Participatory Action Research framework to guide Phases 1-3.

Participatory Action Research framework to guide Phases 1-3.

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Background: this study aimed to develop and pilot test the model of care, Grinnin' Up Mums & Bubs, to train Aboriginal Health Workers to promote oral health among Aboriginal and Torres Strait Islander pregnant women. Methods: Participatory Action Research was employed to develop the different components of the model (oral health promotion resour...

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... PAR framework was adapted from the work of Kovach [26]. This framework involved three iterative phases: Phase (1) Preparation; Phase (2) Knowledge making; and Phase (3) Giving (Figure 1). As with an action research methodology, this was a cyclical rather than a linear process. ...

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... [46] (p. 6) Community control covers all co-design process, such as conception, inception, design, delivery, analysis, monitoring, evaluation, dissemination, ongoing consultation and iterative design and re-design, reflecting the tenet from Lairid et al. [46] p. 6, of "nothing about us without us" [46,48,52,53]. Some examples include interpretation of data [43,[54][55][56]; dissemination and co-authorship [46,57]; and resource design and branding [58]. As well as engagement throughout the entire process, it is essential that First Nations Australians are engaged in a variety of roles in the co-design project including as research team members, participants, consumers, advocates, community leaders, reference group members, clinicians, community researchers, employees, interpreters, cultural advisors/liaisons [31,33,35,38,44,46,47,49,50,53,[59][60][61][62][63][64][65][66][67][68][69][70][71][72][73][74][75]. ...
... Methods that are synergetic with decolonising methodologies include Yarning, Dadirri, Ganma, storytelling, art and drawing [58,60,62,[72][73][74]82,89,95,105,108,115,117]. Such modes of communication align with the long history of First Nations Australians oral and art traditions. ...
... Approval should also be sought from national, state/territory and jurisdictional First Nations Australians specific Human Research Ethics Committees (HRECs) if relevant to the scope or nature of the project and ensure approval is maintained via annual reports and approval of amendments [39,41,43,46,51,53,54,[56][57][58][59][60]62,64,65,68,74,76,80,83,85,91,94,102]. Approval of non-Indigenous HRECs may also be sought but are generally not sufficient to commence co-design projects if they are research-based [80]. ...
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Background: Australia's social, structural, and political context, together with the continuing impact of colonisation, perpetuates health care and outcome disparities for First Nations Australians. A new approach led by First Nations Australians is required to address these disparities. Co-design is emerging as a valued method for First Nations Australian communities to drive change in health policy and practice to better meet their needs and priorities. However, it is critical that co-design processes and outcomes are culturally safe and effective. Aims: This project aimed to identify the current evidence around optimal approaches to co-design in health with First Nations Australians. Methods: First Nations Australian co-led team conducted a comprehensive review to identify peer-reviewed and grey literature reporting the application of co-design in health-related areas by and with First Nations Australians. A First Nations Co-Design Working Group (FNCDWG) was established to guide this work and team.A Collaborative Yarning Methodology (CYM) was used to conduct a thematic analysis of the included literature. Results: After full-text screening, 99 studies were included. Thematic analysis elicited the following six key themes, which included 28 practical sub-themes, relevant to co-design in health with First Nations Australians: First Nations Australians leadership; Culturally grounded approach; Respect; Benefit to First Nations communities; Inclusive partnerships; and Evidence-based decision making. Conclusion: The findings of this review provide a valuable snapshot of the existing evidence to be used as a starting point to guide appropriate and effective applications of co-design in health with First Nations Australians.
... Limited oral health funding was identified as a barrier to IHW oral health support, 45 Providing relatable and targeted education or health promotion campaigns that were accessible to different groups, such as mothers, was important to IHW. 11,46,47,49 Considering oral health promotion as more than just paper pamphlets was discussed as critical to increase engagement, understanding and follow-through on knowledge. ...
... Culturally appropriate education, described by IHW as pictorial, grounded in local context, and delivered face to face, increased usefulness of oral health information for community members, 11,[46][47][48] 'I find a lot of those pictures that really show abnormal to normal -they sort of hit home. And too much writing in a pamphlet -you just need something on a small pamphlet that is to the point'. ...
... The creation of a priority referral pathway, particularly for pregnant women, was discussed as a potential solution to some of the community challenges and systemic barriers, [46][47][48]52 have a little bit more information than if they brought somebody in to do this job… so it's localized is mainly how they put these DHAs in this position. They have to be from here'. ...
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Objectives: Indigenous health workers (IHW) play an integral role in the provision of culturally safe care for Indigenous communities. Despite this, IHW involvement in oral health has been limited. Therefore, this qualitative systematic review aimed to build an understanding of IHW insights on oral health. Methods: Two independent reviewers searched PubMed, EMBASE, Web of Science and Scopus using a pre-established search strategy. Qualitative studies that included IHW illustrations about oral health were considered. The search was not limited by geographic setting. Included articles were critically appraised with the Joanna Briggs Institute appraisal tool for qualitative studies. Results: The search identified 1856 articles eligible for inclusion; a total of 10 articles were included. Four synthesized findings were identified during the meta-aggregation: oral health challenges in community, systemic barriers limiting IHW ability to support oral health, benefits of IHW involvement in oral health and avenues to increase IHW involvement in oral health. Conclusion: The prioritization of Indigenous leadership in oral health has the potential to address many of the current challenges Indigenous communities face. Future works need to determine the capacity of IHW to provide oral health care and explore opportunities to create specific oral health roles for IHW.
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Background Dialysis for end-stage kidney disease (ESKD) is the leading cause of hospitalization among Aboriginal and Torres Strait Islander individuals in Australia. Poor oral health is commonly the only obstacle preventing Aboriginal and Torres Strait Islander people with ESKD in Australia from receiving kidney transplant. Objective This study aims to improve access, provision, and delivery of culturally secure dental care for Aboriginal and Torres Strait Islander individuals with ESKD in South Australia through the following objectives: investigate the facilitators of and barriers to providing oral health care to Aboriginal and Torres Strait Islander patients with ESKD in South Australia; investigate the facilitators of and barriers to maintaining oral health among Aboriginal and Torres Strait Islander people with ESKD in South Australia; facilitate access to and completion of culturally secure dental care for Aboriginal and Torres Strait Islander individuals with ESKD and their families; provide oral health promotion training for Aboriginal health workers (AHWs) at each of the participating Aboriginal Community Controlled Health Services, with a specific emphasis on oral health needs of patients with ESKD; generate co-designed strategies to better facilitate access to and provision of culturally secure dental services for Aboriginal and Torres Strait Islander people living with ESKD; and evaluate participant progress and AHW oral health training program. Methods This collaborative study is divided into 3 phases: exploratory phase (baseline), intervention phase (baseline), and evaluation phase (after 6 months). The exploratory phase will involve collaboration with stakeholders in different sectors to identify barriers to providing oral health care; the intervention phase will involve patient yarns, patient oral health journey mapping, clinical examinations, culturally secure dental care provision, and strategy implementation workshops; and the evaluation phase will involve 6-month follow-up clinical examinations, participant evaluations of dental care provision, and AHW evaluation of oral health training. Results Stakeholder interviews were initiated in November 2021, and participant recruitment commenced in February 2022. The first results are expected to be submitted for publication in December 2022. Conclusions Expected outcomes will identify the burden of oral disease experienced by Aboriginal and Torres Strait Islander people with ESKD in South Australia. Qualitative outcomes are expected to develop a deeper appreciation of the unique challenges regarding oral health for individuals with ESKD. Through stakeholder engagement, responsive strategies and policies will be co-designed to address participant-identified and stakeholder-identified challenges to ensure accessibility to culturally secure dental services for Aboriginal and Torres Strait Islander individuals with ESKD. International Registered Report Identifier (IRRID) PRR1-10.2196/39685