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Participant information
Source publication
To investigate current use of the internet and eHealth amongst adults.
Focus groups were conducted to explore participants' attitudes to and reasons for health internet use.
The focus group data were analysed and interpreted using thematic analysis.
Three superordinate themes exploring eHealth behaviours were identified: decline in expert authority...
Context in source publication
Similar publications
Citations
... This "freedom from ignorance" has contributed to transforming people who engage in OHIS from passive recipients of healthcare to active participants in actions and decisions related to their health. Successful online health searches also make patients better prepared for consultations with clinicians [11][12][13]. This makes it easier for patients to understand clinicians and allows for more effective communication between them during those consultations [13][14][15]. ...
... Although there are still "pockets of resistance" to the full affirmation of OHIS, both clinical practice and research have supported the integration of OHIS with faceto-face encounters between patients and clinicians. The two are not antagonistic to each other, and clinicians' opinions and expertise are not intrinsically threatened by OHIS and remain highly valued [12,35,36]. Online health searches tend to be seen through the lens of patients' empowerment as complementary to consultations with clinicians [12,35,36]. ...
... The two are not antagonistic to each other, and clinicians' opinions and expertise are not intrinsically threatened by OHIS and remain highly valued [12,35,36]. Online health searches tend to be seen through the lens of patients' empowerment as complementary to consultations with clinicians [12,35,36]. Given this, encounters between patients and clinicians might be enriched by a routine initial inquiry about patients' OHIS. ...
... End-user perspectives, i.e., patients and caregivers, need to be incorporated when designing eHealth solutions for supportive care (37)(38)(39). E-Health interventions that consider patients' preferences and expectations for care, along with their health literacy (HL), can enhance patient-centered care by addressing care inequalities, extending access to health information, services, and support, and reducing care disparities (40)(41)(42). For eHealth interventions to succeed, it is crucial for patients to take an active role in their care (43). ...
... Additionally, it is important to note that eHealth introduces an additional literacy dimension, namely digital/eHealth literacy, which could further exclude individuals with poor digital literacy as discussed in the subsequent technique (48). Moreover, involving patients and other end-users in the design process enhances the likelihood of meeting the needs of the intended population and ensures that patients and their families can access the intervention in a setting that suits them best (38). However, patient input is often overlooked during the development of interventions (26,27,33,35). ...
Background
The advent of eHealth services offers the potential to support colorectal cancer (CRC) survivors and their informal caregivers (ICs), yet research into user needs and design requirements remains scant. This exploratory qualitative study addresses this knowledge gap by focusing on the development of a Digital Multicomponent Platform (DMP) designed to provide comprehensive support to these populations.
Aims
The objective of this research is to use qualitative methodologies to identify key user needs and design requirements for eHealth services. It seeks to propose and apply a multi-tiered framework for creating a DMP that encapsulates the needs of CRC survivors and their ICs.
Methods
Skype-based focus groups (FGs) were utilized to gather qualitative data from CRC survivors and ICs. This approach served to elicit crucial themes integral to the design of the DMP. A multi-tiered framework was subsequently developed to integrate user-centered design (UCD) principles and requirements with predetermined outcomes, eHealth services, and IT infrastructure.
Results
The first stage of the analysis identified five crucial themes: (1) the importance of healthcare system interaction via eHealth, (2) interaction between healthcare providers and peers, (3) lifestyle and wellness considerations, (4) platform content and user interface requirements, (5) caregiver support. The second stage analysis applied the multi-tiered framework, to determine the DMP that was conceptualized from these themes, underscores the significance of personalized content, caregiver involvement, and integration with electronic health records (EHRs).
Conclusion
The study offers novel insights into the design and development of digital supportive care interventions for CRC survivors and their caregivers. The results highlight the utility of user-centered design principles, the significance of personalized content and caregiver involvement, and the need for a unified health data platform that promotes communication among patients, healthcare providers, and peers. This multi-tiered framework could serve as a prototype for future eHealth service designs.
... Nowadays, the availability of health information on the Internet are considered to potentially reduce the authority of specialists and promote patient participation in their own health management, but these are limited to patients with eHealth literacy and Internet access. 29 Therefore, cultivating eHealth literacy in older patients can facilitate the application of shared decision-making. ...
Objective
To understand the perceptions and experiences of older patients with chronic obstructive pulmonary disease (COPD) and healthcare professionals (HCPs) regarding shared decision-making in pulmonary rehabilitation (PR).
Design
A qualitative study using single, semi-structured interviews, and thematic analysis.
Setting
Face-to-face interviews were conducted in the Jiangnan University, in hospital and in patients’ homes.
Participants
Twenty-two older patients with COPD and 29 HCPs.
Methods
An initial codebook and semi-structured interview guide were developed based on the shared decision-making 3-circle conceptual model. Thematic analysis was used to analyze data.
Results
The study identified 10 themes that describe the perceptions and experiences of patients and HCPs involved in PR decision-making: (1) patients’ confidence, (2) patients’ perceptions of the cost-benefit of decisions, (3) patients’ perceived stress about the consequences of decision-making, (4) HCPs’ perceived stress on shared decision-making, (5) cognitive biases of patients toward illness and rehabilitation, (6) shared decision-making as a knowledge gap, (7) the knowledge gap between patients and HCPs, (8) authority effect, (9) family support, (10) human resources. These themes were then divided into three groups according to their characteristics: (1) the feelings of the participants, (2) knowledge barriers, and (3) support from the social system.
Conclusion
Patients and HCPs described their negative perceptions and experiences of participating in decision-making in PR. The implementation of shared decision-making in PR is currently limited; therefore, health education for patients and families should be strengthened and a training system for HCPs in shared decision-making should be established.
... (see Tables 6-8 in Additional files 1, 2, 3). Five studies had taken place in the United Kingdom [27][28][29][30][31], six from the United States [32][33][34][35][36][37], two from Canada [38,39], one from Austria [40], four from Israel [41][42][43][44], two from Australia [45,46], three from Switzerland [47][48][49], one from Portugal [50] and one from China [51]. The sample sizes ranged from 11 to 975 with participants including patients either posting online or attending primary care clinics, carers, physicians such as GP's, nurses and various other HCP's. ...
... Accessibility and speed were key identified benefits of online self-diagnosing. The internet allows 24-h access, whereas obtaining an appointment with a HCP can be difficult [30,31,34]. ...
... This impacts patients' ability to depend on information and causes the public to find the internet less reliable than other sources of information such as HCPs [50]. However, most patients viewed their research as a complementary information source to be used alongside treatment from their HCP [30,36,47,49,50]. HCP's were thus viewed as expert guides who could aid navigation through the otherwise overwhelming quantities of health-related internet information [38]. ...
Background:
As technology continues to advance, the internet is becoming increasingly popular. Self-diagnosis and health information seeking online is growing more common and it will be important to understand the influence this may have on the patient-healthcare professional relationship.
Methods:
A mixed-method systematic review of quantitative, qualitative and mixed method studies concerning the public and healthcare professionals' perceptions of online self-diagnosis and health information seeking and how this can impact the patient-healthcare professional relationship. We searched MEDLINE, EMBASE, CINAHL, ACM & SCOPUS between 2007 and 2018. Relevant data were extracted, and a thematic analysis was conducted and conceptualised using the Normalisation Process Theory framework.
Results:
Of 6107 records identified, 25 articles met the review eligibility criteria which included 16 qualitative, 8 quantitative and 1 mixed method study. The findings indicated that patients found the internet as a complementary information source alongside healthcare professionals. Health care professionals were perceived to be the most reliable and valued information source. People feel responsible for their own health and find the internet to be a source that provides information rapidly with accessibility at their convenience. Most healthcare professionals agreed on the importance of collaboration with patients and the need to develop a partnership and shared decision-making process but struggled to find time in the consultation to do so efficiently. Some healthcare professionals felt that the internet was advantageous for patients looking after their own health, while others felt it was due to a lack of trust in their expertise. Patients tended to present information to the healthcare professional to support the therapeutic relationship rather than to challenge it and to become more involved in the decision-making process of their healthcare.
Conclusion:
The results of this review suggests that patients value healthcare professionals as a source of medical advice more than the internet. While health professionals' views were mixed our findings indicate that online health information seeking can potentially improve the patient-healthcare professional relationship as patients reported they usually conducted an online search to form a partnership with the healthcare professional as opposed to trying to prove them wrong.
... Regarding the relationship between ehealth system and the organizational performance of health care centers, some authors point out that the use of the ehealth services increases the organizational performance and reduce enterprise costs [15][16][17][18][19]. Therefore, the expected profits of public health care centers that offer ehealth services are higher than others. ...
Progressive attention to well-being and personal care is a salient aspect of modern living. In this sense, digital innovation can represent a fundamental strategic element to respond to challenges that arise today for the healthcare system. The purpose of this paper is to demonstrate: 1) the positive relationship between the use of ehealth information system and the level of consumer satisfaction; 2) the positive relationship between ehealth system and the organizational performance of health centers. The sample used for this empirical research is composed of 553 health care centers operating in Europe, during the years 2014-2017. Adopting the Generalized Estimating Equations for count data under Exchangeable working correlation structure, we show ehealth tools meet the needs and expectations of citizens, specifically, facilitating communication and accessing information and health resources, and at the same time they improve the quality of services with benefits in terms of organizational performance.
... • finding out about current uses, preferences, facilitators and barriers to using existing electronic health resources by veterans (Haun et al., 2015). • investigating the current use of internet among adults in order to gain insight into attitudes, reasons, and current ways of internet use (Donnelly, Shaw, & van den Akker, 2008). • the identification of sensitive topics among young people with cancer (Wettergren et al., 2016). ...
This chapter explains the contextual inquiry, during which researchers explore the context and relevant stakeholders, including the prospective users. It’s aim is to get a good grasp of the context in which the eHealth technology will be used. This chapter explains this and provides examples of concrete methods that can be used to conduct a contextual inquiry in practice. These methods are a stakeholder identification and analysis, desk research, a scoping review of the relevant scientific literature, focus groups, interviews, observations, diary study and log data analysis. The chapter also explains why the contextual inquiry is essential for a good eHealth development process.
... • finding out about current uses, preferences, facilitators and barriers to using existing electronic health resources by veterans (Haun et al., 2015). • investigating the current use of internet among adults in order to gain insight into attitudes, reasons, and current ways of internet use (Donnelly, Shaw, & van den Akker, 2008). • the identification of sensitive topics among young people with cancer (Wettergren et al., 2016). ...
In this chapter, the relevance of the contextual inquiry is explained. A non-exhaustive overview of relevant research methods is provided and illustrated by cases from practice. After completing this chapter, you will be able to:
• explain why and in what way the contextual inquiry is essential for the eHealth development process.
• provide concrete examples from practice to illustrate the relevance of conducting a good contextual inquiry for the development of good eHealth development.
• name and explain the relevance of multiple research methods that are used in the contextual inquiry.
• explain the identification, analysis and added value of stakeholders during the contextual inquiry, and connect this to the entire eHealth development process.
• connect the contextual inquiry to holistic development, using the terms user, context and technology.
... E-learning is still in its infancy, with a pressing need for us to understand both how patients use the Internet, and how to evaluate the quality of the information retrieved. There is a significant lack of easyto-understand, trustworthy patient information available on the Internet [7,8]. ...
... E-learning is still in its infancy, with a pressing need for us to understand both how patients use the Internet, and how to evaluate the quality of the information retrieved. There is a significant lack of easyto-understand, trustworthy patient information available on the Internet [7,8]. ...
... Ybarra and Suman (2006) reported that almost half of health information seekers indicated that their Internet use helped them take better care of themselves. Notwithstanding these benefits, it is difficult to assess the validity of healthcare information online (Donnelly, Shaw, & van den Akker, 2008), and information quality varies across medical domains and across websites (Zhang, Sun, & Xie, 2015). Much of the information is misleading and even accurate information can be misinterpreted. ...
... Medical information from the Internet empowers patients by increasing their sense of control over their health (Bar- noy, Volfin-Pruss, Ehrenfeld, & Kushnir, 2011). The Internet empowers patients to conduct their own health checks, self-diagnoses and treatment (Donnelly et al., 2008). Patients searching online might have some understanding of their situation before seeing a doctor (Agius & Stangeland, 2016). ...
Does patients’ Internet search of disease information affect their trust in physicians during diagnosis? This study proposes a research model from a knowledge power perspective, that is, Internet search affects patients’ perception of their knowledge level. Our empirical study of more than 400 subjects suggests that for patients who searched online for disease information, the inconsistency between their self-diagnosis expectations and their physician's diagnosis reduces their trust in their physician. The effect is stronger for those who spent more time on Internet search. Patients with chronic conditions are less affected by the inconsistency, as are patients of physicians with a higher professional status. This study also found that physicians’ interaction quality in the diagnosis process—how well they communicate with their patient—still plays a dominant role in gaining patient's trust. This finding suggests that even in the high-tech age, high-touch remains an important factor to physician-patient trust.
