Table 2 - uploaded by Pei Lin Lua
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Background:
Telemedicine innovations, including short message service (SMS), have been used to address a range of health concerns in a variety of settings. Practical, safe, and cost-effective, this simple tool can also potentially improve patients' understanding toward their own diseases via knowledge enhancement. This study was designed to develo...
Context in source publication
Similar publications
Background:
Failure to attend the clinic without prior intimation, known as "Did Not Attend" (DNA) is a significant global issue. There have been no published studies attempting to reduce DNA rates in breast clinics. We aimed to assess the impact of contacting patients prior to clinic attendance and Short Message Service (SMS) reminder on DNA rate...
Background: Failure to attend the clinic without prior intimation, known as “Did Not Attend” (DNA) is a significant global issue. There have been no published studies attempting to reduce DNA rates in breast clinics. We aimed to assess the impact of contacting patients prior to clinic attendance and Short Message Service (SMS) reminder on DNA rates...
Background: Failure to attend the clinic without prior intimation, known as “Did Not Attend” (DNA) is a significant global issue. There have been no published studies attempting to reduce DNA rates in breast clinics. We aimed to assess the impact of contacting patients prior to clinic attendance and Short Message Service (SMS) reminder on DNA rates...
Citations
... Medication Adherence (MA). Nonadherence remains a significant concern for patients with epilepsy [20], as it can lead to an increase in seizure frequency [21]. In general, patients with epilepsy do not adhere to their medication, which has adverse effects on their condition [22]. ...
Background
Mobile health (mHealth) applications (apps) show promise in supporting epilepsy self-management (eSM). To delve deeper into this potential, we conducted a systematic review of epilepsy mHealth apps available on both iOS and Android platforms, examining articles related to eSM. This review allowed us to identify important domains related to eSM. Furthermore, based on the findings, we developed an epilepsy mHealth app framework that aims to improve self-management for the local population. This study aims to assess the practicality and usability of the proposed mHealth app framework designed to improve eSM. We will conduct an expert panel review to evaluate the effectiveness and feasibility of the framework.
Material and methods
Content validity was assessed by an expert panel comprising epileptologists and pharmacists. The validation process involved scoring the items within each domain of the framework to evaluate their practicality and usability (quantitative component). In addition, a panel discussion was conducted to further explore and discuss the qualitative aspects of the items.
Results
A total of 4 domains with 15 items were highly rated for their practicality and usefulness in eSM.
Conclusions
The locally validated framework will be useful for developing eSM mobile apps. Seizure Tracking, Medication Adherence, Treatment Management, and Healthcare Communication emerged as the most crucial domains for enhancing eSM.
... So, mobile phone technology has a promising role in providing health assessment, education, and other services for patients. [24,26,37] Also, in another study performed by Ekstedt et al., [38] a self-management application provided access to a digital tool for patients with cancer, their family members, and health-care specialists. It served as a means of communication between patients and healthcare providers. ...
Epilepsy is the most common chronic neurologic disease which is characterized by recurrent attacks of headache after seizure. Researches show that self-management is an important factor in improving the quality of life and quality of care of people affected by epilepsy. Mobile phone technologies play a potential role in patient care assistance and treatment of epilepsy. This systematic review was conducted with an aim to study the role of mobile health in the management of epilepsy. This study was conducted by searching databases such as PubMed, Scopus, Web of Science, and Google scholar search engines using the following keywords: “m-health,” “mobile health,” “Telemedicine,” “Mobile Application,” “Smartphone,” “epilepsy,” and “epilepsy management.” Articles published from January 1, 1990 to September 1, 2021 were searched. Inclusion criteria included all articles published in English with a focus on the role of mHealth in the management of epilepsy. Review articles and studies that were not about patients were omitted. In this study, of a total of 4225 retrieved articles, 10 studies met the full-text inclusion criteria. Three types of researches (30%) were done in the USA, five studies (50%) were conducted as randomized controlled trials, and eight articles (80%) had the highest quality. Among the considered articles, three articles (30%) were engaged in training users in epilepsy management. Five articles (50%) reported improvement in seizure control in patients with epilepsy and two articles (20%) did not report any significant improvement. Mobile technologies have a promising role in providing health assessment, education, and other services for patients, and they also help in controlling seizures attack and improvement of epilepsy management. These technologies enjoy great attractiveness, and utilizing them will lead to patient satisfaction.
... When compared to other recent studies, this finding suggests a comparable degree of satisfaction (Baranowski et al., 2019;Pflugeisen and Mou, 2017;Iqbal et al., 2017;Poulsen et al., 2015;Abdulwahab and Zedan, 2021;Alharbi et al., 2021). On the other hand, other studies reported a slightly lower level of satisfaction (Hsueh et al., 2012;Lua and Neni, 2012). Müller et al. (2017) examined patient satisfaction when utilizing virtual clinic services. ...
Patient satisfaction is a key component in the quality of care and is an element in the dissemination and adoption of virtual clinic facilities. Evaluating patient satisfaction has become an essential indicator of healthcare performance and outcomes. The aim of the study was to evaluate patient satisfaction with the virtual clinic. A cross-sectional study was conducted using a convenience sample of 305 patients visiting a virtual clinic at three general hospitals in the Jazan region of Saudi Arabia. The study was conducted using a quantitative descriptive correlational design. The researcher employed the Telehealth Satisfaction Scale to assess patient satisfaction with virtual clinic care. Satisfaction scores were compared between groups using an independent sample t-test and one-way analysis of variance. The study indicated that patients reported a high degree of satisfaction with their virtual clinic. Most scale item averages were greater than 3, indicating ratings of "good" to "excellent" satisfaction. There was no statistically significant relationship between patient satisfaction with the virtual clinic and sociodemographic characteristics. Despite the fact that virtual clinics in the healthcare sector in the Jazan area are relatively new, the survey results show high levels of satisfaction with the service. The courtesy, respect, sensitivity, and friendliness of the virtual clinic staff and respecting patients' privacy were essential to patients, demonstrating that virtual clinics may improve access to care.
... La non aderenza alla terapia è un problema critico per le persone con epilessia (Lin et al., 2016): si stima che il 30-60% di costoro manifesti un'aderenza subottimale (Mohammadzadeh et al., 2021). Questo può portare ad un aumento della frequenza delle crisi (Lua et al., 2012), delle consultazioni e delle ospedalizzazioni evitabili nonché dei costi dell'assistenza sanitaria (Demonceau et al., 2013). Una componente importante che incide sull'aderenza è lo stigma e la discriminazione che circondano l'epilessia, spesso più difficili da superare delle stesse crisi convulsive e che possono scoraggiare le persone dal cercare un trattamento, per evitare di essere identificate con la malattia (WHO, 2019). ...
Introduction
The rapid evolution of technology offers new opportunities for the self-management of epilepsy, such as the use of smartphone apps. Despite their consolidated presence on the digital market, the effects on self-management of the disease are not known.
Aim
Evaluate the effectiveness of smartphone apps for self-management of epilepsy.
Methods
Systematic review of RCTs with source retrieval through biomedical databases, specific search engines, gray literature websites and RCT registers. Primary outcomes: frequency of seizures, ability to self-manage epilepsy; secondary outcomes: adherence to the therapeutic regimen, perceived quality of life. Methodological quality evaluated with Jadad scale.
Results
Two RCTs with 476 participants met the inclusion criteria. The use of the app improves the self-management of epilepsy compared to standard care; the impact on the frequency of crises is not clear. In the only RCT that dealt with it, an improvement in the percentage of adhering subjects was recorded. No studies have evaluated the perceived quality of life.
Discussion
The results are encouraging but to be considered with great caution due to the methodological limitations, the small number of studies, the few participants. The promotion, adoption and diffusion in health care of apps for the self-management of epilepsy finds barriers due to non-routine quality certification, lack of regulation on the protection and processing of sensitive data, problems of compliance with clinical practice guidelines and the lack of consensus on the level of evidence and the effect size to support their use.
Conclusions
The use of smartphone apps seems effective for the self-management of epilepsy but further research is needed to confirm the positive trend.
... Nonadherence is a critical issue for PWEs [24] and can lead to an increase in seizure frequency [25]. PWEs generally do not adhere to their medication, which negatively affects their situation [26]. ...
Background:
Patients with epilepsy (PWEs) are motivated to manage and cope with their disorder themselves (ie, self-management [SM] is encouraged). Mobile health (mHealth) apps have multiple features that have a huge potential to improve SM of individuals with chronic disorders such as epilepsy.
Objective:
This study aimed to review all freely available apps related to the SM of PWEs and to determine the SM domains covered in these apps.
Methods:
We performed a search of apps on Google Play and App Store using the keywords "epilepsy" or "seizures" from May to August 2018. Apps were included if they were free and in English language. We excluded apps with installation-related issues and not related to epilepsy self-management (eSM).
Results:
A total of 22 eSM apps were identified in our search: 6 of these run only on iOS, 7 only on Android, and 9 run on both operating systems. Of the 11 domains of SM, seizure tracking and seizure response features were covered by most apps (n=22 and n=19, respectively), followed by treatment management (n=17) and medication adherence (n=15). Three apps (Epilepsy Journal, Epilepsy Tool Kit, and EpiDiary) were installed more than 10,000 times, with features focused specifically on a few domains (treatment management, medication adherence, health care communication, and seizure tracking). Two apps (Young Epilepsy and E-Epilepsy Inclusion) covered more than 6 SM domains but both had lower installation rates (5000+ and 100+, respectively).
Conclusions:
Both Android and iOS mHealth apps are available to improve SM in epilepsy, but the installation rate of most apps remains low. The SM features of these apps were different from one another, making it difficult to recommend a single app that completely fulfills the needs of PWEs. The common features of the apps evaluated included seizure tracking and seizure response. To improve the efficacy and availability of these apps, we propose the following: (1) involve the stakeholders, such as physicians, pharmacists, and PWEs, during the development of mHealth apps; (2) assess the efficacy and acceptance of the apps objectively by performing a usability analysis; and (3) promote the apps so that they benefit more PWEs.
... Counseling about sudden unexpected death in epilepsy (SUDEP) and women's health (folic acid supplementation and methods of birth control) can be addressed using Short Message Service (SMS)-based epilepsy education system similar to Lua et al., which showed education through SMS messages are feasible and well received by patients [29]. Lua et al.'s SMS-based epilepsy education system was developed with reference to the Modular Service Package Epilepsy (MOSES), which covers topics about living with epilepsy, epidemiology, basic knowledge, diagnostics, therapy, self-control, prognosis, psychosocial aspects, and network epilepsy. ...
Telehealth's first literature reference is an article in 1879 in the Lancet about using the telephone to reduce unnecessary office visits (Institute of Medicine & Board on Health Care Services, 2012). However, providers have been slow to adopt telehealth into their clinical practice secondary to barriers such as cost and reimbursement (Kane and Gillis, 2018) [2]. The advent of shelter in place orders combined with the ongoing need defined by the Centers for Medicare & Medicaid Services (CMS) Administrator Seema Verma “for all Americans, and particularly vulnerable populations who are at heightened risk, to be able to access their providers” has resulted in the rapid implementation of telehealth across multiple specialties. The goal of this paper is to provide a practical framework for translating quality care in epilepsy as defined by the American Academy of Neurology (AAN) guidelines into a virtual care environment. We will also discuss the use and limitations of point of care testing in epilepsy management.
... Most interventions specified the health problem they addressed, although seven interventions (denoted by 'NS' in Table 3) were not directed at a health problem (Table 3). Where health problems were Table 3 Included studies by country, and the health issues, services issue and mHealth tools Note: NS = Non-specific specified, these included Cardiovascular disease, [29][30][31]34,37,40,43,47,49], smoking, [20,23,26,35,50], Epilepsy [45,46], Asthma, [33,57], diabetes /pre-diabetes. [41,54], amongst others. ...
Objective
This review aimed to examine how mobile health (mHealth) to support integrated people-centred health services has been implemented and evaluated in the World Health Organization (WHO) Western Pacific Region (WPR).
Methods
Eight scientific databases were searched. Two independent reviewers screened the literature in title and abstract stages, followed by full-text appraisal, data extraction, and synthesis of eligible studies. Studies were extracted to capture details of the mhealth tools used, the service issues addressed, the study design, and the outcomes evaluated. We then mapped the included studies using the 20 sub-strategies of the WHO Framework on Integrated People-Centred Health Services (IPCHS); as well as with the RE-AIM (Reach, effectiveness, adoption, implementation and maintenance) framework, to understand how studies implemented and evaluated interventions.
Results
We identified 39 studies, predominantly from Australia (n = 16), China (n = 7), Malaysia (n = 4) and New Zealand (n = 4), and little from low income countries. The mHealth modalities included text messaging, voice and video communication, mobile applications and devices (point-of-care, GPS, and Bluetooth). Health issues addressed included: medication adherence, smoking cessation, cardiovascular disease, heart failure, asthma, diabetes, and lifestyle activities respectively. Almost all were community-based and focused on service issues; only half were disease-specific.
mHealth facilitated integrated IPCHS by: enabling citizens and communities to bypass gatekeepers and directly access services; increasing affordability and accessibility of services; strengthening governance over the access, use, safety and quality of clinical care; enabling scheduling and navigation of services; transitioning patients and caregivers between care sectors; and enabling the evaluation of safety and quality outcomes for systemic improvement.
Evaluations of mHealth interventions did not always report the underlying theories. They predominantly reported cognitive/behavioural changes rather than patient outcomes. The utility of mHealth to support and improve IPCHS was evident. However, IPCHS strategy 2 (participatory governance and accountability) was addressed least frequently. Implementation was evaluated in regard to reach (n = 30), effectiveness (n = 24); adoption (n = 5), implementation (n = 9), and maintenance (n = 1).
Conclusions
mHealth can transition disease-centred services towards people-centred services. Critical appraisal of studies highlighted methodological issues, raising doubts about validity. The limited evidence for large-scale implementation and international variation in reporting of mHealth practice, modalities used, and health domains addressed requires capacity building. Information-enhanced implementation and evaluation of IPCHS, particularly for participatory governance and accountability, is also important.
... Nonadherence is a critical issue for PWEs [24] and can lead to an increase in seizure frequency [25]. PWEs generally do not adhere to their medication, which negatively affects their situation [26]. ...
BACKGROUND
Patients with epilepsy (PWE) are motivated to manage and cope with their disorder by themselves, that is, self-management (SM). Mobile health applications (apps) have multiple features that show a huge potential to improve self-management of individuals with chronic disorders such as epilepsy.
OBJECTIVE
This study aims to review all available free apps related to the self-management of PWE and to determine the self-management domains included in these apps
METHODS
Systematic reviews were performed for all apps by searching in iOS and Android app databases using the keywords “epilepsy” and “seizure.”
RESULTS
We identified 22 epilepsy SM apps:6 were found in iOS, 7 in Android, and 9 in both.Of the 11 domains of self-management, seizure tracking and seizure response features were available in most Apps(N=22 and N=19respectively), followed by treatment management(N=17) and medication adherence(N=15).Three apps (Epilepsy Journal, Epilepsy Tool Kit and EpiDiary) were installed more than 10,000 times, with features focused specifically on a few domains (including treatment management, medication adherence, health-care communication, and seizure tracking). Two Apps had >6 SM domains (Young epilepsy and E-Epilepsy Inclusion) but both with lower installation rates (5000+ and 100+ respectively).
CONCLUSIONS
There were mobile health applications to improve self-management in epilepsy in both iOS and Android platform, but the installation rate of most apps was low. The self-management features in various Apps were different and common features included seizure tracking and seizure response.
... 13,14 Estudios han demostrado que entre el 70 y 80% de los pacientes con epilepsia recién diagnosticados pueden tratarse con éxito con medicamentos anticonvulsiantes, 15-17 sin embargo para lograr y mantener un control exitoso, la adherencia al tratamiento médico y el conocimiento de la enfermedad son pilares fundamentales. 18,19 Una revisión sistemática evidenció que las formas efectivas de educar a las personas con respecto a sus tratamientos médicos podrían tener efectos más grandes en la salud que cualquier tratamiento farmacológico en sí mismo. 19 La epilepsia ha sido un trastorno relacionado con un alto grado de estigma y prejuicio, y el éxito de su tratamiento depende en gran medida del cumplimiento de los pacientes y su comprensión del trastorno. ...
... 21 Hoy en día los sitios de internet son uno de los principales medios de información para los pacientes y sus familias, pero muchos de ellos no cumplen con estándares aceptados por los profesionales de salud y no tienen las instrucciones necesarias para abordar la atención de la epilepsia adecuadamente. 18 Es por esto que las herramientas de telesalud y telemedicina se han encaminado a ser, más que una fuente de información, en ser un medio proveedor de atención en salud. 21 Para el tratamiento de personas con epilepsia se considera que el automanejo es un factor importante, ya que preserva o aumenta la calidad de vida y mejora la atención en salud de estas personas. ...
... 24 La telesalud y la telemedicina se han usado durante los últimos años en varios grupos de pacientes, con diferentes focos de intervención, y en la mayoría de ellos se ha evidenciado el impacto que tiene en la entrega de atención en salud, y en el aumento de la cobertura tanto en los países en vías de desarrollo como en los desarrollados. 18 Ambas generan acceso a un gran número de pacientes, lo que conduce a mejores resultados de salud; es por esto que gobiernos como el de Holanda han incorporado el desarrollo y la aplicación de herramientas basadadas en telesalud y telemedicina dentro de sus objetivos, para establecer mejor calidad en la atención sanitaria. 21 Estos esquemas se han propuesto en el tratamiento de otros problemas neurológicos de forma exitosa, pero pocas veces se ha usado en epilepsia. ...
Introducción:
La epilepsia es una de las enfermedades neurológicas crónicas más frecuente, con cifras cercanas a los 70 millones de casos a nivel mundial; para la cual la telesalud y la telemedicina se enmarcan como modelos prometedores que pueden traer múltiples beneficios.
Objetivo:
Evaluar los esquemas iniciales que se han planteado desde la telemedicina y la telesalud en el manejo del paciente con epilepsia y los beneficios que tienen en el manejo.
Metodología:
Se realizó una búsqueda de literatura científica en (PubMed, Cochrane library y LILACS). Se presentan diferentes modelos de telesalud y telemedicina implementados en el manejo del paciente con epilepsia y se describen los principales beneficios en terminos de aceptabilidad, costos y resultados clínicos.
Conclusiones:
La investigación actual de estos modelos de atención para el manejo del paciente con epilepsia tiene el potencial de reducir de forma efectiva la brecha de diagnóstico y tratamiento, con posibilidad de reducir los costos en la atención tanto para las instituciones, el sistema de salud, los pacientes y sus familias e integrar de forma armónica la educación en el autocontrol de la enfermedad, demostrando que existe una necesidad de un enfoque más personalizado para estimular el uso de estas herramientas.
... The world has changed tremendously during the past decade in terms of communication. In high income countries most people own mobile phones [1], and the low income countries are not far behind [2][3][4][5]. As well as talking to and messaging each other, the phone is becoming a substitute for timetables, newspapers and calendars. ...
Background
Mobile technology has opened opportunities within health care and research to allow for frequent monitoring of patients. This has given rise to detailed longitudinal information and new insights concerning behaviour and development of conditions over time.Responding to frequent questionnaires delivered through mobile technology has also shown good compliance, far exceeding that of traditional paper questionnaires. However, to optimize compliance, the burden on the subjects should be kept at a minimum.In this study, the effect of using fewer data points compared to the full data set was examined, assuming that fewer measurements would lead to better compliance. Method
Weekly text-message responses for 6 months from subjects recovering from an episode of low back pain (LBP) were available for this secondary analysis. Most subjects showed a trajectory with an initial improvement and a steady state thereafter.The data were originally used to subgroup (cluster) patients according to their pain trajectory. The resulting 4-cluster solution was compared with clusters obtained from five datasets with fewer data-points using Kappa agreement as well as inspection of estimated pain trajectories. Further, the relative risk of experiencing a day with bothersome pain was compared week by week to show the effects of discarding some weekly data. ResultsOne hundred twenty-nine subjects were included in this analysis. Using data from every other weekly measure had the highest agreement with the clusters from the full dataset, weighted Kappa = 0.823. However, the visual description of pain trajectories favoured using the first 18 weekly measurements to fully capture the phases of improvement and steady-state. The weekly relative risks were influenced by the pain trajectories and 18 weeks or every other weekly measure were the optimal designs, next to the full data set. ConclusionsA population recovering from an episode of LBP could be described using every other weekly measurement, an option which requires fewer weekly measures than measuring weekly for 18 weeks. However a higher measuring frequency might be needed in the beginning of a clinical course to fully map the pain trajectories.
