evidence-practice gap exists is essential in order to support and promote evidence-based approaches to the care of people with aphasia in acute care settings. Aims: To provide an understanding of speech pathologists' conceptualization of evidence-based practice for acute post-stroke aphasia, and its implementation. Methods & procedures: This study adopted a phenomenological approach, underpinned by a social constructivist paradigm. In-depth interviews were conducted with 14 Australian speech pathologists, recruited using a purposive sampling technique. An inductive thematic analysis of the data was undertaken. Outcomes & results: A single, overarching theme emerged from the data. Speech pathologists demonstrated a sense of disempowerment as a result of their relationship with evidence-based practice for acute aphasia management. Three subthemes contributed to this theme. The first described a restricted conceptualization of evidence-based practice. The second revealed speech pathologists' strained relationships with the research literature. The third elucidated a sense of professional unease over their perceived inability to enact evidence-based clinical recommendations, despite their desire to do so. Conclusions & implications: Speech pathologists identified a current knowledge-practice gap in their management of aphasia in acute hospital settings. Speech pathologists place significant emphasis on the research evidence; however, their engagement with the research is limited, in part because it is perceived to lack clinical utility. A sense of professional dissonance arises from the conflict between a desire to provide best practice and the perceived barriers to implementing evidence-based recommendations clinically, resulting in evidence-based practice becoming a disempowering concept for some.
Article
Background: Patients with communication disability are at increased risk of experiencing an adverse event in hospital. Despite forming a particularly vulnerable patient group, little is known about the nature or cause of adverse events experienced by people with aphasia and their spouses in hospital.