Annette Majnemer's research while affiliated with McGill University Health Centre and other places
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Publications (293)
Purpose
To strengthen the translation of evidence to actionable policy, stakeholder engagement is necessary to synthesize, prioritize and contextualize the academic research content into accessible language. In this manuscript we describe a multi-level evidence-based stakeholder consultation process and related outcomes proposed to promote awarenes...
Background
The CHILD-BRIGHT Network, a pan-Canadian childhood disability research Network, is dedicated to patient-oriented research, where numerous stakeholders, including patient-partners, researchers, and clinicians are involved at different levels. The Network is committed to continuously improving the level of engagement and partnerships’ impa...
Introduction
Executive function deficits and adverse psychological outcomes are common in youth with congenital heart disease (CHD) or born preterm. Association white matter bundles play a critical role in higher order cognitive and emotional functions and alterations to their microstructural organization may result in adverse neuropsychological fu...
Introduction
Children with cerebral palsy (CP) participate less in physical activities and have increased sedentary behaviour compared with typically developing peers. Participate CP is a participation-focused therapy intervention for children with CP with demonstrated efficacy in a phase II randomised controlled trial (RCT) to increase perceived p...
Background
The CHILD-BRIGHT Network created a parent peer mentor (PPM) role to support other parents who were engaging as partners in the different research projects and activities of the network. We aim to describe how a PPM functioned to support parent-partners of children with disabilities in research projects within the Network.
Methods
In thi...
Objective:
To characterize the psychological well-being, everyday functioning, and autonomy of emerging adults with congenital heart disease (CHD) and explore how they relate to the executive function (EF) deficits commonly observed in this population.
Study design:
Questionnaires assessing psychological well-being (encompassing psychosocial fun...
UNSTRUCTURED
Families of individuals with neurodevelopmental disabilities or differences (NDDs) often struggle to find reliable health information on the web. NDDs encompass various conditions affecting up to 14% of children in high-income countries, and most individuals present with complex phenotypes and related conditions. It is challenging for...
Families of individuals with neurodevelopmental disabilities or differences (NDDs) often struggle to find reliable health information on the web. NDDs encompass various conditions affecting up to 14% of children in high-income countries, and most individuals present with complex phenotypes and related conditions. It is challenging for their familie...
BACKGROUND
Children with disabilities face numerous challenges in accessing health services. Mobile health (mHealth) is an emerging field that could significantly reduce health inequities by providing more accessible services. Many mobile applications (mobile apps) incorporate gamification elements such as feedback, points, and stories to increase...
Background:
Parents of children with CHD face several barriers when trying to access the services needed to support their child's development. In fact, current developmental follow-up practices may not identify developmental challenges in a timely manner and important opportunities for interventions may be lost. This study aimed to explore the per...
Background
Little is known about patient engagement in the context of large teams or networks. Quantitative data from a larger sample of CHILD-BRIGHT Network members suggest that patient engagement was beneficial and meaningful. To extend our understanding of the barriers, facilitators, and impacts identified by patient-partners and researchers, we...
Background
Participation in the community is a fundamental human right for children with disabilities and is a key component of their health and development. Inclusive communities can enable children with disabilities to participate fully and effectively. The Child Community Health Inclusion Index (CHILD-CHII) is a comprehensive assessment tool dev...
Background:
To promote and ensure coaches' fidelity in delivering an online health coaching program to parents of children with suspected developmental delay, we developed and implemented a novel coaching fidelity rating tool, CO-FIDEL (COaches Fidelity in Intervention DELivery). We aimed to (1) Demonstrate CO-FIDEL's feasibility in evaluating coa...
Aim
To determine the level of evidence for the effectiveness of telerehabilitation against comparison interventions in improving child- and parent-related outcomes in children and youth with developmental disabilities.
Method
A systematic approach, comprised of a comprehensive search; transparent study selection, data extraction, quality assessmen...
Background
Participation in the community is a fundamental human right for children with disabilities and is a key component of their health and development. Inclusive communities can enable children with disabilities to participate fully and effectively. The Child Community Health Inclusion Index (CHILD-CHII) is a comprehensive assessment tool dev...
Background
Children’s exposure to toxic stress (e.g., parental depression, violence, poverty) predicts developmental and physical health problems resulting in health care system burden. Supporting parents to develop parenting skills can buffer the effects of toxic stress, leading to healthier outcomes for those children. Parenting interventions tha...
Background:
Youth with congenital heart disease (CHD) are at high risk for a range of developmental impairments that become evident at different times across childhood and adolescence. This study aimed to explore the experiences, needs and preferences of youth with CHD with respect to their developmental follow-up across childhood.
Methods:
Inte...
Background:
Vitamin D status during pregnancy, early childhood and season-at-birth are implicated in gross motor development (GMD).
Aim:
To test whether vitamin D intake in infancy and season-at-birth affect GMD in early childhood.
Study design:
3-year follow up study of a single-center trial.
Subjects:
Healthy infants (n = 116) were allocat...
Aims:
Developmental Coordination Disorder (DCD) is a chronic condition affecting motor coordination in daily activities. While motor difficulties are well documented in this population, it is unclear how frequent and to what extent academic activities are affected. This systematic review aims to comprehensively summarize the knowledge regarding th...
Aims:
To synthesize evidence on the impact of context-based interventions on the participation of children with disabilities in the community.
Methods:
A systematic review was conducted using the American Academy for Cerebral Palsy and Developmental Medicine Guidelines for systematic reviews. Seven databases were searched; articles included were...
BACKGROUND
Participation of children with disabilities in leisure activities is a key determinant of their physical and mental health. The COVID-19 pandemic has limited participation in leisure activities for all children, but in particular, for children with disabilities. As a result, children with disabilities may be less active while feeling mor...
Background:
Participation of children with disabilities in leisure activities is a key determinant of their physical and mental health. The COVID-19 pandemic has limited participation in leisure activities for all children, in particular, for children with disabilities. As a result, children with disabilities may be less active while feeling more...
Monitoring neighbourhood-level access to resources can inform improved urban health. Big data approaches have shown some promise in capturing access to spatial resources such as green spaces, housing, amongst others. However, it is often difficult to capture resources that are not spatially observable such as programmes. For this project, we linked...
Background:
Addressing barriers in the environment can contribute to health and quality of life for children with disabilities and their families. The Community Health Inclusion Index (CHII) is a measurement tool developed in the United States to identify environmental barriers and facilitators to community health inclusion. The CHII adopts an adu...
Participation is a human right and a key component of health and development in children with disabilities. Inclusive communities and environments facilitate participation. Currently, there are no measures that comprehensively assess the inclusion of children with disabilities in Canadian communities. This study aims to establish the content validi...
Background
Developmental follow-up is central to the timely identification of delays in at-risk children. Throughout Canada, data are currently lacking on the follow-up of children with congenital heart disease (CHD) after open-heart surgery. The objective of this study was to describe current Canadian developmental follow-up practices and to explo...
Background:
Rapid advances in technologies over the past 10 years have enabled large-scale biomedical and psychosocial rehabilitation research to improve the function and social integration of persons with physical impairments across the lifespan. The Biomedical Research and Informatics Living Laboratory for Innovative Advances of New Technologies...
UNSTRUCTURED
The Biomedical Research and Informatics Living Laboratory for Innovative Advances of New Technologies in Community Mobility Rehabilitation (BRILLIANT) program to provide evidence-based research to improve rehabilitation for individuals with Acquired Brain Injury (ABI: traumatic brain injury [TBI], cerebral palsy-fetal/perinatal brain i...
To assess the association between time of birth and mortality among preterm infants.
Population-based study of infants born 22–36 weeks gestation (GA) in Canada from 2010 to 2015 (n = 173 789). Multivariable logistic regression models assessed associations between timing of birth and mortality.
Among infants 22–27 weeks GA, evening birth was associ...
The COVID-19 pandemic has impacted the lives and well-being of all people globally, with consequences being observed across all domains from physical and mental health, to education and employment outcomes, to access to community supports and services. However, the disproportionate impact of the COVID-19 pandemic and its associated public health re...
BACKGROUND
Participation in leisure activities is essential for child development and a human right as per the United Nations Convention on the Rights of the Child. Children with disabilities face several restrictions when participating in leisure activities as compared to same age peers without disabilities. Access to information about accessible,...
Background:
Participation in leisure activities is essential for child development and a human right as per the United Nations Convention on the Rights of the Child. Children with disabilities face several restrictions when participating in leisure activities as compared to same age peers without disabilities. Access to information about accessibl...
Background:
Chatbots have been increasingly considered for applications in the health care field. However, it remains unclear how a chatbot can assist users with complex health needs, such as parents of children with neurodevelopmental disorders (NDDs) who need ongoing support. Often, this population must deal with complex and overwhelming health...
BACKGROUND
Chatbots have been increasingly considered for applications in the health and social care fields. Currently, it remains unclear how a chatbot could engage users coping with complex health needs, such as parents of individuals with neurodevelopmental disorders (NDDs), who often need frequent and ongoing support. One approach to enhancing...
Background: Being a parent of a child with a developmental disability (DD; e. g., cerebral palsy, autism) comes with great challenges and apprehensions. Mothers and fathers of children with DD are experiencing heightened levels of psychological distress, physical health problems, financial difficulties, social isolation, and struggles with respect...
Lo que este artículo añade
Los investigadores y los padres‐asesores reportaron un compromiso del paciente exitoso y benéfico.
Los facilitadores tomaron en cuenta la diversidad y el compromiso de los miembros, la comunicación, la asociación y los apoyos.
Las barreras para el compromiso fueron reportadas principalmente por padres‐asesores en lugar de...
Objective: Information regarding the impact of COVID-19 in children with brain-based disabilities, or those at risk of developing such conditions, remains scarce. The objective was to evaluate if children with brain-based disabilities are more likely to (1) develop COVID-19, (2) develop complications from the disease, and (3) to have a poorer progn...
Background
Patient and public engagement (PPE) in research is growing internationally, and with it, the interest for its evaluation. In Canada, the Strategy for Patient-Oriented Research has generated national momentum and opportunities for greater PPE in research and health-system transformation. As is the case with most countries, the Canadian re...
Aim
To evaluate patient engagement processes in the development of a new health coaching intervention for parents of children with suspected developmental delays.
Method
A cross‐sectional mixed‐method study design was used. Researchers (n=18) and patient‐partners (n=9) were surveyed using the Public and Patient Engagement Evaluation Tool (PPEET) i...
Context:
With improvements in survival rates in newborns with congenital heart defects (CHDs), focus has now shifted toward enhancing neurodevelopmental outcomes across their life span.
Objective:
To systematically review the prevalence and extent of motor difficulties in infants, children, and adolescents with CHD requiring open-heart surgery....
Objective
To describe complementary and alternative medicine (CAM) use amongst children with cerebral palsy (CP) in Canada and to identify factors associated with CAM use.
Methods
We conducted a cross-sectional study, utilising data from the Canadian CP Registry. We explored the association between CAM use and regional, socioeconomic and CP phenot...
BACKGROUND
The gap between research and its practical application in community settings limits its impact on public health. Closing this gap has the potential to improve the well-being of underserved groups, such as children with disabilities. Mobile health holds promise in closing this gap by helping underserved populations build community and imp...
Background
The gap between research and its practical application in community settings limits its impact on public health. Closing this gap has the potential to improve the well-being of underserved groups, such as children with disabilities. Mobile health has the potential to improve access to community resources and support for underserved popul...
Background and purpose:
Congenital heart disease is a leading cause of neurocognitive impairment. Many subcortical structures are known to play a crucial role in higher-order cognitive processing. However, comprehensive anatomic characterization of these structures is currently lacking in the congenital heart disease population. Therefore, this st...
Objectives:
Children with congenital heart disease are at high risk for developmental sequelae. Most studies focus on preoperative and intraoperative predictors of developmental impairment, with less attention to the postoperative period. The relationship between patient-related factors specific to the postoperative course in the PICU following ca...
Participation in physical and leisure activity opportunities is critical to the health and wellbeing of children. However, resources and policy interventions that can facilitate participation are usually limited for children with disabilities and their families. Decision-makers can benefit from research evidence to inform the development of program...
Background
The prevalence of symptomatic COVID-19 in children remains low to date. In just a few months, COVID-19 has affected millions of people worldwide, and as of the date of this publication, the pandemic continues. Based on the current available evidence, children do not appear to be at higher risk of contracting COVID-19 than adults. However...
Youth with neurologic conditions experience multiple life transitions. The transfer from pediatric to adult health care systems exemplifies one such complex and multifaceted transition that occurs in parallel with developmental, legal, and social changes that may influence the roles and responsibilities of youth and their caregivers. As a result, e...
Objectives:
To describe current physician referral practices with respect to age at referral to medical specialists for initial diagnosis of cerebral palsy (CP) and rehabilitation specialists for intervention and to identify factors associated with delayed referral.
Study design:
National environmental scan of 455 children diagnosed with CP who...
Aim
To describe leisure participation in adolescents with congenital heart defects (CHD) and identify factors associated with intensity of participation.
Method
Eighty adolescents with CHD were recruited (39 males, 41 females; mean age [SD] 15y 8mo [1y 8mo] range 11y 5mo–19y 11mo) of whom 78 completed the Children’s Assessment of Participation and...
Background:
Children and adolescents with neurodevelopmental disabilities may be less well integrated into their community than their peers. Online groups can be particularly accessible for individuals with neurodevelopmental disabilities, as individuals may be able to connect with a larger network than they would in their local community. This sy...
Background:
White matter alterations have previously been demonstrated in adolescents born with congenital heart disease (CHD) using diffusion tensor imaging (DTI). However, due to the non-specific nature of DTI metrics, it is difficult to interpret these findings in terms of their microstructural implications. This study investigated the use of n...
Background:
The ability to definitively diagnose cerebral palsy (CP) at 18-24 months is unknown.
Aims:
To describe very preterm children who, at 19 months, have suspected CP defined as neither having a definitive diagnosis of CP nor no CP and compare them with children with and without CP.
Study design and methods:
Longitudinal national cohort...
Background: In preschool-aged children with, or at elevated risk for, developmental disabilities, challenges and needs arise from vulnerabilities linked to critical and newly emerging cognitive, speech, motor, behavioral, and social skills. For families, this can be a stressful period as they witness the gradual unfolding of their child's differenc...
Date Presented 04/04/19
This study demonstrates the effectiveness of a novel, client-centered OT intervention, named PREP, for improving the participation of youth with disabilities. By removing environmental barriers, OTs enabled 28 youth to successfully take part in the activities they identified, such as shopping with friends, riding a bike, and...
Background:
The early identification of cerebral palsy (CP) in the primary care context is often problematic and referral for diagnosis often delayed. This study aimed to identify clinical features associated with the early detection of CP that can be used by the primary care provider.
Methods:
We performed a scoping review by searching six elec...
Introduction to the Empowering Steps Movement Therapy® (V2.0) Motor Scale.
Background: Developmental and behavioral issues often limit the participation of children with neurodevelopmental disabilities (NDD) in community-based activities with their peers, which decreases opportunities for their social learning and development. Parents of children with NDD seek out programs that address physical and psychosocial developmen...
Overview of the ESMT program.
ESMT scientific protocol: visual representation.
There is a high prevalence of neurodevelopmental impairments in individuals living with congenital heart disease (CHD) and the neural correlates of these impairments are not yet fully understood. Recent studies have shown that hippocampal volume and shape differences may provide unique biomarkers for neurodevelopmental disorders. The hippocampus is...
Objectives
To develop expert-informed content regarding the early motor attributes of cerebral palsy (CP) that should prompt physician referral for diagnostic assessment of CP, as well as concurrent referral recommendations. This content will be used in the creation of knowledge translation (KT) tools for primary care practitioners and parents.
Me...
Aim
To establish international expert recommendations on clinical features to prompt referral for diagnostic assessment of cerebral palsy (CP).
Method
An online Delphi survey was conducted with international experts in early identification and intervention for children with CP, to validate the results obtained in two previous consensus groups with...
Aim
To determine the level of evidence on the effectiveness of health coaching for parents of children with disabilities.
Method
A systematic review approach, comprised of a comprehensive, librarian‐guided literature search; transparent study selection and data extraction; quality assessment; and synthesis of sufficiently similar data (per populat...
Dual tasking is an integral part of everyday activities for children. Therefore, as with the other aspects of child development—motor, cognitive, perceptual, psychological, and behavioral—it is important to understand the maturation process of dual-tasking skills in children. Characterizing age-related changes in children’s dual-task performance ha...
Objective:
To compare cognitive, motor, behavioral, and functional outcomes of adolescents born with a congenital heart defect (CHD) and adolescents born preterm.
Study design:
Adolescents (11-19 years old) born with a CHD requiring open-heart surgery during infancy (n = 80) or born preterm ≤29 weeks of gestational age (n = 128) between 1991 and...
Aim
To identify characteristics of young children with cerebral palsy (CP), and intrinsic and extrinsic factors, that may be associated with parental perceptions regarding family‐centred health care services.
Method
We conducted a cross‐sectional study, drawing our sample from the Canadian Cerebral Palsy Registry (CCPR). Parents rated the extent o...
Aim
This study sought to: (1) determine what is known about age at referral for diagnosis and rehabilitation services for children suspected of having cerebral palsy (CP); and (2) identify factors associated with earlier referral.
Method
A scoping review was conducted to summarize existing literature. We systematically searched Allied and Compleme...
Objectives:
To examine the feasibility and acceptability of a PICU Soothing intervention using touch, reading, and music.
Design:
Nonblinded, pilot randomized controlled trial.
Setting:
The PICU and medical-surgical wards of one Canadian pediatric hospital.
Patients:
Twenty PICU patients age 2-14 years old and their parents, randomized to an...
AIMS
To characterize health-related quality of life (HRQOL) in patients with genetically determined leukoencephalopathies as it relates to the severity of clinical features and the presence/absence of a precise molecular diagnosis.
METHOD
HRQOL was assessed using the Pediatric Quality of Life Inventory (PedsQL) model (Pediatric Quality of Life Inve...
Aim:
This study examined the effectiveness of the Pathways and Resources for Engagement and Participation (PREP) intervention in improving the participation of adolescents in community-based activities.
Method:
Twenty-eight adolescents (14 males, 14 females), aged 12 to 18 years (mean 14y 6mo, SD 21.6mo) with moderate physical disabilities parti...
Aim:
This historical cohort study describes the use of educational and rehabilitation services in adolescents born preterm or with a congenital heart defect (CHD).
Method:
Parents of 76 young people (mean age 15y 8mo [SD 1y 8mo]) with CHD and 125 born ≤29 weeks gestational age (mean age 16y [SD 2y 5mo]) completed a demographics questionnaire inc...
Background:
Intensive upper extremity training (IUET) has demonstrated efficacy in clinical and functioning outcomes in children with hemiplegia. However, implementation in the clinical context requires novel service models and knowledge translation.
Aims:
To map implementation of IUET in Canada, to identify factors associated with the implement...
The aim of this literature search was to identify nature and extent of the evidence supporting the development of dual tasking skills in typically developing children. We systematically searched PsycINFO, Ovid and Pubmed for studies evaluating dual task performances of children and adolescents < 18 years of age. 31 studies published in English from...
Objective:
To create guidelines focused on the use of structured physical activity (PA) in the management of juvenile idiopathic arthritis (JIA).
Data sources:
A systematic literature search was conducted using the electronic databases Cochrane Central Register of Controlled Trials, Medline (Ovid), EMBASE (Ovid), and Physiotherapy Evidence Datab...
Purpose:
Little is known about the physical activity of adolescents born prematurely. This study aimed to: 1) describe relationships between moderate to vigorous physical activity (MVPA) in adolescents born prematurely and various factors and, 2) compare their MVPA level to guidelines.
Methods:
A secondary analysis was performed using data from...
Aim:
To examine participation-preference congruence, regional differences in participation-preference congruence, and predictors of whether children with cerebral palsy participate in preferred activities.
Method:
The sample (n=236) included 148 males and 88 females aged 10 to 13 years, living in Victoria, Australia (n=110), Ontario (n=80), or Q...
Objectives
Identify determinants of neurodevelopmental outcome in preterm children.
Methods
Prospective national cohort study of children born between 2009 and 2011 at <29 weeks gestational age, admitted to one of 28 Canadian neonatal intensive care units and assessed at a Canadian Neonatal Follow-up Network site at 21 months corrected age for cer...
Objective
This study aimed to describe relationships between the time adolescents born extremely prematurely spend in moderate-to-vigorous physical activity (MVPA) and selected sociodemographic, prematurity and co-morbidity factors.
Material/patients and methods
Participants were 64 adolescents, 16.1 ± 2.5 years old (57.8% girls), who were born <...
Stroke rehabilitation is a progressive, dynamic, goal-orientated process aimed at enabling a person with impairment to reach their optimal physical, cognitive, emotional, communicative, social and/or functional activity level. After a stroke, patients often continue to require rehabilitation for persistent deficits related to spasticity, upper and...
Purpose:
Community participation is restricted for youth with disabilities. The mall is an important gathering place where adolescents often socialise and develop community living skills, yet participation may be restricted. The aim of this study was to evaluate the facilitators and barriers to participation in a shopping mall through the perspect...
Introduction Participation in leisure activities is beneficial for children's health and development, including those living with Autism Spectrum Disorder (ASD). Available syntheses of knowledge about participation have focused primarily on children with physical disabilities; however, little attention is directed to children with ASD. The purpose...
Background
While participation in leisure activities is beneficial to youth’s health, little is known about effective intervention strategies to promote participation.
Purpose
The aim of this study was to examine the effectiveness of environment-based interventions on participation of youth with physical disabilities.
Method
Six adolescents ages...
With increasing age, youth with disabilities are at risk for decreased participation in leisure activities, a key component for physical and mental health. This prospective study describes changes in leisure participation and leisure preferences from school-age to adolescence in children with cerebral palsy (CP). Participants were recruited at scho...
In addition to benefits for bone health, vitamin D is implicated in muscle function in children and adults.
To determine if vitamin D dosage positively correlated with gross motor development at 3 and 6 months of age. We hypothesized that higher doses would be associated with higher scores for gross motor skills.
A consecutive sample of 55 healthy,...
This study describes current practices in the age at referral for diagnosis of cerebral palsy and factors that influence earlier referral.
Retrospective chart review (2002-2012).
Of 103 children referred for diagnosis, 81 were referred to a neurologist by other medical specialists at a mean of 13.6 ± 15.7 months, whereas primary care providers refe...
To describe leisure activities of children and adolescents with juvenile idiopathic arthritis (JIA) in terms of diversity, intensity, and enjoyment, and to identify potential determinants.
One hundred seven children and adolescents aged 8-17 years diagnosed with JIA and their families participated in this cross-sectional study. Participants answere...
To describe the level of participation in leisure activities among children and youth with arthritis, as well as to identify the sociodemographic (age, sex, family income), disease-related (functional limitations, disease duration, pain, medication use, child's need for assistance), and contextual factors (use of rehabilitation services, proximity...
Introduction
Participation in leisure activities is beneficial for children’s health and development, including those living with Autism Spectrum Disorder (ASD). Available syntheses of knowledge about participation have focused primarily on children with physical disabilities; however, little attention is directed to children with ASD. The purpose...
The aim of this systematic review is to describe participation in social and physical leisure activities among children and adolescents with JIA, as well as identify potential determinants of leisure participation.
Methods
Electronic databases were systematically searched for articles published up until June 2013 pertaining to participation in lei...
Citations
... The survey was created in This feedback led to the latest version of the PPEET published in 2018. Due to its wide usage, there is a rich literature validating the tool for different cultures and settings thereby improving its applicability to assessing partnerships in range of circumstances [27][28][29][30]. ...
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... Frontiers in Pediatrics follow-up care. Participants in our study highlighted many barriers which are consistent with those reported in other countries such as lack of a skilled, specialist workforce (11,12), limited funding and resources (11,12,(28)(29)(30), variable health provider knowledge and awareness (14,31), burdening of families (14,28,32,33), living distant from care (34,35), family socioeconomic status (34), lack of systematic process and pathways (12) and a disconnect across different healthcare settings (11,12). In particular, the challenge of adequately funding neurodevelopmental follow-up, both at a program/service and system level was shared internationally. ...
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... This understanding has led to the endorsement of initiatives like the World Health Organization's "Patients for Patient Safety" program, which fosters collaboration between patients and healthcare stakeholders to fortify patient safety. By leveraging advocacy and partnership, such programs aim to cultivate a healthcare environment where patient engagement is not only encouraged but recognized as an essential element of safety and quality improvement strategies (2,3,7,11,12). The cumulative effect of these measures reflects a multifaceted strategy for enhancing patient safety, underscoring the necessity of regulatory adjustments, active patient participation, and collaborative endeavors among healthcare providers. ...
... Key considerations for service provider organisations when implementing synchronous digital technologies in disability services are presented in Table 3. Online delivery offers the opportunity to develop an innovative and distinct programme of services and supports, in collaboration with people with disabilities, that uniquely address the diverse needs of service users. Previous studies reported similar benefits of online services for people with disabilities [11,17,24,25]. In particular, our findings and others [17] highlight the benefit of using technologies to implement services in a group format, which allowed people to develop social connections. ...
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... Although research on pediatric telehealth rehabilitation services existed before the COVID-19 pandemic, there has been a surge in telehealth 1 studies following the large-scale shift to this service delivery model (Ogourtsova et al., 2023;Önal et al., 2021). The American Occupational Therapy Association (AOTA, 2020) lists six ethical principles 2 of therapy provision: beneficence, non-maleficence, autonomy, justice, veracity, and fidelity. ...
... Actualmente una de las vías a tener en cuenta para conseguir esta reducción es la mejora de la reflexividad de los padres. 46 Diferentes investigaciones han mostrado que la pérdida parental o el abuso no resuelto son un factor de riesgo muy sustancial para adquirir una mayor vulnerabilidad a afectaciones psicopatológicas de forma general [47][48] . ...
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... 46 Consequently, it is crucial that children who undergo more frequent or extensive developmental assessment experience positive benefits that outweigh any additional burden such as time off school or work, financial costs, or stress. 68 Unfortunately, research into the long-term neurodevelopmental trajectories of children with CHD who have access to structured follow-up is lacking. However, this review provides evidence that these programmes appropriately support parents, and route children and families to needed intervention services. ...
... Berdasarkan kajian kategori metode dan jenis penelitian, satu artikel menggunakan penelitian campuran yaitu kualitatif dan kuantitatif (Dinkel & Snyder, 2020), berikutnya satu artikel menggunakan penelitian kualitatif dengan panel cross-lagged (Martzog & Suggate, 2022). Selanjunya terdapat dua artikel yang menggunakan penelitian kuantitatif (Liang et al., 2022;Weiler et al., 2022), dan satu artikel menggunakan penelitian kuantitatif comparison study (Chien et al., 2021). Kemudian tiga artikel menggunakan kuantitatif dengan cohort study (Jarvis et al., 2021) Tsai et al., 2023). ...
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... Bui et al. (30) , 2022 ...
... Despite the heterotopic nature of this comorbidity, Nicolson and Fawcett [5] assumed that a deficit in the procedural memory system could subtend altogether the impaired cognitive, motor, and linguistic abilities. Several meta-analyses published in the past ten years are in line with this view, and have concluded that procedural learning was frequently impaired in neurodevelopmental disorders [7][8][9][10][11]. In DCD, Biotteau et al. ...
